Member Since: April 11, 2006
Last Login:
Location:
Occupation:
Posted in:
Tests, Treatments & Side Effects + Lymphedema After Surgery, Created: Mar 14, 2007 04:59 pm
Wrist bands for travel sickness - lymphedema risk?I have a feeling I know the answer to this one, but thought I'd ask......
I'm going to the Caribbean in April and usually wear these bands - for seasickness, air sickness, car sickness..... They have worked wonders for me. Since my last trip (last March) I was diagnosed and had a bilateral mastectomy (snb on one side) Anyone know about this one??? Thanks! |
Posted in:
Tests, Treatments & Side Effects + Lymphedema After Surgery, Created: Feb 16, 2007 09:04 am
Lightweight luggage recommendations??Hi everyone-
I want to take every precaution against lymphedema, so I'm now thinking about luggage...... I'm taking a trip to the bahamas (whoo hoo!) :-) with my friends in a couple of months, and since my husband won't be there, I'll be carrying my own luggage. Any suggestions?? Thanks! Theresa I'm thinking of buying a new suitcase (rolling) for the trip, that's lighter weight than those I have now. Any suggestions? I don't want a big one, but not too small either. Maybe 21" or so..... (needs to be big enough to fit my snorkle fins......) ![]() |
Posted in:
Tests, Treatments & Side Effects + Lymphedema After Surgery, Created: Sep 19, 2006 05:14 pm
Symptroms of lymphadema?Thanks for your responses!
Binney - I'll be going back to my pt tommorow, so I'm going to ask what type of lymphadema certification she has. I'm definitely going to ask about the pain thing. It needs to get "unstuck", but not at the risk of getting lymphedema! Thanks for all your info. ![]() Andy- I see you're from Northern Virginia. I work in the Springfield/Alexandria area! I'm actually going to a seminar on cancer and nutrition Thursday evening at INOVA Hospital. Have you ever been to one of their seminars? What part of Northern Virginia are you in? (I'm from Fredericksburg) Theresa |
Posted in:
Tests, Treatments & Side Effects + Lymphedema After Surgery, Created: Sep 18, 2006 05:07 pm
questions about compression sleeve..Is it true that we should wear a sleeve on the side that didn't have lymph nodes removed, if we had a bilateral mastectomy? I hadn't heard that before, and then my pt mentioned getting a sleeve for the other arm..........
What is the chance of getting lymphedema in that arm? I don't have it (knock on wood) on either side now, but I am flying in a few weeks..... Thanks- Theresa |
Posted in:
Tests, Treatments & Side Effects + Lymphedema After Surgery, Created: Sep 18, 2006 04:58 pm
Flying under the new guidelines for carry-onsI didn't realize that I needed to be moisturizing! (I don't have lymphedema, but did have 5 sentinel nodes removed) I'll be flying next month, but guess I won't be able to moisturize, according to that message string.......
|
Posted in:
Tests, Treatments & Side Effects + Lymphedema After Surgery, Created: Sep 18, 2006 04:33 pm
Symptroms of lymphadema?Yikes -
So, how do you "fix" a frozen shoulder without pain? My shoulder started freezing up (I think) a few weeks before my exchange surgery, on the side where I had 5 sentinel nodes removed. After surgery, it was really frozen. I've been going through pt with a lymphedema certified pt (not sure where she got her certification - I'll have to check), and some of the exercises are pretty painful. I think they probably need to be, since I can't imagine making any progress without pushing it. Plus, it was pretty painful to begin with........... I hope my body doesn't send that fluid to investigate! My shoulder has gotten a lot better, but still has quite a ways to go (especially with the external rotation) My pt did just get me a compression sleeve and glove for my trip to Sedona next month, although my onc didn't think I'd need it.......... So, how do I "unfreeze" my shoulder without pushing it until it hurts or feels achy and heavy? YIKES!!! :-) Just can't seem to win! And, to top it off, my pt thinks my frozen shoulder may possibly be rotator cuff related..... Theresa |
Posted in:
Tests, Treatments & Side Effects + Lymphedema After Surgery, Created: Sep 1, 2006 10:19 am
Long hours driving causing swelling?Yikes - I have a long commute as well, but don't (knock on wood) have any lymphedema symptoms as yet. (haven't started back to work, but will be next week) I had a sentinel node biopsy, so I know I'm still at risk, though maybe to a lesser extent than if I had the axillary node disection.
Do you think I need the sleeve and glove while driving, if I have no symptoms? Theresa |
Posted in:
Tests, Treatments & Side Effects + Lymphedema After Surgery, Created: Sep 1, 2006 10:16 am
Bandaging and flying: What do you do?I don't have lymphedema (knock on wood), but am at risk since I had a mastectomy with sentinel node biopsy. My pt recommended a sleeve and glove to be on the save side when flying next month. I've also seen opinions where it isn't necessary with just the snb (I had 5 sentinel nodes)
What are your feelings? And, is the compression sleeve and glove enough for those that don't have lymphedema, but are at risk? Thanks! Theresa |
Posted in:
Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Jul 17, 2006 06:29 pm
How old were you?I was diagnosed March 24th, 2006 at the age of 46. Felt a strange little lump one day, up high, above my breast. Turned out to be cancer. Had a lumpectomy, and sentinel node biopsy (clear), and was planning to start radiation. Heard about breast MRI's, and some nagging little thought kept coming back, again and again, telling me I should have one. Well, low and behold, there was another lump, hiding in the same breast. So now, 3 1/2 months later, I've had a bilateral mastectomy, am going through reconstruction (just had my last fill!), and will soon be having my ovaries removed. What a spring/summer it's been. Definitely unexpected and scary.
I'm so saddened by all the young women here! It makes me scared for my daughter. I want all of you to know that my heart goes out to you, and I'll be thinking about you and wishing you well. Theresa |
Posted in:
Recovery, Renewal, & Hope + Growing our Friendships After Treatment, Created: Jun 18, 2006 06:36 am
Just for fun...What is everyone reading??I love the Stephanie Plum novels as well - Just bought myself number 10 for the low, low price of $2 the other day (store going out of business), got home and sat down for a good read, and realized I had already read it! Okay, listened to it, but the same thing!!
I also love the Sue Grafton mystery series. Very light and easy to read, with a very likeable character. The main character is Kinsey Milhone, and she's a private detective with a pseudo Stephanie Plum attitude. And, their are tons of them - Starting with "A is for Alibi, B is for Burglar, on and on to "R is for Ricochet"....... (which I bought the same time as the Stephanie Plum novel, and realized I read it already also!) :-) Good lighthearted summer reading! (by the way - if you don't have time to read, and like to listen to the books on audio, both of these have great readers. You kind of get attached to their voices!!) |
Posted in:
Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Jun 3, 2006 07:16 pm
Worst Thing Someone Said To You?I also have a friend who every time I talk to her tells me how jealous she is that I'm getting a "free" boob job. Does she not understand how "expensive" this is.....emotionally, financially, the loss of the feeling of being immortal, family and personal stress, and the constant fear..........?
One other comment I got....an insensitive comment (although it wasn't meant to be) from one of my doctors. When we discussed surgery risks for my bilateral mastectomy and recocnstruction (since I also have a blood disorder that increases my chances of blood clots 5-8 fold), she told me that I didn't need to worry about that because this "wasn't a big deal surgery, or anything". I couldn't believe a doctor would say that - I was floored!!! Theresa |
© 2008 Breastcancer.org. All rights reserved.