luvmyself

Hi ladies,

Well things are well.  I need lots of support right now.  I discovered a small lump on my mast. scar and am scared sh**tless!!  i'm scheduled for an ultrasound tomorrow moring and will see my surgeon on Monday.  I just have that gut feeling that the BEAST is back!!!  I'm trying really had to stay positive but am really scared.  Please send all your good vibes my way as I feel Im doomed!!  What nexted? It's been a very long 3 year battle and I was going along just fine and now this!

Annie-  I'm so glad your mammo came back clean-  What a great relief!!

Rita, Harley, Carol and everyone else.  Thanks for all your support in advance.

Jill

Daisyhope,

Hang in there!!  I've been on this journey for 3 years.  I thought I had great insurance when I was first DX.  Come to find out I had a $3000 deductible per year!  I just pay what I can.  I still owe alot, but I don't let it bother me.  I found that the doctors and hospital seem to understand what we are going through and have worked with me.   Hope this helps!!

Hi ladies,

 Just checking in. We've been busy with DH's brother here visiting from PA with his wife and 4 very active 4 boys. You sure forget how much energy little one's have.

Carol- Just wanted to say WHOOHOO!!!!!  you are done!!!  Time to Celebrate!!  Been thinking of you. Sending gentle hugs your way. 

Will drop in on Sunday, off to the cabin to get out of the heat!

Jill

Hello ladies,

Sounds like all of us are busy with Dr. appts.  Just had my first pet/ct scan after treatment today so the scaniety is setting in.  I should have the results next week.

Annie- Praying that the lung issue is nothing.  Have fun with the wedding favors.  Part of my job is plan events and it's alot of fun. I hope it is 'Happily ever after"!

Harley- Hoping that your appt. goes well next Tuesday. I will be thinking about you. I totally understand about being online.  Just please let us know how you are doing from time to time. 

Carol- Hope all is well with Rads.  Are we half way done?

Everyone have a nice weekend!!

Jill

Hi Ladies,

Julie- HAPPY BIRTHDAY TO YOU!!! . A good friend of mine always celebrates her birthday by doing something special. Since I turned 40, I really didn't think to much about celebrating mine. The other day she mentioned that I will be having a birthday next month and we should have a big party, I said why do you make such a big deal about your birthday and she said we are not only celebrating our birth day but also looking back on the year and all we have accomplished and been though. It really made me think.  So, next month, all of you are invited to my birthday party!!  IWill be thinking of you tomorrow. Celebrate Julie

Carol- Hang in there with Rads.  I was very lucky and did not have the sunburn reaction until after I was done.  I used fresh aloe vera and it releaved the itchy feeling.

Annie-  Congrats- No more Chemo!!  Hopefully the SE will pass soon.

 Harley-  Will be thinking of you tomorrow.  Hope your appointment goes well.

Rita- Thanks for thinking of me.  I've been super busy at work and been working in the garden when I get home.

 Monday I have a 6:30am appointment for my first bone scan.  Kinda scared, never had one before.

Take to you soon!

Jill

Hi ladies,

Just checking in.  All is well on the home front!  My dh and I are on our way up north to escape the heat. (114 today).  Sounds like we are all busy, busy busy.  Also been organizing a food drive for our locate food bank. It's going really well.

Carol- Hope rads are going ok. Let me know what your doc says about the removal of your port. Been thinking about that myself.  My next follow up is in 2 months. It feels very strange to not have to go weekly. (sometimes scary) I know that sounds kind of strange.  My garden is going great. I soon will have watermelon!! We ate all the corn and am able to get a tomato or two every couple of weeks. Squash plants are still going strong.

Rita- I love Tennessee!! We drove through there a couple of years ago and I just fell in love.  BEAUTIFUL!!  Have a great visit with your family.

Harley-  Your jobs sound like a lot of fun. Oh to be at then beach!!

Annie- Hope you are having a plast on vacation!

 Have a GREAT 4th everyone!!

Jill

Carol-WhooHoo Chemo is DONE!!!  Thought about you all day.  Glad to hear everything went well.  Rads will be a cake walk compared to what you have been through.  My girls and I went to see our hometown Diamondbacks play your Washington Nationals a couple of weekends ago. It was alot of fun. Tell your friend that we are thinking of her and she's welcome to join us. 

Well it''s time for dinner so I'll talk to  later.

WHOO HOO!! for you

Jill

Good evening ladies,

Carol -#11 DONE!!  yeah That's great news on your U/S. Waiting for results are not fun, but a great relief when they come back good. Enjoy that massage.

Rita- This is the first I've heard of the Reach to Recovery group. Is there a website for more information? This is something that I would like to be a part of. I don't know how I would have made it through this journey (twice) withhout this group and all the information and support.

Annie-  I alway love reading your posts. Your words are always so heartwarming.  When is your last txt.? 

Harley-  Hang in there!! Going through this journey is no picnic and you are intitled to as many down days that you need.  We all understand!!

Been staying busy in the garden.  If any of you would like some italian squash let me know!!  Just got done planting pumpkin seeds and hoping to get a few for halloween!!

Have a nice evening,

Jill

Hello All,

It's been a busy week. Tuesday was my appointment with my Rads. Onc. and my head is spinning!  I need to make a decision on having rads for a second time or not. Here are my choices: Being that is the area (right breast) has already had radiation there is a 5-10% chance of skin problems, bone problems and permanent pain but he said he could do it. If I don't have rads. there is a 5-10% chance for a recurrance.  When I talked to him in January he had said that when we start rads. he would prefer that I get my port removed (that is where the recurrance was) so I made an appointment with my surgeon and Im scheduled for this coming Thursday. When I had my mastectomy I had clear margins but it was 1mm close to the chest wall! He did say that the surgeon could biopsy the tissue aaround the port to make sure it was clean.I'm really having second thoughts about the port removal. all the what if's are to much! 

Carol-  The festival sounds like alot of fun! We are suppose to hit our first 100 degree day this weekend. I love this weather. My garden is doing great, picked my first chili peppers yesterday.

Harley- You're jobs sounds like fun minus the dress portion. Do you get discounts? I have to dress business casual MondayThursday and jeans on Friday.  I love Fridays.

Annie- Yes, the good ol' dentist. Mine is really great, but I just don't like going.

Hope everyone has a good weekend!!

Jill

I just finished 6 txts of CMF for a reaccurance under my port and had a visit with my Rads. onc.  and hoping someone can help answer some questions. 

History- Dx Feb 06 IDC 2.5cm grade 3 ER/PR- HER2+++ Lumpectomy-6 txt of TAC 35 rads 11 months of Herceptin.

Reaccuarance Nov 08 IDC 2.5cm grade 3 ER/PR- Her2 +++ mastectomy- 6 txts CMF.

Dr. said that he is able to do radiation for a second time but wanted to give me the option of also not doing it.  If I choose not to have radiation, I have a 5-10% chance of another reaccurance. If I choose to do radiation there is a 5-10% chance that I will have skin, bone and permanent pain and he would prefer that I have my port removed.  I have that scheduled for next Thursday. One other option is when the port is removed to have the surrounding tissue biopsied(sp?).

This has been a long 2 years and I'm not sure which way to go. Any input would be greatly appreciated.

Thanks

Jill