I had a lumpectomy on Monday, 8/10.
The SNB found cancer in the single sentinal node removed, which was a disappointment. As a result the BS removed five other nodes.
As for the tumor, she removed an egg-sized chunk of tissue out of my left breast and apart from the small scar, that breast really doesn't look much different to the other one. Path showed clean margins all around of about 0.5cm
I got the pathology report on Thursday, 8/13. Apart from the sentinel node, the other nodes were negative for cancer. The tumor is described as 1.8cm and no mention is made of a second tumor even though the MRI images suggested I had two tumors (multifocal disease). The BS said that even prior to surgery and after reviewing my images with a radiologist, she wasn't entirely convinced that I had two tumors. She thought it might be just one elongated one with a waist and just appeared like two as a result of the way it was imaged. Path also confirms that I'm ER+, PR+ and HER2 neg.
I got an Rx for painkillers but never used them. I took Tylenol for the first two days as I was feeling soreness rather than pain in the underarm area. I figured this soreness was from the drain, but had that removed on Friday and was still sore. Then I figured that maybe the soreness was from the fairly long incision where the nodes were removed. That incision is about three inches down from my armpit. Now when I feel around that area, the soreness seems to be coming from the armpit itself and from the inner part of my upper arm. Could this be the beginning of lymphedema? There is no swelling. Or during surgery, do they possible twist the arm back into an awkward position in order to have easy access to that area?
When I'm walking, I instinctively hold my arm away from my body and tend to walk around with that arm akimbo. Does anyone else do that? At night I put a pillow between that arm and my body or else just put a pillow vertically beside my body and rest my arm on that. When sitting on a sofa, I tend to drape my arm over the back. Is it a good idea to elevate the arm?
I don't go back to see the surgeon for another two weeks and I'd like to prevent the onset of any lympedema or any other complications. Any advice would be welcome. Thanks.
Mary
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Neece Joined: Oct 2002 Posts: 87 |
Aug 19, 2009 01:27 am
Neece wrote:
hi Mary I had surgery the same day as you! Mine was mastectomy with removal of all lymph nodes under arm and one lynph node in chest area. I was thinking of posting on topic of pain also! I had had mastectomy of my other breast 7 yrs ago with only 5 lymph nodes removed and remember the pain well now (its all coming rushing back!) as like a super-bad sunburn that burns and chills under arm, down back of upper arm, and across shoulder area a bit as well. Also very sore around drain site. However this time the pain feels so much worse. Am wondering if this is due to the removal of more lynph nodes this time? Does anyone have a suggestion re this? My understanding is that the burning soreness is due to damage to nerve endings during surgery and this makes sense, but just not sure why it should be so much worse this time? The good news Mary is that from my memory the pain does eventually ease a lot - I remember eventually being at the point where I felt it if I was very tired or had been using my arm a lot. Neece |
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MaryNY Joined: May 2009 Posts: 370 |
Aug 19, 2009 09:40 am
MaryNY wrote:
Hi Neece: It sounds like your pain is much worse than mine. I would describe mine as soreness rather than pain. Surprisingly, I'm not sore around the drain site. When I went back to have the drain removed on Friday, the nurse gave me an ACS brochure on post-surgery exercises. I pulled it out last night and ran through the the few suggested exercises but noticed that it said you should start some of the easy ones as soon as 3-7 days after surgery. Dx 5/19/2009, IDC, 1cm, Stage IIa, Grade 2, 1/6 nodes, ER+/PR+, HER2- |
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Neece Joined: Oct 2002 Posts: 87 |
Aug 20, 2009 01:20 am
Neece wrote:
hi again I am finding the pain is easing a very little each day. Am hoping that once I get the drain out this particular source of discomfort will cease. Fingers crossed. I agree the exercises are very helpful - it's a shame they didnt give you these in hospital. Doing them under the warm shower helps! Good luck eh? Neece |
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MaryNY Joined: May 2009 Posts: 370 |
Aug 20, 2009 08:13 am
MaryNY wrote:
Hi Neece: Yes, my soreness/pain is easing too. Yesterday I realized that there is a lot of adhesive residue in that area which adds to the discomfort. When I put my arm down by my side, it feels really sticky and hot. I tried using some wet wipes to clear away the residue but that was only moderately successful. When are you due to get the drain out? That will make it so much easier for you to move around. Dx 5/19/2009, IDC, 1cm, Stage IIa, Grade 2, 1/6 nodes, ER+/PR+, HER2- |
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Neece Joined: Oct 2002 Posts: 87 |
Aug 22, 2009 07:02 am
Neece wrote:
hi again, Hey I just discovered the sticky discomfort a day or so ago as well! feels like I am peeling my arm off the sore points every time I try to lift it! Am hoping the drain will come out in the next couple of days, it depends on when the fluid output drops to the required level. I guess it is doing what it's meant to do. Received path report yesterday and will be starting chemo in a couple of weeks, then hormone therapy after that. It's OK, I feel this will lift my long term survival chances to really good level. N |
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echosalvaje
Joined: May 2009 Posts: 61 |
Aug 22, 2009 08:06 am
echosalvaje wrote:
I had my surgery back in April and for weeks I couldn't pull up my own underwear because of the pain and discomfort under my arm. Most annoying was that numb tacky skin sensation anytime the skin in my armpit touched. I waited a couple of weeks to let things heal a bit and then started exercises slowly and was surprised at how quickly I regained range of motion and the armpit tackiness slowly went away over a couple of months time. Up until I got way into my chemo treatments I was back to my yoga classes. It is important to watch for the lymphedema and not over-do the arm by lifting anything heavy or pushing too much. In April I thought I'd never be able to do the things I usually do, but all of the sudden it's a mere memory. Good luck and be patient with yourself. Mary
Dx 3/9/2009, IDC, 3cm, Stage IIIa, Grade 2, 7/18 nodes, ER+/PR+, HER2- |
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MaryNY Joined: May 2009 Posts: 370 |
Aug 22, 2009 10:16 am
MaryNY wrote:
Hi Neece: I will probably be starting chemo around the same time as you. I have an appt with an oncologist on Monday, 31 August. Echo/Mary: The sticky sore feeling in the underarm area is easing. I removed all the steristrips in the underarm area and am just left with a stubborn few on the incision on my breast which seem to be very reluctant to budge. I applied loads of baby oil yesterday and wiped the area fiercely before showering. That really helped. I would like to go to yoga classes but feel I wouldn't be able for regular yoga classes. But I am walking up the walls with my fingers and notice an improvement. Dx 5/19/2009, IDC, 1cm, Stage IIa, Grade 2, 1/6 nodes, ER+/PR+, HER2- |
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echosalvaje
Joined: May 2009 Posts: 61 |
Aug 22, 2009 11:40 am
echosalvaje wrote:
MaryNY, I found that one of the best things for stretching out my chest and arm at home or yoga was to roll up a blanket like a bolster and lay it on the floor, the length of my spine so that my shoulders were off the floor, then just lay back and let your arms rest out to the side and breathe....I would stay like that for about 15 minutes twice a day sometimes moving them to different positions just to encourage more range of motion. Mary
Dx 3/9/2009, IDC, 3cm, Stage IIIa, Grade 2, 7/18 nodes, ER+/PR+, HER2- |
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MaryNY Joined: May 2009 Posts: 370 |
Aug 22, 2009 11:53 am
MaryNY wrote:
Mary, did you lie on the bolster so that it was running lengthwise under your head and back, or did you put it horizontally under your shoulders and outstretched arms? Dx 5/19/2009, IDC, 1cm, Stage IIa, Grade 2, 1/6 nodes, ER+/PR+, HER2- |
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JO-5 Joined: Oct 2008 Posts: 1,891 |
Aug 22, 2009 12:05 pm
JO-5 wrote:
Mary, I well remember that feeling while the drains were in. During that time you just do what ever makes it feel better. If you need pain meds - take them. Your body will tell you when you don't need them anymore. When the drains come out it will began to feel much better and whenever the drs. tell you to start to do the exercises --- be sure to do them as much as possible because you don't want to get a frozen shoulder. The nurse saw me holding that arm across my body and scolded me. She said if I didn't move it I would be that way forever! Ha --- This was after the drains were out. It hurt - but I began to do the exercises and had a very good range of motion in a short while. Good luck --- you are on your way to being better! JO JO - Lumpectomy w/ clear margins- 36rads w/boosts - cellulitis 3x - mild arm LE - Breast LE w/rad. fibrosis - IF EVERYTHING MADE SENSE AND WE UNDERSTOOD ALL THE REASONS - FROM WHAT PLACE WOULD COME THE TRUST?
Dx 4/4/2004, IDC, 1cm, Stage I, Grade 3, 0/16 nodes, ER+/PR+, HER2- |
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Dolores Joined: Mar 2009 Posts: 64 |
Aug 23, 2009 12:57 pm
Dolores wrote:
I have underarm pain second to axillary dissection on 7/17/09. I also had re-excision partial mastectomy and the second incision hurt worst than the first. I am exercising my arm even though it still hurts. Good luck to all. Dx 11/20/2008, IDC, 4cm, Stage IIa, Grade 3, 0/10 nodes, ER-/PR-, HER2+ |
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MTG Joined: Aug 2009 Posts: 288 |
Aug 24, 2009 02:23 am
MTG wrote:
My surgery way July 23, and although I didn't have a drain (lumpectomy and sentinel node biopsy only) my surgeon gave me a great piece of advice: "Ice packs will become your best friend." He was right. It did wonders for the underarm soreness. Just after surgery when I was really sore, we rigged a kind of underarm sling using an ice pack that stayed pliable; unfortunatley it also warmed up a little quickly. After I healed a bit, I switched to a larger cold pack that froze solid, and stayed cold thru most of the night. My armpit still feels kind of chafed after a long day, so I still will curl up with an icepack...oddly soothing. Hope this helps. M
Dx 6/30/2009, 1cm, Stage I, 0/1 nodes, ER+/PR+, HER2- |
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MaryNY Joined: May 2009 Posts: 370 |
Aug 24, 2009 10:55 am
MaryNY wrote:
MTG: I had the retired the ice packs. I used ice for the first three days or so, but I might try using it again as sometimes that underarm area just feels so hot and sticky. Dx 5/19/2009, IDC, 1cm, Stage IIa, Grade 2, 1/6 nodes, ER+/PR+, HER2- |
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Dolores Joined: Mar 2009 Posts: 64 |
Aug 26, 2009 06:53 pm
Dolores wrote:
Thanks ladies I tried the icepack and it worked great. Dx 11/20/2008, IDC, 4cm, Stage IIa, Grade 3, 0/10 nodes, ER-/PR-, HER2+ |
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MaryNY Joined: May 2009 Posts: 370 |
Aug 26, 2009 08:36 pm
MaryNY wrote:
Me too, I pulled the icepack out and used it again last night. It was soothing ... at least until it warmed up. Are you all using the flexible kind of icepacks or the hard plastic ones? I have one of the flexible ones that came in a thick pouch with velcro that can be used as a hotpack (warmed in microwave) or cold pack. I'd like to get a second one but don't know where to find them. The one I have has a small leak and if I'm not careful, I get a blue stain on my clothes. Also it would be nice to have two so I could always have one in the freezer. Dx 5/19/2009, IDC, 1cm, Stage IIa, Grade 2, 1/6 nodes, ER+/PR+, HER2- |
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me1ani Joined: Jul 2009 Posts: 36 |
Aug 28, 2009 10:25 am
me1ani wrote:
Hi MaryNY, I have a friend whos fiancee is a surgical Oncologist. He told me that when there are nodes taken out, a few, or even just one, the retractors used to pull back the skin during the operation often crush or bruise the intercostalbrachial nerve. Occasionally the nerve is even severed. As the nerves heal, you feel a variety of neuropathic pain signals from the damaged nerve, tingling, pins and needles, shooting pain etc. The most common is the relentless armpit pain. I had a unilateral mastectomy with SNB four weeks ago and I've had severe neuropathic armpit and tricep pain ever since. The narcotics didn't help (apparently they don't work well for this type of pain) so they put me on Lyrica- a drug for neuropathy in diabetics. It really helps as long as I don't delay taking it. As soon as I do, the pain comes back and is less responsive. I asked how long this will take to resolve and they don't have an answer for me. If it remains painful, I would ask your oncologist for a neuropathic pain medicine or a referral to the pain service at your hospital. Don't let it get so bad you cannot function. I start physical therapy soon- I understand that that will also help somewhat. I'm sorry that we all have to endure this. It sucks, really. Me1ani (from NY as well!) Dx 7/10/2009, IDC, <1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2- |
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MaryNY Joined: May 2009 Posts: 370 |
Aug 28, 2009 11:30 am
MaryNY wrote:
Hi Me1ani: What I'm feeling at this stage is soreness rather than pain. It is getting better by the day as I hope yours will too. I didn't have tingling or pins and needles. Soreness/pain is worse when I stretch my arms over my head, but I think pushing myself to go a little further each day is helping. I see you only had one node removed whereas I had six removed, yet your pain is worse. I'm guessing the sentinel node may be deeper than the others so they have to do some digging to get at it, resulting in the nerve damage. I hope the physical therapy helps you. Mary Dx 5/19/2009, IDC, 1cm, Stage IIa, Grade 2, 1/6 nodes, ER+/PR+, HER2- |
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me1ani Joined: Jul 2009 Posts: 36 |
Aug 28, 2009 11:15 pm
me1ani wrote:
You may be right MaryNY, In addition to a suture line, I have nice sized indentation where the node must have been. Its bruised still so it looks like an actual 3 inch wide hole. I try every day to go longer with out the medication, but as soon as 9-10 hours hits, it starts burning like someone threw acid on me. They must have really rearranged some wiring in there. me1ani Dx 7/10/2009, IDC, <1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2- |
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littlebird7
Joined: Sep 2009 Posts: 21 |
Nov 6, 2009 12:25 am
littlebird75 wrote:
I had a lumpectomy and sentinal node removal on October 28th. (A week ago now) I assumed my pain would be lessening each day however I have been feeling the same underarm pain as described by MaryNY that feels like a cut and painful irritation in the crease of my armpit on the lump and node removal side. I'm glad to read the informaiton here and don't feel so crazy calling my surgeon tomorrow. I hadn't wanted to call because I kept thinking I should be feeling better, not worse and predicting that the surgeon wouldn't have any thing to offer. Reading now that others have experienced the same thing and that there are even potential solutions (other than "wait longer") is very reassuring. Thank you! Cindy - living, loving and laughing never meant more!
Diagnosis: 9/11/2009, IDC, 3cm, Stage IIIb, Grade 2, ER+/PR+, HER2- |
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MaryNY Joined: May 2009 Posts: 370 |
Nov 6, 2009 10:01 am
MaryNY wrote:
Hi littlebird: Just noticed your message here and looking back now at what I posted, it all seems like a distant memory. My pain/soreness resolved itself in less than two weeks. Soon I also had a full range of motion back in the affected arm. I hope it goes similarly for you. Mary ~~ lumpectomy 8/10/2009, Oncotype DX 18, Chemo started 10/28/09 AC*4
Diagnosis: 5/19/2009, IDC, 1cm, Stage IIa, Grade 2, 1/6 nodes, ER+/PR+, HER2- |
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littlebird7
Joined: Sep 2009 Posts: 21 |
Nov 17, 2009 01:31 am
littlebird75 wrote:
Finally saw my regular dr. who agreed to prescribe Lyrica. Thank the heavens! After 3 days I definatly saw an improvement. Though the pain is still there - it is no longer at the head of the line driving me crazy. My BP was 160/110 when I saw the Dr. He asked "have you been in pain?" "Uh, yes, thats why I'm here!" Anyway - I was suprised my surgeon said he didn't know about Lyrica and grateful my regular Dr. was able to do the prescribing and that it seems to be helping the pain. My armpit is still numb and I'm afriad to shave it - looking a little European on one side! Cindy - living, loving and laughing never meant more!
Diagnosis: 9/11/2009, IDC, 2cm, Stage IIb, Grade 2, 0/1 nodes, ER+/PR+, HER2- |
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pattybay Joined: Nov 2009 Posts: 2 |
Nov 20, 2009 12:05 pm
pattybay wrote:
Hi everyone. I had similar symptoms following my unilateral mastectomy 3 years ago. After my mastectomy I had tightness and sharp pain around the incision area. It was even difficult to put a shirt on because the area was very sensitive. Pain medications really didn't help and physical therapy was limited because of the tightness and discomfort. My doctor told me this was something that I would have to live with for now and that it would get better with time--needless to say it didn't get better and I learned to live with it. About a year ago I started receiving acupuncture for weakness related to a severe stroke I had in 2003. Quite accidentally I realized that my mastectomy pain was decreasing with the acupuncture treatments as well. My acupuncturist said that this was possible since certain acupoints used to treat my weak arm can also affect the chest and thorax. At present time, with weekly treatments, the mastectomy area is not as tight or sensitive and the sharp pain is less frequent. As a result I am able to move my arm much easier and through a bigger pain free range. Hopefully I'll see further improvements--I could really use a break! Hope this helps and Good luck to everyone. pattybay pattybay
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littlebird7
Joined: Sep 2009 Posts: 21 |
19 hours ago
littlebird75 wrote:
Lyrica helped... Cindy - living, loving and laughing never meant more!
Diagnosis: 9/11/2009, IDC, 2cm, Stage IIb, Grade 2, 0/1 nodes, ER+/PR+, HER2- |
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