Posted on: Jul 20, 2007 05:46 AM
beth1225 wrote:Just wondering who else out there has had surgeries because of family history and/or BRCA status? I had my ooph in 2002 and just had the bilat mast this past May 7th. I had a pretty rough road of recovery for the mast in comparison to my ooph.
Posts 1 - 13 (13 total)
Jul 26, 2007 04:22 AM oldsambvca wrote:I had complete hyst w/ooph last year after treatment for IDC. Had the hyst/ooph so I wouldn't have to take Tamoxifen. I've been cancer free for almost 2 years , but got a positive BRCA2 result and have scheduled a bilateral mast for October 18th.
Jul 26, 2007 05:18 AM beth1225 wrote:Valerie, check out the thread that Iodine started in this forum with what to have prior to surgery to be prepared. Good luck with it and feel free to email me if you have questions, firstname.lastname@example.org.
Jul 26, 2007 08:38 AM lvtwoqlt wrote:Yes, I had the surgery June 1 this year. I was out of work 5 weeks only because my office was closed the week of July 4th. Because there was no lymph involvement, I don't need chemo or radiation. My BC surgeon took me off the Tamoxifen I was taking for 8 months. I am almost to the end of stage 1 of reconstruction. Everything has gone well to this point.
Jul 29, 2007 10:30 AM moogie wrote:I had PBM's due to personal history , and a bad Mri that had features of invasive cancer. Luckily, I did not have invasive when the biopsy returned...just LCIS, ADH, and all the other grab-bag items of precursor changes.
Jul 3, 2012 11:11 AM tightwadmomma wrote:I had PBM 8 days ago. Purely due to family history. Mom tested neg for BRCA1/2 but genetic counselor was unsure about results & urged that due to mom's mom dying at 28 from BC & Mom hvg BC.
Jul 3, 2012 05:13 PM shabby6485 wrote:
hi tight wadmom!
I am having a pbm in august. thank god is right! that is my fear.... that they will find some hidden gems in pathology. what is next for you? do you need treatment? how are you recovering? Did you have reconstruction? sorry for the all the questions but i am starting to get anxious
Jul 5, 2012 12:33 AM tightwadmomma wrote:@Shabby--I have my first oncology appt tomorrow. Pretty sure treatment will include tamoxifen, yuck. I will have reconstruct.... Monday will begin fills (already have 100 cc in, planning on 900).
Jul 5, 2012 04:17 AM, edited Jul 5, 2012 04:19 AM by Ginger48
I had IDC in left breast and had lumpectomy in april 2011. Then found out I was BRCA2+ and had PBMX 6/22/11. No chemo or rads but they found precancerous tissue in both breasts. Had exchange to implants in October and had an ooph in December. I am now taking letrozole for 5 years.
The hardest part was sharing my BRCA status with my teenage daughters. They handled it well and will start mammos at age 25. Edited to add: I spent some time down in your area when my daughter was attending arcadia univ. /p>
Jul 5, 2012 06:24 AM Jules1018 wrote:
Hi, I had a bilateral pmx when I was 28. For 2 yr prior to that I had been dealing with lumps and abnormal mammos. 1st one showed suspicious and rated a bi-rad 4. Luckily the core biopsy showed bengin. Then I had a lumpectomy. They found more lumps 6 months after that and we went through it all again. This was the cycle for a while until. by my 3-4th core biopsy my doc stated that the cells were changing and had become precancerous so he recommended and bi-lateral mx. My Grandma had a mx before the age of 17. So with that history we chose the path we are on now.
Jul 5, 2012 06:56 AM annievan wrote:
I'm going in for PBMX next Tuesday 7/10- I've had months to process this, but now that the time is near I can tell my anxiety level creeping up each day. I'm not sure whether I'm more nervous about the actual surgery (and pain), whether something will go wrong and will prolong this whole recon process, the sadness of looking at my chest and the final realization of what I've done, or whether I won't have done all I needed to at home to get us ready for this - maybe a little of both. . .?
I had a series of biopsies last winter after microcalcs showed on Nov. screening mammo. MRI, stereotactic biopsies, then excisional biopsy revealed several LCIS spots, some ADH, but ALH thoughout the huge glop of tissue they took, as well as other "grab-bag items of precurser changes" as moogie's showed. All this, coupled with very dense breasts and difficult to read radiology let my BS to tell me in Feb. that I need to do this - - - not a rush, but get used to the idea, learn about it (and boy, have I!) and get my ducks in a row.
So here I go - - - It's been a difficult decision, I'll tell ya. My risk is not AS high as those with the BRCA gene and I have no family history, but when my BS tells me I have a "ridiculously high risk factor" and lots of stuff going on in there. . . the fact that another LCIS patient they were doing the "watch and wait thing" with was found to have Invasive w/ lymph node involvement, even though they were trying to be very vigilant with here, and a friend of mine just died from B.C. - - I did some soul searching and recognized that I do not do well with risk and I ceratainly haven't been able to quit thinking about all this once it's been in play. I guess I'll do better once this is all behind me -
Best of luck to the rest of you guys. . . for your healing Jules and Tightwad, and as you get ready for surgery Shabby!
Jul 5, 2012 08:02 PM Jules1018 wrote:
Best of Luck to you also. I am praying for all.