azdarleen

Hi Althea, sorry to hear about your mom, I have LE on my right side (arm, chest , back, ) and about a year ago had to have a ICD (Implantable cardioverter defibrillator) on my left side, I also was worried about getting LE in my left side, so far I have not had any problems with LE on my left side. As for BP, blood draws, injections or IV on the left side , I have not heard anything that would suggest you couldn't, I have had SEVERAL blood draws, IV and BP on my left side and no problems.I do have to be careful that I don't push to much fluid from massaging , because I also have congestive heart failure and if I massage too much, I get too much fluid around my heart, so I do a balancing act trying to keep my LE under control.
Good luck to your mom, and keep us updated.
Take care
Darleen

Hi Dande, I hope you have no problem getting SSD, it can really be a pain, it took me three tried, the last one I finally got a lawyer, all my Doc could not understand why I was being deined,
The first time I applied it was for the LE in my arm, hand, chest and trunk, plus from Chemo I now have cardiomyopathy, with an injection friction of 33% (at that time it is down to 25-30 % now)) I was deined, I received the letter while I was in the hospital with congestive heart failure, and two weeks later I had to have aICD (defibrillators) put in, I was deined again, finally I got a lawyer and right after that I had a recurrent of my breast cancer and had to do radiation, finally I had a hearing and was approved, and within in two weeks received my back pay. So all I can say is don't give up and keep on fighting for it. I wish I had gotten a lawyer to start with.
Congratulations Grace and Susie always glad to hear when the system works like it should.
LE hugs
Darleen

Hi all,

Just wanted to let you know, I had my SSD hearing on Monday, and it was great, I was approved, FINALLY. I'm so glad.

Also since my hospital stay, I have some lumps on my mast side and we though it was my implant from the radiation I received for my recurrence,well I saw my plastic surgery last week, and the implant is great, but there are not sure about the lumps, saw my breast surgery today, there are about 4 lumps, between my skin and the implant the Doc is not sure want it is, there have me set up for an ultra sounds on Friday, I will keep you all posted.

LE hugs to all

Darleen

Hi everyone,

Thank you all for your prays and well wishes.

I Just got home from the hospital, arm is doing better, still a little red up by the top, but that is better than Saturday when I went in and the whole are from fingers to the top was red a hot.I'm really tried so I think it is nap time. I will keep you all up dated as to the SSD. Thanks again

LE hugs to all

Darleen

Hi all,

I'm into my third week of radiation and I have started having a metal taste in my mouth, Has anyone else had this problem? If so what seems to help?I remember when I had chemo I had the bad taste, but it has been 2 years since my chemo, I have a recurrence and there are doing 7 weeks radiation.

Thanks for listening

Darleen

Thank for the idea Stronglady about the Aquaphor ointment, where would be a good place to find it ? I want to be able to keep swiming cause it seem to really help with the LE

LE Hugs

Darleen

thanks for the information,

I have talked with Binney, (we talk at least once a week) She misses everyone.

I do have all my Doc on board, it seem it will be a balancing act for me, my LE specialist is working with me as much as she can, but with the CHF it is really hard, I do watch my diet, my heart Doc has me on a low sodium (only 1500mg a day)fun fun, plus I'm doing water excises three times a week and it seems to really help with the LE, but I'm sure later I will have to stop that because of my skin. I wear a night seleve about every other night, I tried every night and it was pushing too much fluid to my heart. I have a pump for my arm but I'm not able to use it any more , again because of the CHF.

I will keep you posted, thanks so much for some good ideas.

LE hugs

Darleen

Hi all, Well I just finished my first week, only 6 more to go, went pretty good, just a little tried, skin still looks good. My computer has been down for a week, just got it back up yesterday.

Hang it there everyone

Darleen

Hi everyone, well it looks like I'm joining the Sept group, I had my set up yesterday and will have my dry run on thursday and will start Rad Monady, 7 weeks everyday (Mon - Fri).

This is a recurrent, First round was Feb 2005, right mastectomy, 13 nodes with one a trace of cancer, did chemo but not rad.

Since then I have developed Lymphedema in right hand, arm and chest. Also have cardiomyopathy, and congestive heart failure from the chemo, had to have a defibrillator put in the end of Feb. It has been a hard couple years and now this. I'm only 54.

But I'm ready to fight again, the cancer is to the right of my breast prosthesis and adjacent to the sternim on the right, there is early extension into the right hemithorax.

thanks for listening

Darleen

Hi everyone, I just talked to Binney on the phone and she is not able to get on the web site since they have changed it, She said she has an older Computer and since the update they did on the broads she is unable to get on. She said to tell everyone she is working on it, and hopes she will get the problems worked out.

She said to send everyone soem LE hugs .

Darleen