Getting ready to start rads. Have simulation and CT scan next week. I'm wondering what experiences other AA have with creams or lotions to use during and after treatment. Do we have to take into consideration any differences because of the melanin, shades, etc.? I know that I will be getting advice from my onc rad about creams but just wondering what other sisters have experienced.
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Roya Joined: May 2008 Posts: 338 |
Mar 20, 2009 11:35 am
Roya wrote:
At first I used the pure Aloe Vera that was provided in our dressing rooms (in the radiation oncology dept). I would use it right after treatment and then shower the next morning. Sometimes I would use it several times a day but would always shower it off every morning. When I noticed my skin darkening, peeling, & itching a bit I changed my routine.. So I began using Aquafore which is wonderful. I have cut and pasted a bit about it. It is sold over the counter in the US. _____________________________________ Aquaphor® Healing Ointment protects skin to help enhance the natural healing process. Non-irritating and fragrance-free, it is dermatologist recommended for:
Dermatologist Recommended Aquaphor® Healing Ointment From Eucerin® ____________________________________________________________ Later, I started using Bag Balm with the radiologists blessing. It has a long history and was not originally intended for what people use it for now. It is also highly recommended for diaper rash since it works fast and well. It helped so much. I have cut and pasted a bit about it here: _____________________________________________________________ Bag Balm is a salve originally intended to soothe irritation on cows' udders. Although the product only mentions use "For chapped conditions and superficial abrasions" it is used as a treatment for chapped and irritated skin on humans and can be found in drug stores and ski resorts. It has also gained popularity as a post-tattoo skin soother. Country singer Shania Twain is noted for using Bag Balm as a personal beauty product as is supermodel Carmen Dell'Orefice, who mentioned her use of the product in her 2008 Telegraph interview. ___________________________________ I always showered everything off every morning prior to going for my rads so that I would be oil and creme free. I am now finished with rads and my skin is soft and smooth. Believe!
Dx 5/2008, IDC, 2cm, Stage II, Grade 3, 0/5 nodes, ER-/PR-, HER2- |
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patoo Joined: Feb 2009 Posts: 2,342 |
Mar 20, 2009 01:55 pm
patoo wrote:
Thanks Roya. You're wonderful. Be blessed. The Lord will not give us more than we can bear - this, too, shall pass
Dx 10/24/2008, LCIS, 1cm, Stage Ib, Grade 1, 0/5 nodes, ER+/PR+ |
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Roya Joined: May 2008 Posts: 338 |
Mar 23, 2009 02:50 pm, edited Mar 23, 2009 02:54 PM
by Roya
Roya wrote:
Patoo, the absolute best deodorant is Lavilin because you only use it every 5 to 7 days and it leaves no film like the clear sticks. It only leaves the film when you first put it on. After you shower the next morning, it is still busy working but there is no film left. This is important since you can't wear deodornat with rads. My radiologists even recommend and approve of it. It is all naural ingredients and you only have to apply it once every 7 days. I would apply it on the weekends and it would last for my 5 days of treatment.......no problem. It works on a different principle than other deodorants since it does not cover odor or clog pores. Rather, it destroys odor causing bacteria. It is safe and mild....no aluminum. No Chemicals!!!! Even though I am through with rads, I still use it. DH likes it because he can kiss my arms all over and never get the taste of deodorant since it leaves no film............he gets only the taste of me You can buy it at most health food stores in the US. I get mine on Ebay. I cut and pasted this info for you: ___________________________________ <table><tbody><tr><td>
Believe!
Dx 5/2008, IDC, 2cm, Stage II, Grade 3, 0/5 nodes, ER-/PR-, HER2- |
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patoo Joined: Feb 2009 Posts: 2,342 |
Mar 24, 2009 12:57 pm
patoo wrote:
Thanks again. I will check with my radiologists at tomorrow's appt. I saw the Aquaphor in the store. It's only active ingred was petrolatum. Isn't that just Vaseline Petroleum Jelly? I should be getting all recommendations from the radiologist tomorrow or Friday. I will begin treatments either Friday or Monday. Thanks again. The Lord will not give us more than we can bear - this, too, shall pass
Dx 10/24/2008, LCIS, 1cm, Stage Ib, Grade 1, 0/5 nodes, ER+/PR+ |
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Roya Joined: May 2008 Posts: 338 |
Mar 25, 2009 05:48 pm
Roya wrote:
Patoo, it is the same as. Vaseline is one Brand name and Aquaphor is another. For some reason, docs seem to want to recommend Aquaphor the most for burns. You might have to dispense with your bra while you heal. If you wear wired ones the wires rub the skin and irritate it. The Bag Balm works best and fastest. Believe!
Dx 5/2008, IDC, 2cm, Stage II, Grade 3, 0/5 nodes, ER-/PR-, HER2- |
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patoo Joined: Feb 2009 Posts: 2,342 |
Mar 27, 2009 04:34 pm
patoo wrote:
Thanks Roya. My rad spec says not to use anything at all except what they give me. I won't find out what that might be until next week. For the bra, I saw where some sisters were recommending only camisoles. Are the ones with the shelf bra built in also irritating? If so do we just bounce for 6 weeks? The Lord will not give us more than we can bear - this, too, shall pass
Dx 10/24/2008, LCIS, 1cm, Stage Ib, Grade 1, 0/5 nodes, ER+/PR+ |
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Roya Joined: May 2008 Posts: 338 |
Mar 27, 2009 05:57 pm, edited Mar 27, 2009 05:59 PM
by Roya
Roya wrote:
Patoo, in my case, only underneath fold of my breast was excoriated by the bra. Any part of your breast/ chest that the bra rubs against can be affected this way. I also lost some skin where the bra rubbed against the outer aspect of my under arms. My skin began changing after the 2nd seek of rads. For some reason, it was never actually tender or painful just darkened and excoriated in those areas that the bra rubbed against. Sometimes the skin will not only darken but appear to be burned. Mine did not blister but I know of others who have. Camisoles are glorified T shirts. They are ok but do not lend the support of a bra. If you are going braless, as I did, they do help cover & camoflauge the nipples, etc. Be pro active, especially if your rad specialist is more accustomed to dealing with 'white' skin. Our skin is different, and sometimes heals differently......for example, some of us tend to scar and keloid more easily, whereas 'white' skin does not tend to do that as much. Be sure your rads specialist is knowledgeable regarding the special needs of black skin so as to help insure that you heal properly. Believe!
Dx 5/2008, IDC, 2cm, Stage II, Grade 3, 0/5 nodes, ER-/PR-, HER2- |
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patoo Joined: Feb 2009 Posts: 2,342 |
Mar 27, 2009 06:24 pm
patoo wrote:
Thanks. Yes, I'm certain they are used to "white" skin and I do keloid easily so I will stay on top of it. I did pick up the Aquaphor anyhow. I'm probably going to go braless with a good cami for camoflauge because I already occasionally develop skintags underneath my breasts, and that's without radiation! I will ask to speak to someone who is knowledgeable about our special needs. The Lord will not give us more than we can bear - this, too, shall pass
Dx 10/24/2008, LCIS, 1cm, Stage Ib, Grade 1, 0/5 nodes, ER+/PR+ |
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bar62 Joined: Aug 2008 Posts: 300 |
Jul 21, 2009 02:45 pm
bar62 wrote:
HI everyone, Just sharing. I was able to wear some old wired bras with wires removed. My doctor told me I would darken...she never mentioned burning...I guess she wanted to keep me calm...but I did burn while darkening, crisp and peel: One area became red and raw. She then put me on Vaseline guaze dressings 24/7 x 5 days followed by Aquaphor and her favorite cream Remedy. I had the last of 8 boosts last Monday and I expect from the condition of the site to crisp and peel. Thanks for being here. Mina No more radiation YEAH!
Dx 6/6/2008, IDC, 3cm, Stage IIa, Grade 2, 0/19 nodes, ER-/PR-, HER2- |
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lLinda Joined: Dec 2007 Posts: 348 |
Jul 21, 2009 06:09 pm
lLinda wrote:
Hi Mina, The Drs. never mentioned "burning of the skin" to me, and I did, It looked so bad to me I went in and told them I" was sick"--looking at it made me feel really ill--they took my temp, and told me I was not running a temp, I ask what "degree burn" was it, and they never did give me an answer(this was 9 years ago) the Dr. put some kind of "gel pack" over the area for the weekend and by that Monday it was much better---I wondered if, because of the color of our skin, that they don't know that we will burn, and certainly that it could affect each person different. I had been using a cream called "Essence", I found it in the Essence Magazine, it was from a company in Santa Ana Calif. It felt so healing--short story, it has been discontinued. I am glad it is over for you. Take care of you. Linda C. LINDA C
Dx 11/17/1998, DCIS, 1cm, Stage IIIa, 6/ nodes, ER-/PR-, HER2+ |
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JourneyNC Joined: Jun 2009 Posts: 52 |
Aug 20, 2009 05:20 am
JourneyNC wrote:
This is my experience recently looking for radiation treatment creams and oils: A healthfood store I patronize seeking fresh organic chicken, vegetables and seasons I inquired about radiation burn treatments and if they carried Aquafore, Bag Balm and Laviln. A naturpathic manager of the store pointed me in the direction of candular ointment, Emu oil and Crystal deodorant when expressing about Rad treatment. Within these stores, I inquired about Aquafore, Bag Balm and Lavilin. The latter was taken off shelf as a result of the petroleum ingrediant. Some other stores are following suit. They are shifting away from a Lavilin ingrediant coming from crude oil.
DCIS-MI (ductal carcinoma in situ with microinvasion)
Dx 3/25/2009, <1cm, Stage I, Grade 3, 0/3 nodes, ER-/PR-, HER2- |
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lLinda Joined: Dec 2007 Posts: 348 |
Aug 21, 2009 01:11 am
lLinda wrote:
JourneyNC, Interesting---Thanks for sharing!!! Linda C. LINDA C
Dx 11/17/1998, DCIS, 1cm, Stage IIIa, 6/ nodes, ER-/PR-, HER2+ |
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honey69 Joined: Apr 2004 Posts: 33 |
Sep 8, 2009 12:42 pm
honey69 wrote:
i got a nice sunburn during my radiation therapy. i couldn't stand to even wear a bra, just a tshirt. i did use aquafor which the radiation center gave me as well as a lotion called udder cream. it's been 5yrs and i'm still a shade darker in that area. |
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Dolores Joined: Mar 2009 Posts: 72 |
Sep 12, 2009 12:50 pm
Dolores wrote:
Thanks Roya for all that information. I start rads next week. My Rad Onc told me no bras. I would like to try that Bag Balm. I don't like going bra less. Diagnosis: 11/20/2008, IDC, 4cm, Stage IIa, Grade 3, 0/10 nodes, ER-/PR-, HER2+ |
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nasharayne Joined: Mar 2009 Posts: 106 |
Sep 15, 2009 10:44 pm
nasharayne wrote:
Dolores - I didn't want to go without a bra either but, after about 3-4 weeks of rads I really couldn't stand to wear one. Plus, I think I peeled more when I wore one. Diagnosis: 1/27/2009, IDC, 1cm, Stage Ib, Grade 3, 0/5 nodes, ER-/PR-, HER2+ |
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Dolores Joined: Mar 2009 Posts: 72 |
Oct 17, 2009 10:54 pm
Dolores wrote:
I finished rad #8 and I tried the Bag Balm and it works good. Diagnosis: 11/20/2008, IDC, 4cm, Stage IIa, Grade 3, 0/10 nodes, ER-/PR-, HER2+ |
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PammyNoFL Joined: Oct 2009 Posts: 2 |
Oct 29, 2009 06:48 pm
PammyNoFL wrote:
Just completed Rad #2 of 32 and they recommended "Jeans Cream" and gave me a sample, I am also using "Mederma." I load both on at night. Have any of you tried these? Diag: 9/2009, DCIS, stage 0, intermediate grade, lumpectomy and re-excision 10/2009 |
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nasharayne Joined: Mar 2009 Posts: 106 |
Oct 30, 2009 09:54 am
nasharayne wrote:
I used 100% aloe vera gel twice a day after about two in. My rad onc was very pleased at how my skin looked. I didn't start peeling until after it was over. Diagnosis: 1/27/2009, IDC, 1cm, Stage Ib, Grade 3, 0/5 nodes, ER-/PR-, HER2+ |
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JourneyNC Joined: Jun 2009 Posts: 52 |
Oct 30, 2009 02:59 pm
JourneyNC wrote:
Hello All, It's been awhile since being on. I'm been through a roller coaster of emotions and now near the end of my Radiation Treatment (chemo ended 8/09). I'll be through with all my treatments and then get checked every 3mos. Since nearing the end of radiation treatment, I'm burned even after slapping on the rad gels, aquafore and now they gave me a topical steroid. I cry in my sleep after I turn. I'm also on Davocet for the pain. It's unbearable under my arm and breast. Everyone skin is different to sensitivity of burn pain...I'm highly sensitive. DCIS-MI (ductal carcinoma in situ with microinvasion)
Diagnosis: 3/25/2009, <1cm, Stage I, Grade 3, 0/3 nodes, ER-/PR-, HER2- |
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GrannyRomai
Joined: Dec 2009 Posts: 4 |
Dec 14, 2009 11:57 am
GrannyRomaine wrote:
Finished Radiation last week. skin under my arm pit and below is charred and a red area.Any suggestions. RR. Mitchell
Diagnosis: 8/27/2009, IDC, <1cm, Stage I, Grade 1, 0/9 nodes, ER+/PR+, HER2- |
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lLinda Joined: Dec 2007 Posts: 348 |
Dec 17, 2009 02:33 am, edited Dec 17, 2009 02:34 AM
by lLinda
lLinda wrote:
Grannyromaine, I am sorry to hear you burned after Rads. I burned pretty bad too, I continued to just use(a cream called Essence)--it had Vitamin E in it--that can not be found anymore--with the 2nd Rads I just used the ointments the Drs. gave me, it will get better in time. You may have to limit your clothing on these areas when you can--give 'em lots of air. Good luck and take care. Linda C. LINDA C
Diagnosis: 11/17/1998, DCIS, 1cm, Stage IIIa, ER-/PR-, HER2+ |
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Zipmum Joined: Nov 2009 Posts: 10 |
Jan 4, 2010 08:17 pm
Zipmum wrote:
Thanks ladies for all of the advice. I finished radiation about a month ago. I was given a vaseline based ointment by the radiation nurse during radiation. My breast still got burnt and I am still shedding skin... I am now using vitamin E oil and this seems to be help my skin. I am still having "heat" moments in the one breast and I am not sure why. Thanks again for all the tips. Diagnosis: 8/18/2009, IDC, <1cm, Stage I, Grade 3, ER-/PR-, HER2- |
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