Log in to post a reply
May 4, 2012 02:40 PM norahamby wrote:
It seems like many of you who responded are aware of a group of nasties or rotten apples as I think you put it.
Why can't the moderators remove them, like permanently? Why are these people allowed to stay on the forum? They have nothing positive to add, IMHO....I have noticed that these same people have only positive things to say about conventional treatments, and very negative about alternative treatments, which many people are using and doing very well.
Some posters, such as thenewme. don't agree with what she considers to be genuine information, and that makes her crabby, but isn't that the decision of the person reading it? I mean, we all have access to internet and can look up any treatments that seem to be - as you say -' bogus. Why get your knickers in a twist over someone elses ideas of breast cancer treatment? If something is bogus, it will be proven to be so, right? No one has the right to delete postings about alternative treatments or any treatment. It is our right to research information and check it out.
It seems to me that there is a big disconnect between women who do the conventional treatment and women who do not, whether they are stage 1 or 4. I get the impression, from reading lots of threads, that the unconventional (alternative?) threads get little support and a lot of nasty posts, which are NOT moderated, except to remove the people who are pro-alternatives. Is this not so?
If I were considering chemo (which I am not) I would not read this forum, because it heavily leans on chemo as the only way. My good friend is in a rehab right now, because her onc nearly killed her with the chemo cocktail. She had a horrible reaction and ended up in the hospital, where she now has C-diff. She's been in the hosp for weeks, and is too sick to even get chemo...which she doesn't want, now. These are not isolated cases.
I just think there should be more respect and openness for everyone, discussing ALL treatments, chemo or not. There are several downright rude posters (you know who you are) who, if they can't say something nice, should say nothing at all. Their comments are not necessary or wanted, from what I read. Yet the moderators continue to allow them to post. No one has all the cancer answers, Let's all try to be....kinder.
Diagnosis: 1/29/2012, DCIS, <1cm, Stage 0, Grade 1, 0/1 nodes, ER-/PR-, HER2-