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Member Since: January 2, 2006
Last Login: October 2, 2008
Birthday: August 5, 1961
Location: Crossville, TN United States
Occupation: RN

Biography

I am a RN working on my BSN then off to Nurse practioner school,which i will become a family np.2 wonderful daughters,2 beautiful grands.My life revolves around these 4 people.without them I would not be alive.

Diagnosis

Diagnosis: Dx 11/3/2004, IBC, 6cm+, Stage IV, Grade 3, 1/9 nodes, mets, ER+/PR+, HER2+
Diagnosed: November 3, 2004
Type: Inflammatory Breast Cancer
Recurrent?
Metastatic? Yes
Stage: Stage IV
Lymph Nodes Removed: 9
Positive Lymph Nodes: 1
Tumor Size: 6cm or larger
Tumor Grade: Grade 3 or high grade
Hormone Receptor Status: Tumor has both estrogen and progesterone receptors
HER2/neu Status: Tumor has an excess of HER2/neu receptors or genes

Recent Posts by RobinTN

Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Oct 1, 2008 11:51 pm

TIME TO CIRCLE THE WAGONS GIRLS

hopegully ghings will gO FAST AND U Cget               on wi                                                                         th my new life.i wish i could be abl to type Gin.

ciykccd use oraters ab fruebdsbiw i have wydg a gard time firnub                                                                                 firnubg iwrew, hugw   to all of you.

Robin....."I wont back down"....
Dx 11/3/2004, IBC, 6cm+, Stage IV, Grade 3, 1/9 nodes, mets, ER+/PR+, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 1, 2008 09:00 pm

well i am back

hello alll once again i must turn to my friends.

i just got home f rom  the hospital t oni te .after a 15 mo th affair with NED t he cancer is back this this time in my hrain.ibeat it twice now the steaks ar e higher and i will win again.thats all i can say now it is just to hard for me to grasp.hope i will be going to duke next week..i have a mri/prt for monday/i will write more when i can

Robin....."I wont back down"....
Dx 11/3/2004, IBC, 6cm+, Stage IV, Grade 3, 1/9 nodes, mets, ER+/PR+, HER2+
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Jul 18, 2008 12:34 pm

TIME TO CIRCLE THE WAGONS GIRLS

Hi Nicki Bren

It is so great to be back with my sisters.I said it before and I will say it many more times,I dont think I would have made it without this thread.all of you have been such a blessing to my heart.

Deb,I am so very sorry yo u are having it so rough,I know what a low h&h feels like after my 3 sugery last year after the expanders were put in and then one took out my h&h was 7 and 22 and that was after 4 untis.boy i wasnt hardly able to walk to the bathroom.But I had had 3 sugeries in 4 weeks by that time and my body was just exausted.After I went home was placed on iron and protonix for 2 months and gradually it began to climb it is still not up to normal levels yet.But I do know how you feel.I am praying for you.

Susanmc:How are you.

where is pinkstock going to be this year?I wish i could be there.

Madison:how are you?

where are the rest of the wagon girls?I am at a total loss as to the goings ons here.

Robin....."I wont back down"....
Dx 11/3/2004, IBC, 6cm+, Stage IV, Grade 3, 1/9 nodes, mets, ER+/PR+, HER2+
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Jul 17, 2008 11:46 pm

How to cope with Survivor's Guilt?

now i know there is a name for what I face often.I often wonder why I was spared when so many others loose the battle.All I can do is know that God has a plan ahead for me,I dont know why He does the things He does,but someday I am going to ask Him.I almost didnt survive twice,the second time I was given 2 months and that was almost 2 years ago.when the wagon circle was started by gina.but now i am 14 months NED.

I am so very sorry to hear about your friend.

Robin....."I wont back down"....
Dx 11/3/2004, IBC, 6cm+, Stage IV, Grade 3, 1/9 nodes, mets, ER+/PR+, HER2+
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Jul 17, 2008 11:42 pm

looking for someone

tracey

i am so sorry to hear about your mom.I have been on this board since the beginning.I dont know if i knew your mom or not.I was so sick in the beginning.I will be praying for you and your family.

May God give you the strenght to endure sweetie..

Robin....."I wont back down"....
Dx 11/3/2004, IBC, 6cm+, Stage IV, Grade 3, 1/9 nodes, mets, ER+/PR+, HER2+
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Jul 17, 2008 11:38 pm

TIME TO CIRCLE THE WAGONS GIRLS

Deb

Praying for you girl

what a sad story about Daniel.How can I adopt him? I will give him a good home and we girls here have plenty of love to share with a special little man and it could be him.

Robin....."I wont back down"....
Dx 11/3/2004, IBC, 6cm+, Stage IV, Grade 3, 1/9 nodes, mets, ER+/PR+, HER2+
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Jul 17, 2008 11:36 pm

I sing, I dream, I love...anyway

jankay

my kinda diet,just skip the grapefruit.

Robin....."I wont back down"....
Dx 11/3/2004, IBC, 6cm+, Stage IV, Grade 3, 1/9 nodes, mets, ER+/PR+, HER2+
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Jul 17, 2008 11:35 pm

I sing, I dream, I love...anyway

Thanks Doris,I got my eye on the prize this time.

Valerie:How nice to meet you.I am sure you will get to know me soon.I had some major problems after my attempt at recon last year and have been away then started to school and that seems to take all extra time I have.

Puppy:I posted to you on another thread.I am so very sorry to hear you had more problems in the spring.I hope you are doing well.I read some of the back posts last night and cried for hours I had no idea that some of our sisters have gone on to be with the Lord.I dont know what I would have done without all of you here.I think about Gina starting this thread when I was diagnosed the second time.All of your love and support and prayers are what saved me.If I can do anything to help you let me know O.K?

Robin....."I wont back down"....
Dx 11/3/2004, IBC, 6cm+, Stage IV, Grade 3, 1/9 nodes, mets, ER+/PR+, HER2+
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Jul 17, 2008 11:29 pm

Update on Puppy... add prayers

((((((((PUPPY)))))))))))))))))

i am sorry to hear you have been thru so much.You will always be in my prayers.

Robin....."I wont back down"....
Dx 11/3/2004, IBC, 6cm+, Stage IV, Grade 3, 1/9 nodes, mets, ER+/PR+, HER2+
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Jul 17, 2008 11:24 pm

Tram Has anyone had it????????

Liz

its a great feeling huh to be NED.I am now 14 months NED!! Have had 2 hair cuts now and letting it grow out to get  a style for the first time in 4 years!

Robin....."I wont back down"....
Dx 11/3/2004, IBC, 6cm+, Stage IV, Grade 3, 1/9 nodes, mets, ER+/PR+, HER2+
Posted in: Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Jul 17, 2008 11:21 pm

Very Angry!

lisa

I just read about your sugery,that is awful,it is bad enough to be in pain much less the worry you are going thru.I hope you have a restful night.

Robin....."I wont back down"....
Dx 11/3/2004, IBC, 6cm+, Stage IV, Grade 3, 1/9 nodes, mets, ER+/PR+, HER2+
Posted in: Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Jul 17, 2008 11:19 pm

Very Angry!

honey,we have all had to deal with them.and what goes around does come around.

I had the nurse at the radiation center tell me after my double mast that at least they didnt look like her's she was very small.I said at least you got your own.

seperate yourself from all the negative people like that you can.I know its easier said than done.believe me I know.Its a God's miracle I am still alive Today.

I hope you are recovering well right now.

Jasmine:thats a great idea!!

Robin....."I wont back down"....
Dx 11/3/2004, IBC, 6cm+, Stage IV, Grade 3, 1/9 nodes, mets, ER+/PR+, HER2+
Posted in: Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Jul 17, 2008 11:14 pm

Need Advice and/or Support Please!

I agree with Marin I would get a second opinion.

Robin....."I wont back down"....
Dx 11/3/2004, IBC, 6cm+, Stage IV, Grade 3, 1/9 nodes, mets, ER+/PR+, HER2+
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Jul 16, 2008 08:52 pm

TIME TO CIRCLE THE WAGONS GIRLS

LONG LIVE THE WAGONEERS

Robin....."I wont back down"....
Dx 11/3/2004, IBC, 6cm+, Stage IV, Grade 3, 1/9 nodes, mets, ER+/PR+, HER2+
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Jul 14, 2008 12:20 am

I sing, I dream, I love...anyway

Good nite all sweet angels! cant wait to talk to you again.

is there going to be a pinkstock 08? When things are better I am going to have all of you to my place.I cant wait.

Robin....."I wont back down"....
Dx 11/3/2004, IBC, 6cm+, Stage IV, Grade 3, 1/9 nodes, mets, ER+/PR+, HER2+
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Jul 14, 2008 12:18 am

I sing, I dream, I love...anyway

Pammy I am so very sorry for your loss.I hate cancer with every cell in my body.I almost killed me twice and took precious things from me.But things can be replaced.I thank God everyday I am alive and often wonder why that is so when I was at deaths door.GOd just wasnt ready for me yet.I think of you often and all the sorry you have had in your life.You are a survivor!

Robin....."I wont back down"....
Dx 11/3/2004, IBC, 6cm+, Stage IV, Grade 3, 1/9 nodes, mets, ER+/PR+, HER2+
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Jul 14, 2008 12:13 am

I sing, I dream, I love...anyway

odalys: I am doing well,am still in the recon process,had a procedure done thursday and now have to wait 2-3 months and have another expander and some major work done on the left side.I have also found a lymphadema therapist in my town and I have been seeing her for 2 weeks and my arm is so improved.I cant believe what a difference it is.She is going to help me get a new lymph pump one that does the trunk also.I cant wait.Karen and I are considering having the lap-band sugery and are going to a seminar july 22.I have made my mind up I am going to do it I am going to go first,then if I turn out ok she is going to do it.We were going to do it at the same time but then if something should happen little Noelle wouldnt have anyone.I am excited about loosing weight and getting in shape and getting back in shape.I am also excited about school and my future.Although it is going to take so me time before I am finally a family nurse practioner.I have to live during that time so might as well be studying.I have a new love in my life a 3 pound minature yorkie named Lee.He was given to me last fall and he is my constant companion.I still have max who is HUGE.I will post pictures soon.I cant wait until I am finished with school and go to work as a FNP.I am going to save my money and buy a Harley.I am going to be happy the rest of my life and laugh and dance like I never have before.ALthought I am not there yet,I am so much better than when we first met.Somedays it gets to me,but I am getting back into church and that helps.I am still getting herceptin every 3 weeks and probably will the rest of my life.The last ct scan I had showed the 4 areas of scar tissue in my liver are shrinking,and my tumor markers are always very low.Now I have a new lab done every 6 months circulating tumor cells which has been negative.How are you? How is work?

JanKay: That was the most beautiful thing i have read in a long time.I felt like Abby when our beloved poodle rena and pierre had to be put down,rena during my chemo.It just about killed me and karen.Noelle was just a tiny baby.Its hard to believe she will be going to preschool next year.

I have had all my phone numbers changed but will be glad to give them to anyone who wants them just send me a pm.

well I am off to the books right now.

Love all of you!

Robin....."I wont back down"....
Dx 11/3/2004, IBC, 6cm+, Stage IV, Grade 3, 1/9 nodes, mets, ER+/PR+, HER2+
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Jul 13, 2008 11:59 pm

I sing, I dream, I love...anyway

Thanks Shokk,

most of all thanks for remembering.How did you guess my plan? Somedays i dont think i can make it thru the day.somedays are not so bad.tonite is one of the bad ones.Had another horrible fight.they are getting fewer and farther in between but they make me sick just the same.of course its all my fault.

oh well such is life.I am thankful I have you guys here.

well gotta go take two exams tonite before i can go to bed.I spent the day in town getting groceries now gotta get down to business.

Robin....."I wont back down"....
Dx 11/3/2004, IBC, 6cm+, Stage IV, Grade 3, 1/9 nodes, mets, ER+/PR+, HER2+
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Jul 13, 2008 11:28 am

I sing, I dream, I love...anyway

Thre you are! I knew i would find my friends here if I looked long enough.

How is everyone,vicki,puppy,shopmama,marian..Hope you all are fantastic.

Will be back later now have to go grocery shopping since there is no church today.I started back into church and started taking Noelle she loves it.She is 3 now and telsa is 15 months.I will post pics soon.

Robin....."I wont back down"....
Dx 11/3/2004, IBC, 6cm+, Stage IV, Grade 3, 1/9 nodes, mets, ER+/PR+, HER2+
Posted in: Recovery, Renewal, & Hope + Growing our Friendships After Treatment, Created: Jun 30, 2008 01:04 pm

LIFE'S A BEACH!

Thanks Sahalie,you are such a sweet person,cant wait to get to know you.

I love jimmy to my favorite song has to be Fins

then there is Why dont we get drunk and S#$%w and then there is the altime favorite

did you know you are an a** hole?

Lots of great memories with the parrot head.Cant wait till we can jump in the beach.

Who knows I just might end up there when I finish school if the money's right why not? can you imagine living on it or just close enough to drive to it every day? That would be paradise for me.

Robin....."I wont back down"....
Dx 11/3/2004, IBC, 6cm+, Stage IV, Grade 3, 1/9 nodes, mets, ER+/PR+, HER2+

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