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Nov 9, 2010 10:17AM, edited Aug 20, 2013 06:08AM
well- here's the short version for all of you: i've been demanding to be heard, and ultimately had to pay for a biopsy myself due to it being "unnecessary to further treat with no typical symptoms of breast cancer." (read.....REGULAR breast cancer) i get my biopsy "results" back today from the "specialist" who told me "it's probably not IBC, because IBC starts in the NIPPLE." yes- you read that right. i picked my results up at the end of last week because i didn't want to wait until today (good grief!) to find out what's up. unfortunately, the medical terminologies are beyond me. FORTUNATELY, my aunt is a pathologist, although admittedly only "somewhat familiar" with IBC. She DID however state (not sure if this is true) that the IBC cells are "distinctly different" than regular BC cells. IF that is true, it is entirely possible that my "specialist" (notice how i keep putting him in quotes? haha) didn't tell the pathologist to SPECIFICALLY look for ibc cells, and he not finding any if he's not looking for them, said there is no breast cancer.
I WAS however able to see on my report that there shows inflammed cells right under my skin, and also cells that are falling apart. they know it's NOT a fungal infection (which my gp prescribed cream for even AFTER the skin scrape came back negative), not a bacterial infection, and not a virus. it says that it may be some sort of autoimmune disease, but they're not entirely sure. so that's just GREAT. (sarcasm)
and the gp doc that would NOT refer me originally suddenly "cares" about me and wants to know my results! (yes the results of the biopsy he would not refer me for. makes complete sense, right?) they were pretty much demanding my "specialist" give them the results, and thank God (once at least) for HIPA! the base claims that since they're my medical facility, they have the right to those results!!! (uh...>DERRRRR>>>>>NO? anyone could say that then!) but the biopsy office is holding strong, telling them "no referral, no results." HA!
(didn't i say this was the short version?- sorry!) so i ticked off the base doctors so much (i think the truth is they realize they were wrong and could be in BIIIIIG trouble if they don't get me back "in the system") that the CHIEF OF MEDICINE of the base hospital wants to meet with me to "discuss my results". i think i'm going to demand them put IN WRITING that if the results show that something is indeed wrong- no matter WHAT IT SAYS IT IS, they MUST refer me to as MANY specialists as it takes to figure out the TRUE problem. THEN and ONLY then, will i share my results. hhhhhhhhhhhhhhh.....
meanwhile, my "rash" is getting bigger and spreading out in an odd pattern, if you will. when i lift up my breasts the same on each side (they're huge so i thought "what would they look like at a normal level?) and the nipple on the affected breast has inversion. i have been having a lot of soreness and pain in that breast as well. hope i'm not causing this from all my worry.