Member Since: March 12, 2006
Last Login: May 12, 2008
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Posted in:
Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: May 12, 2008 07:21 pm
Rads not recommended after lumpectomy?Hi I thougth the standard of care with all DCIS was lumpectomy, rads and tamoxefin. I had lumpectomy, rads and took tamoxifen for 4 months , til I developed abnormal bleeding and then had a lesion taken off my uterus. My doctors believe the lesion was there before the meds, but it just fuel it. I have decided not to take the tamoxifen any more and my oncoligist it fine with that. I too am fine with it. I see my oncoligist every 6 months. |
Posted in:
Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Mar 31, 2008 12:42 pm
Help with an appeal Letter..I have a doctor letter , I just need help to word my appeal letter.. Any one Please...... |
Posted in:
Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Mar 30, 2008 03:18 pm
Help with an appeal Letter..Hi ladies Dx with breast cancer in 2006. Before my surgery I had a Breast specific gamma Imagining test( medical name Mammoscintigraphy) . My insurance paid for it. I also had another one 18 months later. The Insurance company paid for that one as well. I am now going for a my check up and My doctor wants me to have another one. But for some reason the insurance company denied it. Here is there reason.....A mammoscintigraphy is considered to be investigational. I already had two and they paid for it? Why deny it now.... I wrote that on my first appeal and they denied it... This is my second lever appeal...i havent had a MRI in quite some time before my cancer surgery. We have been using the BSGI test results to look back at my past results to compare my breast changes... So to do a MRI now I would be starting from scratch, no feed back to look back at my breast and to see any changes.....I need help to put togther a very goods appeal letter...... I have this .... I do not understand this denial as I have breast cancer with surgery and radiation and have had two previous mammoscintigraphy,when my docotr order them and these were paid for by you ( oxford) . Why now is oxford saying this is Investigational? The medical Director who participated in this appeal knows nothing about me, how can he deny a medical treatment he ahs never even seen me, I am but just a name on a piece of paper... A doctor wouldn't give a precerption before seeing a patient and he is denying a test my medical Doctor says I need, , why are you Questioning her? She after all has treated my cancer for that past 2 years. I might add succussfully, so following her medical advice and getting all the test I need is in line with my health and to keep me cancer free. I would think in the long run that would be helpful to you the insurance company as well.... can any one please help me with my letter... I am not good with wording and getting my pint across..... Here is artical I read...And that was my exact DX... Study results recently published in the Journal of Academic Radiology indicate that Breast-Specific Gamma Imaging (BSGI) provides higher sensitivity for the detection of Ductal Carcinoma In Situ (DCIS) than mammography or MRI and can reliably detect small, sub centimeter lesions. The study, performed by Dr. Rachel Brem and colleagues at The George Washington University Medical Center, evaluated the procedure on women with mammographically suspicious microcalicifications and other high risk factors |
Posted in:
Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Sep 4, 2007 12:30 pm
tamoxifen, thick Uterus and having a DC any oneI had DCIS stage 0 and was put on tamoxifen . Was on it for 3 months and went to oncoligist for 3 month check up , and told him I was having some spotting. Told me to stop taken Tamoxifen right away and go see my OBGYN..... WELL he found that my uterus was high up and very thick and twice its size. I have to have a D&C and bisopy.
Did this happen to any one else.... Does it hurt, how is the pain afterwards, will I be able to work. D&C friday so I have 3 days to rest before work. But then I am scheduled for a breast revision the next friday....Will I be up for that. Any infor Please. Does this usually become Uterine cancer. Thanks Gina |
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Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Jul 27, 2007 11:48 am
I am so torn , bad headaches from tamoxifenHi
I am 2.5 months on tamoxifen and I hate it. I really dont have many side effects, but the one that is bad is the headaches and my eyes hurt alot. I sometimes think my eyes are not right. I cant explain it. I never even wore glasses. My eyes hurt all the time like I have a head ache in them. And I feel like I am on edge all the time, like I want to kill some one............... Now My dx March 2006 DCIS stage 0, lumpectomy, snb negative, and then surgical complication. I had a seroma and it burst and it left a huge hole in my breast. Did 37 rad treatment with the hole and it damaged the skin so bad. Tried to have hole closed with treatment but it would not close. My surgeon tried to close it surgically in nov 06, but it did not take. Was then under the care of a Plastic Surgeon, I am healed now and started the tamoxifen. AND I HATE IT... I am also getting very bad cramps 1 week before period is due and when i am having my period..I het bad cramps to 2 weeks before perios I think this is when i am ovulating. I have not talked to my doctor about it yet. He wants me to take the pills for 3 months and see how I am doing, so I wil be seeing hime in august and I will talk to him about the headaches and eye pain.. So DCIS stage 0 at age 42 I am now age 43 37 RADS TREATMENT no history of breast cancer in my family I am really considering stop taking the pills and go on with what I consider a happy normal life..... Please any feed back .. Any one out there with my dx and NOT taken tamoxifen... I have 2 boys age 12 and 9 and I feel like if I stop that I am letting them down in a sense, or I may get sick again and not be there for them.... This is the hardest decision I ever had to make... Thanks Gina |
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Recovery, Renewal, & Hope + Biographies of Breast Cancer Survivors, Created: Jan 15, 2007 08:57 am
MLP .... A Million Little PiecesHow does one lie or" embellish" know what they are going threw...I say I am in my own private cancer hell and no matter what I say or how I say it no one can ever feel How I feel.... EVER.....
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Posted in:
Support & Community Connections + For Family & Friends of Those Who Have Breast Cancer, Created: Jan 6, 2007 07:14 am
How do I help my friend?I loved getting card with postive message in them from my friends. Then she began to send me funny ones. It was a real upper forme kept me laughing.....
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Posted in:
Day to Day Matters + Humor and Games, Created: Jul 2, 2006 08:34 pm
how about drinking?Ok nomore work for me. I am a lunch lady and am off all summer YIPPEE... I will enjoy a few beers On the 4th.
ok how about a few silly jokes A noise woke me up this morning. What was that? The crack of dawn! Why did the man take a pencil to bed? To draw the curtains! What is full of holes but can still hold water? A sponge! |
Posted in:
Support & Community Connections + For Family & Friends of Those Who Have Breast Cancer, Created: Jul 2, 2006 06:28 pm
Free Camp for kids who parents have /had Cancer |
Posted in:
Support & Community Connections + For Family & Friends of Those Who Have Breast Cancer, Created: Jul 2, 2006 03:20 pm
New Here Old to BCHi Diane
Wish I was closer to you.I am in Westchester NY. I would have glady given you a ride and would have went out for a bite to eat and we could talk and talk......If you ever need an ear I am a e mail away...... ginjonky@aol.com Hugs Gina I am on radiation treatment number 9 out of 33 |
Posted in:
Support & Community Connections + For Family & Friends of Those Who Have Breast Cancer, Created: Jul 2, 2006 02:01 pm
Query for ALL women with an UNsupportive DHI sit and read this post, and realize how lucky I am. My husband has been to every test , every surgery, every Doctors appointment. When rad machine broke down in my town, he took half days off from work for 5 days to drive me to my appointments 40 minutes away. He is my rock and he is just wonderful with the kids. He has always been. I know that I am blessed. But yet I say to myself , he see's the physical side of things, and he also knows I am a very strong person, but he doesnt understand the full effect of the emotional side of being DX with cancer. The long term effect this will have on my life. It not over after surgrey and rads. I have 5 yrs of pills and 5 years of test test test and lots of dr's appointment. I know he cant get inside my head and I know he loves me and he cares about my emotional need, but sometimes trying to tell him my feeling on how I just want the old GINNA back and My old life back never seems to be understood. I guess no one can understand what I want back unless you too have been dx with bc.
So I say to myself I guess I can feel sorry for myself for a bit or a moment or a day, but its just not me. I like to get back to my normal life and that means , being crazy with you my husband who has been there threw every cancer moment with me... I love you JOHN..... |
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