Jul 11, 2012 12:53 PM Blessings2011 wrote:
CookieMonster - thinking of you today!!!!! (And sandpiper1 and lovemysamoyed!!!)
Prayers for successful procedures, quick recoveries, and good healing!!!
Posted on: Jun 15, 2012 10:53 AM, edited Jul 26, 2012 11:01 PM by CookieMonster
I'm having a lift and reduction on my unaffected breast July 11, after 5 surgeries prior. Would love some company waiting for this one to come. I'll get a list going, just let me know what you're having. Best thoughts to everyone!!
June 28 - Sparkysbrat - SNB
July 3 - cailindearg - BMX with TE's
Nanagoz - left mastectomy no recon
Lizzie103 - right mastectomy no recon
jill47 - bmx + reconstruction
July 4 - Moeness - double mastectomy without reconstruction
July 5 - C-squared - BMX with TE placement
July 6 - christina0001 - port placement
July 9 - emiller - lumpectomy (left)
Galsal - reconstructive surgery
LAjen - double mastectomy, SLB (SNB), immediate reconstruction with implants
July 10 - KristinFro - mastectomy (left)
Shellikins - mastectomy with immediate reconstruction
LoriBach - bilateral mastectomy with immediate reconstruction
annievan - NSBMX with immediate reconstruction/tissue expanders
palmettomom3 - bmx with te
KYLady - bilateral mastectomy
ramols - BMX, nodes out on left, sentinal biopsy on right; and TEs
25weeks - ALND
July 11 - CookieMonster - lift & reduction on left (noncancerous) breast to match right
sandpiper1 - MX w/ immediate DIEP recon
lovemysamoyed - gallbladder removal
July 12 - lisamarie68 - TE exchange
Lutienyc - UMX and ALND
July 13 - Jules1018 - stage 2 of bilateral TRAM
July 18 - Sparkysbrat - BIL mastectomy with TE
amazonmich - NOLA (DIEP?)
June56 - reduction & lift (left), mastectomy and reconstruction (right)
Deejon - exchange surgery
July 19 - lyoung7398 - BMX w/TEs
lovemysamoyeds - ALND surgery
lostinmo - MX with ALND
July 20 - strask - dmx or lumpectomy
betts4 - lumpectomy (left)
jcolford - mastectomy
aruba - lumpectomy and lymph node biopsy
July 23 - SheChirple - TE exchange
jpmomof3 - lumpectomy (hopefully), SNB
July 24 - Julia48 - double mastectomy
Susiell - uni MX
Stephanie-strong - lumpectomy and lymph nodes
July 25 - Hoya03mom - bmx with immediate reconstruction - DIEP
cgesq - bmx with LD reconstruction
internutz1 - Rt lumpectomy, SNB
July 26 - Meebs - Tram Flap
grt42btexan - Nipple reconstruction and hopefully lipo the heck out of my legs
jukamo - Most likely mastectomy to the right breast with axillary dissection
July 30 - terrikoala - lumpectomy
July 31 - Dooley45 - Removal of lt TE w/implant insertion, rt mastoplexy w/implant
Tweetyb422 - UMX
August 2 - nwsuburbs - PBMX
Tazzy - mx (right)
August 10 - christina0001 - UMX (left)
Awaiting dates - Beckers - bi-lat mastectomy with DIEP recon
darnette - MX, BMX, or LX
howhm02l - BMX?
Posts 181 - 210 (919 total)
Jul 11, 2012 12:53 PM Blessings2011 wrote:
CookieMonster - thinking of you today!!!!! (And sandpiper1 and lovemysamoyed!!!)
Prayers for successful procedures, quick recoveries, and good healing!!!
Jul 11, 2012 02:03 PM jpmomof3 wrote:
Good luck to everyone having surgery tomorrow. Hope everyone in the big surgery group yesterday is recovering well.
I met with my bs today. It took minutes. He told me how great the MRI looked and I was encouraged that he said I wouldn't need drains. He will send me to the lymphedema clinic afterwards for some preventive physical therapy. 12 days and counting.
Jul 11, 2012 07:45 PM Susiell wrote:
Hi everyone, I just found out today that my uni MX is scheduled for July 24. This has been quite a whirlwind. I was diagnosed July 3, found out what I actually had on July 9, went for preop today and met with the plastic surgeon, and found out my surgery date. My head is spinning, but believe it or not in a good way. I guess I havent had time to really process the fact that I have cancer, since it's gonna be gone in less than a month (god or whoever willing). I'm not even anticipating radiation since initial scans revealed no lymph node involvement. I'm actually looking forward to the lift my non cancerous left breast is going to get! Is that normal???
Anyway, since I am a July surgery girl, just wanted to say hi to you all and that my thoughts are with EVERYONE here.
Jul 11, 2012 08:41 PM jpmomof3 wrote:
Welcome susiell. Sorry you are in this situation but you have friends that are going through the same thing here, your head must be spinning. I know mine was that soon after diagnosis. Your surgery is the day after mine. Any thoughts are normal at this stage. Lots of things go through a persons head after getting this diagnosis...
Jul 11, 2012 09:43 PM CookieMonster wrote:
Hi everyone. Surgery went fine today - or so the PS told me afterwards. I'm having twinges of pain here and there, but nothing requiring pain meds.
Surgery was 8:30-12:30 or so I'd guess. I remember being in recovery a bit before 1 pm. We left the surgery center around 2 pm, picked up DS from camp around 2:20 and headed home. I was feeling groggy and uncomfortable so slept on the couch all afternoon.
I hope my surgery sisters are recovering well too.
Welcome Susiell - Today's surgery for me was a lift and reduction on the non cancerous side for me. Are you getting the lift at the same time as the MX? If so, lucky you, I didn't. In fact it's about 7 months after my UMX. What type of reconstruction are you having?
Looks like there's no surgeries on our list for tomorrow. Best wishes to you, Jules1018, for Friday.
Jul 11, 2012 09:56 PM Blessings2011 wrote:
Good to see you here, CookieMonster!!!
May the rest of your recovery progress nicely!!!
Jul 11, 2012 10:05 PM lisamarie68 wrote:
Thanks for inviting me cookie monster , I am scheduled for my exchange tomorrow morning at 7 am .. scared to death but happy to get these terriable TE's out .. they are so hard and so uncomfortable ... anyway ty again for the support .. squishys tomorrow .. :) and hopefully the end of this darn cancer journey for me ..
Jul 11, 2012 10:11 PM CookieMonster wrote:Welcome lisamarie! Best to you tomorrow - wishing you relief, comfort and an easy recovery! I'll add you to our list.
Jul 11, 2012 11:40 PM Susiell wrote:
Thanks cookiemonster. For some reason I think i am getting the lift at the same time. But actually can't remember the details of that. One more question on the list before surgery. Just so thrilled that this is shaping up to be so much easier than i first anticipated. As I'm sure you can appreciate, these past 10 days, from initial diagnosis to the initial consult with the PS, have been the worst of my life. So when some good news finally comes along you just latch onto it for dear life!
Jul 12, 2012 07:06 AM Lutienyc wrote:
Just heading into the hospital for my UMX and ALND. Have been trying not to think about it for the last 4 weeks after finishing chemo. For some reason I am worried about the pain and drains, even more than the chemo.
Hi oh, off I go....
Jul 12, 2012 08:19 AM jpmomof3 wrote:
Lutienyc, good luck! I hope it won't be as bad was you think, it almost never is! And soon you will be done! I will be in your shoes in 11 days.
Lisamarie, best wishes. Glad that this will be the last big step in your BC journey.
Glad you are done cookie, hope the recovery is fast! By the list on you profile you are a pro at this by now... I hope this is the end of your cancer journey too.
Jul 12, 2012 09:43 AM CookieMonster wrote:
Good luck Lutienyc!
Yeah jpmomof3 - I should be a pro, but still get nervous about the surgery. Even though it all goes well each time. I think this is the last surgery for me, I need to get a nipple on righty, but they can do that with local so I think this is it.
When I woke up this morning the wrapping had all slipped down and there it was. I moved it all back up and then put on one of the surgical bras that I got from my lumpectomy, hopefully it'll keep everything in place. I'm feeling blah today, but that's not a huge surprise. DS is off to camp and DH is off to work so it's just me at home, will find stuff to occupy myself today, I'm sure.
I hope that everyone who's healing is healing well and feeling better each day and that those f you waiting are waiting as comfortably and peacefully as possible.
Jul 12, 2012 12:19 PM Jules1018 wrote:
Hey there all! I have been so busy with this trip. First off I want to send prayers a positive thoughts to everyone recovering from surgery. I also want to send calming thoughts and prayers to everyone waiting for surgery. My big day is tomorrow. I have been getting my injections since monday. Met with thrombo clinic and ps. Sounds like they are going to finish the things they couldnt do during the 1st surgery. I am hoping they will get rid of the hard scar adhesions in my stomache. He is nervous that I will scar like that all over so is hesitant in that aspect. Nervous but tired we had our fun family day yesterday and we are lounging around so far today. The kids were very surprised, which added to the excitement.
Jul 12, 2012 05:26 PM lisamarie68 wrote:
Good Luck lutinyc , I hope u are now resting and feeling okay sending u soft healing hugs ..
I am doing wonderful my surgery went well its amazing the difference .. so long crappy TE's hello Foobs .. it's an amazing automatic relief ..
Thanks Cookie Monster for introducing me to this thread Hugs
Also I worked all night and went straight to surgery this am .. so I think it's Nap time .. Much Love and Hugs to u all
Jul 12, 2012 06:25 PM C-squared wrote:
Hi all! Just chekin' in one week post-op for BMX. I had my first fill today and I think the PS over did it! I think I am more uncomfortable now than I was after waking up from surgery. I highly recommend the pain pump or "On-Q"..., I had it and I think it helped me through. I did not have a lot of pain upon waking from the surgery. Please feel free to chime in with any suggestions for getting throuh the fills comfortably. I'm taking muscle relaxers and ibuprofen. I also have pain meds. Has anyone used heat or ice? Any other suggestions??? Thanks, as always, for your feedback.
Gentle hugs to my sisters in recovery! Deep breaths to those with upcoming surgeries.., it's really not that bad, I promise!
Jul 12, 2012 09:45 PM Blessings2011 wrote:
Hi, C-squared! Gosh, I didn't start fills until a month out from my BMX! I guess the PS just wanted everything to heal more before he started.
As for the fills pain, the motto for many ladies here is "Low and Slow"...in other words, there is no minimum amount you HAVE to be filled, nor is there any set timeline.
And at the time of your fills, if you feel it's too much, ask the PS to remove some saline. They can do that.
As for pain afterwards, I found that having DH massage my back muscles, then taking a nice warm shower before bedtime really helped, and if I needed it, I had Valium, which worked better than any of the muscle relaxers I had.
If you're using heat or ice, just make sure it's not on your sensitive, thin, breast skin where you have diminished feeling. That could be dangerous.
Hopefully, the pain won't last for more than a day. If it does, tell your PS, and slow down.
Hope you feel better soon!
Jul 12, 2012 10:31 PM grt42btexan wrote:
Heart goes to you KristenFro....my son graduated hs this past june. The night before my bmx we hosted his Eagle ceremony. I knew when I received the news weeks earlier that I needed surgery that I wanted to keep busy so what better way than planning an event? Tomorrow is six months post surgery and I still get very sad. I saw pictures of his ceremony and saw the fear in my eyes. I still grieve my lost breasts. Although I have functioned very well and people think I am doing great, I still get sad at times. This is the toughest thing I have ever gone through and nothing prepares you for the emotionals involved. The best thing I did was finding this site two months after my surgery and receiving so much encouragement. But the best thing is having a safe place to vent where I do not have to feel guilty for not being stronger.
Jul 12, 2012 11:12 PM Jules1018 wrote:
Tomorrow is the day (about 6 hrs till check in) and I am lying here awake trying to think calming thoughts. You would think that I would be calm after all the surgeries I have had. I am shaking in my boots so to say.
C-squared I agree go slow and at your pace. I ended up a smidge bigger than I wanted without realizing it. I also agree a good back rub may help.
Cookie- and all the Wonderful Ladies---------thank you for this site. It is wonderful to be able to chat with people who get what we are going through. I act big and tough even nonchalant about this but at times like earlier for instance I want to go to a quiet place and cry because at 30 I should still have my breast I was born with and should not be dealing with my medical issues. But then I stop take a deep breathe and realize that I am blessed and that as my Grandma use to say "This to shall pass". I am proud to have met and gone through all I have no matter how hard it has been because I feel like I am growing as a person and really starting to realize what is truly important in life, family, friends, laughter and taking your time (still rush practically everywhere though)
Jul 13, 2012 12:24 AM, edited Jul 13, 2012 12:36 AM by tamlis
Right lumpectomy and sentinel node removal and right breast lift/reduction (other one scheduled after rads ) .....July 24 surgery date .I think I haven't processed having cancer because of all the information given to me in such a short amt of time and then all the decisions to make...I'm thankful there are others I can talk to about all this....diagnosed June 28 and am a little overwhelmed....
Jul 13, 2012 12:58 AM CookieMonster wrote:
Hugs Jules, we'll be thinking about you tomorrow - I get the whole bit about this all being so much, hopefully you're seeing the light at the end and then life can get back to relative normalcy for you.
Welcome tamlis sorry you've had to join us. I had a short time from diagnosis to my first lumpectomy too - what a crazy time it was, hopefully all goes well and then you'll be on your way. Hang in there!
Take care everyone!!
I ran a low grade fever all day today, but nothing over 100 so no need to call the doctors. My dressing slipped off last night so I put it back and then put on the surgical bra from my lumpectomy to hold the gauze and bandage in place. I also put an e-mail in to the PS making sure that this was OK, but he never got back to me - he was in surgery all day. I assume if it was a major problem someone would have gotten back to me. And now it's bedtime for me.
Jul 13, 2012 02:10 AM SheChirple wrote:
Julia - hang in there. Once over the recovery is not bad. I am nervous about my 7/23 surgery and will try to remember to say a little prayer for you.
I finally feel close to putting this behind me, but I know it's never really behind......I just want the TEs gone.
Jul 13, 2012 03:33 AM ramols wrote:
Hi all. Lying in my own bed in my own home waiting for percocet to kick in and trying to catch up here. Overall doing pretty well and glad this first piece if my journey is over. Sending gentle healing hugs to others recently out of surgery. And sending the biggest hugs I can to those of you waiting. You can do this. Pull the strength you need from all those who have gone through this. That knowledge got me through every hurdle.
Jul 13, 2012 05:22 AM Hoya03mom wrote:
Ramols thanks for the wise words and hope each day brings you less pain and more healing.
12 days and counting. Everyone says they are so impressed with how I am handling all this. I don't feel like I can even complain with sister dying with stage 4 and I am stage 0. Find my eyes leaking at night and when I am alone in the car. Wonder if I should write letters to my husband and son just in case. Did find bright new shiny penny yesterday so maybe it will bring good luck. A bit scared and overwhelmed but doing it so I will be alive to see my grandchildren someday. Sorry for rambling. Thinking of all who were operated on this week and hoping all recovering and getting good pathology reports
Jul 13, 2012 06:47 AM lisamarie68 wrote:
Ramols, I am here in Eastport NY not too far from st james .. sending all you ladies in first stage of BMX healing soft thoughts and hugs , I am doingg okay today . my squishy's are sore . and uneven . I call PS for my follow up appt today and will ask why I am lopsided .. a little sad at my outcome but maybe it's too early . we shall see . also very bruised looking . but maybe the uneven size looks like that due to swelling and trauma from my surgery . I have silicone implants 400 cc in each ... have a happy friday all :)
Jul 13, 2012 08:23 AM 25weeks wrote:
Wanted to give an update regarding my ALND & port placement on Tuesday morning. Everything went as expected & I was headed home by 2pm. The car ride home seemed more uncomfortable than it should have been & I noticed that when I changed positions from reclining to sitting up or vice versa, I had a sharp pain in lower inside part of left lung. But I had similar pain after the bmx & recon with TEs, so I assumed it was some more of the same tightness & chest pain.
Before bed, I had decided that something wasn't right. When I stood up from reclining on the couch all evening, the sharp pain was definite & I could feel gurgling & popping & it felt like I had a new pulse in that same spot at inside lower left lung near my rib cage.
I already had an oncologist appt the next morning (wed), so I figured I'd let her take a listen. Well, she did & sent me for a stat chest X-ray (her office is in the hospital). They wheeled me back to her office where I waited for the results, chatting it up with a nice lady who was there to get chemo. I waited at least 30 minutes until my oncologist came urgently walking toward me collecting my things on the way. She leaned over me & said well, you have a pneumothorax, and a pretty sizable one at that. I'm taking you to the ER immediately. The ER staff started working urgently around me and I heard someone mention an 80% pneumothorax (collapsed lung). The pain I had felt up until that point was nothing compared to having a chest tube placed, then having my lung reinflate. Excruciating is all I can say.
I'm stuck here in the hospital now with the chest tube hoping my lung heals on its own. The thoracic surgeon who placed the tube says he will give it until Monday to heal itself before we have to consider surgery. This totally sucks ladies.
One positive I did learn was that none of the 12 nodes that she removed during my ALND had any signs of cancer. Woo hoo!
Hope the rest of you are recovering nicely. And if you suspect something is not right, have it checked out ASAP. ;)
My best to those of you still waiting. You all are in my thoughts!!
Jul 13, 2012 10:35 AM jpmomof3 wrote:
wow 25weeks, what a horrible story. hope youare recovering ok. did the pneumothorax happen from placing the port? healing thought coming your way... glad your nodes were negative at least... and thats the most important thing!
Ramols and all recovering, heal fast! less pain!
Good luck tomorrow Jules.
Welcome talis! sorry you are having to deal with this too.
Cookie, hope that fever goes away.
Hoya, i so understand the tears. I do great most of the time but sometime something will just set me off.
10 days and counting for me.
Jul 13, 2012 05:35 PM Aruba wrote:
Hi ladies, guess I am gonna jump in with lightning speed. I had 1st ever call back on mammo, U/S, biopsy all in last 10 days. Got call that I have 1cm IDC last night. Met with Surgeon today and am having lumpectomy and lymph node biopsy next Friday the 20th. Barely have time to get my head around this but maybe that is a good thing. I am ER+,PR+, HER2- ...grade 2 but dr. said 70% are grade 2 until they get it out and can study what they have. So guess, I'll calm down and start reading the surgery thread...spent last few days reading what if thread. Hate to be here, but glad there is so much support to be had.
Jul 13, 2012 06:49 PM CookieMonster wrote:Aruba - what a wild ride huh? I'm sorry you're here, but glad you found us. I had a 1.1 cm IDC which wasn't found until my 1st lumpectomy. I hope that the surgery goes smoothly for you and that you have a quick recovery - mine from the lumpectomy and SNB was not too bad.