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Topic: Newbie, Single, Lot to Get Off Chest ..... NO pun intended....

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  • Posted on: Oct 1, 2009 12:33 am, edited Oct 8, 2009 10:35 PM by Mai605
Elk River, MN
Joined: Oct 2009
Posts: 19
Mai605 wrote:
This Post was deleted by Mai605.
Posts 1 - 16 (16 total)
2new4Dee
Chandler, AZ
Joined: Jun 2009
Posts: 36
Oct 1, 2009 01:01 am 2new4Dee wrote:

Hi Mai,

Just to let you know, you've found a warm supportive home right here,  I'm sorry you have to go through this without the emotional support you deserve but you'll find that everyone here really does care and are more than willing to listen to any rant or problem you might have.  You sound like a very strong person who has sacrificed alot for your boys.  Just make sure you take care of yourself in the process.  I know it's hard because you're the kind of person who is normally the "care giver" but everyone needs to be able to "receive care" once in awhile.  Take care and check in with us often.  We really do care.  Be well.

EVERY month is breast cancer awareness month once you have it.
dlb823
CA
Joined: Aug 2008
Posts: 2,055
Oct 1, 2009 01:05 am dlb823 wrote:

Mai!  I'm so glad you've found us!  It's a shame you didn't find this site sooner, but I'm so glad you're here now and felt comfortable unloading the heavy burden you've been carrying all alone.  It's just so crystal clear that you need someone to talk to, and that's something we've all found here, and you will, too.

I'm also going to send you a Private Message -- it's a private email system we have here -- with my phone number.   Click on the Private Message icon when it lights up.   

You sound like one strong lady!  You've done an amazing job with little or no support, but we're here now to help you finish this fight, and you're going to be fine!   (((Hugs)))     Deanna

"The soul would have no rainbow if the eyes had no tears" Native American proverb
Diagnosis: 2/1/2008, 1cm, Stage IIa, Grade 3, 1/16 nodes, ER+/PR+, HER2-
Marsha56
Minneapolis, MN
Joined: Feb 2007
Posts: 114
Oct 1, 2009 01:40 am Marsha56 wrote:

Mai,

 I live in Big Lake would be happy to help you anyway I can/ talking, meeting in person I have only been here for 4 months or so and it is very lonely and hard to beielve no Support Groups . I wanted to start one but no resposive's. So feel free to PM me! God watch over you and your boy's.

Marsha56
Diagnosis: 7/25/1996, IDC, 6cm+, Stage IV, Grade 3, 17/21 nodes, mets, ER+/PR+, HER2+
debbie6122
paducah, ky
Joined: Dec 2008
Posts: 147
Oct 1, 2009 01:59 am debbie6122 wrote:

Mai

Sorry you had to be here but welcome! You have come to a very supportive place with lovely woman here who will help you thru this with any questions you have, If you call the american cancer society they will give you any support you need including sending some one to your home who has gone thru this themselves, when i first was dx i didnt want to call ACS but finaaly i did they have wigs and prosthesis, hats they also do a look good feel good class with free make-up but more importantly they will give you love and support and lots of hugs when you most need it, i hope this helps- god bless you

angel hugs

debbie

This world is given to you as a beautiful garden,you diminish the garden if you do not enjoy its fruits
Diagnosis: 12/20/2008, IDC, 2cm, Stage IIb, 1/6 nodes, ER+/PR-, HER2-
Grakenmom
Joined: Sep 2009
Posts: 42
Oct 1, 2009 10:20 am Grakenmom wrote:

Hello Mai - I'm a newbie here myself, but welcome to a wonderful site filled with knowledgeable, supportive people. It's apparent that you're an intelligent, strong, independent woman - look at everything you've dealth with, and how far you've come already! - and I'm sorry to hear you're having such a difficult time right now.

(As for the people who were so supportive before, I think once the initial feelings wear off, they tend not to think about us, or deal with it like we must every day. Many, many people prefer to put their heads in the sand - it's just their way of dealing with an unpleasant situation, and maybe it's the only way they know.)

Your faith sounds strong - are you involved in a local church? Maybe you could approach your clergy person with your situation and he/she might be able to inform some of the congregation members or groups to provide you with some assistance - meals, shopping, cleaning, support, or at the very least, hugs!   You don't have to be happy and strong every day - you're human after all and deserve down time too.

I hope you find strength and peace of mind, and I hope you feel the good thoughts and warm, gentle hugs I'm sending out.

Erika


Diagnosis: 8/21/2009, IDC, 1cm, Stage Ia, Grade 1, 0/2 nodes, ER+/PR+, HER2-
Mai605
Elk River, MN
Joined: Oct 2009
Posts: 19
Oct 1, 2009 10:53 am Mai605 wrote:

Deanna, Marsha, 2New, Erika and all, thank you SO much for reaching out to me!  I had a hard time sleeping last night only because of my exitement that I found all of you and for the first time in a long time did not feel alone, so THANK YOU!!  I'm officially now addicted to this site, and will be spending more time on here, unfortunately it will only be in the evenings when I can.  I couldn't wait to get on here this AM but am now off to work Frown.... I could stay on here all day!  I have laughed already, and cried, but more importantly found a group of women who I truly admire, and who I know understand.  I hate that we are all here, and why we are here, but I can see how important it is to have support. Marsha you are my neighbor!!  How awesome is that?  I do believe in God's will, and know he is not punishing me... I don't completely understand, but I try so hard to focus on all the blessings I've already received, like this site and you gals.  I'll be in touch soon and thank you again, I am so grateful.

Have a wonderful day!

Mai
Diagnosis: 4/8/2009, ILC, 6cm+, Stage IIIb, 1/19 nodes, HER2-
Mai605
Elk River, MN
Joined: Oct 2009
Posts: 19
Oct 1, 2009 10:54 am Mai605 wrote:

Sorry Debbie... I can't forget you!  I was trying to remember all your names when I replied.  Have a great day!

Mai
Diagnosis: 4/8/2009, ILC, 6cm+, Stage IIIb, 1/19 nodes, HER2-
ivorymom
St Paul, MN
Joined: Apr 2009
Posts: 764
Oct 1, 2009 02:14 pm ivorymom wrote:

Mai, I just wanted to reach out and offer whatever support I can.  I'm in the Twin Cities, office in Roseville.  That's not that close to Elk River, but please feel free to be in touch with me.  I haven't experienced exactly the same things you have, but suffice to say I hit the emotional bottom of my life earlier this year after my lumpectomy.  I tried everything - talk therapy, accupuncture, guided imagery, drugs.  Through various means, I pulled myself out of that pit, and I'm in the process of weaning off my antidepressant.

I know you said that it's far to a support group, but I really encourage you to attend a session.  It can be so comforting and reassuring just to sit and talk with other women who GET what you're going through.  I found some that might be close to you:

http://www.mncancerresources.org/Monticello_Big_Lake_Hospital.html

http://www.mncancerresources.org/Breast_Cancer_Support_Fairview_Lakes.html

http://www.mncancerresources.org/Mercy_Hospital_Cancer_Resource_Center_Breast_Cancer_Support_Group.html

Please try to attend one somewhere.  I never thought of myself as a support group person, but I went and am so glad I did.  We're all here to be supportive.  Please take care and let us know how you're doing.

xoxo

meg
Diagnosis: 2/8/2009, IDC, <1cm, Stage Ib, Grade 3, 0/2 nodes, ER+/PR+, HER2-
Mai605
Elk River, MN
Joined: Oct 2009
Posts: 19
Oct 1, 2009 04:09 pm Mai605 wrote:

Thanks Meg!  Met with Onc today after radiation, and had more questions answered.  I have SO many!!  I'm not sure if you've had to undergo chemo or radiation, but I'm having almost more of a difficult time with radiation than with chemo... lots of pain, burning and SO tired!!  And of course, the emotional and psycological effects.  What kind of anti-depressant are you taking?  I'm not sure what to even start with.  I have fear of Tamoxifen.... are you on that?  I have to start in two weeks and am sick about all the horror stories I keep reading.  You are right though, support group for me now is key, because no one understands what we go through.. they have no clue.

Trying to stay positive!!  Mai

Mai
Diagnosis: 4/8/2009, ILC, 6cm+, Stage IIIb, 1/19 nodes, HER2-
ivorymom
St Paul, MN
Joined: Apr 2009
Posts: 764
Oct 1, 2009 05:53 pm ivorymom wrote:

Mai, do stay positive.  Rads will be over soon enough.  I had some funky blistering and peeling towards the end.  I also got pretty tired, but then I started feeling more energetic the last week or so of rads.  And there's no reason to assume you'll have a bad time on Tamoxifen.  I read all the horror stories, too.  But I've been on it since July, and other than about half a day of mild tingling in my hands, I've had zero SEs.  As for the antidepressant, I was on Lexapro, which definitely helped.

I sent you a PM with my phone number.  I'd love to chat and commiserate.....that's what we're here for!

meg
Diagnosis: 2/8/2009, IDC, <1cm, Stage Ib, Grade 3, 0/2 nodes, ER+/PR+, HER2-
dlb823
CA
Joined: Aug 2008
Posts: 2,055
Oct 2, 2009 01:58 am dlb823 wrote:

Mai ~ I reread your original post just now, and feel I have to comment on what you said about not feeling anyone will want you now.  I know it's easy to fall into that kind of thinking when you're in a down mood -- and, believe me, we've ALL been there!   But I don't agree that no one will want you now!  In fact, the man who will be attracted to you in the future will be a real man -- one who will love you for your strength and independence and business savvy and authenticity and wit (all very evident in your posts here) -- not an immature one who is only interested in physical perfection -- which, by the way, few of us have past the age of 25 anyway!   So while I understand where your doubts are coming from, I just have to say that I honestly think they're groundless.  When the right man comes along, the fact that you've overcome bc will just be one more strength about you that he'll value.    

Hope you're feeling lots better tonight.  Thinking of you  ~  Deanna 

"The soul would have no rainbow if the eyes had no tears" Native American proverb
Diagnosis: 2/1/2008, 1cm, Stage IIa, Grade 3, 1/16 nodes, ER+/PR+, HER2-
Grakenmom
Joined: Sep 2009
Posts: 42
Oct 2, 2009 09:33 am Grakenmom wrote:

Mai - just have to chime in and say that I agree wholeheartedly with Deanna - when you do meet another person that you enjoy spending time with, it will most certainly be a REAL man, one who appreciates all you've been through, and values each and every one of your tremendous qualities.  And I have two boys also, (albeit much younger than yours) and I tell mine all the time that I need their hugs (and I really don't give a fig if I'm interrupting their video games :) ).  I believe that as they see us moving through the bc journey, it will help make them better sons, husbands, and fathers - real men in their own right.  Just a thought - there will be plenty of good to come out of our situations. :{{more hugs to you}}

Erika


Diagnosis: 8/21/2009, IDC, 1cm, Stage Ia, Grade 1, 0/2 nodes, ER+/PR+, HER2-
Nancyld
Joined: May 2009
Posts: 8
Oct 3, 2009 05:44 pm Nancyld wrote:

Mai - Just wanted you to know that the low happens.  I had my bi lat last Oct  and was doing fine until the exchange in January.  Went through a slump for a few weeks but am now back on top.  This web site is the right place to be.  Take Care - Many hugs to you

Nancy


Diagnosis: 10/8/2008, LCIS, Stage 0, 0/0 nodes, ER+/PR+, HER2-
Mai605
Elk River, MN
Joined: Oct 2009
Posts: 19
Oct 3, 2009 06:30 pm Mai605 wrote:

Thanks Nancy,

I already am doing so much better since joining this site!  It's an amazing feeling to connect with women who know exactly how you feel and what you're going through, for me it makes all the difference in the world.  I just wish I would have found this sooner!  

Can I ask though, why you think you went into a "slump" after your exchange?  I would think that would have made things better?  Just curious.

Thanks for the hugs, right back at cha!

Diane (Mai)

Mai
Diagnosis: 4/8/2009, ILC, 6cm+, Stage IIIb, 1/19 nodes, HER2-
Nancyld
Joined: May 2009
Posts: 8
Oct 5, 2009 08:35 pm Nancyld wrote:

Mai - Not really sure, in fact it really suprised me.  I do know others went through the same thing.  Maybe it was because I had so many test, surgeries etc and I just gave out.   My best advise is just go with however you feel and let it happen - Coming on here really helped me.

 Nancy


Diagnosis: 10/8/2008, LCIS, Stage 0, 0/0 nodes, ER+/PR+, HER2-
Grakenmom
Joined: Sep 2009
Posts: 42
Oct 14, 2009 10:34 am Grakenmom wrote:

Hi Mai - just thought I'd pop in & see how you're doing? Hope at least some things have settled down for you, and that you're feeling like yourself again.

All the best,

E


Diagnosis: 8/21/2009, IDC, 1cm, Stage Ia, Grade 1, 0/2 nodes, ER+/PR+, HER2-

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