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Member Since: April 4, 2006
Last Login: November 4, 2008
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Recent Posts by moogie

Posted in: Tests, Treatments & Side Effects + Lymphedema After Surgery, Created: Oct 17, 2008 06:11 pm

Prepare for flying!!!!

Had to take my first post ;lymphedema flight due to a family emergency. DId it with my gauntlet, and 2 days later all my digits outside the gauntlet swelled and got red. I travel with the antibiotics all the time, and never before had to use them.

Ladies: be prepared! I got a glove now to help with this in the future, was well-hydrated and did my exercises on the plane . Never had a flare before, so it is worth getting a scrip and having it on you!

Moogie 

Posted in: Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Sep 19, 2008 05:26 pm

Friends? What friends??

It is very common. When I first got a bad needle biopsy, I told my " best" friend of over 20 years....and did not hear from her much for an entire year until 3 days before my mastectomies!!! Guess how that conversation went: what's new?Well.......

She is pretty much out of my life now because I believe she has some issues of her own to deal with.....Sometimes people get paranoid for themselves when someone they know has a medical crisis, and they can't deal. They are sorry, and hopefully will never know what it feels like on the receiving end. You will find much support here from people who care and understand.

Moogie 

Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Aug 20, 2008 12:47 am

Christina Applegate...venting

Having worked for a celebrity, I can understand that CA's words were natural and off the cuff....and not intended to give viewers a comprehensive understanding of her exact diagnosis. By being public, and a supporter of BC causes for several years, she is doing a valuable service and letting people see that one can be up and out so soon after surgery. As far as the " cure" thing goes, if they have not been specific about her pathology, she may have had extensive LCIS and made her decision based on her experience of her mother's cancer and her gene status. The statistics in this case reflect the most dramatic risk reduction effort she can undertake.

Seems this gal knows the facts with her Mom's recurrence. Her activism proves this.

Moogie 

Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Aug 11, 2008 12:25 am

John Edwards

I wore out my husbands ear on this topic on a long car ride! 

People have affairs. Not just men. I'd bet my money this isn't his first, and that his wife knows who she is married to...after all these years. My concern has to do with his lack of discretion, the complicity in a hush money pay-off ( indirectly or not, we all know how this stuff goes...), and the potential for being open to blackmail. I for one am happy that he has effectively shut the door to the White House for himself. Clearly the woman involved has a long, documented history as a bit of a nutter , and no doubt there were many politically ambitious groupies with better pedigrees available to him. The fact that he manufactured a position for her,  arranged a paycheck, and did not ensure that this relationship would be kept private pretty much demonstrates on a core level that this guy is a doofus.

I hope his wife is doing well, and that this story will die down for her sake and the sake of her children. If he did father Hunter's child, he should be a man about it. It will eventually come out and he will look even worse when it does. Doofus to the max.

Moogie 

Posted in: Connecting With Others Who Have a Similar Diagnosis + LCIS (Lobular Carcinoma In Situ), Created: Jul 8, 2008 04:22 pm

excisional bx site

I am with leaf: small ice packs offerred me more relief than pills. A lot of discomfort is simply from movement and gravity. I found tiny packs about the size of my palm and stuck them in my bra: noone would ever know!

Moogie 

Posted in: Connecting With Others Who Have a Similar Diagnosis + LCIS (Lobular Carcinoma In Situ), Created: Jun 21, 2008 06:31 pm

Cancer doctor today

While your theoretical statistical risk may seem unchanging, your increased risk for developing breast cancer AT ANY TIME is also constant. Increases in age increase possibility of BC independent of LCIS.
Anyone classified as High RIsk needs yearly imaging, because theoretical risk is not truly personal risk.
That was how it was explained to me.
Moogie

Posted in: Connecting With Others Who Have a Similar Diagnosis + LCIS (Lobular Carcinoma In Situ), Created: Jun 21, 2008 06:31 pm

Cancer doctor today

While your theoretical statistical risk may seem unchanging, your increased risk for developing breast cancer AT ANY TIME is also constant. Increases in age increase possibility of BC independent of LCIS.
Anyone classified as High RIsk needs yearly imaging, because theoretical risk is not truly personal risk.
That was how it was explained to me.
Moogie

Posted in: Tests, Treatments & Side Effects + Surgery - Before, During, and After, Created: Jun 21, 2008 11:55 am

Toilet Items suggestions for after surgery

I am a clean nut.
After surgery I could not use deoderant, so I used Dial soap under my arms and freshened up with witch hazel towelettes during the day if I got sweaty, i did not have any visible stitches under my arms. When I was able , I got the natural crystal deoderant at a health food store.

For the first few weeks, I washed my upper body at the sink. Then I woud run some water in the tub, sit down, and do all below the waist in the bath. I found it easier to keep things dry in the tub. Using a sprayer tended to sprinkle water allover.

Babywipes, and the witch hazel toweletes were very helpful. Dial also does what they say: It does cut down on bacteria. I was using Dove initially, and could tell I was getting sweaty at a certain point in the day by the sniff test. The Dial definitely solved that problem and I did not really need deoderant when using it regularly.

Good luck!
Moogie

Posted in: Connecting With Others Who Have a Similar Diagnosis + LCIS (Lobular Carcinoma In Situ), Created: Jun 16, 2008 11:35 pm

Article: Amer. Society of Breast Disease, case study on LCIS

After reading this article, it confirmed for me one thing: try to find a doctor and team who have seen as much LCIS clinically and in research study as you can. Get into a study if possible, to have access to the people who will be changing the knowledge base for LCIS. By contributing your cells and time, you will help change the future for all of us. One of the things I am most proud of in my life, is giving breast tissue before my mastectomies to a study.....so something could be learned for the future. It made all the difference to my attitude, when I felt down.

If some of you have doctors that admit little experience with a patient base with LCIS: look for another doctor! You deserve one who is truly in touch with the emotions of at-risk patients, and the many factors that would make surgery or drugs advised for some with LCIS...and not for others.
Moogie

Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: May 9, 2008 09:44 am

TV SHOW "WORKOUT" mocks BC patient

Last night I could not sleep and turned on the tv to zone out for a little bit. Instead I got so angry I was up even later. Television show "workout" showed a very fit young woman exercising, and an employee making " fun" of her breasts and how they looked. Well, the woman's boyfriend revealed that the young woman is a breast cancer survivor.

What can I say? Fatuous idiots should hope karma has not got the accuracy of a cruise missile: at some point we all have an illness that effects the look of our body.

Makes me furious!!! Women treating women this way.
Moogie

Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: May 9, 2008 09:44 am

TV SHOW "WORKOUT" mocks BC patient

Last night I could not sleep and turned on the tv to zone out for a little bit. Instead I got so angry I was up even later. Television show "workout" showed a very fit young woman exercising, and an employee making " fun" of her breasts and how they looked. Well, the woman's boyfriend revealed that the young woman is a breast cancer survivor.

What can I say? Fatuous idiots should hope karma has not got the accuracy of a cruise missile: at some point we all have an illness that effects the look of our body.

Makes me furious!!! Women treating women this way.
Moogie

Posted in: Not Diagnosed but Concerned + High Risk Women, Created: May 1, 2008 09:38 pm

Best Books for Breast Cancer

Dr.Carolyn Kaelin's books are excellent

Posted in: Tests, Treatments & Side Effects + Lymphedema After Surgery, Created: Apr 23, 2008 11:03 pm

So I guess I hit the trifecta?

Binney:
When I am done, I probably can figure out a way to post a blog to show the tips and pages. Maybe I can figure out a way to create a jpeg of the cover to post....

All I know is this: If the ladies like yourself, and my excellent dr and rehab therapist did not inform me..I would know zilch about lymphedema and not have noticed when my arm swelled. I had sentinel nod...BUT THYE TOOK 6. ANd despite the party line of " oh you have near to no risk" ...well, the jury is still out on that count.

Have we done a poll on how many gals here had no nodes or sentinel nodes biopsy..who developed lymphedema? Maybe someone needs to ask us what the reality is. I think many women just accept a puffy arm and do not get the needed medical help: so the statistics remain low, but not truly accurate. Everyone told me: oh it will swell after surgery....and if I had not been informed I would not have known to measure and monitor my arm when it began to grow...

Thanks to you all!
since more and more early interventions are being done for BC, the numbers of at risk women is on the rise. WE NEED A VOICE!!
Moogie

Posted in: Tests, Treatments & Side Effects + Lymphedema After Surgery, Created: Apr 23, 2008 04:30 pm

So I guess I hit the trifecta?

Bless that German Massage therapist. Despite the cruddy news she gave you, Her insight saved you!! What if you did not know for a longer period of time..got cellulitis ..and did not even have a clue what was going on????

I am doing the illustrations for my booklet this weeK: " Go WIth The FLow: a savvy gal's guide to lymphedema prevention." Aiming for a fun, retro feel ...and a lot of tips for prevention. My goal is to donate it to the local rehab center, and find a sponsor locally for printing costs....so every gal who has her armpit monkeyed with will know what to do if things aren't " SO SWELL...."

Your treatment sounds great. My therapist told me she sees gals all the time out in the world that obviously have lymphedema...and do not know it. And their physicians see them hobbling around on a swollen leg, and never investigate the cause!!!


If men's balls could swell like a BC arm, there would be telethons....a commemorative postage stamp, a celebrity spokesperson, and a sandwich named after it..........

Go girl and " GO with the flow"!!!!!
Moogie

Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Apr 23, 2008 04:17 pm

Tattoos

I think I waited 3 months, or close to it before the tattoos.
It was definitely worth the wait: a little color to focus the headlights took away the feeling that I was " made by Mattel".
Moogie

Posted in: Connecting With Others Who Have a Similar Diagnosis + LCIS (Lobular Carcinoma In Situ), Created: Apr 23, 2008 03:56 pm

No PBMs for now - stepping back

Peaches:
I'm glad you did what was right for you. Isn't it a woman's perogative to change her mind? EMBRACE IT! You are captain of you ship!!
If anyone had told me even a year before my surgery that I would have had bilateral mastectomies, I would have called them nuts. Seriously. There was some episode of Gray's Anatomy where a woman had prophylactic masts, and I remember calling my mother and saying: GOOD GRIEF. Hey, the laugh was on me!! Who knew that my feelings would change?

You have to do what makes sense to you when there is medical uncertainty, and trust your instincts. Even now . Someone asked me if I regret not having done it sooner, and I do not. All things in their own time...I did not feel my risk was high enough to warrant life changing surgery before the day came.

Your thorough research indicates to me that you take good care of yourself, so enjoy!! If you are not truly compelled to take this journey...my advice is to hold off as you have done.
Be well!!!!
Moogie

Posted in: Connecting With Others Who Have a Similar Diagnosis + LCIS (Lobular Carcinoma In Situ), Created: Apr 18, 2008 09:29 pm

LCIS Diagnosis--What Do I do next?

Ask the surgeon directly of the excision will be " visually" bad. One said to me " you will have a poor cosmesis and it canot be addressed by plastic surgery". So then I asked: are you saying I will look like a deflated football?

Basically plastics does best when they get to start form scratch. If more that 1/3rd of your breast is going, probably mastectomy would give better cosmetic results. I have had a huge dent and a mastectomy. The mastectomy with reconstruction was easier to get used to and far less disturbing....
Moogie

Posted in: Connecting With Others Who Have a Similar Diagnosis + LCIS (Lobular Carcinoma In Situ), Created: Apr 18, 2008 09:29 pm

LCIS Diagnosis--What Do I do next?

Ask the surgeon directly of the excision will be " visually" bad. One said to me " you will have a poor cosmesis and it canot be addressed by plastic surgery". So then I asked: are you saying I will look like a deflated football?

Basically plastics does best when they get to start form scratch. If more that 1/3rd of your breast is going, probably mastectomy would give better cosmetic results. I have had a huge dent and a mastectomy. The mastectomy with reconstruction was easier to get used to and far less disturbing....
Moogie

Posted in: Not Diagnosed but Concerned + High Risk Women, Created: Apr 16, 2008 04:11 pm

Preventive mastectomy

Regarding insurance coverage:
A strongly worded letter from the surgeon will usually get you coverage. Insurance companies will pay more for one round of chemo , than it will cost for a mastectomy and implant reconstruction. Two different dr.s told me this years ago when my risk was not considered as high as ultimately assessed. If you have a surgeon willing to do the surgery given your risk, this is not an insurmountable hurdle.
Moogie

Posted in: Connecting With Others Who Have a Similar Diagnosis + LCIS (Lobular Carcinoma In Situ), Created: Apr 15, 2008 09:00 am

LCIS + excision

To add one more note:
When I lived in NY, I went to one of the Most famous NYC, BC surgeons. He treats a lot of BC-Long island has , I believe , one of the highest rates in the country.

He told me years ago: Core biopsy is useful, but it only gets what the needle touches.
He always followed a " finding" with excision, for this very reason. And at the NCI center where I got my mastectomies...several women going for prophylactics recently were blindsided by invasive cancer findings. This simply points out that imaging is a useful, limited resource.

It's important to know this.

Moogie

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