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Mandelbrot

Member Since: April 16, 2003
Last Login: August 28, 2008
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Biography

Married 2 children 1 ancient cat. Was corporate, back in school for School Psychy. DX 2/03 Lumpectomy SNB Chemo 4 AC/ 4 Taxol radiation. Bilateral Mast with recon (inplants) Jan 05. Arimidex one year, now on Femara. Joyful.

Diagnosis

Recent Posts by flashdif

Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Aug 28, 2008 06:50 pm

Longevity of saline implants?

Okay, into the fray...

I have 3 year old salines, and one is starting to get smaller...is this a slow leak, or as someone mentioned, a tendancy for them to shrink?  I'd NEVER heard that  before.  Am I going crazy?  Is there such a thing as a very slow leak?  I will go see my surgeon AFTER the back to school thing....

Thanks,

Flash

Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Jan 19, 2008 12:51 pm

How Long on AI's, and what are the cells doing?

Ah...so do I have shrivelled, hungry, dormant estrogen seekers, or starved to death empty cell husks?  Or no cells at all?

I am happy taking the AI forever;  I've dealt with the side effects, and now like the idea that I am doing something every day.  I am totally with you on this. 

I know the trials will be able to tell us if the effect trajectory of the ai is similar to tomoxifen, and if the 5 year protocol will hold.

:  )

Best of luck to you!

Diane

Posted in: Day to Day Matters + Recommend Your Resources, Created: Jan 19, 2008 12:40 pm

Prostate Cancer equivalent to this??

My friend's brother in law has prostate cancer, and the chemo has stopped working.  We are looking for a support site similar to this one, and googling only gets you so far.  Does anyone have any good sources of online communities?

THANKS SO MUCH

Flashdif

Posted in: Not Diagnosed but Concerned + High Risk Women, Created: Jan 15, 2008 09:09 pm

BRCA1 AND BRCA2

Cookie, re the gene thing:  I found that I am BRCA2 (BRCA 1 and BRCA2 are just specific gene pairs with a mutation of either a truncated or extended tail, associated with increased breast cancer probability) with NO family history, but with strong Eastern European Jewish (Askenazai) ancestry. My doctor make me have the test because of my age at onset (43).

I was told, in my research, that non-jews of Eastern European ancestry may also have the genes;  but these are not the ONLY genes that carry a mutuation.  BRCA 1 and 2 are both genes involved with cell growth rate, and you can see how a mutation with these regulatory helpers could affect cancer cells going to town.  There are many other genes that may affect some chemical regulation that allows errent cells to organize and become a problem. 

They found these genes by noticing that the Askenazai population in the US had a higher than expected (statistically significant) probability of breast/ovarian cancer, and then did a study comparing the maps of these individuals...and found the common mutations of these genes.  They have, and will continue to find, additional genes to look for.

So....if you have a family history and are interested, there are geneticists that specialize in cancer (I found them by googling), and during a consultation, they will tell you whether it is worth doing the blood test. 

Good luck, strength, and peace,

Flashdif

Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Jan 15, 2008 08:57 pm

January 2008 Surgeries

Good luck and GREAT results!

When you are up to it, please share the insider's guide!

Flash

Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Jan 14, 2008 10:12 pm

January 2008 Surgeries

Felicia,

are the tatoos worth it?  I keep putting it off...

Flashdif

Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Jan 14, 2008 10:10 pm

Docs in CT?

I used Dr. Sandra Margolas in Stamford, a plastic surgeon, and was VERY VERY happy.  She is low key, a woman, and really listened.  No surgeon as a diety experience.

My oncologist tells me that my results are among the best he's seen, expecially after radiation.  I had a bilat mast with implants.

It is a very personal decision, I went to see two.  Good luck to you!

Flashdif

Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Jan 14, 2008 10:06 pm

lopsided

Katie, I had both done, but one side had been radiated, so we were filling it at a different rate;  and they were not at the same lattitude at all.  I wore big shirts for awhile.

While mine are not perfectly symmetrical, they are more even than they were before.

:  )

the fill is different in location, size, shape, and feel than the filled expander.  keep the faith.

Flashdif

Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Jan 14, 2008 10:03 pm

Skipping the nipple?

I waited a year for the nipple, and then did some tucking.  I don't have the tatoos yet;  I figure they can do that some future time.

I actually like the nipples, but was very happy without them.  I don't think I'd have had surgery just for them.  But they are, a year later, nice to have. 

You can decide to get them whenever or never.  :  )

Flashdif

Posted in: Not Diagnosed but Concerned + High Risk Women, Created: Jan 13, 2008 12:16 pm

BRCA1 AND BRCA2

Hi KNITKIM:  I've been away for awhile, and logged on to check on you.

What is going on?  SEnding strength and wishes for a peaceful 2008.

Flashdif

Posted in: Support & Community Connections + High Risk of Recurrence or Second Breast Cancer, Created: Jan 13, 2008 11:56 am

5 Years

Hi:  Congrats on the 5 and 7 year!!!

I am a 5 year survivor next month;  I was dx at 43 in 2003, and chemo put me in chemopause (no periods) until NOV 2005 when I had an oopherectomy upon finding out my BRCA status.  My period never came back in the two years between....

Before the chemopause, my periods were still regular, but I had some perimen symptoms (e.g., migraines right before, etc.).  It is a very variable thing.

Good luck to you,

Flashdif

Posted in: Tests, Treatments & Side Effects + Surgery - Before, During, and After, Created: Jan 13, 2008 11:46 am

So, do I "still" have cancer??

Ah, to the heart of it.

My doctor said the 5 year survival, which used to mean if you were still NED after 5 years from DX, that it was "significant."  However, with Femara/Arimidex/Aromitose inhibibtors, they dont' know exactly how they work (deep sleep but still alive?  DEADDEADDEAD?) that the 5 year milestone is not as meaninful statistically anymore.

So.

Friday was my 3 year anniversary of the mast.  Next month is my 5 year anniversary of DX.  Whatever wording I choose is almost irrelevant.  I'm in favor of looking in the eyes of who ever asked, and saying....  I can say with 100% certainty, I am DSH."

Definitely. Still. Here.

:  )

Love to you all,

Flashdif

Posted in: Not Diagnosed but Concerned + High Risk Women, Created: Dec 24, 2007 11:20 pm

BRCA1 AND BRCA2

Hey, sorry to be AWOL for awhile.

Leaking implant?  Like life wasn't complicated enough???

Hang in there, and best wishes for a healthy and uneventful 2008!!!

Flashdif

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Dec 24, 2007 11:10 pm

Shelli's mom...

Sending peace to you,

Flashdif

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Dec 24, 2007 11:03 pm

OMG Brain Mets for me

Jill,

That just sucks.  If the rads help the chemo effectiveness, that's great.  Kick some cellular butt.

Sending hugs, wishes and strength,

Flashdif

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Dec 24, 2007 11:00 pm

3 year Anniversity

You rock!  I wish you many, many more!!!

Flashdif

Posted in: Not Diagnosed but Concerned + High Risk Women, Created: Dec 11, 2007 06:06 pm

BRCA1 AND BRCA2

Wow, brca 1 and 2...

I had no family history of cancer at all, an my (male!) oncologist made me take the genetic test...he thought 43 was too young, and wala, braca 2 (I refuse to capitalize this just now...)Inherited down from my dad, with primarilly males, so never showed up, although now I do wonder if my father's mother didn't die of cancer (recorded as something else)...

so, My sister is clear, left to me to check my two sons when they are of age (now 11 and 14). 

I read your story with amazement.  You are clearly being looked after by some benevolent spirit. 

Please don't worry until there is something to worry about.  It is so easy to go down that well greased shoot of fear.   

Please let us know and I send my best wishes for strength and peace.

Flashdif

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 12, 2007 05:52 pm

survivor picture or not

I think the words "survivor"  and 'brave" and "fighter" are all annoying because it is not like I had a choice to fight, be brave, I like the "just muddling through" works for me....

Flashdif

Posted in: Connecting With Others Who Have a Similar Diagnosis + Second or Third Breast Cancer, Created: Nov 3, 2007 08:57 pm

I'd appreciate your input on bilat mast

Hi:

I did the lump/chemo/rad;  then had a fals alarm lump the following year.  At that point, I finally did do the genetic test, ended up with BRCA2 (no family history whatsoever).  The team met and decided I was large breasted with very dense breasts and that I'd be constantly checking out stuff and hard to monitor...and even if they HADN"T said that, I never ever wanted to do another false alarm.  I never want to do chemo /rad again.  To me, so what if they get it early, I still have to deal with it all.  And what if they miss it?  Even with all the MRI's in the world...???  For me, the bilat was a no brainer, and 2 1/2 years out, I'm STILL GRATEFUL I made that decision.  I've never, ever, ever, even duirng reconstruction challenges, regreted it for one tiny second.

Just me, I know. 

It is a very personal choice.  Listen to all of us, then ask your own soul.

Wishing you a long healthy life,

Flashdif

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 3, 2007 08:51 pm

emotional rollercoaster & a pity party

Jill,

I missed your dx with mets in June...but not this post.  This sucks, you vent, girlfriend, and then get angry and keep kicking butt.  I'm sending all the positive, strong, peacful, joyful, support thoughts I can muster.  HANG IN THERE!

Love,

Flash

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