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« Forum: Breast Prostheses and Reconstruction Alternatives: Opting out of breast reconstruction? Discuss prostheses, swimsuits, bras, etc.

Topic: What's involved with a fitting?

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  • Posted on: Apr 15, 2008 01:57 pm, edited Jun 26, 2009 09:34 AM by yellowrose
Joined: Oct 2007
Posts: 831
yellowrose wrote:

I hve searched through some threads but can't find anything about the fitting process.   I'm thinking that the way it is being done in my area can't be standard.  It's way too stressful.  My hospital sends me to a cancer center 30 miles away who does the fitting, then sends me to a medical supply place for the protheses who then sends me back to the cancer center. ?????  This can't be right....

I would really like to get the abc's for a proper fitting consultation. I'm concerned that somewhere along this stupidly convoluted system, if I don't understand the process, I'm in trouble.

You gain strength, courage and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I have lived though this horror. I can take the next thing that comes along.' Eleanor Roosevelt

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crazydaisy
On
Joined: Jan 2008
Posts: 1,422
Apr 26, 2008 01:30 pm crazydaisy wrote:

Well I'm back from my fitting......went on Thursday and came home with 3 nice new bras and my form which is an Amoena Natura 1S 643 size 3. Found out my proper bra size is 38AA......LOL....pretty small! Anyway, the two ladies there were awesome. Very friendly and knowledgeable and made me feel quite comfortable. Mine is tapered towards to bottom to match my remaining breast. With the new bras and form on I look really nice, better than before actually since I never used to pay much attention to proper fit and lift and used to just wear inexpensive sports bras. Since I also have a hard time finding the proper sizes, they will also sew pockets into other items for me such as swim wear.

I found out that for me the Ontario Health Insurance pays for half the cost of the form and a bra and then our own benefits cover the rest. I can get 3 new bras every 6 months and the form can be replaced after 2 years. The ladies at the shop took care of all the forms as well, I didn't have to do a thing except walk out the door wearing my new foob. So far i'm finding it comfortable and was able to wear it all day......very long day......yesterday. I just need to get the lift and tuck down pat and positioning. I like the softness of the form and how it feels real when in a bra. I still have a bit of puffiness around the armpit area but the new bras don't irritate it as much since they are softer and fit better than my old ones. I can use it for swimming as well but chlorine will break it down faster. After that I went on a shopping spree to spoil myself and look better with my new boobie.

I waited 5 weeks which the women at the shop say was a little early but I've healed fast.

Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR-
otter
AL
Joined: Jan 2008
Posts: 3,948
Apr 26, 2008 01:37 pm otter wrote:

Viv, that's great news!  I'm glad to hear you had a happy encounter with the booby ladies.  A 38AA, eh?  That would be a hard one to find around here.  I have enough trouble finding a 36A, which is what I'm working with until I get fitted.  (Still haven't done it--I figured I'd wait 6 to 8 wks post-op, then this darn chemo thing started.)

Anyway, I like getting suggestions about specific brands and styles that work.  So far, the iron-maiden type bras are the only ones anyone has handed me to try, and I HATE THEM.  I think the leisure-types would be better.

Congratulations on finding "the new you"!

otter 


Dx 1/14/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR-, HER2-
crazydaisy
On
Joined: Jan 2008
Posts: 1,422
Apr 26, 2008 01:58 pm crazydaisy wrote:

Otter.......hahaha......they didn't call me "Flatsy Patsy" for nothing when I was young! I just never new how small till now! I figured I was 36A till I got fitted.........I just never had it quite right and found it awful to try get A sizes any where. But AA.......sheesh! She used the term "Tiny"....ah well, now that things fit right it gives me some OOMPHH!!

Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR-
yellowrose
Joined: Oct 2007
Posts: 831
Apr 26, 2008 09:22 pm, edited Jun 26, 2009 09:35 AM by yellowrose yellowrose wrote:
This Post was deleted by yellowrose.
tidepool
Joined: Feb 2006
Posts: 9
Apr 27, 2008 12:20 am tidepool wrote:

I used a fluffy right after my drains were removed and then waited a few weeks after surgery...my fluffy kept riding up and I wouldn't have a clue

til I looked down or my husband told me I was floating....you can get the bra and prosthesis and just wear it when you feel it would be a good thing.. 

crazydaisy
On
Joined: Jan 2008
Posts: 1,422
Apr 27, 2008 01:42 am crazydaisy wrote:

txgrl01

I can see how your size would be the the other end of the spectrum of very small difficult to very large difficult. WOW.....I just can't envision the very large size. Did you end up going to the Boutique to be fitted??? How is the weight of your form. I'd like to have another as backup but haven't looked into the cost of other forms yet. I would recommend anyone to go to a mastectomy boutique if there is one close enough to you. The trip would be worthwhile I would hope since it's not a trip we'll need to do to often. The one I went to was very femme and surprisingly very well stocked.....I peeked in their storage area....it was huge so, they had lots on hand and all the latest and most popular styles of bras.

Otter....the younger of the two ladies that did my fitting first asked what size I thought I was. From there she measured me around first and brought out a form according to my breast size and shape by comparison and a selection of bras to try it with. Once a bra was on with the form in place, she then measured crisscross from shoulder to nipple to make sure they were even. We went through this procedure multiple times with the form in different bras to make sure they all fit together right and that they felt and looked good. My prettiest bra is an Amoena Annabell 2126 white and has an embossed look with pretty lace across the top and up to the shoulder. The other two are ABC style 105 nude also with pretty lace accents at the start of the strap and at the cleavage with a smooth cup, and ABC style 114 nude with smooth cup, lace accent at sides and straps that can be crisscrossed at the back for halter style. Like I said before......these are nicer than anything I would have bought before. The cost for each was about the $50.00 range here.

One thing she did tell me also is that when you are buying something to make sure it fits snug to your chest so that when you hunch and lean forward somewhat it should not gap away from you. She also explained that proper weighting was important if you've had a unilateral mast to prevent back and spinal issues down the road....both sides need to match for weight.

Happy shopping ladies, hope you all find a great fitter that will help you look and feel good!

Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR-
yellowrose
Joined: Oct 2007
Posts: 831
Apr 27, 2008 06:25 pm, edited Jun 26, 2009 09:35 AM by yellowrose yellowrose wrote:
This Post was deleted by yellowrose.
Erica
Joined: Oct 2003
Posts: 1,812
Apr 27, 2008 08:04 pm Erica wrote:

txgrl01,

I'm glad you had a better experience with this fitting. You mention that 90% of the bras in your correct size are underwire, which you can't wear anymore. It's possible some of those bras would still work for you if you took out the underwires.

I had my first bc treatment in 2003--lumpectomy and radiation. I wasn't supposed to wear underwires and didn't know what to do. I was telling my mom this (she'd had lumpectomy and rads two years earlier) and she said, "Oh, I just took the underwires out of my regular bras." It had never occurred to me! I followed her advice and continued wearing my favorite Victoria Secrets bras, but without the underwires. My mom is big-breasted and didn't have any trouble going without the underwires, so hopefully that could work for you and at least give you a bigger selection of bras to choose from. To remove the underwire, I just snipped the fabric at one end and pulled it out.

Barbara 

http://breastfree.org; http://famosity.blogspot.com
12954
PA
Joined: Oct 2007
Posts: 370
Apr 28, 2008 05:27 pm, edited Apr 28, 2008 05:27 PM by 12954 12954 wrote:

Ok Viv where did you find a 36 AA. I had  my surgery right before Christmas. I went for a fitting 2 weeks later ( didn't know any better and the surgeon said it was time). I have worn a 34A since I had kids.  The mast bras in 36A would have fit 2 of me. They told me I'd need a 34AA but noone makes them. I got a form ( size 1 and just wear it inside a regular bra, when I wear a form. I recently tried the lightweight foam form, which is more comfortable and I like better, but it shifts. I wonder if I should try another place to see if anyone actually makes a bra to fit me

Trish

crazydaisy
On
Joined: Jan 2008
Posts: 1,422
Apr 28, 2008 05:47 pm crazydaisy wrote:

Trish

I guess I lucked out at the mastectomy boutique I went to in Oshawa Ontario......Elizabeths Mastectomy Boutique. They had them in stock thank goodness. They also said they would sew pockets into my own items for $10.00 per item. If your shop doesn't carry your size or can't order it in (which they should be able too), perhaps getting pockets sewn into your own is a solution for you?? Sheesh...I've gotten wider around over the years but not bustier, I can remember having to shop the junior section to get small enough bras. Happy hunting........somethings gotta come your way!

Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR-
otter
AL
Joined: Jan 2008
Posts: 3,948
Apr 28, 2008 05:55 pm otter wrote:

Aw, Viv, why did you have to go and remind me of that???

There is a decent clothing store in my town, and they have a large lingerie section. Actually, the store is part of a large chain.  Well, OK, it's Dillards.  By far the majority of bras they sell there are underwire bras (which--thanks Barbara/Erica--I guess we can "fix" by pulling the wires).  Most of the rest are for, oh, what's the term?:  "full-figured women."  My poor 36A boob is out of luck.  The only racks where they have bras even close to fitting me are racks labeled "youth" or "teen".

Being carded for buying wine in the grocery store is one thing.  Having to buy a bra off the "teen" rack at the age of 56 is a whole different thing! 

AAAARRRRRGGHHHH!

otter 


Dx 1/14/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR-, HER2-
crazydaisy
On
Joined: Jan 2008
Posts: 1,422
Apr 28, 2008 06:42 pm crazydaisy wrote:

Hey Otter......I could just pretend they were for my daughter! By the way, I never did like underwire bras and found that after a while and washes the wires would work their way out from one end so I used to yank them out once that happened. It is hard these days to find ones without, very limited for sure. Well hey...look at it this way....you can be young at 56!

Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR-
caaclark
NJ
Joined: Feb 2006
Posts: 779
Apr 28, 2008 07:39 pm caaclark wrote:

Trish,

I am pretty sure that Amoena makes 34AA bras (I think I have some of them in my large collection of bras) and I also think that Anita makes mast. bras in a 34AA.  The Amoena bras (in my opinion) run larger than other manufacturers of mast. bras so you would have to take that into consideration.  I have an ABC form that is a size 2 and that seems to fit well in most 34A mast. bras.  I have an Amoena contact form that is size 3 that fits in regular, non-underwire 34A.  I also have an Amoena contact form in a size 2 that fits equally well in a regular/non-mast. 34A.  Long story as to why I have 2 different sizes.

Carol Diag.1/06 at age 40, 1.6cm, 6+nodes, stage IIb/IIIa, er/pr+, her2-, chemo, mast. rads, no recon
ps123
Joined: Sep 2003
Posts: 697
Apr 28, 2008 08:15 pm ps123 wrote:

I did  a quick search and here are some 34AA's I came up with (hope the links work!).

http://www.metromedicalonline.com/amoena2129sp.html


http://www.womanspersonalhealth.com/products/1038/Anita-Mastectomy-Bra.htm


http://www.womanspersonalhealth.com/products/100/Classique-Mastectomy-Bra-Model-769-Smaller-Sizes-and-New-Color.htm

http://www.womanspersonalhealth.com/products/838/Seamless-Mastectomy-Demi-Bra.htm

http://www.womanspersonalhealth.com/products/42/The-T-Shirt-Mastectomy-Bra.htm

Pat

12954
PA
Joined: Oct 2007
Posts: 370
Apr 28, 2008 08:47 pm 12954 wrote:

Thanks

I'm glad to hear the Amonea can run large. I was getting kind of down about it. I never had much, but I've worn As for over 30 years. That nothing was small enough just didn't seem right. My regular bras do fit differently after surgery. It might be nice to have at least one mast bra that fix ok.

otter
AL
Joined: Jan 2008
Posts: 3,948
Apr 29, 2008 11:07 am otter wrote:

Hey, I just want to say that I totally LOVE this thread.  Thanks, txgrl, for starting it by asking the question about a "fitting"; and thanks, everybody else, for making it fun and informative!

otter


Dx 1/14/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR-, HER2-
mthomp2020
Loveland, OH
Joined: Jul 2007
Posts: 878
Apr 29, 2008 07:20 pm mthomp2020 wrote:

I'm a 36A, and I hear ya about finding something that fits!  When you've had a unilateral mast, it certainly is a challenge!

I recently bought an ABC Petite T-shirt bra on-line, and it's the best I've found so far.  Their regular T-Shirt runs on the big side, I took a 36 AA in that one, and the straps were wide and rubbed my port.  The petite T-Shirt runs pretty true to size.  The straps are narrower and all elastic, which I really like.  When you're an A or AA, you don't need the support that better endowed women do, so you don't need industrial strength bras.  I never have a problem with the straps staying up with this bra, which I do with many bras.  It has stretch foam cups, and makes up for any "discrepencies" in your remaining breast if you've had a unilateral mast. 

One problem I have is that the silicone form pulls the mast side of my bra lower than my remaining breast, and it's a lighter version.  I bought a couple of the Amoena 126's, and now I'm even.  Plus they don't make me sweat like the silicone does.  I was getting damp even in 20 degree weather, hate to think what it would have been like this summer!  If you're an A or AA, I really don't think that needing the weight to balance you is an issue!  I mean, just how much can they weigh?! 

Finding bras that work is definitely hit or miss.  My insurance only covers certain styles/makes.  There are only 2 shops that my insurance covers.  One of them only carries 1 brand of prothesis, and 2 brands of bras, and they only recently opened a branch that's a reasonable distance from me. As someone else mentioned, too many of the bras are "iron maidens", definitely overkill for someone who certainly doesn't need that kind of support.    I knew before I even started looking that it was going to be a bit of a challenge, since I checked out mast bras online to see what was being offered.  At least some of the bra manufacturers are starting to get a bit more modern in what they offer.  I mean, how many of us want to look like the yeoman from Star Trek??!!  My husband refers to that as "space tits".  Get the "point"?


Dx 5/21/2007, IDC, Stage IV, Grade 3, mets, ER-/PR-, HER2+
purplemb
Joined: Mar 2005
Posts: 2,348
Apr 30, 2008 09:44 am purplemb wrote:

good to hear from the AA group..... its been almost 4 yrs now and still "play" with the right Bra...I have abandoned the mast ones... I also have gotten away from the proth's.. too heavy, saggy in a regular Bra... I found a few cute joe  boxer bra with tiny straps, so I can wear spagetti string tops this summer... being "lopsided" has been a challenge... but finally... cute summer tops....

good luck and keep trying, you will find what works for you...

MB

Tirlie
Joined: Apr 2008
Posts: 43
May 1, 2008 08:19 am Tirlie wrote:

I got my prosthesis about 1 month after mastectomy. The fitter was a physiotherapist, spec. in bc-patients. Fitting, prosthesis + one bra was included in the operation.

I have an appointment to bc plastic surgeon 5 monts after the primary operation, so the need of the prosthesis will be very short.

caaclark
NJ
Joined: Feb 2006
Posts: 779
May 1, 2008 09:28 am caaclark wrote:

I just donated some mast. bras to the YWCA near me.  They have a Breast Cancer Resource Center that runs support groups and programs for people going through treatment.  Anyway, when I dropped them off the woman there mentioned that the bras would come in handy.  She also mentioned something about helping a woman find the right size bra and form.  So...if you have a Y in your area and you have not been able to find a fitter you may want to check them out.  Also, I know she could have recommended a fitter.

Carol Diag.1/06 at age 40, 1.6cm, 6+nodes, stage IIb/IIIa, er/pr+, her2-, chemo, mast. rads, no recon
montanagal
Joined: Feb 2008
Posts: 23
May 2, 2008 03:16 pm montanagal wrote:

I was fitted at 8 weeks.  If I was to do it again, I would have waited longer, both for my body and brain to heal more.  Previously I was a 36C and I brought my old plain jane Playtex X Your Heart with me to the fitting.  The fitter said, oh, you are so petit (5'1") you should be in a 36B.  So I got the Amoena Natura Light in that size (5).  I should have stood my ground and gotten a bigger size.  When I were them, I don't feel too bad, but my husband teases me that he liked the old size better.   When I look at myself, I would have liked the extra projection.  My joke is that I have to get my bottom half sized down to match my top half!  I was thinking of some way to put something behind the Amoena's for more projection.  Perhaps some foam panels or something to fit in a C cup mastetomy bra.  Insurance pays for new forms every two years, so I look forward to getting a bigger size then.

DCIS Grade 2, Bilateral 2-08, No Recon
Hannahbanan…
Joined: Feb 2008
Posts: 158
May 3, 2008 12:03 pm Hannahbanana wrote:

I went to be fitted at 2 1/2 weeks and was so happy to have something that was comfortable.  I was trying a bunch of home made things that were uncomfortable.  As soon as I put the Amoena it was instantly comfortable I couldn't believe it.  When I have it in and walking around because it is soft and heavy enough it feels just like me.  Now I have to find sizes for when I am getting my fills to keep up


Dx 2/7/2008, Paget's, Stage 0, Grade 3, 0/7 nodes, ER-/PR-
shar51
Joined: May 2008
Posts: 2
May 20, 2008 10:50 pm shar51 wrote:

txgrl01

Thanks so much for starting this thread-I'm at 5 weeks (tomorrow) after bilateral mastectomy, and I've been trying several things and avoiding going for a fitting.  Since I'm in central Texas and my surgeon recommended Petticoat Fair, it was really great to hear from someone else who had been there, done that. 

I am (or was) a 36C and always felt slightly top-heavy, so maybe I'll go a little smaller.  My husband disagrees, but was diplomatic to say that I looked a little 'better-proportioned' with my softee fiberfill minus some of the fiberfill!

Thanks for airing some of the concerns we all have.  I sometimes think that even great doctors and nurses deal with this so often that they forget we're a little lost. . .

Shar

Erica
Joined: Oct 2003
Posts: 1,812
May 21, 2008 08:21 am Erica wrote:

Shar,

I can really relate to your husband's comments. My husband was 100% for me NOT getting reconstruction, yet when it comes to breast forms, he always likes the bigger ones! He thinks I look best when I wear forms that make me look least as big as I was before. Smile

He's accepted my preference to be a little smaller, particularly because I find smaller forms more comfortable. But I am planning to try a bigger size in an ultra-light version--if I can be comfortable and make him happy, I may go for it! 

http://breastfree.org; http://famosity.blogspot.com
tchmuzik
Joined: Feb 2008
Posts: 83
May 29, 2008 10:57 pm tchmuzik wrote:

This thread has been very helpful but I do have a question.   I'm having a mastectomy on June 9th - four weeks later will have 6 weeks of radiation.   My breast surgeon has said that I will not be comfortable wearing a prothesis for about 4 weeks following surgery but then since I have 6 weeks of radiation he says I will not be comfortable wearing one THEN either.    I looked at him and said - "well - what am I suppose to do that whole time???"     Does anyone have any insight in to this?   I noticed some of you mentioned some little light weight forms.   I do know that they are fitting me with a camisole before I leave the hospital - that has little pockets for the drain AND has little cotton like "boobs".    Any suggestions for the time after sugery AND the time during radiation?   Oh yes - forgot to mention - I will have reconstruction about 6 months following radiation - probably around January or February.   Also - I am very active - what do you suggest to use in a swimsuit?   Do they make special "boobs" for swimming?   Any help on this would be appreciated.   Thanks so much!!

otter
AL
Joined: Jan 2008
Posts: 3,948
Jun 24, 2008 02:40 pm otter wrote:

bump--this is a very useful thread.  Do you think it would be a good "sticky"?

(The reason the page runs off the side of the screen is because it's too wide--there are some web links in a post in here that are too long for the page width.)

otter 


Dx 1/14/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR-, HER2-
robink
Colorado Springs, CO
Joined: Apr 2008
Posts: 265
Jun 24, 2008 10:22 pm robink wrote:

I went to be fitted about 4 weeks post op which turned out to be a mistake, now wish I had waited another 4 weeks.  The landscape of my operative site has gradually changed, all the swelling is gone and the size 5 I walked out of the boutique with is clearly too small.  I am not symetrical and struggle to keep the form on the side of my chest it's supposed to be on, unless I adjust the bra more then the band digs into my ribs and makes me uncomfortable.

Today I went to a different fitter, got resized and am considering a different brand.  Currently the small one is Amoena Natura Light 2s size 5.  The fitter suggested  Trulife 472 silk plus size 7.  No decision will be made until my breast surgeon writes a letter of medical neccessity for the insurance company.  Having already paid for one foob they certainly don't want to pay for a 2nd since it's been about 6 weeks, not two years.  Tomorrow I'm going to make a trip to the boutique and talk with the original fitter.  Maybe she'll work with me???

I did learn something interesting, they may pay for at least part of a custom prosthesis - it is considered a nonsurgical reconstruction.  Also if I opt for the custom form that will not alter my benefits when it comes to surgical rescontruction.  That made me feel better.

Robin K.
Dx 2/7/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR-, HER2-
otter
AL
Joined: Jan 2008
Posts: 3,948
Sep 5, 2008 06:14 pm otter wrote:

bumping up--great thread

otter 


Dx 1/14/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR-, HER2-
lightacandl…
Joined: Jul 2008
Posts: 31
Sep 5, 2008 06:57 pm lightacandle wrote:

hi, i too need info on beening fitted.  Had my surgery mid JUne...why cant we just buy a $8.00 bra (wire one) and put the protheses in???? maybe, it was already said here? Its the waiting time..qeez. I see my doc next week...i pray he says " one more week"

otter
AL
Joined: Jan 2008
Posts: 3,948
Sep 20, 2008 12:17 pm otter wrote:

bump


Dx 1/14/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR-, HER2-

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