Topic: Her2/neu+ and ER/PR+
- Posted on: Aug 3, 2009 03:28 pm, edited Aug 3, 2009 03:28 PM by perdita
Joined: Jan 2009
Posts: 3
Greetings Ladies,
I am 40-years-old and was diagnosed with bc in December. Needless to say, I was devastated, especially given that I have young children and have only been married five years. I guess I'm considered triple positive, recently finished the T/C/H regimen, and will take the drug Herceptin until January. I got the impression that being HER2neu+ is not common among African-American women. So, I would really enjoy hearing from those who are, what chemo regimen you had, and what's going on with you now. For me, the invasive cancer is gone, but pre-cancerous cells are requiring that I get a mastectomy (after two opinions, I'm very comfortable with this) and then have radiation. I'll consider reconstruction later after my mind and body are healed....
I have a wonderful oncology team and also consult with an awesome medical oncologist at Duke University (she specializes in Her2/neu in young women). It has been extremely valuable to have a second opinion, which my doctor fully supports. One thing I've definitely learned -- listen to your body and be your own best advocate! Ask the easy questions, ask the hard questions....and then ask again while you're taking notes:) Communication is so important!
Breast cancer has changed my life -- for the better! Sounds crazy, I know, but I now live a new "normal." I don't sweat the small stuff, eat even better, exercise more consistently, and enjoy my family even more. I try and find the sexy in every moment!!
Peace and love to all of us!
Dx 12/23/2008, DCIS, 2cm, Stage IIb, Grade 3, 1/9 nodes, ER+/PR+, HER2+
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nasharayne Joined: Mar 2009 Posts: 75 |
Aug 5, 2009 08:43 pm
nasharayne wrote:
Hi perdita, Glad to meet a fellow north carolian.....sorry it has to be here. I am Her2+ , I have also heard it's not as common for us to have Her 2 but, it is more common for us to be younger (I'm 32) maybe that has something to do with it. Anyway. I finished TCH June 30th and am now getting raditiation and will finish herceptin in March. I had a lumpectomy. Right now I'm just waiting for my hair to grow...Ugh, I think that is the worse part for me. Good look with your surgery. Dx 1/27/2009, IDC, 1cm, Stage Ib, Grade 3, 0/5 nodes, ER-/PR-, HER2+ |
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lLinda Joined: Dec 2007 Posts: 334 |
Aug 6, 2009 01:34 am
lLinda wrote:
Hello perdita, I too, am sorry we had to meet this way. When I was first diagnosed with CA at 51 years old, I was given the "standard treatment"Chemo--Adramycin and Cytoxan. The test for Her2 was not here in Kansas at that time, I was diagnosed for Her2 when it came back the 2nd time---2002.. It has been a journey, but I am Blessed by God to still be here. I have had to have many treatments (Chemo) along the way, but if that is what it takes to stay here, I won't complain(not too much). As of December, I am not on any meds, I see the Dr. next week and we will discuss where I am to be. So in the meantime, hang in there and post often, we are here to support, lean on, cry to, it is OK!!! Hello nasharyne--good luck with Rads--hope it goes easy for you. I had issues around losing my hair and it growing back--I have a round fat head, so I could wear the close cut well, I went to the Barber and got real neat "lines and a shape", I got a lot of compliments. For you too, hang in there. Linda C LINDA C
Dx 11/17/1998, DCIS, 1cm, Stage IIIa, 6/ nodes, ER-/PR-, HER2+ |
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Dolores Joined: Mar 2009 Posts: 64 |
Aug 11, 2009 12:38 pm, edited Aug 11, 2009 12:42 PM
by Dolores
Dolores wrote:
Hi Ladies, I was dx with HER2/neu+ bc in Nov. I had Adriamycin/Cytoxan4 cycles and Herceptin/Taxol 4 cycles. Then I had an Lumpectomy with Axillary disection. Next radiation therapy in Sept and then Herceptin for 12 months. I am 52 yrs old. Four weeks after my last chemo my hair started to grow back. I live in Florida. My husband is from NC. Good luck all Dx 11/20/2008, IDC, 4cm, Stage IIa, Grade 3, 0/10 nodes, ER-/PR-, HER2+ |
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BlessedOne2… Joined: Jun 2009 Posts: 69 |
Aug 12, 2009 12:50 pm
BlessedOne2 wrote:
Hi Sisters, I was dx triple positive in April 09 at 53 yrs old. I just had 2nd of 4 A/C. This will be followed by 12Taxol/Herceptin, then Herceptin and hormonal therapy. I had lumpectomy with SNB in inner right breast. Hair has gone but I don't miss it as much as I thought. It is funny when I do the psychological stuff like try to keep my head from getting wet in the shower or trying to sling hair that isn't there. Oh, my med. onc did a second Her2 test to be sure the results were correct for me. Blessings to all of you. --Wanda Lumpectomy 6/10, clear margins, node neg. lymphovascular neg.
Dx 4/6/2009, IDC, 2cm, Stage IIa, Grade 3, 0/3 nodes, ER+/PR+, HER2+ |
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lLinda Joined: Dec 2007 Posts: 334 |
Aug 13, 2009 01:35 am
lLinda wrote:
Hello Delores, Welcome and thanks for sharing--I always like to hear what pople have to say "along this journey"--I am still learning and I am interested in how they give the "treatments "these days. I am sorry we had to meet this way--but glad to hear from you. Take care. Linda C. LINDA C
Dx 11/17/1998, DCIS, 1cm, Stage IIIa, 6/ nodes, ER-/PR-, HER2+ |
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4lumps Joined: Oct 2009 Posts: 19 |
Nov 6, 2009 12:45 pm
4lumps wrote:
Hi Ladies, I am African American and 31yrs old. I was diagnosed 2 weeks ago w/IDC. I had a core needle biopsy in Sept 09, a Lumpectomy on 10/16/09. diagnosed on 10/22/09. I had a Bilateral Sentinel Node Biopsy on 11/2/09 (they removed a total of 6 nodes--all negative) I am sheduled for a Bilateral Skin Sparing Mastectomy w/immediate reconstruction 11/10/09. I'm also Her2 Positive. I just wanted to give a little background on my diagnosis. Diagnosis: 10/22/2009, IDC, 1cm, Stage I, Grade 1, 0/6 nodes, HER2+ |
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nasharayne Joined: Mar 2009 Posts: 75 |
Nov 14, 2009 02:42 pm
nasharayne wrote:
Hi 4lumps, So sorry you had to be here but, glad you shared. I was also diagnosed at age 31. Diagnosis: 1/27/2009, IDC, 1cm, Stage Ib, Grade 3, 0/5 nodes, ER-/PR-, HER2+ |