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Topic: what's so bad about Tamoxifen?

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  • Posted on: Oct 28, 2009 11:26 pm
Joined: Sep 2009
Posts: 30
dmp wrote:

hello,

it seems like everything i read on here about tamoxifen is bad. what are the bad SE's?  i'm scared because i will be taking it soon.

thanks,

diane


Diagnosis: 4/11/2009, IDC, 2cm, Stage IIb, Grade 2, 1/10 nodes, ER+/PR+, HER2-
Posts 1 - 7 (7 total)
jancie
Salt Lake City, UT
Joined: Jan 2009
Posts: 668
Oct 29, 2009 12:01 am jancie wrote:

According to my oncologist, worse case scenario - blood clots and uterine cancer but that is really a minimum percentage 1-2% and when  you look at the benefits of Tamoxifen - personally I think taking it outweighs the cons.

Hot flashes, mood swings are the most common SE's that I have read up on the past week.  Those SE's are nothing compared to what I endured going through chemo.  I am on my 2nd week of Tamoxifen - it is definately doable for me.

Chemo, Surgery and Radiation completed!
Diagnosis: 12/30/2008, IDC, 4cm, Stage IIa, Grade 1, 0/5 nodes, ER+/PR+, HER2-
Sydney6
NY
Joined: Apr 2009
Posts: 78
Nov 3, 2009 05:55 pm Sydney6 wrote:

I am happy to take that pill everyday!  I did not have chemo due to a low Onco Dx score so I feel like it is all I have to protect me at this point.

Sue


Diagnosis: 11/20/2008, IDC, <1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
aprilgirl1
Joined: Dec 2008
Posts: 513
Nov 3, 2009 06:52 pm aprilgirl1 wrote:

I start it next week, but know lots of women personally (too many women in my community with breast cancer!) and all have felt fine on it.

I do not expect to have any significant issues.

I think there are women that have had some (rare) side effects, and overall the biggest issue is fear - and not wanting to take a pill.  


Diagnosis: 11/7/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
Warrior517
Joined: Jun 2009
Posts: 203
Nov 3, 2009 07:17 pm Warrior517 wrote:

I have been on it a year w/nearly no side effects. You may want to find out if you metabolize the drug properly. Mayo has a test that lets you know if you are a extensive, intermediate or poor metabolizer. I fell into the intermediate so I may have them up my dose a bit...we will see at next appt. There is lots of blogs on metabolizing this drug. But, overall, do not FEAR it!! I am doing just fine on it!


Diagnosis: 1/11/2008, IDC, 2cm, Stage IIa, Grade 3, 2/6 nodes, ER+/PR-, HER2+
scrapmom40
Billerica, MA
Joined: Mar 2008
Posts: 55
Nov 4, 2009 12:29 pm scrapmom40 wrote:

I have been taking it for about a year and a half.  No real side-effects other than the hot flashes and I had weight gain (which I have recently lost with changes in diet).  I know there are alot of women who have lost weight on tamoxifen, but I was not that lucky.  I am an intermediate metabolizer but my oncologist suggested I stay on it so that's what I am doing.  Not crazy about taking it for another 3+ years, but also feel like I have to trust the doctors that say the benefits out weigh the risks.  Good Luck.  Here's hoping you do not have any SE's.

Karen
Diagnosis: 1/31/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR-, HER2-
JanMarch
Joined: Feb 2009
Posts: 150
Nov 4, 2009 02:02 pm JanMarch wrote:

I've been taking tamoxifen since April and in the beginning I had hot flashes and night sweats.  But those have subsided and are pretty infrequent.  I've lost over 30 pounds since July by changing my diet.  Like Sue, I'm happy to take it since I didn't have chemo.

Good luck!

Dx 1/8/2009, IDC, 1.7cm, 0/1 nodes, ER+/PR+, HER2-
chelev
Port St Lucie, FL
Joined: Feb 2009
Posts: 917
Nov 4, 2009 02:48 pm chelev wrote:

I have been on tamox since August and really the only main se's I notice are hot flashes, some periodic insomnia and a little achyness in my joints every now and then.  Really nothing huge at all, and I am very sensitive to most medicines.

chelev - Life is what you make of it - keep what works and get rid of what doesn't. TC - 2 rounds, Radiation - 33 rounds. Oncotype score - 27 (18%). Tamoxifen. BRCA Negative. "What that does not kill you will make you stronger."
Diagnosis: 2/14/2009, IDC, 3cm, Stage II, Grade 2, 0/4 nodes, ER+/PR+, HER2-

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