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Topic: Recurrence after bilat mastectomy?

Forum: Second or Third Breast Cancer — For those confronting a new primary diagnosis or undergoing treatment.

Posted on: Jan 17, 2009 04:17PM

slmdavidson wrote:

I've just had a recurrence after a bilat mastectomy 15 months ago.  Just wondering if anyone else has had this??  I thought I was done with breast cancer after removing both breasts!  I did not have rads, chemo or tamoxifen last time.  Just had my "lumpectomy" and 5 LN taken out this week, and still waiting on the pathology report.  Looks like probably radiation this time and tamoxifen but not sure yet about chemo.  Will know more at my follow up appt this week.  I guess it was good I found it early - it was right there under the skin.  Seems like I read 1% recurrence rate after mastectomy but that seems high to me since I haven't read much about it.  Anyone else have this?  Thanks, Laura

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Jan 17, 2009 05:10PM samiam40A wrote:

First of all, I am so sorry you have to go through this again.  I have also heard the 1% recurrence figure due to some breast cells being left behind. 

 I am in the planning stage of my bilat mx and hearing this scares the heck out of me.  However, chemo and tamox are being recommended for me.  Just curious--did your doctor offer you those options? 

In any case, I will be thinking of you and sending good vibes your way.  Hang in there and I know you will get great support from the ladies on this board. 

-Samiam

IDC diagnosed 1/12/09, 1.6 cm, ER+/PR+/HER-, MIB-1 15%, bilat mx w/TEs scheduled for 2/3/09; awaiting BRCA results

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Jan 17, 2009 05:40PM Mykidsmom wrote:

Laura - That is totally unfair! After all you went through and now this. I am so very sorry. I know they talk about a 1-3% risk due to a few breast cancer cells remaining, but boy oh boy - it doesn't seem real. As you said, at least they caught it early. Best wishes and hugs!!! - Jean

Prophylactic Bilateral Mastectomy w/ Tissue Expanders - 12/08 Exchange 04/09

Dx 8/25/2008, LCIS, Stage 0
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Jan 18, 2009 08:00AM slmdavidson wrote:

Samiam - thanks for your reply.  Since my initial diagnosis in 2007 was stage 0, multifocal DCIS, my surgeon did not refer me to any other oncologist or radiatiologist.  Since my 1 node was negative at the time of the mastectomy, he said no further treatment was needed and nothing further was offered, not even a suggestion for a consultation.  In retrospect, I'm thinking Tamoxifene should have been a no-brainer.  But I didn't know - didn't push - was happy to have gotten away "easy", though the bilat mastectomy and latisimus flap was pretty brutal (but great cosmetic results).  I wish I had found this website back then.  I would have been much more educated!  If you need to talk w/anyone about the mastectomy/reconstruction let me know!

 Laura

Dx 12/26/2008, IDC, <1cm, Stage I, Grade 1, 0/5 nodes, ER+/PR+, HER2-
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Jan 18, 2009 08:41AM Lisa1964 wrote:

Laura, I am so sorry you are going thru this again.  However, I must thank you for posting this.  you have validated my decisions and course of treatment.  My idiot BS initially told me DCIS, lump, rads - with no discussion or other options offered.  I was not comfortable with so little info so I had several conversations with the PA - God Bless her!  I then decided on the bi-lateral mx.  During the surgery IDC was discovered hidden under the DCIS and I had 2 positive nodes.  Tomorrow I have my 5th out of 6 chemo tx's.  I have considered chemo my "insurance policy" and your experience validates that.  I will have 1 year of Herceptin and 5 years of tamoxifene in addition to the chemo.

Good luck to you.  This is a great place for info and support.

Lisa

I attacked and I won! www.JohnnyRebelAcres.com

Dx 8/28/2008, IDC, <1cm, Stage IIa, Grade 1, 2/17 nodes, ER+/PR+, HER2+
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Jan 18, 2009 02:30PM slmdavidson wrote:

Hi Lisa.  You are a great example.  Too many times, I've read things here that indicate some physicians aren't willing to be aggressive and it's the patient that ultimately pays the price.  What a shock for you to find the IDC during your surgery?  Wow.  Obviously this validated your decision.  You would think that would be insurance enough. One big lesson I just learned -  pay attention to your body.  Just because you've had a mx doesn't guarantee you are done with this beast....I found the lump, found it early, and didn't wait long to get it biopsied.  I'm glad I was paying attention!  All my best to you!!! Smile

Dx 12/26/2008, IDC, <1cm, Stage I, Grade 1, 0/5 nodes, ER+/PR+, HER2-
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Jan 18, 2009 02:44PM jules3 wrote:

Wow Laura...that s a mind bender for sure!  Had you done reconstruction too???  I m so thnkful you found it too...Yes, these boards have been a true God-send and I have avoided many mistakes becuz of the angels on here...ex: I found out about the test for metabolization of tamoxifen and had it done~~it s very rare (only 6%of women do not metabolize) and I just happend to be one!  My onc. had never suggested it ...she also "forgot" that prozac doesnt work with tamox...I learned that one too from the gals on the boards.  BTW I also got my NEW onc. referral from someone on here~~I love him and he makes me feel confident~~so important becuz he and I are partners for life!!

I say a prayer for good results on your tests~~be sure to let us know what happens becuz we really do care....

Love Jules

my puppy looks everywhere for the Cure! he's convinced its near the neighbor's shitzu, Daisy!

Dx 9/5/2008, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2-
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Jan 18, 2009 02:47PM Estepp wrote:

So Lisa, no radiation? I am having to make that choice right now.

We are the Ta Ta Sisterhood! Her2+ BC is what I had.... and yes sisters.. I had lymph node involvement...Plus Radiation AND Implant only Reconstruction. DX 6/25/08

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Jan 18, 2009 02:48PM Estepp wrote:

Laura, thank God you found it early!

We are the Ta Ta Sisterhood! Her2+ BC is what I had.... and yes sisters.. I had lymph node involvement...Plus Radiation AND Implant only Reconstruction. DX 6/25/08

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Jan 18, 2009 08:09PM slmdavidson wrote:

Jules - thanks for your reply.  I did do the latisimus flap reconstruction at the time of the mastectomy (Oct 07).  Pretty brual recovery but overall great cosmetic results.  I was 41 at the initial diagnosis and figured I could handle it.  Had the tissue expanders then switched them out for implants in Feb 08.  Thanks for the info on the tamoxifen.  I had no idea about the metabolism issue.  Good to know - were you having side effects that you noticed or how did that all come about?   Love your puppy comment and photo - adorable!  Is it a poodle or bichon?  P.S. Our cancer stats are pretty similar.  Would love to hear your treatment plan.  I should be hearing some info this week as to my next steps. 

Dx 12/26/2008, IDC, <1cm, Stage I, Grade 1, 0/5 nodes, ER+/PR+, HER2-
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Jan 18, 2009 09:27PM Lisa1964 wrote:

I was not aware of a metabolism issue with tamoxifen.  What is the test????

Esteep, just looked your dx.  Grade 3  and tumor size may be why your rad doc is suggesting the rads.  Who knows.  Another examply of why we have to be proactive in our care.

Lisa

I attacked and I won! www.JohnnyRebelAcres.com

Dx 8/28/2008, IDC, <1cm, Stage IIa, Grade 1, 2/17 nodes, ER+/PR+, HER2+
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Jan 19, 2009 11:21AM Nichola wrote:

Hi Laura

I too was stage 1 grade 1, no rads or chemo and I declined tamox. I too have had a recurrence, mine in the skin of my skin sparing mascectomy with immediate LD flap reconstruction and had to have it removed.  It was such a shock and from what I could nake out there was a less than 1% chance of ths happening.

I had 3 x satellite skin nodules?  Was yours in the skin? 

Sending you love and cyber hugs as I truly know how you're feeling...

Nikki

Original DX Stage 1, Grade 1 multifocal IDC 2004. Multiple nodule recurrence in skin of reconstruction, Nov 2007 and reconstruction removed. DIEP/tram replacement reconstruction Dec 2008. May 2010 DX chest wall recurrence.

Dx 11/27/2007, 1cm, 0/10 nodes, ER+/PR+, HER2-
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Jan 19, 2009 01:44PM SuzCA wrote:

Lots of 1% 'rs here.  I had a bilat skin sparing mast in April 05 for stage 2, big tumor, no nodes, so no radiation.I had 8 rounds of chemo. In June of 08 after many surgeries on the left breast due to healing problems I had all the remaining tissue removed during a tram flap on that side.  They found some dcis and a small amount of idc.  Evidently the remaining cells were dcis at the time so they did not respond to chemo.  But I had some high grade cells too and those evolved into idc.  My Onc says I owe my guardian angel a big Thank You.  Fortunately the margins we wide and the nodes that were scooped out with the rest of the tissue were negative so no further tx was recommend.  Quite a surprise though.   

DX 4/2005 Stage II?(vascualr invasion) IDC, DCIS, LCIS, weak ER+, PR-, HER2-, IDC, DCIS loc reocc, IDC 8/2008

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Jan 20, 2009 07:49PM slmdavidson wrote:

Hi SuzCA and Nikki,

Too many 1%'s here!!!  I see a lot of "skin sparing" too.  I wonder since that is relatively new, if they will find out that it's not such a great idea?  I just got my lumpectomy path report back yesterday and didn't get clear margins, so back in I go on Tues.  Looks like radiation and tamoxifen for me this time (didn't do either last time).  Am seeing an Oncologist in the next few weeks and the oncotype DX test is in process.  I'm hoping to still get away without chemo, but if it's recommended, of course, I will do it. 

I didn't have any "satellite skin nodules"... not sure what that is?  Mine was ~ 1 cm total (so far) just under the skin so not considered on the muscle.  The did extra scraping of the skin that remained, all around where the lumpectomy was and no native breast cells at all were identified so it certainly defies logic.  I think it's important for the mastectomy ladies to know to be watchful.  Plus, I was told I didn't need any more mammograms - not sure I believe that either. 

Beat of luck to you both.  I think we all got lucky here!  Laura

Dx 12/26/2008, IDC, <1cm, Stage I, Grade 1, 0/5 nodes, ER+/PR+, HER2-
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Jan 21, 2009 06:33AM Mykidsmom wrote:

Ok ladies - You have me convinced that there is still a real risk out there. What kind of monitoring did your MD's suggest for post-bilateral mastectomy? And how frequently? Thanks. - Jean

Prophylactic Bilateral Mastectomy w/ Tissue Expanders - 12/08 Exchange 04/09

Dx 8/25/2008, LCIS, Stage 0
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Jan 21, 2009 06:59AM Nichola wrote:

Hi Girls

I come from a medical family and as such just had to find out as much as poss on this subject.  I found a couple of clinical trials using the histories of several thousand women and compared skin sparing mascectomy and straight mascectomy recurrence:  The outcome of these trials seemed to prove that skin sparing presented no more risk.  We are just plain unlucky!

Laura - am I right that your recurrence is under the skin, but not involving the skin..?  I do hope so as that is better for you.   Skin "mets" presents in different ways, anything from a rash to individual "satellite" nodules as I have. 

If you no longer have breasts/ breast tissue they won't do mammos... Ultrasound of reconstruction/ mascectomy scar and armpits is certainly done periodically here in the UK.

Nikki

Original DX Stage 1, Grade 1 multifocal IDC 2004. Multiple nodule recurrence in skin of reconstruction, Nov 2007 and reconstruction removed. DIEP/tram replacement reconstruction Dec 2008. May 2010 DX chest wall recurrence.

Dx 11/27/2007, 1cm, 0/10 nodes, ER+/PR+, HER2-
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Jan 21, 2009 07:00AM mittmott wrote:

I had a lump( a few months) on my scar line after my mx, had it removed and it was only fat necrosis.  I had my mx a little over a year ago. I have another small lump, but it looks like a stitch mark from what I can make out.  I've had it a few months, I'm seeing doc next week, and will show her.  I hope I don't have to do another biopsy. She told me they always have to be done surgically because of the implants. By the way, I had lat flap and implant on cancer side, just implant on non cancer side. lat flap side looks better.  My only follow ups are with b. surgeon. I found an outside onc to follow me once a year. The onc. I had at msk sent me off, I had no chemo, or rads with this cancer, and no tam., as it doesn't work on me. This was my second cancer, I got my first one after being on tam. for a year, so they feel it's not right for me.

Dx 9/9/2007, IDC, <1cm, Stage I, Grade 3, 0/10 nodes, ER+/PR+
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Jan 21, 2009 08:04PM slmdavidson wrote:

Nikki and Jean

You are correct, my recurrence was under the skin, not within it, so I was lucky.  Regarding the continued follow up, I had NONE.  My breast surgeon said I didn't need to do mammograms anymore.  I'm not really sure though if it would have been picked up.  There was a really small lump which was "plucked" out via the biopsy.  The path report showed much more cancer, but it wasn't seen on the mammogram or MRI I just had.  The mammo tech noticed it had been 16 months since my last one and she wondered why I hadn't had one.  I told her what my doctor said and she said they do them all the time on reconstructions so I guess there is a difference this practice.  Once I get through all of this (surgery again Tue since margins weren't clear) I'll make sure I ask about any additional follow up. 

 Laura

Dx 12/26/2008, IDC, <1cm, Stage I, Grade 1, 0/5 nodes, ER+/PR+, HER2-
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Jan 22, 2009 12:29PM healthteach wrote:

Hi.  I too had a double mastectomy, reconstruction followed by chemotherapy and tamaxofen.  Two years later mine came back in a lymph node. I was feeling a lump in my armpit an no one thought it was anything but it was a cancerous lymph node (mine was in 1 out of 20 the first time)> It was frustrating becasue I too thought I did the most aggressive things but sometimes cancer is more aggressive than anything we do.  This time around I removed the node and whatever nodes that were left (about 5) and had radiation of the whole area, had my ovaries removed and now am on femera.  Frustrating being 39, working with three little ones but doing the best I can. I feel good...exercise and do what my doctors tell me to do! It does seem like there are a lot of us in the less than 1% group!  Be well-healthteach

Stacey

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Jan 22, 2009 04:33PM slmdavidson wrote:

Wow Healthteach!  That is so unfair - and you are so young and to have to go through ALL of that!  You absolutely did everything the first time to keep this from happening.  Life just isn't fair.  You seem like you are really handling everything so well.  God only gives us what we can handle and you must be a very strong woman.  I'm sending prayers your way right now!  You are an inspiration.  Take care!

 Laura

Dx 12/26/2008, IDC, <1cm, Stage I, Grade 1, 0/5 nodes, ER+/PR+, HER2-
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Jan 23, 2009 10:46AM healthteach wrote:

right back at ya on the prayers...Let me know your next course of action, may be I can help. 

Stacey

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Feb 4, 2009 07:49PM Kathy59 wrote:

I just found out today that my cancer is back after almost 12 years. In 1997, I had a bilateral mastectamy and reconstruction and was told everything would be fine - no drugs, radiation or chemo, and no more mammograms. So I was shocked when right before christmas, I found a large lump in the same breast as the first occurrance. I went to my dr. and thank goodness I saw the PA who insisted I have a mammogram immediately and sent me back to my surgeon. The mammogram and follow-up ultrasound showed a highly susp. growth which I had removed last week (opted for total removal instead of biopsy). Got tests result yesterday and will see onc. on Monday and multi-specialist team after that. Right now I am feeling that I and my drs. before kind of dropped the ball. I was happy to believe that I had nothing to worry about anymore, I didn't keep current on new findings or developments - the nurse at my mammogram told me that they are now telling women to keep having their yearly mammograms after surgery. Bottom line, you are the best advocate you can have, keep up on current info, ask questions and always get a second opinion. Having said that, what tests should I have done? I had most of my lymph nodes removed during my first surgery so there were none to take this time. I've been told that I should have either a CT scan or petscan. Are their other tests I should ask for? From reading this forum, I think the recurrence rate is much higher than 1%. Thanks for reading this, listening and caring. 

Dx 2/2/2009, IDC, 3cm, Stage II, ER+
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Feb 5, 2009 08:07AM Mykidsmom wrote:

Kathy - Wow. I was also told no need for MRI or mammo's after the bilateral as well. I am SO SORRY about what you are going through now. I don't have the answers for you, but I will be checking in w/ my oncologist next fall to discuss follow-up. I am sending you cyber hugs. Please keep us posted on how things go! Take care. - Jean

Prophylactic Bilateral Mastectomy w/ Tissue Expanders - 12/08 Exchange 04/09

Dx 8/25/2008, LCIS, Stage 0
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Feb 5, 2009 08:17AM slmdavidson wrote:

Hi Kathy

Thank you so much for sharing.  I am SO sorry to hear about this.  It is so unbelieveable?  I also had the same treatment first time around....bilateral mx, no hormone therapy, no rads, no chemo, no mammograms or MRI's.  Mine came back quick, only 15 months later....my breast surgeon has only seen this one other time in all of his years so who knows how prevalent it really is???  I'm still in the midst of figuring out my treament plan this time around.  Just finished my surgery a week ago and see a rads doc tomorrow, Oncologist on Feb 20.  Please keep me posted on what you are going through. You can send me a private message if you want and maybe we can keep track of each other!!!  Sounds like we are on the same timeline.  Was your first diagnosis DCIS?

Hugs to you....praying for you Kathy!

Laura

Dx 12/26/2008, IDC, <1cm, Stage I, Grade 1, 0/5 nodes, ER+/PR+, HER2-
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Feb 5, 2009 09:34AM Kathy59 wrote:

Laura and Jean

Thanks for your replies, hugs and prayers. My first diagnosis was stage 1, but after surgery the drs. were so positive, and not having to go thru any treatment, I was convinced it was over. I will go see the onc. and a multi-specialist team next week. Surgeon seems to think I will need some type of drug therapy and radiation but we'll wait and see. I do know this time, I won't "close the book" and act like the cancer chapter of my life is over and done with. My thoughts and prayers are with you both - Laura, let me know what the rad dr. had to say. Kathy

Dx 2/2/2009, IDC, 3cm, Stage II, ER+
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Feb 7, 2009 09:40AM slmdavidson wrote:

Hi Kathy

Had my first appointment with the Rads doc yesterday.  I'm set up to start rads in a few weeks.  Have my simulation and CT set up next Friday.  The plan is to start 5 1/2 week schedule starting no later than 2/23.  I have a 10 day trip planned early April that cancer is NOT going to take away from me so that gives me a one day buffer to get all those treatments in!  Whew!  That is cutting it close!  I've also been told hormone therapy for sure this time, so I'm guessing you'll be doing the same. I should have that answer by 2/20 when I see the med Onc.  Kathy - keep me posted on how you are doing and your treatment plan.  I'm thinking about you.

Laura

Dx 12/26/2008, IDC, <1cm, Stage I, Grade 1, 0/5 nodes, ER+/PR+, HER2-
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Feb 8, 2009 07:48AM Lisa1964 wrote:

I have my 6th and final tx in the morning.  Thanks so much for this thread, because I have some serious questions for my onc on what my post bilateral mast/post chemo followup should be.

Good luck to you all.

Lisa

I attacked and I won! www.JohnnyRebelAcres.com

Dx 8/28/2008, IDC, <1cm, Stage IIa, Grade 1, 2/17 nodes, ER+/PR+, HER2+
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Feb 8, 2009 10:32AM hollyann wrote:

I had bilat mast with tram recons ...no rad no chemo.....tamoxifen for 9 months, had ooph and hyster , took Femara for 3 months switched to Arimidex which I am currently on........Just had biopsy for what turned out to be a B9 lump.....Still waiting ofr bone scan results.....Oncotype score 11 ER/PR+  ...According to onc my recurrence risk is 9%......Did any of you do Oncotype DX testing?.....This will determine if chemo is right for you or will do no good at all or is on the border.......Hugs and love...Lucy

Hugs and Love....Lucy Dx 1-15-07 IDC stage 1b grade 1, 1.6 cm.....Also DCIS grade 3, both in left breast

Dx 1/15/2007, IDC, 1cm, Stage Ib, Grade 1, 0/6 nodes, ER+/PR+, HER2-
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Feb 8, 2009 01:18PM, edited Feb 8, 2009 01:22PM by 1Cathi

Hi Ladies,

I have been reading this thread a few days, and first I want to say my heart and prayers are with those of you who have had a recurrance - SUCKS!!!!!  I have bee reading and trying to find something up to date on this very same subject, I try to live without thinking of BC everyday (how hard is that) I just came across this article that is not to awful old.

Sorry Ladies - the link won't work that I had posted so I copied the post.

Locoregional Recurrence of Breast Cancer After Mastectomy

Posted 01/29/2008

Lisa A. Newman, MD, MPH
Author Information

Question
A postmenopausal woman has local recurrence to the skin/right chest muscle 10 years after mastectomy. Positron emission tomography (PET) scan now shows bone and other distant soft tissue metastases. The patient is currently asymptomatic from the ipsilateral local recurrence. Are there any data on overall survival improvement with surgical resection of these skin/chest wall metastases?

Response from Lisa A. Newman, MD, MPH
Associate Professor of Surgery; Director, Breast Center, University of Michigan, Ann Arbor

Locoregional recurrence of breast cancer occurs in 5% to 40% of patients whose primary disease was initially managed by mastectomy, and up to one third of these patients will have concomitant distant organ metastases.[1-3] Features such as prolonged disease-free interval, limited size of chest wall relapse, and local disease only (without regional nodal involvement) have all been correlated with relatively better outcomes in these cases. Patients with chest wall failure face ulceration, bleeding, unsightliness, and frequently malodorous disease. This patient fortunately appears to be asymptomatic at present, but her surgeon raises valid questions regarding the benefits of surgery to obtain durable local control and to potentially contribute to survival.

An important first step will be to document and confirm the presence of distant organ metastatic disease as suggested by this patient's PET study. PET scans have been associated with false-positive results in excess of 10%.[4] An aggressive approach with multimodality management of the chest wall recurrence would be strongly encouraged if the patient is found to have isolated locoregional failure. Chagpar and colleagues from the University of Texas MD Anderson Cancer Center documented significantly improved outcome for patients with isolated locoregional recurrence if they were managed with surgical resection vs no surgery (median survival 65 months vs 17 months; P = .002). Survival was also better with multimodality vs single modality therapy (median survival 48 months vs 12 months; P < .001).

If distant organ metastasis is documented in this patient, then the question of how to manage an asymptomatic chest wall lesion becomes less compelling, but remains a valid question. Systemic therapy for breast cancer has advanced dramatically over the last several decades, and this is evident in the improved (by twofold to threefold) survival rates that have been reported for patients with stage IV disease over the past 2 decades by Giordano and colleagues[5] and by Andre and colleagues.[6] These improved results have motivated several groups to study the effects of primary breast surgery with curative intent for patients with known metastatic disease.[7-9] Results from these analyses suggest that surgery (if it can be performed with negative margins) is indeed beneficial in physically fit patients, especially if they have limited and/or osseous-only metastatic disease. However, these studies are not necessarily generalizable because of their retrospective and highly selective, biased nature. For the most part, only patients who are good candidates would even be referred to a surgeon for resection of their breast disease in the face of known metastasis. Nonetheless, it is reasonable to ask whether we can extrapolate any information from these results and consider surgical resection of a chest wall recurrence in a patient with distant organ metastatic disease.

A reasonable approach for this patient would be to proceed with systemic therapy as a means of rapidly assessing the likelihood that her disease is controllable. The chest wall recurrence will serve as a very useful in vivo site for monitoring responsiveness to treatment, which could be endocrine, chemotherapy, or targeted therapy, depending on the primary tumor features. If her disease responds to systemic therapy, then this would favor proceeding with an aggressive approach and resection of the chest wall lesion, followed by chest wall irradiation to consolidate her local therapy. If, on the other hand, she does not respond to the initial systemic therapy selected (or if her disease progresses), then crossover to an alternative regimen could be attempted. If the chest wall and distant organ disease continue to progress, then surgery would only be useful if the chest wall lesion becomes symptomatic.

Cancer may cause my death. But it WILL NOT take my life. **** Bilat Mastectomy 10/17/08 No Recon

Dx 6/25/2006, ILC
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Feb 11, 2009 08:10PM slmdavidson wrote:

Hi Cathi

Thanks so much for including that info!  Very interesting how high the recurrence rates are! 

Laura

Dx 12/26/2008, IDC, <1cm, Stage I, Grade 1, 0/5 nodes, ER+/PR+, HER2-
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Feb 18, 2009 09:16PM Dressagerider66 wrote:

Hi Everyone,

I just joined this board today and have found your posts most informative.  I had a double mast. 15 1/2 years ago.  Very small IDC with DCIS in other areas of one breast.  Opted for double because there was hyperplasia in other breast already and I wanted to make sure nothing developed there.  14 nodes were removed and all were negative.  I had immediate expanders at the time of original surgery and then saline implants later.  Treatment was tamoxifen for 3 1/2 years, until I developed uterine cancer and had a total hysterectomy (due to tamox?).  No other treatment since then.  In January, my gyn found a lump above the breast that had the ca.  It was 1.6 cm and was IBC.  I had blood work, bone scan, chest x-ray and Pet/ct scan---all negative for mets.  I had surgery to remove the tumor and associated tissue.  No lymph nodes were found (they were all taken out the first time) but there was additional breast tissue found with DCIS.  There was no breast tissue found with the tumor itself.  I had oncotype testing done--overall score was 17.5 rounded up to 18, ER+,PR- and Her2-.  Treatment will be 6 weeks of rad and then Arimidex for at least 5 years.  I think I am still in a state of disbelief, as I had stopped worrying about more breast cancer after the 10 year mark!  By the way, Lisa, I am a dressage rider and rode one week after surgery.  Let's chat more about horses maybe just between the two of us so we don't bore everyone else!

Dressagerider66---Ingrid 

Dressagerider 66-Ingrid

Dx 1/9/2009, IDC, 1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR-, HER2-

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