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Recovery, Renewal, & Hope + Biographies of Breast Cancer Survivors, Created: Aug 9, 2007 05:47 pm
Have a Blog to Share?I started my blog, Jayne's Breast Cancer Blog, the day of my first chemotherapy session.
It's in transition now... I still love blogging but my story has quieted down (and I obviously hope that it stays that way!!!) now that I'm 14 months post-diagnosis. The subtitle of my blog is "Exploring the Intersection of Cancer and Creativity" and that's what I'm interested in blogging about. A local news crew came to my house in June and did an "Inspired Living" piece about me and my blog. If you go to my June 26 post you can click on the link to the TV segment. |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Jul 11, 2007 05:40 pm
Palpable Fill ValveSometimes I can feel my saline implant fill valve. It's three small hard circles, each about 1/2" apart.
The first time I felt a hard spot, I freaked. But then I realized that it was actually a ridge, not a lump, and I started to guess that it was part of the implant, not a tumor. It's been confirmed by the PS that I can feel the valve. |
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Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Jun 15, 2007 05:42 am
Breast Cancer Blogs: Writing Them & Reading ThemOne of my favorites is Breast Cancer Chronicles by Lillie Shockney. She is a survivor and a breast cancer expert. Through her writing and her work she gives SO much to the BC community.
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Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Jun 14, 2007 07:18 pm
Breast Cancer Blogs: Writing Them & Reading ThemHere is a thread to post about your breast cancer blog. Give us the link and a bit of info. Let us know when you've posted a great update. Thoughts about blogging and the cancer experience are welcome, too.
Have you discovered an awesome blog? Please post the link here. Here's mine: Jayne's Breast Cancer Blog :Exploring the Intersection of Cancer and Creativity. My blog is over a year old. Besides telling my own story, I want to highlight other Survivors' creative endeavors. |
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Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Jun 2, 2007 08:53 am
Public Speaking about Breast Cancermkurtzman,
Do you have a local Komen affiliate? Is there a cancer treatment center nearby? You could get in touch with them and let them know that you are willing to speak at events. I would expect that they'd be ultra-glad to hear from a male breast cancer survivor. As for contacting newspapers and Tv directly, maybe you'd have a better response around October. Lots of places are looking for stories then because it is breast cancer awareness month. Good luck! |
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Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Jun 1, 2007 04:35 pm
anyone afraid to use the survivor word?Huh. A couple of us were just blogging about the word Survivor and all of its connotations.How odd! Well, maybe not. This thread probably just caught my attention because I'd just been thinking about the word "Survivor."
Anyway, I consider myself a Survivor, and I always capitalize the "S." Someone else I know rails against that word "Remission," too. Medically speaking, I'm not even sure that it can be properly applied to breast cancer. Does anyone know? |
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Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: May 7, 2007 05:39 pm
I'M DONE WITH MY TREATMENT - NOW WHAT? INFO...Wow, loved that article.
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Support & Community Connections + High Risk of Recurrence or Second Breast Cancer, Created: May 7, 2007 03:52 pm
Mets Question/Skin LesionI had something that matched your description exactly. It was between my lumpectomy scar and my mastectomy scar. It completely freaked me out.
I went to the breast surgeon. He didn't think it was alarming. I insisted on a punch biopsy. It was a benign, inflamed cystic lesion. In other words, just a skin cyst. That was November. It has completely flattened out, but that might be due to the fact that I had expanders put in in January and the skin has been S-T-R-E-T-C-H-E-D. |
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Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: May 7, 2007 03:43 pm
Public Speaking about Breast CancerPam,
Thanks for sharing your experiences. How did you get the speaking opportunities? So far, everything that I've done (and I just turned down a local TV spot because I was having surgery that day) came from being asked by the breast cancer organizations that I volunteer for. |
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Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Apr 6, 2007 06:27 pm
TIME TO CIRCLE THE WAGONS GIRLSnosurrender, my chemo was taxotere and cytoxin, four rounds.
Deb I have those moments, thinking about my kids growing up without a mom. I SHOVE those thoughts away. Begone! |
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Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Apr 6, 2007 06:12 pm
Public Speaking about Breast CancerOn breast cancer so far I've done a radio interview, that speech listed above, and I participated in a documentary film (I gave an interview). I haven't seen the film yet, so who knows, maybe I've been edited out ha ha.
I received my opportunities through old-fashioned networking, not much different than the way business networking is done. I go to my support group and we share info about upcoming events. I keep in touch with the folks who treated me at my cancer center and am willing to volunteer time and brain-power to their outreach programs. It's not like I do these things in a calculating manner. It's just that I'm generally outgoing, enjoy talking to people, and like being involved in my community. Oh, and I need reasons to get out of the house!! (Edited to add: At the risk of stating the obvious, all of this stuff is done with the intention of raising awareness about breast cancer in the general population. In my case I've chosen to focus on young women). I'm more-or-less just a stay-at-home mom plugging away at a fledgling writing career from my home, which I point out so that you know I don't have "connections" of any sort. If public speaking is something that interests you, just start letting people know that you're interested. Lots of community organizations are seeking speakers. One more thing: after the BMW event, I called the dealership manager and personally thanked him. I also sent thank you cards to each of the key organizers of the event. People work really hard to put these events together, and I'm certainly grateful for their efforts. Once you get started you build momentum and then people think of you the next time they are looking for a speaker. Hope this helps someone who wants to get started!! |
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Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Apr 5, 2007 01:12 pm
TIME TO CIRCLE THE WAGONS GIRLSThanks for the welcome. Wow, this is really a fast moving thread...
I certainly hope that my hormone status was accurate.I made the big decision to have my ovaries removed because of it. It was weakly er+ (6%) pr- and I found research showing that AIs were more beneficial than tamox. for this pathology. Not only that, but there is some evidence that the pr- and tamox. can be a really bad combo. But since it's done now, I'd be afraid to have a retest. The rest of my backstory: Dx Stage 1 Lobular, almost exactly one year ago. I was 41 years old. I had a lumpectomy, then 4 rounds of chemo then went back in for a bilat mastect. Last chemo was June 22 06, therefore I now have short curly hair - 9 months worth. No rads. Had my ovaries removed. Currently on Arimidex with no noticable side effects. Tissue Expanders went in Jan 07 to be replaced with saline implants May 07. That's it in a nutshell:) |
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Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Apr 5, 2007 08:31 am
TIME TO CIRCLE THE WAGONS GIRLSAlwaysHope,
Thank you for the welcome and the kudos. But as far as the kudos go, it (the speech and the whole event) was fun for me. Although as soon as the speech was over, I was fretting over how I could have done it better - but that's normal, I think. I'm OK with learning as I go along. |
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Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Apr 5, 2007 07:56 am
TIME TO CIRCLE THE WAGONS GIRLSHello to all. I'm just going to take the advice of "jump in don't try to catch up." I'll read along a bit and won't fret too much about not knowing all of the backstory:)
I introduced myself in the Welcome to the Wagon thread and I also just started the Public Speaking thread. I won't repeat myself here but it was suggested that I stop in to this main thread so here I am! Best to All... |
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Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Apr 5, 2007 07:47 am
Public Speaking about Breast CancerI just gave my first Big Speech about breast cancer, and I'm hoping to do more public speaking on the topic.
So I thought that I'd start this thread for those of us who are doing public speaking or are just interested in the possibility. We could share ideas, tips, etc. I gave my speech at my local BMW dealership. I was nominated to be the Local Hero at the BMW Ultimate Drive for the Cure and there was great local press coverage. I chose to speak about (a) the Survivor Community - that my participation in it has had tremendous healing value & taken away much of the loneliness of the journey (b) therefore I want to encourage others to participate in some way - we all have different gifts to offer (c) I take every opportunity available to me to mention that YOUNG WOMEN DO GET BREAST CANCER. I think that I did reasonably well, but I am looking into taking a public speaking class and/or going to Toastmasters. I want to improve my skills! Anyone else? |
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Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Apr 3, 2007 03:49 pm
WELCOME TO THE WAGON CIRCLEI'm not new to these boards, but new to this section so I thought I'd introduce myself here.
I was dx with lobular cancer a year ago. I'm finished treatment except that I still have tissue expanders that will be replaced with implants in May. I know that some women finish treatment and want to get away from everything cancer-related, and that is certainly a valid choice- but that is not me at all. I still go to my support group, and I've become very active in my local Survivor community. I try to keep up with the latest research and studies. Last night I went to a film screening and panel discussion about using the arts in hospital settings, notably dance and poetry. I'm very interested in this topic. I wrote all through my cancer experience, mostly on my blog. It saved me in countless ways. Well, I think I'm going on a bit too long here...am anxious to read through some of these threads! |
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