Hi
I want to thank you all first, for having a place like this for people to express their fears and concerns.
I'm scared. Wow, it was hard to say that, even though it wasn't verbal, it was the first time I have expressed it.
3 weeks ago I noticed the area around the left nipple looked like it was starting to spread, if that makes any sense. I didn't think much about it at the time. About a week later I did a self breast check. The right side first...just like all the pictures show, I didn't feel any lumps but in one area it was very sore...and thick feeling. On to the left....That same feeling, in a different spot, .......and a lump.
I scheduled an apointment with my GYN. It was the first appointment I had in the past 10 years. THe last time I saw her I told her there was some discharge from the right side, she felt around and found nothing, said we will watch it but it's nothing serious. about 2 months ago, I noticed the left side started doing the same thing...I also noticed that the left breast was getting larger.
So at the visit, She examined my breasts, starting with the right, then the left. THen she asked me where the lump was that I found. I showed her and she said "yes I felt that, but I also felt this...right next to the lump you found.......There is one on the other side too."
So the day before my 32 birthday, I'll be experiencing a mammorgram for the first time....I want to believe that I'm worrying over nothing but in all honesty...I'm scared to death.
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LUVmy2girlZ
Joined: Nov 2007 Posts: 2,389 |
Oct 8, 2008 12:27 pm, edited Oct 8, 2008 12:28 PM
by LUVmy2girlZ
LUVmy2girlZ wrote:
michelle ~ I am sorry for your worry...its best to get your mamo just to make certain. You and your Dr.'s sound like they are taking the pro-active approach and this is awesome as early detection is key. Just to ease your mind a little....80 % turns out to be benign! Your lump can be numerous of different reasons as to why you have both thickening and lump. The thickening could be reactive to your lump as your body sends messages that something foreingn is in your body...not necessary cancer. All in all its best a mamo and or needle biopsy will RULE OUT! You will soon get the answers to your questions/fears in the meantime...though the Internet is an awesome learning tool it can put your anxiety into a tail spin....this may not apply to you. One day at a time...keep busy and please keep us informed...we luv to hear GOOD NEWS ! Best of LUCK! Much LUV BRCA 1 & 2 neg. Mastectomy 7 weeks radiation (35 rounds) Laughter, is the shock absorber that eases the blows of life....
Dx 11/19/2007, DCIS, 5cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- |
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CAZ Joined: May 2008 Posts: 676 |
Oct 8, 2008 12:43 pm
CAZ wrote:
Hello Michelle, I'm glad you found this site at this point in your life. It can help to keep you sane through the waiting. As mentioned above, 80% of masses are benign. I was once told that cancerous masses don't usually hurt...for what that's worth. I know you can't relax until you get that final report, so try to channel your energy into something productive. I know October is probably the worst time to be faced with a breast lump with all the pink everywhere you look. Hang in there. We'll be here when your results come back. Carol(AZ) |
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michelle76 Joined: Oct 2008 Posts: 23 |
Oct 8, 2008 12:54 pm
michelle76 wrote:
Hi Luv and Carol Thank you both so much for your advice and support. That's exactly what I keep telling myself 80%. And Carol...so very true, It's hard not to think about it when it's all over the place. Everytime I see a commercial I see my grandmother towards the end...no breast, no hair...I was so young that's all I rememeber. And then my mothers battle. She is a survivor. But my goodness it broke my hart not being able to do anything to take it all away from her. It's hard not to go there, mentally. Thank you both so much, for not making me feel so silly about all of this. Michelle |
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leaf Joined: Dec 2005 Posts: 6,649 |
Oct 8, 2008 01:23 pm
leaf wrote:
I know its hard not to go there. My grandmother had breast cancer too - she had bilateral mastectomies because that's all they had at the time. You are not silly. You are taking care of yourself. You are important! Breast cancer is NOT a death sentence. We will be here whatever happens. Hang in there! If you're going through hell, keep going-Winston Churchill
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Jule Joined: Apr 2008 Posts: 240 |
Oct 8, 2008 02:48 pm
Jule wrote:
Michelle, Of course you're scared....everyone that comes here is. Again just like the others said....80% is benign! Please share how you are doing and how your tests results come back. [[[[hugs]]]] Julie
Dx 4/23/2008, IDC, 2cm, Stage IIb, Grade 2, 2/17 nodes, ER+/PR+, HER2- |
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michelle76 Joined: Oct 2008 Posts: 23 |
Oct 8, 2008 03:39 pm
michelle76 wrote:
Thank you Leaf and Julie. I'll be sure to come back to let everyone know the mammogram was fine...I hope. |
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nash Joined: May 2007 Posts: 2,206 |
Oct 8, 2008 04:51 pm, edited Oct 8, 2008 04:53 PM
by nash
nash wrote:
Michelle, is the doc sending you for a diagnostic mammo? Make sure that's what she ordered for you, vs. a regular mammo. And if nothing shows up on the mammo, it would probably be prudent to ask for an ultrasound of the palpable masses. It's highly unlikely that you have bilateral breast cancer, but it's not impossible, and mammograms are not 100% accurate. My baseline mammo and several of my late Stage IV mom's mammos were read as fine, when in fact they were not. I'm not telling you this to scare you, just to inform you. Also, when you are young, your breasts are dense, and mammos are hard to read because of that. An u/s, on the other had, can tell the radiologist if the lumps are cysts or solid, and you can go from there. One of the best diagnostic tools for young women is a breast MRI, but hopefully you won't have to go that far in the process. Statistics are in your favor that your lumps are fibrocystic changes. The docs can't always tell much by feel--even my oncologist thought she recently felt a change in my "good" boob, sent me off for an MRI, and everything was fine. So keep us posted, and best of luck to you. Dx June 2007, age 38, Stage IIa 2.7 cm pleomorphic ILC, ER+/PR+ HER2-, CAFx6, rads, tamox
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michelle76 Joined: Oct 2008 Posts: 23 |
Oct 8, 2008 05:24 pm
michelle76 wrote:
Thanks Nash, I appreciate your advice and input. Yes, A diagnostic bilateral mammogram was ordered. And she said something about an ultrasound after the mammorgram, but that wasn't scheduled. That's a good sign right? Or am I just reaching...LOL. I have to admit, this has helped so much, just getting my fears out. Thank you all! |
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Harley44 Joined: Jul 2007 Posts: 5,096 |
Oct 8, 2008 05:28 pm
Harley44 wrote:
Michelle, Just wanted to say Hi, and try not to worry... I know that it's hard, but the odds are in favor of a benign growth. I also just had an u/s for a lump I felt, and I was very scared again, even 1 1/2 yrs. since my initial bc dx. Nash is right. I had to get a diagnostic mammo. and an ultrasound of the bc for the lump, before seeing my surgeon. Good Luck! Please keep us posted!! I'll be thinking of you, and praying for b9 results!! Harley |
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michelle76 Joined: Oct 2008 Posts: 23 |
Oct 13, 2008 08:15 am
michelle76 wrote:
Thanks Harley I'm trying so hard to not think about it but that's impossible. I find myself checking every chance I get...maybe it's gone now....no such luck. I want to think I'm just imagining things. I keep telling myself it's nothing I'm just being crazy, but I think I found what she felt, beside the lump I felt. It's nothing like the one I found. I don't know how to describe it. It doesn't move at all, almost like a weird shaped bone or something. I know that doesn't make any sense. I've just got myself so strssed about all this, I can't wait until I find out everything's okay. |
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michelle76 Joined: Oct 2008 Posts: 23 |
Oct 16, 2008 06:05 am, edited Oct 16, 2008 06:54 AM
by michelle76
michelle76 wrote:
Well I'm thinking the appointment didn't go as well as I would have liked it. We did the diagnostic mammo, I was told to wait while they looked at the films. She came back in with a hand full of films and said we have to do some more. I asked if they didn't turn out well enough...me trying to laugh...my pictures never turn out...anyway, I guess it wasn't very funny because seh said no they turned out very well.....The doctor just wants a closer look at a couple things...so they took the big plate off and put a smaller piece on...took 2 more pictures of each breast....told to wait...and yet again....one more time.....when she left this time she said just stay there...we need to do an US..but we want to wait until the doctor can come in too. During the US...I was just numb...They kept saying things like .....now get the posterior one...ummmhmmm....now the lateral one....now go to the right....ummhmm...and the nodes...ummmhmmm.....I'm going to call your primary...we need to get you in for a biopsy.I just don't know what to think about all this....what a mess. |
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terrie45 Joined: Oct 2008 Posts: 23 |
Oct 16, 2008 06:57 am
terrie45 wrote:
michelle i am going through the same thing. i go for a lumpectomy on tuesday the 21st. what a mess is right. i have a strong history of BC and OC and i am a mess too. cant describe the feelings. some days i just lay in bed all day and cry and some days i just have to go somewhere (usually my mom's) i feel like i just cant do it and then i think about all the reasons i can. hope your results are B9 and mine too. hang in there if i hadn't found this site i woud be crazy by now. these women keep me going too. some days i just get on here and read all day. best of luck to you and hugs from me. terrie |
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michelle76 Joined: Oct 2008 Posts: 23 |
Oct 16, 2008 07:20 am
michelle76 wrote:
Oh me too Terrie. me too.....I think I've read most everything...some twice. There is a wonderful group of women here...laughing together, crying together...it's a wonderful community, offering so much hope. I have those days too......I was so hoping they would have just said oh thats just a cyst...nothing to worry about. So I sit here today, on my 32 birthday...with flashes of my grandmother and mother running through my head. I just don't think I'm as strong as they are/were...lost my grandmother 3 years ago I don't know of a part of her body that wasn't affected by cancer, even after a double mastectomy...my mother was diagnosed a year later. And that's all I can think about. I know what the odds are...but do those odds change once we've gotten to this point. I keep asking myself if I'd be better off not knowing....Yeah...a mess....LOL You have my prayers and best wishes Terrie....I hope soon after the 21st you will find out you are B9. And I hope you can find a little peace during that wait...oh my the waiting. |
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terrie45 Joined: Oct 2008 Posts: 23 |
Oct 16, 2008 07:57 am
terrie45 wrote:
michelle when i had my follow up apt. with gyn to go over my diagnostic and us results i was sitting there when he came in (my husband was with me) and when he said lumpectomy, i cant remember anything else he said, NOTHING. thank god my husband was sitting there i went to the truck and lost it. we just sit there in the parking lot, while i cried he comforted me. he said hunny if worst comes to worst we will beat this thing together, that made me cry even more. since then everytime i feel my boobs i feel something else (or it seems) he said to me, keep your hands off them, thats my job. he makes me laugh sometimes but when he's gone theres no humor here. my mom and sisters call me everyday all day long just to say hi and they love me. they are all going with me to my apt. with the surgeon on tuesday. my brother and sister who live 4 hours away are gonna be there also, just for me. they are taking off work (AMAZING). i have one sister who cries with me. the support is what i need and they are giving it to me too. my daughter wont talk about it and my son hugs me everytime he passes me and is here everyday and i haven't even been dx with anything yet. this is what keeps me going on with the hope. my grandson who is 5 and stayed with me for the first 4 years of his life told me he's gonna be a doctor when he grows up so he can fix his mamaw. what can i say after that. i just want to hug him for the rest of my life. hang in there with us all. god bless u and this site and all of these wonderful women. it's a godsend. |
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michelle76 Joined: Oct 2008 Posts: 23 |
Oct 16, 2008 08:04 am
michelle76 wrote:
Oh my I'm such a sobbing mess....It's great that you have that much support. I have 2 boys...13 and 11. And I'm so active at the church, I haven't said anything to anyone because I don't want my boys to hear anything. After all I don't know anything for sure.So yeah, I understand, this site has been a godsend. Sounds like you've got a wonderful family Terrie. Enjoy every second with them! |
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michelle76 Joined: Oct 2008 Posts: 23 |
Oct 18, 2008 05:45 pm
michelle76 wrote:
Well I got the reorts....my appointment isn't until the end of next week so if anyone can help me make heads or tails of this...I'd so appreciate it. Ultrasound Findings At the 1 o clock position of the left breast, there is an oblong hypoechoic area measuring 6 to 7 mm in the greatest dimension. It has an echogenic center. It is about 5 mm deep from the skin surface at the 1 o clock position in the area of the palable lump. There is another incidental finding of a hypoechoic structure in the posterior one-third of the left breast at the 1 o clock position measuring 6 mm On ultrasound examination of the right breast, there is an oblong hypoechoic structure measuring 7mm in the posterior one third. It is about 9mm deep from the skin surface. These hypoechoic lesions in both breasts are wider than taller. Impression Multiple hypoechoic structures in both breasts. Repeat U/S in three months is recommended to check stability. Mammo Findings There is heterogeneously dense fibroglandular breast parenchyma bilaterally. On the spot compression views, there are asymetric densities in both breasts BI-RADS Category 3 |
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Worrier Joined: Oct 2008 Posts: 1 |
Oct 18, 2008 06:55 pm
Worrier wrote:
I just fuond a lump in my breast ! and the doctor ask me to wait for the apoitment , and i am so scare rite now ! because i can feel the lump easyly , and i am only 24 now ! what can i do if i get cancer ! I am starting to pray everyday now !! |
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michelle76 Joined: Oct 2008 Posts: 23 |
Oct 18, 2008 07:35 pm
michelle76 wrote:
Hi Worrier You have to stay positive.....as hard as that is for me to do too...but I kinda look at it this way....Right now...I still have a choice. I can choose to believe it's one of the many other things that it could be, or..... I could choses to believe it's cancer, and be absolutly miserable until I found out something. Yes, those thoughts still creep in, but I tell myself no...it's just an infection. I have no clue...but that's the whole point. Yes it's hard...yes pray...be aware of what you're putting in your body and how you take care of it....but try to stay positive. It's hard...gosh it's hard, but we have to try! Keep looking up...You're in my prayers too! |
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Joan Joined: Nov 2007 Posts: 5 |
Oct 19, 2008 11:16 am
Joan wrote:
Hey, I am not sure what to say as well. If i am not mistaken by the date, I had an early operation during the beginning of this year, 2008. The lumps were taken out from my breast on the right side. Lucky, they found out that it was just an infection. I thought my unlucky number was out. How silly could i be? I recently checked my breasts again, only this time i found some more lumps over the two breast. Don't know how, I saw that the two breast above not so near the armpit side, are found with dark area also can be felt in light pain. This time, I hold my health on the line. Because there are so many things that are happening right now, which i found them very hard to deal with . I am not worried about the chances of breast cancer. In fact, i am more worried over my business. Maybe it has to be with me having too many operations. Which puts me into a numb position. Anyway, god bless you all. Point is don't worry too much, life is already pointed out the way before we were born. Live happy in every second. Worries won't free you, only you can free the worries. Love you all. |
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Beesie Joined: Jan 2006 Posts: 4,410 |
Oct 19, 2008 04:43 pm
Beesie wrote:
Michele, it sounds from both your ultrasound and mammogram that you have fibrocystic breasts. The types of conditions described in both reports are consistent with normal fibrocystic breast tissue. While some lucky women have perfectly soft, smooth breast tissue, about 50% - 60% of us have lumpy bumpy breasts with breast tissue that varies in density throughout. That's what the descriptions from your mammogram and ultrasound sound like. The good news is that there are no "red flags" to indicate the possibility of malignancy, things like spiculated or angled margins, a mass that's more tall than wide, suspicious shadowing, etc.. This is why you've been given a BIRADS 3 rating. BIRADS 3 means "Probably Benign" with a recommendation that there be a follow-up within a "short interval" (usually 3 months to 6 months). With a BIRADS 3 rating, there should be less than a 2% chance of malignancy. If there had been anything more suspicious, then you would have been given a BIRADS 4 rating, which would have meant that a biopsy was recommended (although 80% of biopsies do end up being benign). Here are a couple of websites with information that might help you. The first explains BIRADs ratings and the recommended follow-up procedures. The second explains how to read an ultrasound and what radiologists are looking for. http://www.radiologyassistant.nl/en/4349108442109 http://www.imagingeconomics.com/issues/articles/2002-03_03.asp Worrier, at the age of 24, the likelihood that you have breast cancer is extremely slim. But there are a couple of types of benign lumps that are quite common in younger women. First is a fibroadenoma. I had two by the time I was in my early twenties. These are solid lumps and are completely harmless. Next is a cyst, which is a fluid filled lump. 99% of cysts are completely harmless. So definitely get your lump checked out - any change in your breasts always has to be checked out - but try not to worry. Chances are high that your lump won't turn out to be anything serious. Joan, if you have multiple lumps within both breasts, it's highly unlikely that you have breast cancer. Breast cancer most often shows up in one breast, in one location. To have several cancerous lumps in both breasts would be extremely unusual. On the other hand, it's very common to have lots of cysts at the same time and in both breasts. So that's most likely what you have. It's also possible to have several fibroadenomas. Still, as I said to Worrier, it's important to get yourself checked out - don't ignore this. Chances are that everything will be okay but any change to your breasts should always be checked out. |
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Joan Joined: Nov 2007 Posts: 5 |
Oct 20, 2008 03:35 am
Joan wrote:
Hey Beesie, It is always nice to hear that my case might not be cancer. Actually, I had an operation done before as i had mentioned in my last post. Lucky, that it wasn't cancer but an infection matter that grew inside my breast. During the operation, doctor didn't find that another part of my breast containing anything. However, only, recently that i checked my breast which is another side, the one without operation, is felt like beans and coffee beans shapes. However, now i am not as worried as the first time. What i am worrying now is more to do with my business. Lots of things happened which is out of our hands. Anyway, thanks for the advice. Surely, will take it to heart.Take care. Care, Joan |
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michelle76 Joined: Oct 2008 Posts: 23 |
Oct 20, 2008 07:03 am
michelle76 wrote:
Thanks for all the great info Bessie. So when I go in for my appointment what questions are important to ask. Should I be concerened about the discharge and the increased size of the left breast. What about the color? It looks like a trail of pink coming out of the top of the areola towards the underarm area. I just want to do everything and anything I can to avoid being in the same shoes as my mother and grandmother. |
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michelle76 Joined: Oct 2008 Posts: 23 |
Oct 22, 2008 04:51 pm
michelle76 wrote:
So I don't know if I did the right thing today...my head is just such a mess. I was supposed to have my follow up appointment, We were to go over the results of the US and mammo's...and about the symptoms described in the last post. Long story short..my husband left last week, so I cancelled the appointment to save the money. Was this a mistake...should I be concerened? Any input would be so greatly appreciated. |
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michelle76 Joined: Oct 2008 Posts: 23 |
Oct 23, 2008 07:01 am
michelle76 wrote:
Anyone...please! |
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jules3 Joined: Sep 2008 Posts: 70 |
Oct 23, 2008 08:05 am
jules3 wrote:
Oh Michelle....i m just up haveing coffee and I read this whole thread....I m praying for you right at this moment..Jules Dx 9/5/2008, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
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jules3 Joined: Sep 2008 Posts: 70 |
Oct 23, 2008 08:08 am
jules3 wrote:
The Fear puts us in such an empty hideous void...the way out is to hit it head-on!! You need the answers...good or bad...THEN you can dealwith it and that will help with the paralyzing fear.... the fear that is leftover?...pray sister...God has always been there for me and I ve been thru worse than my cancer situation...He is faithful...just look at the boards...we are all angels, right? Dx 9/5/2008, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
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michelle76 Joined: Oct 2008 Posts: 23 |
Oct 23, 2008 12:09 pm
michelle76 wrote:
Thank you for your prayers and words of support jules. I'm just so lost, wondering if theres any point...anyway...thank you |
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PSK07 Joined: Aug 2007 Posts: 776 |
Oct 23, 2008 12:34 pm
PSK07 wrote:
michelle ((((hugs)))) If you still have insurance, you should go, even if you don't have insurance, you should go. The cost of the fear of the unknown is too high. Maybe you can call the office and explain what's going on & they can tell you if it is something that you have go in to hear? If there is something, ignoring it won't make it go away, and if there isn't anything, then you can focus on all the other things in your life. please take care of yourself. Pam - adding LCIS to the mix, 8/25/08
Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+ |
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michelle76 Joined: Oct 2008 Posts: 23 |
Oct 23, 2008 01:40 pm
michelle76 wrote:
Thanks psk. I called them today. They wouldn't tell me anything on the phone, other than I needed to come in. I explained that I have very limited funds and that it was either come in or feed the kids. Still...I have to go in. I need a few weeks to get enough together so they scheduled me in for the 5th. It's a while to wait but I really have no other choice..that I know of at least. |
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arwelb Joined: Oct 2008 Posts: 4 |
Oct 23, 2008 03:22 pm
arwelb wrote:
To quote a very wonderful man.....LEROY SIEVERS.....He said "waiting for test results, scans and labs is like slow agonizing water torture." I read his blog for a very long time via NPR before he passed away this passed August of Cancer. Now I can't tell you what to do to ease your mind, but I would encourage you to contact the doctors office again. Be persistant. Keep in mind...."He who is the loudest wins". Stay on them. Insist that the doctor return your call! If they can not get the doctor to return your call with this information, then ask them if you can schedule a payment plan for the visit. I think knowing what you are dealing with will help guide you. My thoughts are with you. |
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