I'm so afraid! I am 72, & thought I was too old to even have my yearly mammogram! But turns out, everything went fine, until Sally Jobe called me, & said I have to go in for a follow-up ultra sound & compression tests. During the ultra-sound, the radiologist came in, & took over the test, then I asked, "what do you think it is?" He said "My best guess is you have breast cancer, & what we would do, is a lumpectomy followed with radiation." Well, my heart turned inside out. I just wanted to hit my head against the wall, getting dessed. I called my husband in, talked to a scheduler, told him what they said, & was scheduled for a biopsy at some place I never even heard about! THEN I woke up in a cold sweat that night, thought about my insurance, my doctor, & felt like I was on a run-a-way train going nowhere!
So the next morning I called my Doctor, told her what she said & SHE said, call them back, cancel that appointment, get your film, your report & the "disk"....All was sent to her, then to the breast center at Lutheran Hospital, & I am scheduled for an ultra sound guided core biopsy this coming Monday! At least my Doctor is in charge, & being closer to my house, helps.
Will I know for sure after the biopsy what it shows? Or must I wait even longer to hear? I just wish this was all over! My Daughters were so mad that the radiologist even MENTIONED that I probably had cancer, without further testing! So I'll go in for the biopsy, & with God's help, all of this worrying is for nothing! Am I the oldest gal here? I just haven't talked to anyone yet about all this, except my family....Maybe I'm just afraid over nothing! TX, Jeannette
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AmyIsStrong
Joined: Mar 2009 Posts: 429 |
Nov 4, 2009 09:13 am
AmyIsStrong wrote:
Jeanette - I don't know if you are the oldest one here, but I can tell from your post that you have plenty of spark and energy to fight this, no matter what the further tests reveal. While I am younger than you, and have almost completed my treatment, my mom's best friend is her age (76) and just had DCIS which called for a lumpectomy and radiation and then an AI (pill). She came through the lumpectomy just fine (better than I did!) - came home and cooked lunch for her sister,who had come up to be with her! Then she took the subway/bus combo to radiation every day (lives in NYC) and completed it with no ill effects. She is doing great now, and was throughout her treatment. It is all very scary in the beginning but the pieces will come together as you receive more information from your treatment team. I have head that the average age of dx (diagnosis) is 63, but you would not know it from these boards because many of the older women are not computer oriented and do not particiate in the boards. Do not be discouraged. There is LOTS of help and support here. You will make it! Amy Lumpectomy 4/09, TCH 4/09-8/09, Rads 8/09-10/09 Herception 4/09-3/10
Diagnosis: 3/2/2009, IDC, 2cm, Stage IIa, Grade 3, 0/2 nodes, ER+/PR-, HER2+ |
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Marybe Joined: Apr 2009 Posts: 559 |
Nov 4, 2009 09:31 am
Marybe wrote:
By all means go with the biopsy as it will show whatever the mammogram and ultrasound detected really is. Many times a spot will show up that is nothing but a cyst. I am sure there are some women on here as old as you are, but age doesn't matter much since we all are in this together. I hope you get a good report, if not you will find a lot of support and answers to questions from the women on these boards. There is one thread called Older women with breast cancer. I have not gone there yet cuz I am " young." (at heart perhaps) ...just pushing 60. Marybe
Diagnosis: 4/1998, IDC, Stage IV, 0/19 nodes, mets, ER+/PR+, HER2- |
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molly52 Joined: Sep 2009 Posts: 71 |
Nov 4, 2009 09:51 am
molly52 wrote:
Hello Jeanette, I am so sorry to hear your news. It is shocking to hear. What a good move you made, by bringing in your family doctor to advocate for you. The decision for each and every treatment is your choice and your choice alone. You can take advise from the experts, but utlimately, it is your decision. There is a lot of "waiting" involved in the process. Your biopsy results take a few days. There are a lot of steps involved to completing it - and the accuracy of these results is very important. The waiting is hard, I know. In terms of age, I don't think you are the oldest. For the Arimidex trials (a drug many take) the average age of the participants was 75. I agree with Amy, probably participation in these forums would depend on computer savy. My Mom was 88 and sending me emails - but I don't think she "surfed" the web at all. I wish you the best for Monday and hope your results come back B9. Diagnosis: 9/2005, IDC, <1cm, Grade 3, 0/2 nodes, ER+/PR- |
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Chevyboy Joined: Nov 2009 Posts: 278 |
Nov 4, 2009 03:11 pm, edited Nov 4, 2009 03:20 PM
by Chevyboy
Chevyboy wrote:
Hi Amylstrong! Thank you so much for your information! I really appreciate the feed-back! So did your Mom's friend go for the radiation every day? I have heard of the "Mammocet?" device, whereas the "seeds" of radiation go directly to the site, in your breast! Did the radiation "burn" her? I'm sorry to ask so many questions, but the gals on this site seem to know even more than some Doctors! Or maybe it's because you've BEEN there! I'm glad you have almost finished your treatment!! Be proud! I read a lot of the girls blogs on here, & find so much support for each other! THANK you....I'll write again after I find out! |
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Chevyboy Joined: Nov 2009 Posts: 278 |
Nov 4, 2009 03:19 pm
Chevyboy wrote:
Hi Molly! You mentioned the Arimidex drug....Is that taken in combination with radiation? I thank you so much, along with Amy, for writing back! I didn't even LEARN about a computer until I was 60, Ha! And I appreciate the knowledge I have learned from always looking up something I don't know, or are worried about! And yes, it was "shocking" to hear for the first time...but by reading about the gals on this site, & re-searching all I can find, I at least know all the alternatives if I find out one of my boobs is not living up to expectations...Ha! If I WERE much younger, I know it would make a difference in the decision I would make! Thanks Molly! |
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Chevyboy Joined: Nov 2009 Posts: 278 |
Nov 4, 2009 03:27 pm
Chevyboy wrote:
Yes, Marybe, you ARE young! I have always felt & acted much younger than my age says I am, & when I was 60, everything seemed perfect! I STILL feel like I should only be about 35... But my body sure doesn't co-operate! You know, IF they find cancer, there are so many things to think about...like do I go for the lumpectomy, or think about a mastectomy, or maybe even the double mastectomy! But since I am 72, maybe just the lumpectomy is the more sensible thing to do.... I think "cute little boobs" sound great, like with a double mastectomy with implants, but I'm thinking who would even SEE them, besides me? And one of my biggest questions, is what do your Husbands think of your decisions, & how you look? And do you care? Thanks you wonderful women....I appreciate all the help I can get! |
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BonnieK Joined: Nov 2008 Posts: 342 |
Nov 4, 2009 03:38 pm, edited Nov 4, 2009 03:59 PM
by BonnieK
BonnieK wrote:
Hi Jeannette, I don't know if you are the oldest person here, but I do have some idea how you feel. Last year the radiologist came in the room after my mammogram and ultrasound and said "I'm sorry, but I believe you have breast cancer". I felt something that I can't describe, but it was truly awful. Two days later, I had a core biopsy that proved him correct. My cancer was treated over a period of about 8 months with surgery, chemo and radiation. Now I am taking Arimidex and life is good again. Please keep in touch -- this is a wonderful place to come for support. Send me a PM if you have questions. Take care. Diagnosis: 9/2008, IDC, 5cm, Stage IIIa, Grade 2, 1/11 nodes, ER+/PR+, HER2- |
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desdemona22
Joined: Dec 2008 Posts: 708 |
Nov 4, 2009 03:52 pm
desdemona222b wrote:
Hi, Jeannette - Most of the time the radiologist will comment briefly on his findings when you have a diagnostic mammogram because they are referring you for a biopsy, so it's normal for them to tell you why you need a biopsy. All of us have been there and experienced the terror, so we completely sympathize. The diagnostic process is pretty long and drawn out - it's probably the worst part because of the fear. The actual treatment I had wasn't near as bad as the fear. (((Hugs))) Diagnosis: 11/17/2001, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR-, HER2+ |
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JudyM Joined: Oct 2009 Posts: 18 |
Nov 5, 2009 08:23 pm
JudyM wrote:
Hi, Jeanette: I'm 75 and posted earlier today about having had a needle biopsy this morning and being sent for MRI's on both breasts. I went to a book club meeting this afternoon and had some panic attacks on the drive home--the fear is the biggest thing to combat! We shall chat again. Strong hugs to you, and I need them too... Judy |
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cookiegal Joined: Sep 2009 Posts: 980 |
Nov 5, 2009 08:31 pm
cookiegal wrote:
My great aunt was dxed in her mid 90's! Radiologist said to me it looks like breast cancer but biopsy would be needed to confirm. Good luck to you!!!!! |
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CoolBreeze Joined: Aug 2009 Posts: 685 |
Nov 5, 2009 08:35 pm
CoolBreeze wrote:
Hi Jeannettte, My mom was diagnosed a year ago, and she was 77. She sailed through treatment and she wasn't in good health to start with. Sounds like you are, so you'll be just fine! You are right - the only way to know for sure you have BC is to have a biopsy. But, those radiologists do look at these things all day and they have some idea. Mine told me I had an 80% chance of it being cancer, and he was right. But until a cell is under a microscope, there is no certainty. My advice is hope for the best but prepare for the worst. My mom opted for mastectomy. She felt better instantly and started recovering immediately. And, she's a very heavy smoker and drinker. You'll be fine! Ann's cancer blog. http://butdoctorihatepink.blogspot.com/
Diagnosis: 8/17/2009, IDC, 4cm, Grade 3, 0/3 nodes, ER+/PR-, HER2+ |
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OmahaGirl Joined: Jul 2008 Posts: 513 |
Nov 5, 2009 08:36 pm
OmahaGirl wrote:
Hi Jeanette, I too am so glad that you went to your own Dr. and that they will advocate for you. In May 2008, I found out I had breast cancer, It certainly throws you into a tail spin just to be waiting for all the testing to come back and then trying to get a perspective on all the tx. options. I had a lumpectomy and then Mamosite radiation. Luckily I was a candidate because of the size and location of the tumor, not everyone is..but it was not the worst surgery I have ever had thats for sure! I did not experience any radiation burn, not even redness just discomfort from the balloon they insert before they begin the radiation, and it is only in there for 1 week. Whatever the outcome is you will be able to tolerate treatment, you have spunk and daughters to help you and support you. My daughter (33) was so supportive and I let her help me even though it has always been the other way around, the role reversal was okay. Goood luck and I hope your results are what we call Boringly B9. Linda ( add bilateral LCIS to my diagnosis)
Diagnosis: 5/30/2008, IDC, <1cm, Stage Ia, Grade 1, 0/4 nodes, ER+/PR-, HER2- |
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deborye Joined: Aug 2007 Posts: 2,564 |
Nov 5, 2009 08:41 pm
deborye wrote:
You will know more after the core biopsy, I got the call the next day. But remember, 80% of biopsy are B 9. Keep in touch. NEVER GIVE UP/NEVER SURRENDER/www.deborye.multiply.com/IDC 6mm DCIS 7mm
Diagnosis: 3/23/2007, IDC, <1cm, Stage Ib, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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spar2 Joined: Jan 2004 Posts: 6,516 |
Nov 5, 2009 09:09 pm
spar2 wrote:
Hi Jeanette, I got the call the next day after the core biopsy also. Please let us know how you do. Jeanette, we are here for you. There are so many wonderful ladies on here with so much knowledge. hugs. sherry www.spar2.multiply.com Lets help make each other's life better
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O3132W Joined: Jun 2009 Posts: 199 |
Nov 5, 2009 09:18 pm
O3132W wrote:
Jeannette: No you are not the oldest on this site. I will be 73 in three weeks and was dx with bc and had my lump. surgery June 30, 2009. You will have many many questions and fears and comments in the next few months. Be aware that you have found the right place for your voice. I myself am a person who wants to know everything and I cannot accept the just dont tell me approach. I am also a research person who uses the internet for most of my answers. I have learned one thing I didnt know and that is that you are in charge. So educate yourself and ask, ask, ask. The ladies on this site are forthcomming and have made the difference for me. I will be forever grateful for these brave women. Find the personal message section and communicate with ladies who are knowledgable in your questions. Good Luck It really does get better. Cathey from Indiana Diagnosis: 5/29/2009, IDC, <1cm, Stage I, Grade 2, 0/2 nodes, ER+ |
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Caldwell Joined: Nov 2009 Posts: 2 |
Nov 5, 2009 10:06 pm
Caldwell wrote:
Jeanette, Waiting is the worst. Radiologists are pretty good at what they do but they can't see the cells. I'm surprised a radiologist would suggest a treatment plan based only on that information, but maybe he/she was trying to relieve you from that waiting period. The fact that he/she didn't mention chemo suggests the abnormality might not be very big or scary looking. I would take all that as a good sign. You should have a definitive answer a few days after the biopsy. However, don't be afraid to call and ask if they don't call you when they say they will. My biopsy was questionable and they had to send it out for a second opinion and that took another week. Waiting was awful. The best relief from the tension was to spend time with people who didn't know I was going through this. They expected me to act normally and they acted normally toward me so I had some time when I could feel like the world hadn't really changed that much. Good luck to you. Caldwell, from Maryland |
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Chevyboy Joined: Nov 2009 Posts: 278 |
Nov 7, 2009 08:22 am
Chevyboy wrote:
Hi Girls! I sooo appreciate all of your comments! And Spar2, I hope like you, I know the next day also! Cathey, thank you also for your support, and yes, I just love this site....First thing I do in the mornings, is look for all my new "friends" on here! Hello Deborye...I still don't know what B 9 means, but hopefully I will find out after my biopsy this Monday! I love that..."Never give up, Never surrender".... Hi CoolBreeze! Thanks for telling me about your Mom....My Mom had breast cancer about 20 years ago...And at that time, I think all they did were radical mastectomies. They have come so far now, I know! And I quit smoking in 1964....so THAT should help somewhere along the line! And Caldwell...yes, I know about people trying to make you feel better....I think that's their job...but I tell you, the women on this site are all my guardian angels...you all make me feel safe, and I so appreciate that. OmahaGirl...Thanks so much for the answers! Perfect! I hope that if mine is the same as yours, they will give me the option for the same treatment! My Daughters are 51 & 48, & still my "little girls"...Ha! Just thanks everyone! I'll post again after I go Monday for the biopsy! xoxoxoxo to everyone! |
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Chevyboy Joined: Nov 2009 Posts: 278 |
Nov 8, 2009 08:12 am
Chevyboy wrote:
I have heard so much about out lymph nodes! My Sister-in-law had a lumpectomy with the mammocet radiation, but didn't have any lymph nodes removed! I guess she is doing fine now, but do we have a choice when undergoing either a lumpectomy or a mastectomy? And what happens when they are removed? I know if cancer has spread to the nodes, they should be removed, but can they test before removing? And what exactly is their purpose? Thanks again, I just keep coming up with all these questions after reading your posts! I go in tomorrow morning, for the biopsy, & so far, I'm not as afraid as I was! And that's thanks to you gals! |
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kmccraw423 Joined: Dec 2008 Posts: 2,259 |
Nov 8, 2009 08:43 am
kmccraw423 wrote:
Jeannettes9 - so sorry you had to come here in this way. The information here is first rate and first hand. The news is so scary so I just went into auto-pilot, getting tests, MRIs, biopsy. I have said before that I took the Scarlett O'Hara approach and decided to think about it tomorrow but I was doing everything within my control while I was shell-shocked. Gosh, as to being the oldest - I don't think so! B-9 means benign. Somewhere, and maybe some of the other brave warriors know, there is a thread on what the nicknames mean. These are the absolutely best women in the universe. You will find so many resources here and so much empathy and understanding. Hope yours is b-9. Kathleen
Diagnosis: 10/3/2008, DCIS, 4cm, 0/2 nodes, ER+/PR+, HER2- |
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Chevyboy Joined: Nov 2009 Posts: 278 |
Nov 9, 2009 02:11 pm, edited Nov 9, 2009 03:37 PM
by Chevyboy
Chevyboy wrote:
It finally came & went! The biopsy is done! YESSSSS !!!!!!!!! Didn't hurt as much as I thought it would! A clip was inserted, & now I am supposed to find out tomorrow afternoon what the test said! I am so thankful for you gals on this site, because after reading a lot of your posts, I knew what to expect, & you answered so many questions....I am not afraid anymore, no matter what! The first "Report" said...."Highly suggestive of malignancy"...which is the same thing they had told me after the first ultra-sound.......I'll post after I hear! Thank you again! Jeannette |
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tamlyn110 Joined: Aug 2009 Posts: 148 |
Nov 10, 2009 10:51 pm
tamlyn110 wrote:
Hi Jeannette, Hope you are doing well after your biopsy. Let us know tommorrow after you find out. Good luck! https://www.carepages.com/carepages/tammyb1968
Diagnosis: 6/29/2009, IDC, 3cm, Stage IIIc, Grade 3, 15/21 nodes, ER-/PR-, HER2- |
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Chevyboy Joined: Nov 2009 Posts: 278 |
Nov 11, 2009 02:52 pm
Chevyboy wrote:
Hi gals! I had the biopsy, & my Doctor called me back yesterday afternoon to tell me that I did have a malignancy, but "non-invasive".....& they set me up for an appointment with a"very good surgeon" for next Monday! I am really doing great, considering hearing that news! I just knew from the beginning, that it wouldn't be good. So researching this site, reading what all the women talk about, & just learning as much as I can, has really calmed me & been so much support! I just want to know more about lymph nodes! The biopsy doctor said, that one would be removed, & if it tested positive, they would then remove 3 more...and so on....BUT my Brother who lost his Daughter to cancer, starting out with breast cancer which went everywhere, blames her death on them removing her lymph nodes! So he is scaring me worse than anything! His wife had a lumpectomy, with a "mammocet device?" put in for the radiation, & she told him she didn't have any nodes removed! Does this sound right? I'm going to listen to the team of Doctors who know a lot more about it, & then take their advice!! Please tell me if you have any opinions! Thanks so much for all of your help! |
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desdemona22
Joined: Dec 2008 Posts: 708 |
Nov 11, 2009 03:00 pm
desdemona222b wrote:
Testing the lymph nodes is vital for the doctors to come up with the correct treatment plan. Most of the time there is no node involvement with non-invasive cancer. Diagnosis: 11/17/2001, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR-, HER2- |
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Chevyboy Joined: Nov 2009 Posts: 278 |
Nov 11, 2009 05:08 pm
Chevyboy wrote:
Thank you Desdemona...that is a relief to me! Sometimes you listen to things that have happened to women years ago, & they tell me to just have your breast OFF! And it HURTS to have people tell you that, after Doctors have told you that a "lumpectomy" is what they think is needed! I mean even my Daughter told me that! But after the "advice"from "well meaning friends & family, ....I will work with my Doctor & her "team" to decide what is best for me! Anyway I will find out Monday, where this "journey" is taking me next! Thanks again...JeannetteDiagnosis: 10/26/2009 |
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OmahaGirl Joined: Jul 2008 Posts: 513 |
Nov 12, 2009 12:10 pm, edited Nov 12, 2009 12:13 PM
by OmahaGirl
OmahaGirl wrote:
Well Jeannette I truly hate to see anyone join us in this club, but since you are a member now I think your plan to listen to your surgeon (make sure they are a Breast Surgeon not general surgeon) is a good one. Testing the Sentinal Node is a must once you have BC and it is just one node. Usually, (because every single one of us is different) if you have a smaller non invasive cancer it is a lumpectomy. You and your Dr. will have to decide on any further tx. such as radiation etc. I did the Mamosite radiation but not every hospital offers it and you must meet very specific requirements. A lumpectomy is typically not difficult to recover from, but then neither is a simple mastectomy. When you have your plans made let us know. Linda ( 5-09 Bilateral Pleomorphic LCIS)
Diagnosis: 5/30/2008, IDC, <1cm, Stage Ia, Grade 1, 0/4 nodes, ER+/PR-, HER2- |
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mgm42 Joined: Oct 2009 Posts: 43 |
Nov 12, 2009 12:43 pm
mgm42 wrote:
Jeanette, I was diagnosed two years ago at age 65, and like you, I thought I'd dodged the bullet. Yet, here it is two full years later and I'm here to tell you that it will okay. At first it seems like your world is tumbling in and that at our ages we shouldn't have to deal with this.. But, I've learned that over half of the newly diagnosed cases of bc are in women aged 60 and over. I'm sorry to have to welcome you to this club, but this is sisterhood is a tight group and we support one another to the nth degree. Hang in there kiddo. Hugs, Marilynn Marilynn
Diagnosis: 11/7/2007, IDC, 1cm, Stage Ib, Grade 2, 0/2 nodes, ER+/PR+ |
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Chevyboy Joined: Nov 2009 Posts: 278 |
Nov 12, 2009 04:20 pm
Chevyboy wrote:
THANK you girls for your input! yeah, Marilyn, I am 72, but always thought maybe I would have cancer, because of my Mom, my Aunt, & my Niece. I know each person is different in how bad, their diagnosis is, & the treatments they have! But I am surprised, that I am not a rolled-up ball of a mess laying on the floor! This web-site, and you girls, I KNOW have a part in this because of your support & your encouraging posts! Do you still take Tamoxifen? Or did you ever? And I wish I could find a place here, to understand all of the abbreviations, Ha! Man, I try & figure them out, but some, I just can't! And OmanaGirl...Right now, I think she is a "surgeon"....I will check further on-line to see what her specialty is! Good point! And do you see an Oncologist before, or after? Or are they just in on the deal? Can you tell me more about the Mammosite device, or treatment? I can't find out anything about it. My Sister-in-law had the same treatment, and I find it hard to ask her questions! Thanks again, and I'll keep reading your posts! Jeannette Diagnosis: 10/26/2009 |
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redsox Joined: Jun 2009 Posts: 92 |
Nov 12, 2009 04:52 pm, edited Nov 12, 2009 04:53 PM
by redsox
redsox wrote:
There is a thread called, "Abbreviations for Newbies" on the Waiting for Test Results forum. I just bumped it and it should be at the top now. Diagnosis: 5/2009, DCIS, <1cm, Stage 0, Grade 1, ER+/PR+, HER2- |
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JO-5 Joined: Oct 2008 Posts: 2,522 |
Nov 13, 2009 12:43 pm, edited Nov 13, 2009 12:54 PM
by JO-5
JO-5 wrote:
Jeanette, I know that most everyone here will tell you to BE SURE you have a BREAST SURGEON. I had a general surgeon but he does more breasts surgeries than anything else - is the one that every female nurse and dr. uses at our hospital breast center...... so there are some good ones out there. Go with what you feel comfortable with. If they find no node involvement and the lumpectomy shows what you suspect, it sounds like you will go the radiation, Arimidex route ---- if your tumor is ER+PR+. If not - then the treatment is somewhat different. Tamox. is not usually given to women our age. Mammosite is radiation - just takes a few days. I had the regular kind where I went 5 days a week for over 6 weeks. You will see a Med. Onc. after the path report comes back from the lumpectomy. I never had a Med. Onc. (just a Radiation Onc.) because I didn't have chemo. If you go to the Home Page on this Forum and type in whatever you want to know in the search area ----- you can find a lot of answers to your questions. Good luck and God bless! JO-5 edited to say ---- I BUMPED THE ABREVEATIONS FOR NEWBIES --- AGAIN FOR YOU! (LIFE VERSE JOB 13:15)
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mawhinney Joined: Jun 2008 Posts: 820 |
Nov 13, 2009 08:15 pm
mawhinney wrote:
The nodes are generally the first place cancer spreads to. Your BS will probably do a sentinel node biopsy. If the sentinel node is clear, they assume cancer has not spread. If they find cancer in the sentinel node, they will take other nodes until they find a clear node. For the sentinel node biopsy you will be injected with a radio active dye that helps the BS identify your sentinel node. Be sure to read all the info listed at the top of this page. It is very informative and easy to understand. I make a list of questions to take to every appointment. I keep notepads around the house and jot down questions as I think of them. Remember that the results of your biopsy are just preliminary results. It is the final pathology report from your surgery that will ultimately determine your after surgery treatments. My treatment plan changed when the final path report was received. I ask for copies of all my tests results & reports. Diagnosis: 5/18/2008, IDC, <1cm, Stage Ib, Grade 2, 0/1 nodes, ER+/PR+, HER2- |
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