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All TopicsForum: Living Without Reconstruction After a Mastectomy → Topic: Does anyone like wearing a prosthetic bra?

Topic: Does anyone like wearing a prosthetic bra?

Forum: Living Without Reconstruction After a Mastectomy — Discuss prostheses, swimsuits, bras, and other options for women not having reconstruction or waiting for reconstruction.

Posted on: Apr 16, 2011 02:52PM

Faithroad wrote:

I posted this on another thread but then they directed me here. (I'm new here and still stumbling around the site.)

So, ok yes, I'm serious.  Does anyone like their prosthetic bras?
I,m deciding to take out my implants but want to find out what ladies think of the prosthetic bras.  I hear most ladies say they don't use them and just go flat.  I think I'm too chubby for that.  my tummy would stick out.  and I work full-time in an office and need a little shape up there.

My implants are four months old and I already regret putting them in.  They are too big, heavy, sore, tight, and different sizes.  (Bad PS, I'll spare you the details) I've heard bras are heavy and hot.  But at least you can take them off at night whereas I can't take my implants off at night.  I could be the same size on each side and that would be a plus.  I'm also in a situation where due to financial changes I need to find the lowest maintenance way of handlling the DMX. Implants require further operations and money down the road when they wear out. 

So are the bras so terrible?
I want to hear good things about them, but also need to know the truth.

What are the pros and cons?

Any surprises about them, good or bad?

Anythng I should ask the PS before hand?

Are there a lot of extra scars when you are deconstructed?

Can they still tighten up the loose skin or is it too late for that?

Any adivice?

I had the implants put in without any information about what I was getting into.  It all just happened so fast. I was niave and uninformed of my options. So this time, since I found this website I'm asking around, though I hope I'm not becoming a pest..
I'm so desparate for information, I'm grateful to anyone who replies. Thank you in advance.

Gently and gratefully, 

Faithroad

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Posts 61 - 90 (127 total)

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May 11, 2011 03:41PM walker2222 wrote:

I like every ones information here.  I had BMX w/recon a year ago today.  10 days after I had a massive infection and had to take my right (tumor side) TE out.  Tried again in November and another infection so put the big stop on the recon.  Still have the left TE in and I am working with my PS office to get a surgery date at the end of the month.  I have been looking into prosthesis and like the idea of using a regular bra with the forms.  I have a foam filled one for my right side and I have just been using sports bras the attach in the back with it but moves too much.  Making my own pocket should do the trick.  I bought a mastectomy bra at the specialty store I frequent but did not like it since it was an under-wire.  Hate those.  Looking forward to more info in the future.

God grant me the Serenity to accept the things I cannot change, the Courage to change the things I can, and the Wisdom to know the difference. I had several surgries due to problem with reconstruction, had last TE remove 2011.

Dx 3/30/2010, ILC, 5cm, Stage IIIa, Grade 2, 5/10 nodes, ER+/PR+, HER2-Surgery 05/11/2010 Mastectomy (Both); Lymph Node Removal (Right); Reconstruction: Tissue expander placement (Both)Surgery 05/21/2010 Reconstruction (Right)Chemotherapy 06/23/2010 Adriamycin, Cytoxan, TaxolHormonal Therapy 10/22/2010 FemaraSurgery 11/09/2010 Reconstruction: Tissue expander placement (Right)Surgery 12/14/2010 Reconstruction (Right)Radiation Therapy 01/03/2011 ExternalSurgery 06/07/2011 Reconstruction (Left)
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May 11, 2011 07:18PM Faithroad wrote:

I used to wear underwires before my DMX and loved em.  But now with the implants (soon to be taken out)  The underwires are very painful.  ahh well.  Can't wait to be implant-free!  They're not all they're cracked up to be.  Hope I like the prosthetic bras.  I"m just assuming I will.  I know I don't like the implants.  But I know nothing is perfect, trying to stay realistic.

Bilateral BC, Ductoal & Lobular, Stage I and II.

Dx 9/2010, Stage IIb, 0/3 nodes, ER+/PR+, HER2-
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May 15, 2011 11:25PM walker2222 wrote:

Faith it is nice to know I am not the only one going through getting TE/implant out. My surgery is scheduled later this month. I am with you it is not worth the pain and discomfort. I am just having the left removed, the right was removed in December.

God grant me the Serenity to accept the things I cannot change, the Courage to change the things I can, and the Wisdom to know the difference. I had several surgries due to problem with reconstruction, had last TE remove 2011.

Dx 3/30/2010, ILC, 5cm, Stage IIIa, Grade 2, 5/10 nodes, ER+/PR+, HER2-Surgery 05/11/2010 Mastectomy (Both); Lymph Node Removal (Right); Reconstruction: Tissue expander placement (Both)Surgery 05/21/2010 Reconstruction (Right)Chemotherapy 06/23/2010 Adriamycin, Cytoxan, TaxolHormonal Therapy 10/22/2010 FemaraSurgery 11/09/2010 Reconstruction: Tissue expander placement (Right)Surgery 12/14/2010 Reconstruction (Right)Radiation Therapy 01/03/2011 ExternalSurgery 06/07/2011 Reconstruction (Left)
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May 16, 2011 05:18PM flannelette wrote:

I just bought 3 mastectomy bras, having waited - or not been able to be bothered - since 2008 (I work for myself, at home) Lo & behold, the one I started wearing (a black sports bra, no underwire) fits me perfectly, because it is the first time I've had professional help buying a bra - and is the most comfortable bra I've ever worn. And I HATE bras. When I did wear themafter MX,  I've used foobies, rolled-up socks - you name it - in my regular padded underwire bra and of course did not look the best but they were for informal situations. Now I look perfect under a t-shirt, and can wear that bra all day. what a surprise! why did I wait??? ps that is not me in the picture LOL

Dx 7/2008, IDC, 6cm+, Stage IIb, 0/6 nodes, ER+/PR+, HER2-Dx 7/20/2012, 0/6 nodesSurgery 07/30/2008 Mastectomy (Left)Chemotherapy 10/01/2008 Cytoxan, Ellence, fluorouracilRadiation Therapy 01/10/2009 ExternalHormonal Therapy 02/15/2009 ArimidexSurgery 07/20/2012 Lymph Node Removal: Axillary Lymph Node Dissection (Right)
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May 16, 2011 09:51PM Faithroad wrote:

flannelette, It's so nice to hear from you.  I've started feeling sad about my decision to have the implants taken out.  I want them out so bad, but the reality of it was scaring me a little bit today.  I hope it will be ok.  Reading your experience flannelette helps a lot. Especially today.  I needed to hear that. 

Some ladies I know are questioning my desicsion to take my implants out (except my mom & sister, yaay family!)  My PS tried to talk me out of it, other ladies with BC that have implants are telling me I look fine, they can't tell they are two different sizes. But they don't have to shop for bras with me. My Onc looked shocked when I told her.  It makes me feel guilty, like I'm not appreciating them like I should.  Some ladies CAN'T get implants, and here I am, wanting mine out.  But they aren't me.  I don't like them.  They are uncomfortable. I just don't think they are for me.  Am I being ungrateful?  Plus I dont' want more surgery when they need replacing, and I dont' know what my insurance will be like 10-15 years down the road.  I feel more financially free without them.  Like I only have to take care of me....not me and my implants.

mbj, let us know how your surgery goes.  Praying it will all go smoothly for you. I guess you're doing one at a time.  Entering it slowing.  Is it going ok so far?

Bilateral BC, Ductoal & Lobular, Stage I and II.

Dx 9/2010, Stage IIb, 0/3 nodes, ER+/PR+, HER2-
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May 16, 2011 10:14PM, edited May 16, 2011 10:15PM by lauralu

This Post was deleted by lauralu.
Dx 8/8/2006, DCIS, Stage 0, 0/0 nodes, HER2-
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May 16, 2011 10:19PM lauralu wrote:

Opps lost my post...Faithroad. I am with you on the sad and wondering what to expect. I need to get more questions ready for the PS on Tues. I do not want to make another mistake like the last one. I cannot even express how difficult it has been going through the process and then having to revisit the whole mastectomy decision again.

Dx 8/8/2006, DCIS, Stage 0, 0/0 nodes, HER2-
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May 16, 2011 10:28PM Faithroad wrote:

Lauralu,
I understand completely.  I don't want to make another mistake either.  The implant part has been far harder than the mastectomy part.  That was a no brainer!  And it was much less painful than the recon.

Hoping your next appointment goes great.  It's a good idea to have questions written out.  I do that too!Laughing

Bilateral BC, Ductoal & Lobular, Stage I and II.

Dx 9/2010, Stage IIb, 0/3 nodes, ER+/PR+, HER2-
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May 17, 2011 12:45AM lauralu wrote:

Ditto

I am revising my questions every day. Just need to organize my thoughts and try to keep my emotions in check. This is serious stuff. I don't think some surgeons get it at all. We have to live with the results no matter what the out come.for the rest of our lives. They make it sound so simple..I guess that is part of the reason I went for the surgery the first time around they made it sound so easy. ..

Dx 8/8/2006, DCIS, Stage 0, 0/0 nodes, HER2-
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May 17, 2011 05:11PM McBella wrote:

Hi faithroad,

 I had the same problem after my mastectomy last year, but I found a wonderful website that supplies beanies with micro-beads instead of prothesis. www.aboutthegirl.co.uk it's based in the UK but they send stuff overseas and they have a really lovely selection of mastectomy bras.

 Hope this helps 

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May 17, 2011 05:45PM Faithroad wrote:

Hi McBella,

I went to the website but I couldn't find beanies with microbeads.  Just swimsuits and loungerie.  Hmmm...maybe that is what you meant.  I thought you meant they soldl microbead prosthetics.

Gee I get confused so easily. (sorry)

Thank you for the website, I have it listed now in my "favorites"!

Bilateral BC, Ductoal & Lobular, Stage I and II.

Dx 9/2010, Stage IIb, 0/3 nodes, ER+/PR+, HER2-
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May 17, 2011 05:54PM Faithroad wrote:

Lauralu,
I agree, they made it sound easy schmeezy.  Like, this is what everyone does. They never metioned NOT having recon. or even waiting to have recon. Or other options of recon. The recon was soooo painful.  And disappointing results.

Aww...well.  I'm trying to let it go.  Trying to move on emotionally.  letting go of the past hurts, the past bad PSs and all the mistakes I made in decision-making.  All the  "woulda, coulda, shoulda's. Trying to forgive so that bitterness doesn't take over.  The recon has been such a bumpy road.

Bilateral BC, Ductoal & Lobular, Stage I and II.

Dx 9/2010, Stage IIb, 0/3 nodes, ER+/PR+, HER2-
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May 17, 2011 06:09PM River_Rat wrote:

Here's a link to the micro-bead forms that TLC sells:

http://www.tlcdirect.org/products/sku-8139__dept-34.html 

And here's the ones that have a layer of silicone, a layer of the micro-beads and a fabric backing:

http://www.tlcdirect.org/products/sku-8116__dept-12.html 

Fear is the highest fence. ~Dudley Nichols

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May 17, 2011 06:15PM Faithroad wrote:

Oh River_Rat, you are awesome!!!!!!

I am very interested in those microbean forms since they sound so light.

You are very thoughtful to post them here for me.

Thank you!  ((((HUG))))))

Bilateral BC, Ductoal & Lobular, Stage I and II.

Dx 9/2010, Stage IIb, 0/3 nodes, ER+/PR+, HER2-
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May 17, 2011 06:29PM LeapFrog39 wrote:

I just wanted to mention something (as I learned this the hard way), your silicone prosthetics will last longer if you wash them (according to manufacturers instructions) regularly with mild soap and water and store them in the box they came in at night. if you do this and they wear out (lose their form or get too mushy) too soon, I know Anita will replace them, at no cost. Hopefully, the other companies would too. 

~ Wandalynn ~ ********** Diagnosed 3/13/2009 from FNA, 39 years old. BMX with full axillary dissection on right side.Final pathology report: 4cm+ high grade DCIS tumor with micro-invasive idc, 2/32 lymph nodes. ER/PR-, Her2+++, Stage IIa

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May 17, 2011 06:40PM Faithroad wrote:

Leapfrog,  Thank you that is so good to know!   The ABC shop in town told me the same thing, so there must be something to it.  I wasn't sure if it was really necessary.  But it sounds like it its.  Thanks for confirming that it actually does make a difference.  I would want them to last as long as possible.

Thank you!!!!!Laughing

Bilateral BC, Ductoal & Lobular, Stage I and II.

Dx 9/2010, Stage IIb, 0/3 nodes, ER+/PR+, HER2-
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May 18, 2011 03:32PM TokyoSing wrote:

Hi Ladies, I also use the TLC microbead forms in my exercise tanks.  My favorite one though, is a Silique comfort form that is 1/3 microbeads, 1/3 silicone (so you get a nice shape in front) and a confortable microfiber backing .  I find the purely mibrobead form bunches up and at the end of my yoga practice, I look like I have a lopsided,wide uni-boob, a little higher on my mastectomy sight.  The silique form with just enough silicone stays put. You can see all this in Erica's www.breastfree.org website. 

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May 18, 2011 03:36PM, edited May 18, 2011 03:48PM by River_Rat

TokyoSing, I think that others here have said that the micro-bead forms that TLC sells are the Silique ones.  The second link in my post about five posts back goes to the silicone/micro-bead/fabric back forms from TLC. (Oops, just read that the TLC ones are made by another company but that they are comparable and less expensive than the Silique ones)

Fear is the highest fence. ~Dudley Nichols

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May 18, 2011 05:30PM Sher wrote:

I just checked the Comfort LIte 3 layer forms and assuming they are the same thing...........at TLC they are $169 each and at TrueKare Style MBT/MVT $110 each which is quite a difference. 

www.truekare.com/silique_comfo...

Dx 8/28/2000, IDC, <1cm, Stage 1b, Grade 2, 0/14 nodes, ER/PR+, HER2 Dx 6/16/2008 Local Recurrence, IDC, <1cm, Stage 1b, Grade 3, ER/PR-, HER2-

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May 18, 2011 06:50PM Faithroad wrote:

TokyoSing, - That is good info to have on the microbead prosthetic.  Bunching up would not be good.  I like the idea of the 3-layer Slique one too.  I'll be checking into all these hopefully in the near future.

River_Rat - It's good to know that TLC makes them as well as Silique!

Sher - Thanks for the website.  I've added it to my "favorites" in my web browser!! 

Laughing Hope you all have a fabulous day!!!!

Bilateral BC, Ductoal & Lobular, Stage I and II.

Dx 9/2010, Stage IIb, 0/3 nodes, ER+/PR+, HER2-
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May 18, 2011 07:47PM alexanjb wrote:

I'm not sure if someone already mentioned it but Lands End.com has a large selection of mastectomy swimsuits at very reasonable prices.

Uni DIEP 6/8/11 in Syracuse, NY- 55 years young and would like to get old...TNBC mx right, DD AC, Taxol, 6.5 wks rad.

Dx 2/2010, IDC, 6cm+, Stage IIIc, Grade 3, 11/11 nodes, ER-/PR-, HER2-
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May 18, 2011 08:14PM Erica wrote:

Actually, TLC doesn't make anything. They are the American Cancer Society's website, run by a woman who purchases from various purveyors. So, the TLC forms with 3 layers are the same as the Silique Comfort Lite, just not using the Silique name. That's my understanding. And yes, the TrueKare price is a lot better. I ordered mine from them and got excellent service.

Barbara

BreastFree.org (breastfree.org); BreastFree Blog (breastfree.blogspot.com); Twitter @BreastFree

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May 19, 2011 08:31PM Faithroad wrote:

Alexan - wow, I'm surprised to hear that Lands End has mastectomy swimwear!  That's good to know!

Erica - It's good to know you like the Silique comfort light.  You are like a connoisseur!  Laughing

Bilateral BC, Ductoal & Lobular, Stage I and II.

Dx 9/2010, Stage IIb, 0/3 nodes, ER+/PR+, HER2-
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May 19, 2011 08:54PM alexanjb wrote:

faithroad-I was surprised about Land's End having the swimwear too.  I think I found them by googling mastectomy swimsuit and they came right up.  TLC has a couple of swimsuits too but Land's End actually makes you feel like you have options.  It's not like you can try them on the store or anything but they are pretty good about returns.  I make sure to read the reviews to see if people are saying certain styles run true to size or not.

Uni DIEP 6/8/11 in Syracuse, NY- 55 years young and would like to get old...TNBC mx right, DD AC, Taxol, 6.5 wks rad.

Dx 2/2010, IDC, 6cm+, Stage IIIc, Grade 3, 11/11 nodes, ER-/PR-, HER2-
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May 19, 2011 09:07PM Faithroad wrote:

alexanjb - thank you so much!

Hope you are having a good day!Smile

Bilateral BC, Ductoal & Lobular, Stage I and II.

Dx 9/2010, Stage IIb, 0/3 nodes, ER+/PR+, HER2-
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May 20, 2011 09:41AM Erica wrote:

Faithroad,

Not so much a connoisseur as someone obsessed with breast forms LOL. The Silique Comfort Lite is definitely one of my favorites, for its lightness, softness, and wearability in hot weather. Plus, I can wear it against my skin in a regular bra (I like the Barely There Crop Top) or in a pocketed bra (like the ABC T-Shirt Bra Style 114).

Now I sound like an advertisement . . .

Barbara 

BreastFree.org (breastfree.org); BreastFree Blog (breastfree.blogspot.com); Twitter @BreastFree

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May 20, 2011 06:11PM TokyoSing wrote:

Like Erica,I use my Silique form the most.  Since it is much more flexible, I can fit it into tanks that just have a little opening (normally for "shapers and boosters"),  I also got mne from TurKare and they're very good.

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May 20, 2011 07:33PM Faithroad wrote:

Erica and TokyoSing - That The Silique Comfort Lite sounds like the best to me.  I checked with the prosthetic shop in my town and they mostly sell ABC styles.  They don't have Silique. Bummer. I wonder if she would special order them.  This shop takes perscriptions so my insurance would pay this year.  I might have to get the Silique on my own.  I wonder how you know what size to get?  Maybe they go into that on their website.

Thanks gals!!  I really appreciate it Laughing

Bilateral BC, Ductoal & Lobular, Stage I and II.

Dx 9/2010, Stage IIb, 0/3 nodes, ER+/PR+, HER2-
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May 20, 2011 07:34PM Faithroad wrote:

Erica, I think I will have a tendency to become quite obsessed as well!! haha!

Bilateral BC, Ductoal & Lobular, Stage I and II.

Dx 9/2010, Stage IIb, 0/3 nodes, ER+/PR+, HER2-
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May 20, 2011 08:52PM BoobsinaBox wrote:

Faithroad,

It you want mastectomy bras, you need to be fitted by someone who really knows what she is doing.  In that process, you will probably be given several options for prostheses, to see what cup size you want to be.  You can order the bras from them and then, armed with the size you want, you can go online and order the Silique Comfort-Lites from TrueKare.  The SCLs are $110 each or $210 if you order two form TrueKare.  That is less than most silicone forms are individually, usually over $300 each, and sometimes much more.  I don't know if your insurance will cover the entire cost, or if you have a deductible or co-pay, but I got silicone forms from the hospital boutique, my insurance paid for them and 3 bras in 2006, and I don't wear any of them.  Only wore them for about 4 months, and they were too heavy, bigger than I wanted, and uncomfortable on my sides.  I'm still working on finding what I want to wear, and I usually wear PALs right now, which you can read about on Barbara's (screen name Erica) website BreastFree.org.  I do like the feel of SCLs and PALs both, but I really like the weight of SCLs.  Still, for unpocketed bras, PALs stay in place very well on me, they are practically indestructible, and they wash and dry in a minute or two.  And PALs are $50-$60 a PAIR in my sizes (an A or B cup in a 34).  I have gone flat much of the time, and I have worn very small microbead forms as well, so I'd say I qualify as obsessed also!  Good luck.

Dawn 

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