We are 144,784 members in 73 forums discussing 114,625 topics.

Help with Abbreviations

All TopicsForum: Surgery - Before, During, and After → Topic: MRSA Staph infections

Topic: MRSA Staph infections

Forum: Surgery - Before, During, and After — Surgical options and helpful tips for recovery and side effects.

Posted on: Sep 20, 2008 04:28PM, edited Sep 20, 2008 04:41PM by swimangel72

swimangel72 wrote:

I've been reading a lot about hospital aquired MRSA staph infections after learning from my insurance company nurse that the staph infection I had was MRSA -  my surgeons never volunteered this info!  Yell 

I think it would be helpful to all of us here to start a thread dedicated to this dangerous threat. If you ever developed a MRSA staph infection while being hospitalized, I'd love to hear from you!

I was infected with MRSA last March during my muscle-sparing free tram which took 7 hours. I was hospitalized after that for 2 weeks, was put on 3 different IV antibiotics, then sent home with Zyvox. Fortunately I recovered after a week on Zyvox - but I found out from a later cat scan that the staph ate away most of the right side of my abdominal muscles and now I'll need additional surgery to repair it with mesh. My PS (who did the free-tram) said he'd use Alloderm to repair it. Not trusting him - I went to another surgeon who specializes in abdominal hernia repairs and he said Alloderm would only get infected by the MRSA staph still in my body - he'd use something more resistant. So now I'm worried to ever have any surgery again........who knew that MRSA lies hidden inside your body waiting to attack again if your immune system is low?! Surprised

An interesting article online said that in November 2007 inmates at a prison in Bucks County, PA won a $1.2 million dollar lawsuit because they developed MRSA due to unsanitary conditions, - yet I think it's extremely difficult for anyone to sue a hospital for the same reason! Not that I'm looking for a malpractice lawyer - but it does occur to me sometimes, especially after finding out that another woman who used my PS (two days after my surgery) also developed MRSA at a different hospital. For this reason, I'm switching to a new plastic surgeon!

Here's some basic information about MRSA:

From the CDC:

http://www.cdc.gov/ncidod/dhqp/ar_mrsa_spotlight_2006.html

From Nat'l Library of Medicine:

http://www.nlm.nih.gov/medlineplus/ency/article/007261.htm

From the NY Times:

http://www.nytimes.com/2007/10/28/weekinreview/28sack.html

http://www.nytimes.com/2007/10/17/health/17infect.html#

Finally - here's an article from the NY Times that I cut out and saved last year after my husband developed a staph infection from a kidney stent to help him pass a stone. I remember signing an online petition to NY State lawmakers to help force hospitals to publish their infection rates, but I don't know if any laws were changed.

http://www.nytimes.com/2007/07/27/us/27infect.html?pagewanted=2


For any of you who need surgery - PLEASE check that your your hospital provides hand sanitizers at the entrance of your room - and don't be shy about telling visitors, especially DOCTORS, to use it - AND to wear a gown and gloves if they examine you. It's hard enough dealing with BC - adding a MRSA infection on top of that is bordering on medical malpractice in my mind! Yell

Log in to post a reply

Page 1 of 3 (68 results)

Posts 1 - 30 (68 total)

Log in to post a reply

Sep 20, 2008 04:58PM TheQu33n wrote:

Hi Swimangel, wow, I'm so sorry you had to go through this. So, I'm a bit confused..  Were you just told you were hospitalized and being treated for a staph infection and you just found out recently it was MRSA?

I had MRSA October 2007. I had a mole removed from my belly button, infection, cultured, MRSA. I was treated with a topical and a couple of oral anitbiotics, can't remember what they were. But they were huge pills and I'd never heard of them before. After all that fun and my "nasal swabs" came back clean twice, the immediately family had to swab our noses with another presciption for I think 2 more weeksand it stung and made the eyes water. At least in my case while it was a month of hell, not able to go out in public etc..... hospitialization was not necessary. 

But, I do worry about my up and coming unilat. mx. I was trying to negotiate with my PS to release me the day of, but he is pretty much insisting a one night stay. If I'm doing really great on the day of surgery he will considerate it (or so he says *slight giggle*), but he says that since I'm having the SNB as well, chances are slim that I'll get to go home that evening.

I hope that I never have to deal with that nasty MRSA again. It's painful, foul smelling, messy, and a real PITA to get rid of (that is if you ever truly do get rid of it). 

Dang SwimAngel, I feel for you- Like there isn't enough to worry about Cry -karen

Log in to post a reply

Sep 20, 2008 05:04PM morning wrote:

Wow, Angel, that was a scary bunch of links. I had a staph infection but I don't think it was MRSA. It did respond to Keflex. But it ate the hell out of my pectoralis muscle and I'm a patchwork of alloderm on that side.

It occurred to me that if we asked the doctors, nurses, and janitors if they'd washed their hands as often as they ask us if we've ever smoked, things would be at least on the way to getting better. But, let's face it, there's an intimidation factor, or dependency or something. When you don't feel all that well, you don't have what it takes to stir up the pot.

God, I'm sick of breast cancer and all it's nasty reprocussions.

What will you do with your one wild and precious life?

Log in to post a reply

Sep 20, 2008 05:15PM Jellydonut wrote:

Swimangel,

Sorry to hear you have to deal w/MSRA in addition to BC. 

It's my understanding that the biggest threat of acquiring an infection is when the cathether is inserted and that is not done by the surgeon we see.  It's normal proceedure for the resident to place the cathether and this is usually done before the surgeon enters the OR (prep time).  Not that this info makes any difference in your case, or anyone else who acquires an infection but it's generally not the fault of the surgeon.

I fully agree with the hand sanitizers in each room but getting the medical personnel to use them is another story.

When I get home from surgery I immediately alcohol my handbag, cell phone and just about everything else that was in my handbag.  Also, I put my clothing directly in the wash in an attempt to minimize any hospital germs that come home with me.

These hospital infections are all too prevalent and as you've learned, can be really nasty.

Best of luck with your surgery.

Jelly

Dx 3/2002, IDC, Stage IV, 3/8 nodes, mets, ER+/PR+, HER2-
Log in to post a reply

Sep 20, 2008 07:17PM swimangel72 wrote:

Jelly - when I came home from the hospital I threw my slippers in the garbage and bleached all the clothes I wore!

Qu33n - my MRSA infection occured afer my surgery back in March - I only found out 2 weeks ago that it was MRSA - the doctors only said my cultures in my abdominal fluid came back positive for "staph". I don't know if any follow-up blood work tested to see if the MRSA was gone - I'll have to ask about that. Undecided

3/3/08 Right-side mastectomy with immediate muscle-sparing free tram; 3/9/08 Developed abdominal MRSA staph infection and hernia;Completed 4 months Navelbine and 1 year Herceptin; Arimidex - 3 more years! Diagnosed at age 53

Dx 2/5/2008, IDC, <1cm, Stage Ib, Grade 1, 0/7 nodes, ER+/PR+, HER2+
Log in to post a reply

Sep 20, 2008 08:44PM TheQu33n wrote:

Swimangel, that's not good, in fact I think it's dead wrong. Like I said, my whole family had to be treated and so I would think they would have informed you as this is a highly contagious infection. Now, in my case ti could be because the Dr. said it had to be through community contact because I'd not been in the hospital. Maybe she thought a child brought it home to me?? I was like hello, we're in a medical center with a surgical center, what the hells the difference??  My belly button is an innie, it's not like I or anybody else was touching it. Nor do I run around with my midriff showing. Okay, I admit that I wish I could, but at 46 who wants to see that.. 

Next time you have a Dr. appt. any Dr. appt, just ask them to do a culture. It's one of those quick q-tip on a stick up the nostril thingy's that I hate but it does the trick. I can't remember if it was a 5 or 7 day incubation thing.  They were looking for colonization and I can't recall the details now. I recall that BD Biomedical was working on something that dx within 24 to 48 hours bringing treatment faster in hospital cases. I don't know if that's been approved yet.

 I just think it's wrong wrong wrong that they weren't specific with you. Not that getting our panties in a wad is going to change anything now. Then again, I don't know what the course of action would have been if any had I continued to test positive.... I never asked. Frown Since no one bothered to tell you, you have no idea whether they did any follow it up past the eradication of the area infected!!

Sorry I'm rambling - It's just something I worry about. I'm interested to see how many others had this issue as well. Thanks for posting it!

Log in to post a reply

Sep 20, 2008 09:06PM kalyla wrote:

Swimangel,

So you asked your insurance company what the pathology report said about your infection? I guess they know everything about us, right? I don't know if my staff infection was mrsa or not, Dr. K just told me "staff". I called the hospital where I had my mastectomy to obtain my medical records and I'll have to pay $.75 per page for them to copy and mail it to me. How many pages are your reports?Docs get them for free though... I'm wondering if I should just ask my onco doc for all his records, which would include everything, right?

Kalyla

Dx 2/12/2008, IDC, 6cm+, Stage IV, Grade 3, 22/27 nodes, mets, ER+/PR+, HER2-
Log in to post a reply

Sep 20, 2008 10:29PM swimangel72 wrote:

Kalyla - I went in person to the hospital where I had surgery and, without charge, they copied my "operative reports". There were two reports - one by the breast cancer surgeon who did my mastectomy - the other by the plastic surgeon. This didn't include ALL the reports available concerning my hospitalization. I had to go back and request from their Radiology department the scans they performed - these they put on a CD and again gave to me for free. I'm sure there are other reports I could obtain - maybe a day-by-day accounting of what tests were done to me and their results (including the staph infection results) - but I never asked for those.

A nurse from the insurance company called me every two weeks to follow my case - she was wonderful and gave me excellent advice (including how to switch oncologists when she heard how unhappy I was with my first one.) She also encouraged me to get a second opinion for my abdominal bulge - and when I told her that this surgeon thought I had a MRSA infection, she looked up my records and said it was true. So yes - the insurance company knows what's going on - and WE should too - but we must advocate for ourselves all the time. I've never paid for any reports - but I've always gone in person to pick them up. I wouldn't assume that your oncologist would have ALL your records - he'll have the records for things he required for your treatment, including your pathology reports - but not everything concerning your surgery. If you want to know what happened during your surgery and hospital stay, you'll need to contact the hospital. And you should come right out and ASK Dr. K if your staph infection was MRSA - it's very important to know this. Let us know what he says - and what you find out from the reports the hospital sends you!

3/3/08 Right-side mastectomy with immediate muscle-sparing free tram; 3/9/08 Developed abdominal MRSA staph infection and hernia;Completed 4 months Navelbine and 1 year Herceptin; Arimidex - 3 more years! Diagnosed at age 53

Dx 2/5/2008, IDC, <1cm, Stage Ib, Grade 1, 0/7 nodes, ER+/PR+, HER2+
Log in to post a reply

Sep 20, 2008 10:49PM dreamer51 wrote:

My biggest fear prior to my muscle sparing free flap was an infection. Not the eight hours of anesthesia, post op pain or the fact I had cancer - but infection. I am a peri-operative nurse and a hand washing 'freak'. I have seen the devastating effects of MRSA infections.

My hospital room had a hand sanitizer by the door. I also brought a pump bottle of Purell which I placed on my over bed table with a sign ' If you love me - wash'.   I came home without an infection, thank God.

The doctors,nurses,aides, lab and x-ray techs all work for you - you are the BOSS. They have to wash their hands - as well as your family and visitors. Sometimes people just need a gentle reminder. Don't worry about offending anyone.

Swimangel, I am so sorry you have to go through this. But I am really glad you are sharing your story and possibly helping someone avoid a surgical infection.

Dx 4/4/2008, DCIS, 6cm+, Grade 3, 0/3 nodes, ER+/PR+, HER2-
Log in to post a reply

Sep 20, 2008 11:22PM stillrusty wrote:

Swimangel

Thank you for starting this post. MRSA is a very serious threat. Everybody should be aware. I am a lab tech, and worked in microbiology for many years. I want to refer you to a website www.hospitalinfection.org It about an organization called RID. Reduce infection deaths. I've worked in various hospitals for almost 30 years. It makes me crazy when I see hospital workers not following basic infection control practice. I could go on and on about this. Like the nurse above- I was worried about infection. I got to my hospital room at 11pm and i was gone as soon as they let me go- I think it was 1pm the next day. I couldn't get out fast enough...and I work there! It was also a big factor in why I choose the reconstruction i did. The less surgery the better.

Dx 6/10/2008, ILC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
Log in to post a reply

Sep 20, 2008 11:25PM, edited Sep 20, 2008 11:55PM by swimangel72

Thanks Dreamer for your advice about the Purell and your cute sign, what a great idea! I'm so happy you avoided an infection - and wish I knew about the dangers of MRSA before my own surgery. When signing consent forms that mention the risk of "infection" - I wish it had spelled out in detail the life-altering affects a MRSA infection could cause! In my naive mind, I thought "infection" would be nothing more than a little bit of fever which would go away in a day or two with simple antibiotics............I had no idea how devastating a hospital acquired MRSA staph infection could be! And I was one of the lucky ones! My husband's uncle died after 4 months in a  hospital - he went in for a repair of a non-emergency abdominal aneurysm (which was successful) but acquired MRSA and never recovered (he was only 67 and started out in good health.) Other people have survived MRSA, but have lost limbs or become partially paralyzed. So I still thank God for getting me through the last time - it's future surgery that frightens me! Frown

And thanks Stillrusty for your comment and fantastic web site! While I was in the hospital I complained about how no one cleaned my bathroom for days! Then when they finally came to clean - a pill that had fallen on the floor was still there. As you can imagine I will NEVER return to that hospital ever again!

3/3/08 Right-side mastectomy with immediate muscle-sparing free tram; 3/9/08 Developed abdominal MRSA staph infection and hernia;Completed 4 months Navelbine and 1 year Herceptin; Arimidex - 3 more years! Diagnosed at age 53

Dx 2/5/2008, IDC, <1cm, Stage Ib, Grade 1, 0/7 nodes, ER+/PR+, HER2+
Log in to post a reply

Sep 21, 2008 03:32AM pinoideae wrote:

Swim, this is a valued thread.  Every single hospital and every single operation has risk(s) of infection.  I am really sorry this has happened to you.  I am looking forward to you getting your stage 2 and hoping that it turns out to be all that you hope it will be.  I remember during surgery I was given antibiotics through the IV and afterwards in my hospital room as well.  Please check into the preventative measures with antibiotics this time.  No hospital can be as safe as your home environment. 

Log in to post a reply

Sep 21, 2008 09:11AM, edited Sep 21, 2008 09:13AM by kalyla

I know I had "preventative" antibiotics in the hospital and a perscription from the surgical oncologist, not the plastic surgeon, for 2 weeks at home. That makes almost 3 weeks of antiboitics and I still wound up with a staff infection and surgery 7 weeks out. Looking back, I know first noticed a skin rash on the foob close to my sternum at least 3 weeks before my foob exploded and began gushing fat and blood. By this time I'd completed 2x a/c chemo and my blood counts were low, hence lending the opportunity for the infection to bloom.

Did I get the staff infection at the hospital and it lurked inside my body until my immune system was low?  How else would I ever have gotten an infection inside my foob? I was pretty careful with it when washing, etc. The ps told me I had breast lymphedema because the foob was SO swollen and Painful for those 7 weeks. I wonder how much of that was infection related? Will I ever know for sure?  

Most importantly, do I still have staff lurking inside me?  TheQu33, Did you say all they have to test for staff is a nasel swab? Will it show up in your sinuses if the infection is centered in your foob?

Kalyla

Dx 2/12/2008, IDC, 6cm+, Stage IV, Grade 3, 22/27 nodes, mets, ER+/PR+, HER2-
Log in to post a reply

Sep 21, 2008 12:19PM, edited Sep 21, 2008 12:20PM by swimangel72

Kalyla I have the same fears! From what I read, a nasal swab is done to find out you're a "carrier" of MRSA - you can be a carrier and not have a raging infection. On the other hand, I had a raging MRSA infection in my abdomen, but no one ever performed a nasal swab on me - I'll be sure to ask my surgeon next time I see him - but what if it comes back negative? Will that mean I'm not a carrier? I still worry about MRSA germs hiding deep within my abdomen! Undecided

3/3/08 Right-side mastectomy with immediate muscle-sparing free tram; 3/9/08 Developed abdominal MRSA staph infection and hernia;Completed 4 months Navelbine and 1 year Herceptin; Arimidex - 3 more years! Diagnosed at age 53

Dx 2/5/2008, IDC, <1cm, Stage Ib, Grade 1, 0/7 nodes, ER+/PR+, HER2+
Log in to post a reply

Sep 21, 2008 12:29PM pinoideae wrote:

If surgical instruments are not properly sterilized that can cause infection as well.  I remember recently a hospital was closed down and the Government took over just for this reason.  I knew if my ps was concerned about infection with the preventative meds, something for me to be concerned about too. 

Log in to post a reply

Sep 21, 2008 08:17PM swimangel72 wrote:

I wish my PS showed the slightest concern about my infection - it was like he had his head in the sand. Thanks to the hospitalist on my floor, they figured out what was wrong with me - he was the one who called in the infectious disease specialist who ultimlately ordered the abdominal cat scan, found the fluid and forced my PC to aspirate it for culture.

The thing that's so upsetting - is that MRSA is totally preventable if hospitals follow the right procedures.  The cost of my MRSA infection is coming out of my pockets (with all my deductables). Why should my insurance company and I have to pay for a HOSPITAL's mistakes??Yell 

3/3/08 Right-side mastectomy with immediate muscle-sparing free tram; 3/9/08 Developed abdominal MRSA staph infection and hernia;Completed 4 months Navelbine and 1 year Herceptin; Arimidex - 3 more years! Diagnosed at age 53

Dx 2/5/2008, IDC, <1cm, Stage Ib, Grade 1, 0/7 nodes, ER+/PR+, HER2+
Log in to post a reply

Sep 21, 2008 08:55PM tos wrote:

I was diagnosed last year with MRSA and almost died.

I was currently on Taxotere at the time, had my treatment, think it was my last one and the next day after my Neulasta shot I got a bad fever, called my family doc and ended up in ICU for a few days totally out of it. 

I had had surgeries plus being in and out of the hospital with Neutropenia and other health issues.

Had it in my system and also a sore on my body so had surgery to put in another drain from a recent bilat  mast and also on the sore.  After about 11 days  I was able to go home and too had Zyvox.

Swimangel I see that you ended up with stomach problems after healing.  I have had stomach problems and they can't figure out what it is so they tell me it is damage from the chemo/rads.

My surgeon did tell me while in the hospital that I had MRSA and said that it might take a year or better to recover.

Log in to post a reply

Sep 21, 2008 11:00PM, edited Sep 21, 2008 11:01PM by swimangel72

2tzus - you should definitely call and ask your doctor if the culture was positive for MRSA - it's the only way to know for sure. I'm glad you are feeling better though -  I think Keflex is for a less serious  infection - but I'm not sure. I know when my medi-port got infected, my oncologist put me on Keflex, but the next day my PS said that wasn't strong enough and changed it to Levaquin (this before I knew I had MRSA). I should have suspected then that something was more serious, but didn't think to ask my PS why he changed my antibiotic.

galnok - What kinds of stomach problems are you experiencing? My only problem is the bulge on the right side that is from the muscle that was destroyed. My digestive system is working fine though, thank God. I'm glad your surgeon told you that you had MRSA (he sounds like an honest individual). This is my biggest problem - that neither my breast surgeon NOR my plastic surgeon EVER said the words "MRSA" to me! And no one ever said it would take a year for me to get rid of it..............although my PS seemed very hesitant to discuss my Stage 2 revisions - he kept saying I'd have to wait to finish the Herceptin (which would be a year) - even though other women have had surgery while on Herceptin. NOW I know the real reason! I have an appointment tomorrow to see this PS - and I'm not sure if I'll even show up..........I'm so angry at him for being less than truthful to me! Yell

3/3/08 Right-side mastectomy with immediate muscle-sparing free tram; 3/9/08 Developed abdominal MRSA staph infection and hernia;Completed 4 months Navelbine and 1 year Herceptin; Arimidex - 3 more years! Diagnosed at age 53

Dx 2/5/2008, IDC, <1cm, Stage Ib, Grade 1, 0/7 nodes, ER+/PR+, HER2+
Log in to post a reply

Sep 22, 2008 09:45AM stillrusty wrote:

2tzus

There are many different types of bacteria that could cause an infection. 10 days after it is not something you picked up at the hospital. Bacteria are everywhere- including your skin. They are also in the water supply- not in high numbers but they are there. That is why many dr's say no showering when the drains are in. Bacteria love moist warm places. They are opportunists. With any infection- not just MRSA- you need to be careful. keep a close eye on it. If the antibiotics are working it should look better each day. If you are unsure, call your Dr. and have him/her take a look. In the pats MRSA was only seen in the hospital setting, as a hospital acquired infection. But now that is changing, and it is also seen as a community acquired infection. Schools and gyms are hot spots. Also, because you have an expander in- that is also something to keep in mind. Foreign bodies- such as this or say artificial joints etc. can become colonized with bacteria- and can be difficult to treat. Sometimes with an infection, the expander may have to be removed. If you have an infection- don't be afraid to be a pest. Nowadays, bacteria have become so resistant to antibiotics. It's not just MRSA that is a problem.

Dx 6/10/2008, ILC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
Log in to post a reply

Sep 22, 2008 07:59PM swimangel72 wrote:

Stillrusty thanks for the great info! I just disagree on one topic - the incubation period of MRSA. My research into MRSA staph infections shows that the incubation time can be anywhere from 4 to 10 days. My infection appeared about 10 days after my surgery - and it was definitely hospital acquired MRSA. Here's a quote and the link I took it from:  http://www.cinetwork.com/otero/mrsa.html

The incubation period (the time period that the organism gains entry into a patient until the appearance of the first sign(s) of symptom(s) or infection) for S. aureus infection is variable and indefinite. Occurs commonly around 4 - 10 days.

Also this is an easy reference link:

http://www.amm.co.uk/files/factsabout/fa_mrsa.htm

ALso - here's another quote from the following link:

http://www.symptomsmrsa.com/mrsa/mrsa-incubation/

In most cases, once MRSA is able to enter your bloodstream there is a one to ten day incubation period. The reason for this varied and unpredictable amount of time is unknown and very much unlike other infections which require a determined amount of time to spread and cause symptoms. The incubation period is believed to depend on the way the patient contracted the disease, but this is not certain. As there are two ways for a person to contract the disease, (the disease is already present on your body and enters through openings you may have on your skin or you touch something with MRSA on it and then it finds a way into your bloodstream), that both require it to enter your bloodstream and leave us with no clues as to how exactly the patient contracted MRSA, this is a very hard disease to determine.

3/3/08 Right-side mastectomy with immediate muscle-sparing free tram; 3/9/08 Developed abdominal MRSA staph infection and hernia;Completed 4 months Navelbine and 1 year Herceptin; Arimidex - 3 more years! Diagnosed at age 53

Dx 2/5/2008, IDC, <1cm, Stage Ib, Grade 1, 0/7 nodes, ER+/PR+, HER2+
Log in to post a reply

Sep 22, 2008 09:37PM stillrusty wrote:

Swimangel

I stand corrected! Yes, I was over generalizing. Thanks for correcting me. It is true- people can become colonized with a bacteria- and when the conditions are right...then pow!   A previous boss of mine used to say "the bugs don't read the books" This is one area where there can always be exceptions to the rule. I can tell you that it really scares me to see how rapidly things have changed in a relatively short time.(with respect to bacterial resistance) Have you been to the website cdc.gov?  It might have some useful info.

Dx 6/10/2008, ILC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
Log in to post a reply

Sep 22, 2008 10:33PM swimangel72 wrote:

Oh 2tzus I'm so sorry to hear this news! I really feel for you - and understand your aversion to the hospital (I have the same aversion to the hospital where I picked up my staph infection). I also have to keep reminding myself that no matter what, at least I have a good prognosis and have reduced my risk for a recurrence - but still, what we have to SUFFER to get here is simply inexcusable! I'll be praying for you - please come back after your surgery to tell us how you're doing! Frown

3/3/08 Right-side mastectomy with immediate muscle-sparing free tram; 3/9/08 Developed abdominal MRSA staph infection and hernia;Completed 4 months Navelbine and 1 year Herceptin; Arimidex - 3 more years! Diagnosed at age 53

Dx 2/5/2008, IDC, <1cm, Stage Ib, Grade 1, 0/7 nodes, ER+/PR+, HER2+
Log in to post a reply

Sep 23, 2008 10:21AM kalyla wrote:

Swinangel172,

  Did you keep your appointment with Dr. Youknowwho? What did he say? Please tell...

Kalyla

Dx 2/12/2008, IDC, 6cm+, Stage IV, Grade 3, 22/27 nodes, mets, ER+/PR+, HER2-
Log in to post a reply

Sep 23, 2008 05:18PM, edited Sep 23, 2008 05:21PM by swimangel72

Yes Kalyla - I saw my PS yesterday - but he spent MAYBE 5 minutes with me - so I never had a chance to ask him about my MRSA infection.  I was more worried about his opinion about doing several surgeries on my stomach at once. I asked him if I could have a hysterectomy (with ovaries removed) and the gall bladder removed at the same time as the "repair" on my abdomen, and he said yes. When I asked him if I'd need tubes for the "foob" reduction, he said no, it's just lipo. But he didn't offer any more information than that (as usual.) I was glad to get out of there - the examination floor looked dirty! Tongue out

Mentally I hate the thought of more surgery because I'm so afraid of another MRSA infection - but since I have to get my abdominal bulge repaired anyway, another surgeon told me I should get my gall bladder out because it has a large stone that over time could turn problematic (including cancerous). So that got me thinking about the abdominal cat scan that just happened to show small cysts on my ovaries - not a good thing for a post-menopausal woman who also had breast cancer! (Why do I have to research this myself - why aren't any of my doctors talking about this - sigh - now I have to make an appointment with my ob/gyn.) On top of that I have a fibroid on my uterus and a thickening of the endometrium that my ob/gyn has been watching for 3 years. Separately these things haven't caused me trouble - but I NEVER want to hear a doctor say I need abdominal surgery again - so hopefully I can get it all done at once - and hopefully with the new surgeons I'm checking out (if my insurance can be changed to include "out-of-network" doctors.) So many ifs - no wonder I feel uneasy these days! Undecided

3/3/08 Right-side mastectomy with immediate muscle-sparing free tram; 3/9/08 Developed abdominal MRSA staph infection and hernia;Completed 4 months Navelbine and 1 year Herceptin; Arimidex - 3 more years! Diagnosed at age 53

Dx 2/5/2008, IDC, <1cm, Stage Ib, Grade 1, 0/7 nodes, ER+/PR+, HER2+
Log in to post a reply

Oct 20, 2008 08:59PM swimangel72 wrote:

bump

3/3/08 Right-side mastectomy with immediate muscle-sparing free tram; 3/9/08 Developed abdominal MRSA staph infection and hernia;Completed 4 months Navelbine and 1 year Herceptin; Arimidex - 3 more years! Diagnosed at age 53

Dx 2/5/2008, IDC, <1cm, Stage Ib, Grade 1, 0/7 nodes, ER+/PR+, HER2+
Log in to post a reply

Oct 23, 2008 02:26PM fightinhrd123 wrote:

Ugh i have surgery in two weeks, and my daughter just had that mrsa on her leg, and my husband had an infection in his nose, theyve just assumed its staff and he's on huge antibiotics.  I should let my surgeon know right, i didnt even think about this!!!

Dx 5/29/2008, IDC, 2cm, Stage IIb, Grade 2, 2/14 nodes, ER-/PR-, HER2+
Log in to post a reply

Oct 23, 2008 04:34PM swimangel72 wrote:

Hi Fightinhrd - yes you need to tell your surgeon, perhaps he'll swab your nose and see if you're a carrier and if you need prophylactic antibiotics before your surgery. And it makes me happy if even just ONE other woman can avoid a MRSA staph infection after I posted this thread because sometimes I still ask God, "why me?" then I think "why not me?" So I have tried to be very forthcoming with this information (even though sometimes it sounds like I'm all gloom and doom - I'm really an upbeat happy person.) Knowledge is power - and we need as much power in our hands as we can get prior to our surgeries because once we go under - things are out of our control. So I do hope you'll call your surgeon right away.

BTW - what kind of surgery are you getting? Mastectomy with immediate recon? Have you started the Herceptin yet? My PS won't do my stage 2 revisions (after my free-tram) until I'm finished with Herceptin (next April) even though my heart is fine.

3/3/08 Right-side mastectomy with immediate muscle-sparing free tram; 3/9/08 Developed abdominal MRSA staph infection and hernia;Completed 4 months Navelbine and 1 year Herceptin; Arimidex - 3 more years! Diagnosed at age 53

Dx 2/5/2008, IDC, <1cm, Stage Ib, Grade 1, 0/7 nodes, ER+/PR+, HER2+
Log in to post a reply

Oct 23, 2008 07:38PM fightinhrd123 wrote:

Yep mastectomy on one side with immediate recon.  I already have implants, so i wont need any expanders or anything, then radiation for the nodes (had one may more pos) and herceptin for a year :) just finished four months of chemo:) On my way to recovery!

Dx 5/29/2008, IDC, 2cm, Stage IIb, Grade 2, 2/14 nodes, ER-/PR-, HER2+
Log in to post a reply

Oct 23, 2008 08:07PM swimangel72 wrote:

Good luck with everything - hope your surgery is totally uneventful - keep us in the loop!

3/3/08 Right-side mastectomy with immediate muscle-sparing free tram; 3/9/08 Developed abdominal MRSA staph infection and hernia;Completed 4 months Navelbine and 1 year Herceptin; Arimidex - 3 more years! Diagnosed at age 53

Dx 2/5/2008, IDC, <1cm, Stage Ib, Grade 1, 0/7 nodes, ER+/PR+, HER2+
Log in to post a reply

Oct 27, 2008 07:41PM fightinhrd123 wrote:

I am so glad i happened to see this post of yours!!!  I saw my PS today and told them about the MRSA going around my house and i have to go see an infectios disease specialist tomorrow to be tested.  Thank you so much for posting about this.  I will let you know what happens!!!

Dx 5/29/2008, IDC, 2cm, Stage IIb, Grade 2, 2/14 nodes, ER-/PR-, HER2+
Log in to post a reply

Oct 27, 2008 09:02PM swimangel72 wrote:

I'm happy your PS is taking this seriously - and I'll be very interested in hearing what the infectious disease specialist says! Good luck!

3/3/08 Right-side mastectomy with immediate muscle-sparing free tram; 3/9/08 Developed abdominal MRSA staph infection and hernia;Completed 4 months Navelbine and 1 year Herceptin; Arimidex - 3 more years! Diagnosed at age 53

Dx 2/5/2008, IDC, <1cm, Stage Ib, Grade 1, 0/7 nodes, ER+/PR+, HER2+

Page 1 of 3 (68 results)