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Feb 8, 2010 12:47am, edited Feb 8, 2010 12:48am
Thanks, everyone. I didn't realize that I should have done more than simply notify my docs and the hospital of my decision not to reconstruct; i.e., that I should have emphasized that not only did I NOT want reconstruction but that I also wanted to be left with two smooth scars and a flat chest. I assumed a smooth chest with two even scars was the standard outcome of a simple mastectomy w/o recon, and that skin sparing was only done if there was to be immediate or delayed-immediate reconstruction.
Native Mainer, I'll definitely be getting a hold of the consent form and will contact a rep at the hospital. However, I know I'm not up for a malpractice lawsuit--too long, too tedious. If they can make it right, I'll be happy.
Also, what are dog ears? I was left with what looks like quilted, puckered flesh, including one small puckered roll just below the incision on the right and a smaller version of the same on my left. They're so puckered, and the incisions so tight and close to the chest, that I was concerned a nice, flat chest, with fairly even, smooth scars just wouldn't be possible now. The skin, in some places, really feels immovable, like it's adhered to the the chest wall.
The reason given to me by my surgeon for waiting six months on a fix was that he wanted the mastectomy to heal completely, adding, "And you never know, by then, you may be fine with how it looks." I think he's hoping I'll let it go.
Turns out I may need chemo, but he wasn't aware of that, nor ever mentioned it at any of my post-op visits. I'm waiting for the oncotype and HER2 test results. Get those on the 17th of Feb, when I go back to the oncologist.
Thanks again, everyone!! I'll let you know what I find out re. the fixing the spared skin.
Dx 8/8/2009, IDC, 2cm, Stage II, Grade 3, 0/2 nodes, ER-/PR-, HER2+