I don't know where to ask this question but my breast surgeon said no more estrogen because my pathology report came back estrogen positive (?). Anyway, I was only using Premarin cream, since my hysterectomy in 2003, but I have not used any since September 15. The breast surgeon's nurse said to try Replens. Has anyone tried it and what was your experience? I bought a box and need to get motivated to do it since I am very depressed.
Thanks.
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dlrcpa Joined: Oct 2004 Posts: 458 |
Oct 25, 2009 04:02 pm
dlrcpa wrote:
Hi. I also had a hysterectomy (in 2004) and am now on Arimidex. Replens is a necessity!! I did not use it for a while and my OBGYN said my insides looked pretty dry & raw. I use it once or twice a week. I get the kind w/ reusable applicator since I find I don't really need a full dose as provided in the pre-filled applicator. Beware of the comparable CVS store brand....I tried that once and got a very weird/unpleasant sensation when using that kind. I was not exactly allergic but if felt sort of comparable to that. So now I just stick to REPLENS. Good luck...... Donna in VA
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Leah_S Joined: Apr 2009 Posts: 1,075 |
Oct 25, 2009 04:52 pm
Leah_S wrote:
I didn't like the Replens (found it hurt a bit at, shall we say, moments where pain was NOT the sensation otf choice) but found KY jelly to be very helpful & natural-feeling. Leah Diagnosis: 11/3/2008, IDC, 1cm, Stage IIb, Grade 3, 6/17 nodes, ER+/PR+, HER2- |
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coffeelatte
Joined: Jul 2009 Posts: 19 |
Oct 25, 2009 07:40 pm
coffeelatte wrote:
Thanks so much for the responses. I am going to give Replens a try because I have had back to back UTIs due to the dryness and atrophy. I did buy the 8 pre-filled applicators, but I plan to use only a bit more than half since reading Donna's comments. I bought this at CVS so I am so glad you mentioned what happened while using the off-brand. I am going to give it a try tonight. Like I said, I feel so depressed about all of this medical issues. I just got over my lumpectomy and now I am dealing with UTIs and feeling 100-years old rather than 52! I am also going through hormone withdrawls from stopping the Premarin cream (I used it about 3x per week) so that is not helping my mood. Thank you so much for the tips, this website has been my life-line since June. |
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LiniWD Joined: Sep 2005 Posts: 329 |
Nov 13, 2009 06:18 pm
LiniWD wrote:
I find the combo of Replens a day or so ahead and KY jelly during helps a lot. Like Donne said, use the original, not the CVS store brand. Lynn from Tampa (trying to keep life with hubby interesting) Go confidently in the direction of your dreams....live the life you have imagined.
Diagnosis: 10/26/2004, IDC, 6cm+, Stage IV, 3/6 nodes, mets, ER+/PR-, HER2- |
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sushanna1 Joined: Feb 2003 Posts: 792 |
Nov 14, 2009 06:18 am
sushanna1 wrote:
I didn't like replens. It seemed to come out in clumps. I have had moderate success with the KY ovules used in combination with vagisil or similar vaginal moisturizer applied externally once or twice a day as a moisturizer. Good luck. |
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roseg Joined: Sep 2004 Posts: 8,598 |
Nov 14, 2009 06:22 am
roseg wrote:
I had the clump problem too. I thought using less than the full applicator helped. The KY Ovule is good also. You might ask your Oncologist about other estorgen-moisturizers. Some are supposed to emit less estrogen. If you were using a lot of premarin cream you might be able to use less of something else. It can be a quality of life issue! Rose
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Agnes17 Joined: Jul 2008 Posts: 117 |
Dec 22, 2009 09:13 pm
Agnes17 wrote:
I find that Replens helps. I put it in at bedtime in bed after I have gone to the bathroom. It doesn't burn. I too tried the CVS brand and the Replens brands works better. The CVS brand is too watery. To help with the burning you may want to take (by mouth) a daily acidophilus probiotic. It helps to restore normal flora in your gut and vaginal tract. Dx 06/2008, ILC 3.8 cm, Stage 2A, ER pos/PR pos, Her2 -,SNB with isolated tumor cell, 07/08 bilateral mastectomy with reconstruction and port inserted, 4 cycles of chemo TC x2 then AC x2 from 08/27-10/29/08, started on Tamoxifen
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Agnes17 Joined: Jul 2008 Posts: 117 |
Mar 3, 2010 09:21 am
Agnes17 wrote:
I like Replens, it works well for me, But you can try different brand and you may find one that you like better just be careful was some of the other moisturizers and lubricants. Make sure you read labels. Some have parabans as a preservative in them. Parabans have been banned in Europe because they may be carcinogenic. Dx 06/2008, ILC 3.8 cm, Stage 2A, ER pos/PR pos, Her2 -,SNB with isolated tumor cell, 07/08 bilateral mastectomy with reconstruction and port inserted, 4 cycles of chemo TC x2 then AC x2 from 08/27-10/29/08, started on Tamoxifen
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Agnes17 Joined: Jul 2008 Posts: 117 |
Mar 3, 2010 09:21 am
Agnes17 wrote:
I like Replens, it works well for me, But you can try different brand and you may find one that you like better just be careful was some of the other moisturizers and lubricants. Make sure you read labels. Some have parabans as a preservative in them. Parabans have been banned in Europe because they may be carcinogenic. Dx 06/2008, ILC 3.8 cm, Stage 2A, ER pos/PR pos, Her2 -,SNB with isolated tumor cell, 07/08 bilateral mastectomy with reconstruction and port inserted, 4 cycles of chemo TC x2 then AC x2 from 08/27-10/29/08, started on Tamoxifen
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Leah_S Joined: Apr 2009 Posts: 1,075 |
Mar 3, 2010 09:58 am
Leah_S wrote:
On another thread someone suggested using coconut oil. I tried it and it's very good. I use it every night, and it helps not just for intimacy but also for feeling "normal" the rest of the time. Since I've had these issues for about 5 - 6 years before bc (came with menopause), it was very nice to go back to normal. Coconut oil is called "oil" but is actually a solid. I take a piece and insert it as I would a vaginal suppository. Hope that helps. Leah Diagnosis: 11/3/2008, IDC, 1cm, Stage IIb, Grade 3, 6/17 nodes, ER+/PR+, HER2- |
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chinablue Joined: Jul 2009 Posts: 308 |
Mar 7, 2010 09:38 am
chinablue wrote:
Does it smell strongly of coconut? Diagnosis: 7/7/2009, IDC, 3cm, Stage IIIa, Grade 3, 3/24 nodes, ER-/PR-, HER2- |
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Leah_S Joined: Apr 2009 Posts: 1,075 |
Mar 7, 2010 11:16 am
Leah_S wrote:
I didn't notice any odor at all. Leah Diagnosis: 11/3/2008, IDC, 1cm, Stage IIb, Grade 3, 6/17 nodes, ER+/PR+, HER2- |
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Caya Joined: Feb 2007 Posts: 906 |
Mar 7, 2010 11:27 am
Caya wrote:
I use coconut oil, I suggested it on another thread. I also use it daily, it is very soothing - I also pop in a Vitamin E capsule (prick open one end with a manicure scissors before inserting) - finding this all helps. I had tried Replens, but I found it to be irritating, rather than helping. It is also very expensive, I wouldn't care if it actually worked, but for me it didn't. I find the coconut oil can initially smell of coconut, but almost immediately fade. Make sure you get the 100% virgin organic coconut oil - it costs a bit more, but is totally free of anything. A big jar may cost $10 or so, but it can last for months. I use the coconut oil on my whole body for moisturizing - also have been basically "snorting" it up my nostrils for chronic sinus stuffiness I have every winter. Along with using a netipot this has really helped. Diagnosis: 10/16/2006, IDC, 1cm, Stage I, Grade 2, 0/16 nodes, ER+/PR+, HER2+ |
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Leah_S Joined: Apr 2009 Posts: 1,075 |
Mar 7, 2010 11:54 am
Leah_S wrote:
Caya, I didn't remember who suggested it, but since it was you I want to thank you. It helped immensely. Leah Diagnosis: 11/3/2008, IDC, 1cm, Stage IIb, Grade 3, 6/17 nodes, ER+/PR+, HER2- |
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