So- I just found out monday, August 11th, I have breast cancer.
Invasive ductal carcinoma, Stage 3.
I will be 31 on August 30th. I have no kids and was on (the pill) birth control for 16 years.
My aunt passed in August a year ago from breast cancer that had spread and a great grandmawho passed from it. Why I got picked, I don't know for sure, was it the pills, was it not having kids? Anyway... I go for surgery this Tuesday the 19th. They don't know what I'll need afterward, how much they'll have to take, it's just a big 'Wait and See Game".
I am still in shock that I am only 30 and have breast cancer. If there is any other younger people out there, it would be nice to know that I'm really not the only one under 40 to get bc.
I feel like I'm just beside myself. I don't want to lose my hair, or my breast.
I just feel so... helpless. For once in my life, I can do nothing but wait. See.
Sorry, I just had to get this off my chest. Anyone like to reply to me, feel free, I'd appreciate it.
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kerry_lamb Joined: Jul 2008 Posts: 393 |
Aug 15, 2008 05:10 am, edited Aug 15, 2008 05:11 AM
by kerry_lamb
kerry_lamb wrote:
Hi Hens, This is the truly awful part, and after this comes some clarity and then you become a Warrior Princess! Try not to worry about your hair..it will grow back. (Check my other posts). I am not 30, but I sure as hell feel it :) I think the feelings about this disease are the same for women of any age because our breasts are so important to our identity. What will hit you soon is that you will do anything to get rid of the cancer, and then get serious about living! It's a big journey, and we are all here to help you through it. I hope you are surrounded by people who will take care of you. My faith is a gritty faith..I will pray for you, Hensleyclan. Go hard or go home :)
Dx 2/15/2008, IDC, 3cm, Stage I, Grade 1, 2/8 nodes, ER+, HER2- |
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kerry_lamb Joined: Jul 2008 Posts: 393 |
Aug 15, 2008 05:15 am, edited Aug 15, 2008 05:17 AM
by kerry_lamb
kerry_lamb wrote:
file:///Users/newuser/Desktop/IMG_2272.jpg Check out my 'hair' now! I started the taxanes today.One breast down, one dose down, two to go and then it's finished! Y-a-a-ay! <address>Oh. The picture didn't work :( OK. Select the top line here, then drag it to your desktop. That should work.</address>Go hard or go home :)
Dx 2/15/2008, IDC, 3cm, Stage I, Grade 1, 2/8 nodes, ER+, HER2- |
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Jule Joined: Apr 2008 Posts: 222 |
Aug 15, 2008 05:36 am
Jule wrote:
HensleyClan, Hi. I am so sorry that you are here...I was dx when I was 36 so a bit older than you. Good luck on your upcoming surgery and chemo. The hair part is difficult....but it is doable. It is all doable just difficult. Know that you will get a ton of support from everyone on this site. (((hugs))) Julie
Dx 4/23/2008, IDC, 2cm, Stage IIb, Grade 2, 2/5 nodes, ER+/PR+, HER2- |
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SpunkyGirl Joined: Sep 2006 Posts: 537 |
Aug 15, 2008 08:20 am
SpunkyGirl wrote:
Hens, Wow. My heart goes out to you. I was turning 40 when this happened, and I couldn't bear the thought of losing my breast (for some reason the hair didn't bother me much because I knew it would come back). I can't even imagine what you must be going through at 30. But believe it or not, a lot of positive things will come out of this experience for you. Today, I appreciate life and loving more than I thought possible (I've always been a positive person), and I cherish the people in my life. Thankfully, they can do amazing things now with breast reconstruction, and you can have a very good cosmetic outcome. I'm so sorry that you have to go through this. Please keep coming to the boards and we'll help you any way we can. Hugs Bobbie "There's a light at the end of this tunnel for you." Third Day
Dx 7/23/2006, IDC, <1cm, Stage IIIa, Grade 2, 8/20 nodes, ER+/PR-, HER2+ |
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mzmiller99 Joined: Jul 2008 Posts: 259 |
Aug 15, 2008 08:45 am
mzmiller99 wrote:
I'm so sorry this has happened to you at your age. Please don't dwell on what you should or shouldn't have done! It is out of our hands. There is a forum for younger women with bc on this site. It might be a good spot for additional support. Just scroll down through the forums. You're in my thoughts and prayers. Susan Susan
Dx 6/16/2008, IDC, <1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2- |
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cmb35 Joined: Oct 2005 Posts: 1243 |
Aug 15, 2008 08:49 am
cmb35 wrote:
Hens, I'm sorry hon, I felt way too young at 41, 30 is just ridiculous. Hang tough and come here alot, you will get an incredible amount of information and support. Big huge hugs to you... Colleen Dx 5/27/2005, IDC, 1cm, Stage II, Grade 3, 1/15 nodes, ER-/PR-, HER2- |
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gsg Joined: Mar 2006 Posts: 3348 |
Aug 15, 2008 08:52 am
gsg wrote:
So sorry this has happened to you. Sadly, there are LOTS of young women today who are being diagnosed with breast cancer. It's hard to say why. I, personally, believe there's environmental factors involved, among many other things...but as others have said don't dwell on what caused it. Put your energies into getting rid of it. So many great treatments out there today and wonderful drugs to manage the side effects. I never once experienced nausea due to the amazing drug emend. I thought I'd hate losing my hair and it turned out it wasn't any big deal. I actually stopped wearing my wig and enjoyed being able to shower and run and not have to deal with bad hair days...like a guy. It was kind of freeing. I mostly wore a baseball cap. Here is a link to the forum for young women with breast cancer. Good luck to you and keep coming back here. We'll all help you through the maze. Pardon me if I repeat myself. Can't remember jack.
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sarmcl Joined: Apr 2008 Posts: 50 |
Aug 15, 2008 09:21 am
sarmcl wrote:
Well I, unfortunately, can relate to you. I am 34 and was diagnosed in April. Had a unilateral mastectomy in June with reconstruction and started my chemo in July Its a rollercoaster thats for sure. I have my good days and my bad days. THe past 2 days have been bad days for me. What I mean by that is emotionally you are everywhere. You need a good support system and you need people you can talk to. I am finding it difficult to find people my own age to talk to in my area. I am going to a support group in a few weeks and hoping there is someone there close to my age. I have great group of friends but fortunately none of them have ever had to go through this. So its hard for them to know what to say and what not to say to me. If you would like to email me, feel free to do so at: sarmcl@gmail.com Barra Dx 4/17/2008, IDC, 1cm, Stage II, Grade 2, 1/6 nodes, ER+, HER2- |
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psalmist Joined: Jul 2008 Posts: 46 |
Aug 15, 2008 09:35 am
psalmist wrote:
My daughter is your age. She is nervous b/c I was just dx with bc and her grandmother (my mom) had it 5 years ago. Why were we all picked? Who knows. I have lived a healthy lifestyle - good diet, aerobic exercise. My daughter has four children and is now setting up a baseline mammogram. Her OB won't prescribe birth control anymore b/c of the history of hormone-receptive bc in her family. Thinking of you with the disease makes me sad - it makes me think of my own daughter. I will be praying for you! You will make it, and you will come out okay. In the meantime, know that a lot of other survivors are pulling for you and thinking about you. Gentle hugs, Dx 7/15/2008, IDC, <1cm, Stage I, 0/16 nodes, ER+/PR+ |
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sschrader Joined: Jun 2006 Posts: 7 |
Aug 15, 2008 10:39 am
sschrader wrote:
I am sorry this has happened to you too. I was 36 diagnosed with IDC Stage 3 15/28 positive nodes. I thought it was and felt like a death sentence. 3 years out this November now and still NED. I have a 4 1/2 yr old son. I was also on birth control for over 10 years and did not have a child until age 34. Both risk factors I was told. Not one person in my family with BC. I want you to know, it is NOT a death sentence. You are very capable of handling what is to come and you WILL get through it. I hated the thought of losing hair, what a small thing to be worried about in the great scheme of things. I love my "new" hair now, and thank god every day I'm still here and can spend another day with my son. I live everyday now like I did prior to BC. I'm having fun, doing what I want to do, and feel like BC was a long time ago now. I don't dwell on it, and I haven't been on this site in quite a long time due to not wanting to dwell on BC. But I can say this is a wonderful place to go for support and good feelings. I always read other's stories to get me through the tough times. I also used to look at statistics and feared the worse, but don't do that to yourself, it's not worth it. We are not a statistic! You will get through this, I always said "God, I will give you this one year of my life of the hell I will go through, in hopes you will give me many many more in return". God bless you. Shannon |
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BethNY Joined: Nov 2004 Posts: 4517 |
Aug 15, 2008 10:45 am
BethNY wrote:
Welcome to the world of cancer way before you're "supposed" to be at risk. I was dx at age 26 almost four years ago. The beginning is the worst-- just the waiting, and the information overload... but I want to give you some great resources you should check out. www.youngsurvival.org you'll meet thousands of young women who have cancer, and are not taking it lightly-- quite an incredible group. Also, there's an awesome book for young women with cancer-- it's not a front to back read- you read what applies to you. Fighting For our Future, by Beth Murphy Once you have a plan with your oncologist, and get going with chemo, you'll have a plan, and fight the cancer, then beat it, and reclaim your life. You should ask your surgeon about BRCA testing due to your family history. Here's info on genetic predispositions to cancer Do you know if you are having a lumpectomy or mastectomy yet? If you need a mastectomy and opt for reconstruction, you can learn about all your options at This won't be forever-- it's just this huge bump in the road, that will force you to stop, and rest and heal. I was dumped during cancer and then went on to meet the man of my dreams and we're getting married. Kids are still a viable option, and they can be for you too. Keep your head up and take it one thing at a time-- and don't hesitate to ask for an rx for xanax -- there's no handbook for how you're supposed to feel. But we're here for you. Be your own hero
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KPolasek Joined: Jul 2008 Posts: 112 |
Aug 15, 2008 04:02 pm
KPolasek wrote:
Hensley ... I am so sorry that you are so young and have to face this demon. One thing that I might suggest ..... I went to the M.D. Anderson in Houston, Texas .... and found that sometimes it is better to have chemo BEFORE your lumpectomy or mastectomy. They can measure the tumor and watch to see if the tumor is responding to the chemo. Also, then you might be a candidate for a lumpectomy. I had a lumpectomy first ... my tumor was 2.1 cm. Chemo is not too bad .. some people do not lose their hair ... mine thinned out ... I still wore hats and wigs. I got a "hot mama" one, one that looked close to my normal hair .... etc. Research your options .... find out about the details of what they know right now ... The American Cancer Society is open 24/7 (toll free #) and they can help you make sense of your pathology reports. And, they are a good friend in the middle of the night when you are scared. I am praying for you! Blessings, Kay Dx 10/22/2007, IDC, 2cm, Stage IIa, Grade 3, 0/1 nodes, ER-/PR-, HER2- |
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Yogi70 Joined: Jan 2008 Posts: 628 |
Aug 15, 2008 04:25 pm
Yogi70 wrote:
Hensleyclan, I'm sorry that you have had to join our ranks but you have come to the right place. I don't know what I would have done if I had not discovered this website and these boards. I have learned so much and feel less alone. I hope you will find the same comfort. You can always get your feelings off your chest here, no matter what if you want to rant and vent do so. So please stick around, any questions you have to ask someone is sure to have the answer. Know that here you have support. You will be in my thoughts. ((( hug))) Yogi YOGI - Test your own limits and keep going.
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StaceyR Joined: Mar 2008 Posts: 77 |
Aug 19, 2008 12:32 pm
StaceyR wrote:
I'm another under-40 chiming in. I turned 34 two weeks after my diagnosis in March this year. I know what you mean about feeling alone, being so young. Although there are young women with BC on various forums on the web, I do not encounter them in "real life". And when I've attended info sessions (for surgery and chemo) or the "Look good feel better" event (i.e. lots of free make-up), I got weird looks and the organizers assumed I was there to support someone, not for myself, so I felt like a huge loser. It does get better, though, after the initial shock wears off. You'll get through this. "This is no time for ease and comfort. It is the time to dare and endure."
Dx 3/18/2008, IDC, 1cm, Stage I, Grade 3, 0/4 nodes, ER+/PR+, HER2- |
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koshka1 Joined: Oct 2007 Posts: 228 |
Aug 20, 2008 07:04 pm
koshka1 wrote:
Hi there... I am sorry that this has happened to you. I was diagnosed at age 39 and thot wow I am too young for this.....and in fact ANY age is too young for this. I can only feel what you are going through. Through luv and support, we will get thru this together. Hugs.... Kosh Dx 12/2007, IDC, <1cm, Stage Ia, Grade 1, 0/1 nodes, ER+/PR+, HER2- |
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LadyVolsFan
Joined: Jul 2008 Posts: 1 |
Aug 20, 2008 07:20 pm
LadyVolsFan wrote:
25 was my magic number of being diagnosed. October of this year will mark 2 years since my diagnosis. I hope everything works out for you. There are quite a few sites that you might find some comfort in. I really enjoyed www.youngsurvival.org. Remember, You are not alone!! Good Luck Vanessa Dx 10/19/2006, IDC, , Stage IIIa, Grade 3, 1/19 nodes, ER+/PR-, HER2- |
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juniper Joined: Mar 2008 Posts: 32 |
Aug 20, 2008 08:30 pm
juniper wrote:
I was only 36 when I was diagnosed. It has been a little over a year and I have been cancer free since October 2007. I remember how I scared I was. I remember feeling so overwhelmed, like the weight of the world was on my shoulders. I wondered how I would be able to care for my two young children and what would happen to them if I died. It's awful. BUT - it does get better. It will get better. The scariness never goes away completely, but it won't be part of your every thought. You develop a new kind of normal. Know that you can beat this! Dx 7/31/2007, IDC, two nonpalpable tumors, 5cm and 6cm, Stage IV (mets to mediastinal nodes), Grade 3, 18/18nodes, ER+/PR+, HER2+
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BethNY Joined: Nov 2004 Posts: 4517 |
Aug 21, 2008 10:16 am
BethNY wrote:
Stacey R-- I don't know where you live-- but you REALLY need to come to the 2009 YSC conference. Feb 27-March 1 in Dallas, TX.... you will be surrounded literally by a thousand other young women with BC....it is an amazing time. There are travel scholarships available too-- people come from all over the world. Be your own hero
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SheRee Joined: Aug 2008 Posts: 17 |
Aug 28, 2008 12:57 pm
SheRee wrote:
Hens - I am 31, with no family history, and I have three children, so against all odds, I was diagnosed with breast cancer on July 7. I know you're scared... I am, too. But we'll get through this together, okay? Dx 7/7/2008, IDC, 2cm, Stage IIb, Grade 2, 1/9 nodes, ER+/PR-, HER2- |
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31andscared
Joined: Sep 2008 Posts: 9 |
Sep 2, 2008 02:29 pm
31andscared wrote:
I feel like I'm in similar shoes with you. I'm 31, and waiting for my diagnosis. They say most likely DCIS. I'm looking at the probablity of double mastectomy. It's the scariest time in my life. I'm sending you warm wishes and prayers. |
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lfasano44 Joined: Aug 2008 Posts: 24 |
Sep 2, 2008 06:17 pm, edited Sep 2, 2008 06:18 PM
by lfasano44
lfasano44 wrote:
31andscared: I turn 31 tomorrow and was dx in July. You can see all my nightmare stats at the bottom. I have three kids 6, 4 and 3 months and my life has been completely turned upside down! I have started chemo and will get radiation and herceptin for one year. We have to be positive and know that we can beat this. I have figured out that you have to just know you can do it and it will make things much easier. I HAVE to be here for my daughters and son so there is no other option, just fighting this monster. Best wishes to all of us!! Dx 7/8/2008, IDC, 5cm, Stage IIb, Grade 3, 8/14 nodes, ER-/PR-, HER2+ |
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dah0123 Joined: Jul 2008 Posts: 61 |
Sep 2, 2008 11:36 pm
dah0123 wrote:
Hensley, I was 34 with no family history. Single, not in a relationship, no kids. Had bilateral mastectomies and 6 months of chemo. Fortunately that was 13 years ago now. Losing your hair is tough I know. The one good thing is that it comes back as thick as ever (and mine came back with a wave which gives it some body - it was stick straight before chemo). The one good thing that came out of it was my change in perspective. I was working 70 hours/week, took care of my mom, literally "gave myself away" to everyone in need and never took time for me. I now try to take time for "me" and do things that society says I "shouldn't" because it is too costly, isn't practical, etc. I don't let what other people think run my life anymore. I think I needed something "big" to get my attention (apparently!) in order to make the changes that I needed to to live a healthier, happier life. And so it was. Please let me know if there is anything that I can do or tell you that might make your road a little easier. Debbie Dx 10/10/1994, IDC, 1cm, Stage I, Grade 3, 0/11 nodes, ER-/PR- |
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kagaines Joined: Nov 2007 Posts: 96 |
Sep 3, 2008 02:12 am, edited Sep 3, 2008 02:13 AM
by kagaines
kagaines wrote:
You are not alone. I was 32, just a month shy of turning 33, the first time I was diagnosed. I too, had been on birth control for many years when I was diagnosed. And I also have no children. Please know that despite the fact that we are all in different places on the globe, you do not walk this road alone. While I do not want to underscore the importance of websites like this one, I will suggest to you that if you want to talk to someone directly, you should call the Yme! (I believe it's now the National Center for Breast Cancer Awareness or something like that), hotline. It's staffed 24/7 by women who are breast cancer survivors with a minium of 5 years out. Those women were my lifeline after I was first diagnosed and it was so empowering to hear a voice on the other end who had already been down the rocky road I was just starting. Please PM me if you wish to talk at length. "The greatest glory is not in never failing, but in rising up every time we fall." - Confucius
Dx 7/8/2008, DCIS, 1cm, Stage 0, Grade 1, 0/0 nodes, ER+/PR+, HER2- |
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DianaT Joined: Jul 2008 Posts: 121 |
Sep 4, 2008 09:34 pm
DianaT wrote:
I was diagnosed at 30 also. However I didn't use birth control and I have 4 young children, so those myths are out the window. I am so sorry you had to join our group, but we are all here for you. Diana
Dx 1/7/2008, DCIS, 2cm, Stage IIIc, Grade 3, 16/27 nodes, ER-/PR-, HER2+ |
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Deen Joined: Mar 2008 Posts: 97 |
Sep 4, 2008 10:41 pm
Deen wrote:
I was 33 (34 a few weeks ago). Was on the pill forever, no kids etc. Have had a bi-lat, did a/c chemo, growing hair now. Even though it may not seem like it now, you will get throught this. Please feel free to PM me and I can give you my phone number. D. Dx 1/2008, 1cm, Stage I, Grade 1, 0/35 nodes, ER+/PR+, HER2- |
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kerry_lamb Joined: Jul 2008 Posts: 393 |
Sep 6, 2008 11:10 pm
kerry_lamb wrote:
dah0123 That is so true! And I'm leaving my very similar patterns behind after my last chemo on Sept 26. I call this unwelcome adventure my 'slap-awake' gift. I get resentful and crabby and all of that, but I'm actually grateful about the big slap and am planning proper adventures for myself. No more 'planning for the future'. Feck! Where did that get me this year??? Much more 'living in the moment' for this little Lamb! Go hard or go home :)
Dx 2/15/2008, IDC, 3cm, Stage I, Grade 1, 2/8 nodes, ER+, HER2- |
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kelly750 Joined: Sep 2008 Posts: 5 |
Sep 7, 2008 11:32 am
kelly750 wrote:
You are not alone!:) I was 31 when I was diagnosed. I have since had a lumpectomy with sentinel node biopsy, 33 rads, and I am currently taking lupron shots and tamoxifen. I hope your surgery went well. You now are probably being bombarded with all the information and questions that you still are not ready for. This time will feel hazy and blurry to you because you are still dealing with the shock of it all. Soon you will snap out of it and really grip the reins that have been thrust in your hands. Take notes at doctors visits so when you don't remember what was said you can look back and remember. They have come so far with treatments and options it is alot to decifer. Let yourself cry, let people help you. You will find out who your true friends are. Don't blame yourself..alot of the reasons they give for breast cancer didn't even fit me..the only thing that I can think of is the birth control I took for 5 years and the fact that I have fibocystic breasts. Your diagnosis will be all your own and you will find it hard to fit everyone perfectly, make choices that feel best for you. Take time for yourself. I tell myself often that I am not going to let this cancer rob me of the time I feel good and if I allow myself to get depressed or down in the dumps then it has already won, because it is ruining the here and now. I refuse to let it do that. Now I still have my emotional days, usually a day when I have another test or I go get my monthly shot, or when I am going to see the doctor..because those days force me to acknowledge that I do have cancer and things have changed. But once you get through the bear of it you will find yourself fighting back emotionally, intellectually, and physically with all that you have in you to fight. Kelly750
Dx 2/22/2008, IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2- |
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CancerSchma
Joined: Aug 2008 Posts: 7 |
Sep 11, 2008 02:35 pm
CancerSchmancer wrote:
Hi hensleyclan I am 29 and was diagnosed in July, so I am not too far ahead of you on this journey. I had a mastectomy 4 weeks ago and I can honestly say that it has been such a relief just knowing that the cancer is out of my body. I got a prosthesis that actually looks quite natural. Once my treatment is over, i am considering having my other breast removed and getting reconstruction on both sides. I start chemo next week, but am not too worried about losing my hair. It will grow back, and I think perhaps it is a good excuse to experiment with some new looks. If I lose my hair I hope to get a wig that is completely different from my real hair... and I've already found some fun hats :-) I have shed my share of tears, but I'm really trying to look at this more as a wake up call to start living well and enjoying life. Our lives have taken a detour, but we will come out the other side stronger and happier than ever before. Dx 8/28/2008, 3cm, Stage IIb, 2/21 nodes, ER+/PR+ |
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evyl78 Joined: Oct 2007 Posts: 46 |
Sep 11, 2008 05:20 pm
evyl78 wrote:
Hi Hensleyclan You are not alone on this journey....I started my roller coaster almost a year ago. I was 28 and 6 months pregnant when I was dx. The journey has been a long and winding road, however this site and my wonderful sisters here helped me in ways that thank you is not enough for! You will have days when you will cry and days when you are angry but that is to be understood. I was dx on 10/3 and started chemo on 10/8/07, my son was born on 11/11 6 weeks premature, port put in on 11/13 and had a mastecomy on 12/9. Te first few weeks are hard, the hair loss, the emotions, but trust me everyone here will be happy to lend an ear. I am sorry you had to join this journey, but this is the place to come, you will meet some wonderful ladies both under and over 40, that will touch your life in a special way! I will keep you in my thoughts ~evy~ Dx 10/3/2007, 6cm+, Stage IIIa, Grade 3, 7/10 nodes, ER-/PR+, HER2+ |
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BethNY Joined: Nov 2004 Posts: 4517 |
Sep 11, 2008 05:41 pm
BethNY wrote:
Evy, you need to post some pictures of your little munchkin!! Be your own hero
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