We are 131,861 members in 73 forums discussing 104,287 topics.

All TopicsForum: IDC (Invasive Ductal Carcinoma) → Topic: Anyone with 10 cm tumor?

Topic: Anyone with 10 cm tumor?

Forum: IDC (Invasive Ductal Carcinoma) — Just diagnosed, in treatment, or finished treatment for IDC.

Posted on: Apr 27, 2010 12:50 AM

flannelette wrote:

I am able to ask this question now, almost 2 years after diagnosis.

My mammogram showed a 10 cm (6 inch) area of IDC. My paperwork got screwed up at my breast assessment centre, and my biopsy was not for 3 months! Surgery one month later. Before I went in to have the mast., my surgeon stood at the foot of my gurney, and I said to him "You are concerned about metastases". and he just said yes. Next morning he came to see me, said it was only about 4" of what looked like a bunch of DCIS mixed in with IDC. good news, I thought he'd come especially to tell me.

One month later, seeing him for the pathology report, sat there crying. In he bounces & says "margins clear, no lymph involvement (he took out 6) and no vascular involvement". yea! i jumped up & pumped my fist into the air each time.

The only bad part was i had (in Canada) a 9 out of 9 for bad cancer behaviour - ie quick division.

All this had happened in one year, since th last mammogram. He even looked at the old mmgm to see if there had been some mistake - but no, was not visiible.

2 years later - no local reoccurance. My surgical oncologist no longer needs to see me to check & says I can have reconstruction - (not).

Of course I do see the medical oncologist every 6 months.

maybe I do have metastses, but so far no symptoms, and i knock on wood each time I think Ihave none.

This is an enigma, and a mystery, and i thank my lucky stars every day. By the way, nobody, not the surgeon, - nobody - made me feel hopeless, except I kept thinking that by their silence Id won the booby prize(black humor is good)

Right after seeing the surgeon for the first time the nurse navigator came out with me and said "SOMEBODY has to tell you this isn't a death sentence"

I ponder all this, wondering what happened? it's a mystery to me. Maybe it's not so unusual?

Anyone here have this experience.? I did have the works - chemo, rads, arimidex.

My pic here is very old - I have long shaggy/half-spiked silver hair now, and am ridiculously optimistic. (But still do knock on wood, lest i disturb the tree spirits)


Diagnosis: 7/2008, IDC, 6cm+, 0/6 nodes, ER+/PR+, HER2-
Log in to post a reply

Page 2 of 2 (33 results)

Posts 31 - 33 (33 total)

Log in to post a reply

Sep 21, 2010 05:22 AM shells43 wrote:

Hi Sunny,

Sorry to hear you can join our club, but welcome! My tumor was in my right breast (I felt the lump) and had a mastectomy 3 days after diagnosis. I started chemo about a month later, after an uneventful healing time, and now I have just started radiation, even though my nodes were clear. Due to the tumor size and my age (43) the oncologist suggested I do the works just to be safe. I know in some cases they do the chemo first to shrink the tumor in order to be able to do a lumpectomy. I don't know where they they draw the line and do a mast instead. This would be a good question to ask your surgeon or onc. I don't think they will know the exact size until after they remove it.  I'm doing fine as far as I can tell, and others with large tumors are, too. It is hard not to freak out a little, but we are here for you.

Keep in touch!

Shelley

Rt. Mx 3/11/10 Chemo started FEC3x-T3x 4/16/10. Rads to follow.
Diagnosis: 3/8/2010, IDC, 6cm+, Stage IIb, Grade 2, 0/8 nodes, ER+/PR+, HER2-
Log in to post a reply

Mar 29, 2012 04:15 AM beth1965 wrote:

Wow flannelette i cannot beleive you di not have any cancerous nodes my oncologist was so positive i would have node involvement because my tumor was 9.2 cm and she was right i had 17/25. She said large tumors usually have had lots of time to grow and like to spread when they get that big.

I hope you are coming along well-Hugs


Diagnosis: 1/18/2012, ILC, 6cm+, Stage IIIc, Grade 3, 17/25 nodes, ER+/PR+
Log in to post a reply

Apr 14, 2012 12:50 PM flannelette wrote:

HI Beth1965 - I haven't looked at this thread in a long time - thanks for the good vibes. Is that your cat? a beauty. Yes, My surgeon was very quiet about it but I think he thought I was a goner. After I met him and his resident and they decided I needed a MX, and we went out of the room, the nursenavigator came rushing out to me and said "Somebody's got to tell you this isn't a death sentence!"

Just recently I got another copy of my pathology report and I had a high degree (maybe 70%) of mucinous carcinoma. I only recenty learned that it's a big fat slob in the bc dept. and doesn't often launch out, except I also had 9 out of 9 for bad cell behaviour. Beats me. But I thank the universe fr that gift about every day.. Cheers to you, and hope you're doing well. am wondering if you're still in chem or rads or where you are in the program?


Diagnosis: 7/2008, IDC, 6cm+, Stage IIb, 0/6 nodes, ER+/PR+, HER2-

Page 2 of 2 (33 results)