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Topic: Mastitis or something more?

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  • Posted on: Oct 24, 2009 05:10 pm, edited Oct 24, 2009 05:14 PM by pittbullwife
Joined: Oct 2009
Posts: 10
pittbullwife wrote:

A few mos. ago noticed a large mass in my right breast. I have since gone to the doc and had a mammogram, ultrasound and needle biopsy. The biopsy came back neg. and the doc said it was mastitis.. Took bactrim for 10 day with no change. The lump/mass is unchanged. I am now on levaquin which I need to take for 14 days. My breast does look very different from the left one. The nipple is inverted its discolored there is some dimpling and its warm to the touch. Is it possible my biopsy is wrong. Even my doc said she is not sure what the problem is and only has me on antibiotics cause she is afraid to take me off of them and the ultrasound tech said I have them all perplexed... Guess I wait and see if the levaquin works.. Guess I am just worried and confused... Any advice would be greatly appreciated..

Bernadette..

Posts 1 - 12 (12 total)
stateofgrac…
Santa Fe, NM
Joined: Apr 2009
Posts: 59
Oct 24, 2009 05:37 pm stateofgrace33 wrote:

Hi, just be safe and get a second opinion right away and don't wait.  I was told I had mastitis (blocked duct) and kept trying antibiotics, etc. and I ended up with a diagnosis of Stage IV breast cancer.  I'm not sure how my very learned doctor could have missed it.  I think gone are the days of being conservative and waiting as breast cancer is so common now.  I finally went to a surgeon to have the "blocked duct" taken out and she just looked at it and was shocked - she immediately could see it had all the markers of cancer.  So go to an oncologist instead of a general md!  they will do a lot more than just a biopsy.  If it's actually mastitis (which I hope it is), then you can stop worrying.  The fact that antibiotics aren't working is concerning. You may be confused because something just doesn't feel right and the answers you are getting don't feel right - follow your concern!

here's hoping for the best

Christine

love, blessings and peace!
Diagnosis: 11/28/2008, IDC, 2cm, Stage IV, Grade 2, 2/4 nodes, mets, ER+/PR+, HER2-
powertoact
Joined: Oct 2009
Posts: 2
Oct 25, 2009 11:52 am powertoact wrote:

I had a lump for 10 years from Jan 1990 and i did nothing about it. It was diagnosed as breast cancer in 1999. I decided not to have chemo radiation etc. If i had known then what I know now I would have started to do a number of things immediatly. Ignorance must lead to education. I would...........

Recognise that my body is telling me that energy isn't flowing there and that tumours can arise from accumulated toxicity (from many sources- drugs,, excess alcohol, cigarettes, radiation from TVs computers, pesticides, preservatives in already prepared foods, formaldehyde from new synthetic carpets etc. It can also arise after the natural rhythm of becoming pregnant is halted by abortion etc All sorts of stagnant emotions, like grief, sadness, anger  and mental concepts, beliefs etc can also contribute as well as not really 'flowing' and doing what you love and what makes your heart sing in this life.

I would change my diet immediatly to include good, organic, live, vibrant fruit, vegetables and salads.and fresh made organic veg juices (carrot is great or carrot and celery) I would include Flax Oil/Quark diet by Johanna Budwig as it brings living electrons into the body to handle all the 'not so good fats' I would ensure right fibre, organic rice, beans etc and cut out all meat (maybe on occassion some organic) because the Liver can't handle it. When the liver is toxic it can't absorb oils but the OIL/Protein diet of Dr Johanna Budwig is handled well as it's made watersoluble by using quark/cottage cheese.

I would clean out my physical system- liver and gall bladder flush, kidney cleanse after that, keep my bowels clean (use organic coffee enemas regularly as per The Gerson Diet) clean, get rid of any candida, parasites, We usually know what's right!

I would begin to bring good qualities into my life- cultivate those that I know are weak or lacking in my system. I Would meditate regularly under supervision and cultivate virtues like, harmony, balance, peace, compassion, courage, perseverence and so on (all virtues of the heart)

I would learn to let go of fear, worry,guilt, grief, hatred, anger -in fact all the lower emotions. All are an illusion anyway (in particular fear) and guilt - shame hangs around most people for silly things usually. Why put yourself in prison? 

I would have a good look at what death is as most fears are bottom line fear of death.

I would go out there and do what I have always wanted to. I would study and learn and join others for inspiration, joy etc.

I would laugh at least twice a day and sing- definitely sing. The Angels gave us the tonic solfa so that we can harmonise our bodies- it is said! . I would listen to beautiful music, dance if i wanted to, play, create and EXPRESS that which is trying to be expressed. 

I would meditate on what my purpose in life was and maybe join others in such lofty searches.

I would begin little projects with myself like - looking at what peopl'es REAL needs are and how they can be addressed locally at first and then globally. Foe example I know we are all wondering what REAL unconditional love is like .

You can add your own

Have fun

Take responsibility for your health.

Remember your body isn't failing you and your body isn't DOING anything to you. It is creating a tumour for your survival so you can clear your system.

God (or whatever name we give God)- this energy is in all of us and is accessible by all of us. It is a healing energy but sometimes we in physical form have to undo the things that our bodies are talking about.

Blessings all

AnacortesGi…
Anacortes, WA
Joined: Aug 2009
Posts: 45
Oct 25, 2009 01:01 pm AnacortesGirl wrote:

I would be questioning why the doc didn't include an MRI.  Did they tell you specifically what the mass is?  When I first found cysts (5 years ago) the doc did a needle aspiration and pulled out the fluid.  We knew that wasn't cancer.  They also verified that they were cysts using ultrasound. 

But this spring I had different symptoms (primary was pain mid-cycle) in a breast that is lumpy and dense.  Mammo only "slightly" suspicious with 3 microcalcifications.  My family history made me ask to continue with a biopsy.  They couldn't find the microcacifications from both directions to perform a stereotactic needle biopsy so they sent me to a surgeon.  The day I saw her I had a "sunburn" on my breast and it was warm to touch.  She scheduled me for a surgical biopsy and she was the one who found the lobular cancer.  

Lobular cancer seldom shows up on a mammo.  After the first course of antiobiotics it seems like she ought to have prescribed the second time AND added the MRI.  You have something that needs to be diagnosed correctly.  Hopefully it is not cancer.  She should send you to another doc or you need to find one yourself.  Keep pursuing it!!!


Diagnosis: 7/21/2009, ILC, 4cm, Stage IIIa, Grade 3, ER+/PR+, HER2-
Faith316
Joined: Jul 2009
Posts: 154
Oct 25, 2009 05:15 pm, edited Oct 25, 2009 05:29 PM by Faith316 Faith316 wrote:

I agree,  Keep pursuing this.  I hope it is just mastitis, but warm, skin changes, nipple changes, discoloration, and dimpling can also be signs of inflammatory breast cancer.  Also swelling, rash and skin thickening.  Many doctors are not familiar with IBC.  Get another opinion ASAP.  Specifically ask about inflammatory breast cancer. 

I started seeing signs of IBC while I was taking chemo and radiation for my initial diagnosis of IDC.  I was the first one to mention could it possibly be IBC -- even before my doctors suspected it.  Everyone (my surgeon, my medical oncologist, and my radiation oncologist) were just sure that all of my symptoms were just side effects from my radiation and since I was in active treatment, it just couldn't be IBC.   I kept pushing it and finally had a punch biopsy and an excisional biopsy and guess what?  It was IBC.

Don't let this drop.  Hope it is not cancer, but if it is, better to find out sooner than later.  Especially if it is IBC because it is really aggressive and spreads fast.  Good luck and keep us posted on how things are going.

LISAMG
NY
Joined: Jul 2009
Posts: 160
Oct 25, 2009 05:23 pm LISAMG wrote:

Bernadette,

You REALLY need another opinion and perhaps an excisional biopsy because the symptoms you are describing warrant futher investigation with an MRI, as suggested. Do not wait and get this evaluated soon!! The women here with past experiences have told you their stories well and we can all learn from them too. Find another doctor and do not rest until you are satisfied with answers. This sounds like it may be more than just mastitis..with dimpling, inverted nipple and warmth. How long is a few months since you first noticed the mass? Please keep us posted and let us know how you're doing.

Faith316
Joined: Jul 2009
Posts: 154
Oct 27, 2009 05:03 pm Faith316 wrote:

Pittbullwife -- anything new??

DX 4/08 IDC, ER-, PR-, HER2+, Stage IIB, Grade 3, lumpectomy, 2/8 nodes, 4 AC, 12 wks. Taxol, Herceptin, 30 rads., DX with IBC in 6/09 while still in active treatment. Now Stage III. Currently on Xeloda, Tykerb. Surgery to follow.
pittbullwif…
Joined: Oct 2009
Posts: 10
Oct 28, 2009 11:01 am pittbullwife wrote:

 Nothing new yet. I have been taking the levequin for about 6 days with no change. Lump still there. I still dont have any symptoms of Mastitis no fever no pain in the lump or breast. I am trying to go to a diff. Breast center but I need a refferal, but befor I can get that I have to find a new primary care physician. The one I had just decided to notify me that she is leaving private practice to work for the federal government and I would need to find a new one. What a pain in my butt. I guess I am just back to square one and start this process all over. The doc at my breast center wants me to ome back in when I have finished all the leviquin to see if there have been any changes. If nothing is diff then I think she is planning on haveing me meet with a surgeon. Should the leviquin be showing signs of working already? Things are just so darn confusing. Plus I have two pea sized lumps in my left breast that they wont even look at till april because she glanced at my ultra sound an said she thinks they appear to be begnine so we will wait and see.. I am doing alot of wait and see these days.... Hope everyone else is having better luck than me...

AnacortesGi…
Anacortes, WA
Joined: Aug 2009
Posts: 45
Oct 31, 2009 08:55 am AnacortesGirl wrote:

Having your PCP bailing on you might be a good thing.  A different doc might be more aggressive.  Did they tell you what they believe the lumps are if they think they are benign?  Another thing you can do is ask the office or nurse for copies of your records.  Any test results or doc notes.  I routinely get copies of mine so I can review them at home.  I forget so many things that the doc tells me when I'm there in the office.

It sure seems like two courses of antibiotics should have caused the redness to subside by now if it's mastitis.  But that's just a guess on my part.  I still believe you need an MRI to rule out lobular cancer.  And it would be a good thing to do right now for a baseline even if you don't have any cancer.  Once you have a "problem" breast it would be good to have the baseline if any future problems show up.

Keep us informed.


Diagnosis: 7/21/2009, ILC, 4cm, Stage IIIa, Grade 3, ER+/PR+, HER2-
pittbullwif…
Joined: Oct 2009
Posts: 10
Nov 3, 2009 11:58 am pittbullwife wrote:

Just wanted to keep you all up dated... I m still taking the leviquin with no change. My lump is stii there. Its a little sore to the touch. I will back in on monday to see my doc at the breast center. Im not sure what the next step will be.  I just hope they dont give me more antibiotics. It is very frustrating waiting around with this huge lump in my breast and not have any idea whats wrong with me. I will let you all know Monday what I find out.....

AnacortesGi…
Anacortes, WA
Joined: Aug 2009
Posts: 45
Nov 7, 2009 08:24 am AnacortesGirl wrote:

Please give us an update from the Monday visit.


Diagnosis: 7/21/2009, ILC, 4cm, Stage IIIa, Grade 3, ER+/PR+, HER2-
pittbullwif…
Joined: Oct 2009
Posts: 10
Nov 13, 2009 08:39 am pittbullwife wrote:

just wanted to update everyone. i met with a surgeon on mon. And he decided to do surgery to remove the lump on wed. All went well. He said it was chroinic infection in my breast tissue. He also sent the mass to pathology and I should get the results on mon. After my post op app. I do have a drain tube in my right breast and think that will be removed mon....Will let you know what happens mon...

AnacortesGi…
Anacortes, WA
Joined: Aug 2009
Posts: 45
Nov 13, 2009 08:53 am AnacortesGirl wrote:

I'm sorry you had to go through surgery but so far that is excellent news!  I hope we hear back on Monday that everything is OK and no bc!.

I had been wondering how you were doing so I was glad to see your update.  I'm pulling for you on the path results.


Diagnosis: 7/21/2009, ILC, 5cm, Stage IIIa, Grade 3, ER+/PR+, HER2-

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