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Topic: blonde question....very confused

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Joined: Sep 2008
Posts: 7
  • Posted on: Sep 4, 2008 09:57 am
kunstnik wrote:

what role really does the radiologist play in this? how much do you trust their observation? does the ob/gyn get the results and do the 'real' interpretation?

i was rushed in and around and when i asked what was what i got brushed off.   so i really didn't get to talk to anyone about ...anything.

the Radiologist was qutie chipper and said it was nothing to worry about but then i was reading that you should have a needle biospy no matter what. does the doc ask for this?

 there is a family history of BC and so i am a little worried- even though it is 'just a cyst.'

Posts 1 - 10 (10 total)
wishiwere
MI
Joined: Dec 2007
Posts: 3256
Sep 4, 2008 10:09 am wishiwere wrote:

The person who does the mammo is normally a technician.  The mammo is then read by a radiologists and reported on to your Pcp, gyno or whoever you asked or were presribed a mammo from.

If they said it was a cyst, most likely it is.  Did you get a copy of the report?  It would have a BIRAD grade on it.  Somewhere there is a list of what the numbers mean from 0-5 with 5 meaning it needs further investigation like a biopsy. Or further imagining like an U/S which can show a cyst more clearer defined as a cyst.

IF you pcp or gyno sent you for a mammo, then call their office and ask how long it takes for a report.  Or call the rads dept and ask when it will be available.

Remember that 80% of lumps are B9!  Hope and prayers that yours will be too!

wishiwere
Dx 9/21/2007, ILC, 1cm, Stage Ib, Grade 2, 0/4 nodes, ER+/PR+, HER2-
AlwaysHope
Joined: Sep 2007
Posts: 2306
Sep 4, 2008 10:29 am AlwaysHope wrote:

The doctor who ordered the test is the one with the final say.  My breast surgeon orders my tests/mammo/ultrasounds.  The radiologist reads the films and sends their finding back to the ordering doctor.  It is the doctor who ultimately decides if a biopsy is warranted or not. 

bluedasher
CA
Joined: Aug 2008
Posts: 285
Sep 4, 2008 11:31 am, edited Sep 4, 2008 11:32 AM by bluedasher bluedasher wrote:

With my health plan (Kaiser) it works differently than what wishiwere and AlwaysHope said.

The routine annual mammogram isn't ordered by anyone. I just go in when it is about time. The health plan actually started sending reminder to get it about 8 months after my previous one. Radiology called me the day after the mammogram to say they needed me to come back in for an ultrasound. A radiology tech did the ultrasound and then asked me to wait for the radiologist to read it and come in and talk with me. The radiologist said I needed a biopsy and that radiology would call to schedule it. He also gave me some information on the type of biopsy. 

A radiology tech called to schedule the biopsy. She asked questions about the types of medicine and supplements I take and told me what to not take for the 5 days before (the sheet sent home with me from the ultra-sound also had the list). 

We met with the radiologist doing the biopsy (a different one than the one that read the ultrasound) before going in for the biopsy, he showed us the films and what he wanted to sample and suggested a core needle biopsy but from what I had read I thought VAD would be better for me. After a bit of discussion about the pros and cons, he agreed to do the VAD. 

The radiologist called with the biopsy results and put the referral to the breast surgeon in the computer while he was on the phone with me. I got a call from the surgeon's office that day to schedule my first visit. I liked this method as it kept the delays down.

Maybe now that a breast surgeon is involved, it will work more like AlwaysHope says if a future biopsy is needed. 

  

lvtwoqlt
FOOTHILLS OF, NC
Joined: May 2007
Posts: 3205
Sep 4, 2008 11:41 am, edited Sep 4, 2008 11:42 AM by lvtwoqlt lvtwoqlt wrote:

My pcp ordered the first mammos that I had but I got letters from the breast imaging center to remind me that it was time for my next mammo and I would call and schedule the next one.

After my first abnormal mammo I went back to my pcp and he sent me back for additional views and scheduled me with the breast surgeon a couple of days after the diag mammo. My breast surgeon does the sterotactic biopsies in the radiology dept with some rad techs assisting and he decided from the mammo if the suspicious area needs biopsy and what type. After my first biopsy my surgeon had me doing mammos every 6 months and the breast imaging center needed orders from the surgeon to do the 6 month mammos.

The radiologist reads the mammos and gives their report to the surgeon and he looks at the images and decides what needs to be done.

Sheila

We are like tea bags, we don't know how strong we are until we were thrown into hot water. Eleanore Roosevelt
Dx 4/27/2007, DCIS, Stage 0, Grade 1, 0/7 nodes
otter
AL
Joined: Jan 2008
Posts: 2637
Sep 4, 2008 01:33 pm, edited Sep 4, 2008 01:35 PM by otter otter wrote:

How this all works depends very much on the policies of the facility you use.

Until this past January, I had all my mammograms taken at a dedicated mammo facility at my small-town OB/GYN clinic.  I called and scheduled the mammos myself every year.  They were performed by a mammo technician, and the films were sent to the local hospital to be read by one of their radiologists.  The radiologist sent a report to my GYN (even if he hadn't requested the mammo), and I got a form letter telling me "everything is OK" or "you need to check with your doctor about the results of your mammo."  No details or other recommendations were given, in either case--I was just told to talk to my doctor for more info.  I never talked to the radiologist or saw the actual mammo reports.

In Jan '08, I had a digital mammo and ultrasound at a breast clinic in a major university medical center.  My primary care doc referred me there, and requested the imaging and an appt with a breast surgeon because I was concerned about a lump I'd felt.  I cannot schedule mammos there myself--they have to be ordered by a doc.

That's not all that is different from the other facility.  At this breast clinic, a radiologist who only reads breast films interprets the mammo right away, before I'm allowed to get dressed and leave the facility.  The radiologist comes out to the waiting area and gives me a form with the results marked on a checklist (sort of a "BIRADS" report).  There will also be a recommendation about further testing and follow-up, if applicable.  If necessary, the radiologist will do additional views or procedures right then and there, including spot compression, ultrasound, image-guided biopsies, etc.  If time is an issue, he/she will schedule the additional procedures at another visit.  When I was there in Jan '08, the radiologist decided the lump looked suspicious enough to warrant an image-guided biopsy...so he did an ultrasound-guided core biopsy, right then.  He called me at home with the results 2 days later, and told me I should arrange an appt. with a surgeon ASAP.

So, the bottom line is that the role of the radiologist varies greatly, depending on the facility.  Do I trust the radiologist's judgment?  Yes--when it comes to interpreting breast images, and deciding whether or not additional testing is warranted.  The radiologist is an M.D. with specialized training and board certification in radiology.  He or she looks at many, many breast images (depending on the facility), interprets them, and writes the reports.  The "other" doctors (GYN, surgeon, primary care doc) rarely, if ever, see the radiographic images at all--they just see the written report containing the radiologist's interpretation. 

I agree, though....this is all very confusing, and there are a lot of differences in the way this stuff is handled at different clinics.

otter 


Dx 1/14/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR-, HER2-
smerf
Glenview, IL
Joined: Jun 2007
Posts: 270
Sep 4, 2008 01:54 pm smerf wrote:

This can be confusing, because it varies from place to place, and insurance plan. That said, we are always entitled to a copy of the actual report rather than just the routine letter. Many places do not offer it, but will give it to you when you ask for it. It's a good idea to do that. Radiologists are MDs, and they can do some biopsies, or a surgeon can do it. The pathologist, also an MD, determines whether the tissue is benign or not. he then sends his report to the radiologist or surgeon, whoever did the biopsy. Often the docs share reports with our other doctors, such as gyn or pcp. It's a good idea for us to request a copy of the path report too, whatever it says. Surgeons always look at the films themselves, and never would go by just the radiology report. That is the only addition I have to what Otter said, and she gave a very good summary of a confusing process. In the age of digital mammos, my surgeon pulls up my films on the computer in her office, and goes over them with me. If you are still concerned after you talk to the radiologist, a consultation with a surgeon would be the next step if your insurance allows that. If not, and your gyn ordered the mammo, then you could ask him or her for a referral to a surgeon. It's worth it to have peace of mind.

Best to you, smerf


Dx 2/13/2006, IDC, 2cm, Stage II, Grade 2, 0/3 nodes, ER-/PR-, HER2-
AlwaysHope
Joined: Sep 2007
Posts: 2306
Sep 4, 2008 02:02 pm AlwaysHope wrote:

I have always carried my films to my breast surgeon appts.  They give them to me in an envelope at the time of the mammo/us and the surgeon's office sends them back to the mammo place.  My breast surgeon always does his own reads of the films and there have been occasions when he disagreed with the radiologist's conclusions.  I agree that it probably depends on the system you are in and what type of mammogram was ordered.  There are the routine mammograms and the diagnostic mammograms.  On the diagnostic, which my bs usually orders for me, he also includes orders for ultrasound if mammogram suggests a need.

kunstnik
Joined: Sep 2008
Posts: 7
Sep 5, 2008 09:04 am kunstnik wrote:

thank you all so much.  i didn't get the report but the 'receipt' which says i have calcification in a nodule, not a cyst. but they said it was a cyst. ??? makes you wonder...

 i am so confused but will call my doc on monday.

am sure it is nothing but reading what others have gone through makes me wonder why naviagting the health system is so difficult. and if you are ill, then it is worse. you have to really study a lot to know what is going on. and be pro-active. this sort of fourm is Invaluable.

AlwaysHope
Joined: Sep 2007
Posts: 2306
Sep 5, 2008 10:48 am AlwaysHope wrote:

I think you need to go ahead and find a breast surgeon/specialist you really like to be followed from now on.  Check out the films and carry them with you to the appointment.

kunstnik
Joined: Sep 2008
Posts: 7
Sep 6, 2008 04:44 pm kunstnik wrote: Thanks, AlwaysHope. I just got the form letter saying there is no evidence of cancer. but  a benign finding ( doesn't say what it is) and report sent to doctor. So, I'll call Monday and ask the doc, and get the report. 'cause I just don't trust the system! and my luck of late has been Bad. And somehow I don't feel right...

I told my sister my worries and all she does is question my worries, and thinks I am a hypochondriac. She thinks these tests are all...of a bogus sort. I mean the mammogram. Not one word of...oh you must be worried. or that is scary. Just, " there is a lot of "might be" and "could be" or "could become." "  But she wasn't the one of the table, being whisked away to have  mass exmained! 

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