My U/S and 2 Mamograms have come back with "extrememly dense breast tissue" . My PCM referered me to a OG/GYN and he did a punch biopsy of the breast skin, not the nipple in June 09 and it came back 'prolific lymphositic cells' and he said I was fine. I asked for a refferal to a specialist and my PCM agreed and her referred me to a OB/GYN at Scott &White who ordered the 2nd Mamogram and the U/S. The radiologist said he did not see anything but breast tissue and I had very dense breasts I was fine. So I came home and looked up Dense breast tissue, since that seemed an odd term to me. And I now know it is extrememly diificult to see cancer through dense breast tissue. Any way I went back to the OB/Gyn and said my symptoms were continueing and also at times my breast felt very warm to the touch and I have discomfort in the shower. They have now reffered me to a breast sx, I go November 24. I know that from the internet IBC is agreessive, and Pagets rash is nasty, anyone else had these symptoms for this long?
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flash Joined: Oct 2007 Posts: 655 |
Nov 1, 2009 07:45 pm
flash wrote:
Pain is not usually a symptom of pagets. The itching can be rash or something else. the percentages are on your side for it being something other than cancer. Paget's is one of the cancer's I had. Yes, the itching went on for 2 years before it was finally identified. You are doing the correct things by going to a SX. If you want to finally know if it's pagets, you have to have a biopsy of the nipple tissue. do make sure the pathologist is experienced. It's pretty uncommon as a type of cancer so sometimes pathologists are not familiar with it. I hope that this proves to be just an annoying rash. Good luck. dcis, idc, pagets er+,pr+ her2+++
Diagnosis: 10/10/2007, Paget's, Grade 3, ER+/PR+, HER2+ |
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jladylake16… Joined: Nov 2009 Posts: 2 |
Nov 1, 2009 07:57 pm
jladylake16 wrote:
The sx I am seeing is the breast Specialist in the Oncology department at a major hospital, so I am pretty confident she will be knowledgable. The biopsy on my breast was only ythe surface tissue last time, how invasive it a biopsy of the nipple? |
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Gg08 Joined: Aug 2008 Posts: 669 |
Nov 2, 2009 05:34 am
Gg08 wrote:
You could ask them to send you for MRI of your breasts... they lay you on your stomach and your breasts go through the special table that has holes in it... my MRI did show some suspicious area of my right breast... which turned out to be IBC. Dense breasts are also at high risk for getting breast cancer. Pagets does have burning to it, but the warmth & pain is mostly associated IBC. Sense you suspect IBC, I'd call the surgeon's office and tell them you suspect IBC and know how aggressive it is... Nov 24 is 3-1/2 weeks away and that is a long time if it's IBC... my oncologist called the surgeon for me while I was in his office to do the biopsy STAT. Praying you do not have cancer. -Bonnie Bonnie-IBC 03/2008,4/18nodes,ER+PR+Her2-,God is good
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