Member Since: May 9, 2005
Last Login: November 21, 2008
Birthday: November 29, 1954
Location: Cleveland area, OH
Occupation: Potter
Homepage URL: www.browndogpottery.net
53 years old, artist/potter. Six grandchildren. I love cooking and gardening. I'm passionate about the environment and sustainability of the planet.
My original cancer was summer of 2005, IDC 2 cm, 5 of 12 dirty nodes, lumpectomy, chemo AC / T and radiation. Recurrence December of 07 in lymph nodes in chest.
Posted in:
Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: 9 hours ago
Help: Thinking about disability againHere's a link explaining COBRA : http://www.dol.gov/ebsa/pdf/cobraemployee.pdf But, basically, if you cut back hours or quit your job so you are no longer entitled to participate in your employer's health plan, you would have to pay for COBRA. If you either quit work or earn less than $900 or so per month in wages, you will be ruled eligible for SSDI benefits, but will not begin to receive anything until five months later. You are eligible for Medicare 24 months after that, so 29 months from when you were deemed eligible for SSDI. So, while related, COBRA and SSDI rules and eligibility are separate issues. Triple negative, mets dx 12/07, carboplatin & taxotere Jan - April 08, NED until CT 11/08 showed chest node swelling. Waiting until January and rescan. |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: 19 hours ago
How Many Stage 4 Girls are getting SS disability..kgrim, About the PLUS loans - call them, and you will get an automatic deferral while they review the paperwork. That way you don't have to make any payments in the interim. That's what I did - they gave me a deferral that day, and paperwork came back a few weeks later. The loans are conditionally forgiven until your death, but you stop making payments. When you die, they are forgiven in total. Triple negative, mets dx 12/07, carboplatin & taxotere Jan - April 08, NED until CT 11/08 showed chest node swelling. Waiting until January and rescan. |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + Triple Negative, Created: Nov 20, 2008 03:28 pm
mets to spineYou need to jump over to the metastatic/recurrence board. Something's not right here. She only has mets to her bones and they are giving up on treatment? There are lots of treatments, and cancer patients don't die from bone mets. What causes cancer death is organ failure or brain problems, in most cases. There's part of this puzzle missing. Triple negative, mets dx 12/07, carboplatin & taxotere Jan - April 08, NED until CT 11/08 showed chest node swelling. Waiting until January and rescan. |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 18, 2008 09:56 pm
Scan results tomorrow- fingers crossed!Taxol is wicked, but effective! Good luck tomorrow. I have connections in Greensboro - I got my Master's there in '87 when we lived in Winston-Salem, before moving to Cleveland in '89. Triple negative, mets dx 12/07, carboplatin & taxotere Jan - April 08, NED until CT 11/08 showed chest node swelling. Waiting until January and rescan. |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 18, 2008 09:47 pm
Just for fun-- Let's talk hobbiesKelly, wow! And my kids always called me the grammar Nazi! I'm the same way about errors and typos jumping off the page at a glance; it's like having to metaphorically bite my tongue to avoid correcting them. Susan, what a great idea. I'm in the process of retiring as a potter. I don't know if the chemo has anything to do with it, or just age, but I've developed chronic tendonitis in my hand. And with the economy, sales are really down, anyway. I'm a sustainability nut. I'm obsessive about minimizing our carbon footprint, and leaving the earth at least as good as I found it. I love compost! I planted a backyard orchard in 2007 (six trees) and hope I live to see it really produce fruit. This summer I bought a little red tractor with a backhoe and front end loader and dug a pond. Next summer, if luck holds out, we plan to build a waterfall/ stream down the "mountain" that is the dirt from the pond. Recently I've been reading Michael Pollan and Robert Jensen. I used to read incessantly, but recently I find that I want to put my hands to more tangible work. I used to paint some, and I hope to do more of that now that I can't throw clay anymore. I bought some canvas and oils just last week. I'm a darn good cook. I used to be really into gourmet style cuisine, but now I'm more in tune with Alice Waters, using what's fresh and local. We still have mesclun greens from the garden, and swiss chard, and just built a cloche over the newly sprouted salad greens (an experiment) that I'm hoping will make it through the Cleveland winter and start growing in February. I've got this brainstorm of getting a few laying hens next spring, with a moveable coop so we can have pasture raised eggs without having chickens destroying the gardens (and the neighbors' yards). In April the asparagus will begin in earnest and then we're off again. I measure my life by the gardens. |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 17, 2008 08:23 am
pet/ct tomorrowHas anyone heard from Kimmy? Her MySpace account has been cancelled. |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 16, 2008 05:24 pm
Scar Tissue? Underarm PainI agree with Annie to get it checked to ease your mind.... but, I can feel a pinching sort of pain and a bump where the surgical clips were put in after my lumpectomey. So, it could also be that. Triple negative, mets dx 12/07, carboplatin & taxotere Jan - April 08, currently NED |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 16, 2008 05:11 pm
Jodi (Jodian)That is so sad. Jodi was just dx last fall when I was first dx with mets, and I remember how they fought to keep her stable while the baby was maturing enough for c-section. How is the baby? Born in January, wasn't it? Triple negative, mets dx 12/07, carboplatin & taxotere Jan - April 08, currently NED |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 15, 2008 01:33 pm
Is this a good idea?Here's what my DIL has done: http://www.tnbcfoundation.org/peoplemaking.htm Scroll down, look at "Lemonade Stand" ; "Terri and Larisa" (Larisa is the DIL) and "Children's Cards". She's a doer, and can't stand it that I probably won't live to see the cure she's working so hard to raise funds for. BF Triple negative, mets dx 12/07, carboplatin & taxotere Jan - April 08, currently NED |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 15, 2008 09:29 am
CT showed lymphadenopathy, postponing tx till JanuaryThanks, ladies. I got a call from one of my sons last night who just isn't comfortable with doing nothing. And though he knows it's not his decision, I could tell that he really wanted to tell me to start aggressive treatment. His wife is afraid that I'm "already giving up" because I don't want to start treatment now. At this point, there's no tumor, just some swelling in lymph nodes. If I hadn't already been dx with metastasis, we'd have to go through the whole bit of tests to confirm mets before treatment. I guess at some point I will have to be less forthcoming about treatment decisions with my family. I have four adult children, and they all have wives (except one), and they all have opinions. Triple negative, mets dx 12/07, carboplatin & taxotere Jan - April 08, currently NED |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 14, 2008 03:54 pm
CT showed lymphadenopathy, postponing tx till JanuaryI had posted on the new Xeloda thread a couple of days ago after having a new CT that showed some lymph node activity (again). I was about to post there, but decided to start a new thread. So - I saw the oncologist today and she suggested - and I agreed - to hold off on beginning treatment until after the holidays. The recurrence noted on the CT report is "Interval development of right hilar lymphadenopathy - reactive lymphadenopathy versus versus evolving metastatic disease must be considered." So, she's certain it's a recurrence because of my history, but given that it is very limited and I've been NED for 9 months after chemo, she's comfortable to wait until January and scan again for progression, as long as I'm asymptomatic. This is almost exactly what happened last year - in terms of timing - I had a chest xray on November 10 that was abnormal, spent the rest of the year going through more tests (CT, PET, bronchoscopy) to get a conclusive diagnosis, and started chemo in January. Only last year I was frantic about the delay. The oncologist I had then (I've since switched) told me that I had some time to plan what I wanted to do, but I was so concerned about starting treatment that I rushed to start ASAP and scheduled chemo the first appointment I could get, which was mid-January. This year, I have a different outlook about quality of life issues, and realize that this is my road until I die. So, I'm comfortable with postponing treatment, since I'm feeling pretty darn good - finally! Last year we were so down with the stress of not knowing, then the conclusive dx coming just a few days before Christmas, that we did almost nothing for the holidays. This year, I plan to enjoy my family. |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 12, 2008 07:54 pm
Told The Kiddies.....SighKelly, the worst thing in the world in when breast cancer takes young mothers. I had to tell my boys today that I have a recurrence, and it was awful. They are 34,32,30, and 25. I can't imagine going through this with young children. It's so, so, sad to think of your children dealing with the loss of their mother, no matter how old. |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 12, 2008 12:54 pm
New Xeloda thread?I have been on a chemo holiday and staying away from the boards. Yesterday's CT scan showed an enlarged hilar lymph node, and the dr. called yesterday to tell me the bad news and talk about what's next. Her choice is to try Xeloda single agent, so I too have been looking for information on the boards. I'm triple negative, and it seems like there hasn't been a lot of success. But, I'm willing to try to avoid the hair loss and IV chemo through the holiday season. I had halfway thought (before I got results) that if it came back positive I might wait until the new year to start treatment, anyway. I figure even if Xeloda fails, I'm no worse off than waiting until Jan 1. I go in to see her on Friday morning, all the discussion so far has been the brief phone call to go over CT results. In reading back over old threads, it seems that more and more are using one week on / one off scheduling to avoid hand-foot syndrome. I didn't talk about that with the onc, so I don't know what she is planning. |
Posted in:
Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Nov 7, 2008 10:10 pm
The Respectfully Republican ConversationHi, sorry to intrude, but did you hear the press conference this afternoon when Barack Obama referred to himself as a "mutt?" He was talking about the kind of dog they might get, and he said they'd like to get a shelter dog, but Malia is allergic, and most shelter dogs are "mutts like me." Triple negative, mets dx 12/07, carboplatin & taxotere Jan - April 08, currently NED |
Posted in:
Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Nov 6, 2008 01:37 pm
Positive Obama threadI heard this morning that if Ted Stevens resigns or is removed from his post, the governor of Alaska will appoint a new US senator. So, Sarah Palin can't appoint herself......but, she could resign as governor first, making the current Lieutenant Governor the governor, who COULD appoint SP to the US Senate! Triple negative, mets dx 12/07, carboplatin & taxotere Jan - April 08, currently NED |
Posted in:
Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Oct 31, 2008 11:08 pm
Positive Obama threadHello, ladies, I just stopped by to check in. I am feeling so great about our guy, especially after watching him on Rachel Maddow last night. He was so concise and assured about all these hard questions that Rachel asked. He has obviously been thinking hard about solutions, because he was very specific in his answers - about Pakistan, about rebuilding the infrastructure, about education. And everything in his plan, he has a way to pay for it. It's most unusual for a candidate to speak so intelligently and in such clear detail, especially this close to the election. And he is so calm - here is a man of intelligence and demeanor, he won't be baited to say something stupid that can be used against him. He can speak AND think! At the same time! And Rachel did a great job! She's wonderful! |
Posted in:
Tests, Treatments & Side Effects + Just Diagnosed, Created: Oct 31, 2008 10:45 pm
Is anyone else an atheist with BC besides me?Ace, thanks for the image. I'd seen that long ago. It really does point out our hubris in thinking that anything we do matters much in the big picture, doesn't it? I mean, I feel a big responsibility to be a good person, and to take care of the earth and my family and other people. But even if we humans destroy our planet like it seems we are determined to, it still seems like it's insignificant to the Universe when you try to comprehend the sheer vastness of it all. |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 31, 2008 10:37 pm
Ambien not workingI went through an insomnia phase a month or so ago, Ambien didn't work. I took benadryl (OTC) and 6 mg melatonin in addition to the Ambien for about ten days. It was horrible not sleeping. Melatonin is on the list of CAM medications to help reduce recurrence, also, so I still take it, along with the Ambien, though not the benadryl any more. I told my PCP about all these and she didn't think it was a problem for the short term. Not sleeping is terrible for your health. What a choice. |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 29, 2008 11:03 pm
AlaskaDeb needs our prayersLink's still not working. where is the post? Triple negative, mets dx 12/07, carboplatin & taxotere Jan - April 08, currently NED |
Posted in:
Tests, Treatments & Side Effects + Just Diagnosed, Created: Oct 22, 2008 12:24 pm
Is anyone else an atheist with BC besides me?Well, damn, Sandra! I haven't been on the boards for a month and saw this today and just had to tell you ladies about it! But you beat me to it!!!!! Brenda Triple negative, mets dx 12/07, carboplatin & taxotere Jan - April 08, currently NED |
© 2008 Breastcancer.org. All rights reserved.