Bayyyy

Bugmom,

Just wanted to add my voice to the others, what a rotten deal for you after all those years. Please take care of yourself and know we're here for you to comfort and listen and it sounds like some of these ladies have given you very savvy advice!  (((((((Hugs)))))))

Hi ladies,

Sorry I haven't been in contact for awhile. U/S showed it's a lump, big surprise there. Radiologist said she can't do a needle biopsy and not compromise my implant. She--ah hem--told me to ask my surgeon if it's cancer how fast would it grow in 3 months...OMG, I couldn't believe she said that. Doesn't a radiologist in a BC center KNOW that no one can tell me how fast it might grow inn 3 months even if we looked at the cells, we couldn't really tell...!

My BS had me go to my PS to get his opinion but I of course had to wait for him to come back from vacation.

So I'm scheduled for an excisional biopsy on Oct 20th. The day after the breast cancer walk I'm participating in(for the first time!) Please keep b9 thoughts for me.

Thanks and hugs, Oh and Dink, lol, I had a similar conversation with my husband once or twice! Best wishes to you all too

Holly

Age 40, Stage 1, 3 high grade tumors under a cm, neg nodes, I think 49% er+. Before the oncotype test, my onc sent me on my way and said I was done with treatment after a double mast and tamoxifen. He fully expected my score to be very low.

Then, a few weeks later, he called me and said I scored 26 and he highly recommended chemo. He knew I was doubtful and he called my PS(whom had utmost faith in) and had him call me in and explain that I really needed to have the chemo.

My sister in law had one very low grade slow growing tumor--they called it a 'gentle giant' She's over a decade older and post menopausal and it was 99 % er+ and scored a low score, either 14 or 16. Her onc told her it was her choice but since they had films of her lump for 3 years and she had a lumpectomy, he recommended chemo also.

I'd wait until your sister's score comes back and then look at all of her data together. From what I can tell, it depends on many factors not just the score by itself, unless it's extremely low. Though I believe I have heard of a couple with a single digit score opting for chemo too.

Best wishes to you both with these difficult decisions

This is my first time fundraising for a BC walk (or any walk for that matter) and I'd appreciate some guidance. Who wouldn't you ask for support--what about your doctors/surgeons? Is email ok or is it better to print out letters or handwrite or a combo of these options? I was thinking that some people are more computer savvy than others and not everyone on my list even has internet access. Thanks in advance!

I would love to join your team! I'm so glad you let me know!

Holly

Oct 19th, 2008 

Is there anyone here doing this walk? Have you done it in the past? I would love to join a local team.

Thank you!

Supplements--Vitamin D is a good all around immune booster, anti tumor supplement. Probiotics.

Foods--raw honey. plain yogurt. leafy greens. green tea

Sad, sad news today. One boy who lives right down the road  who has been friends with my son for 8 years, has slept over my house many times, eaten my pancakes whick he preferred slathered with peanut butter, came to our parties, bragged about his wonderful dad...His 'wonderful' dad was arrested for trying to hire an undercover cop to murder his wife, this boy's mom.

My heart just breaks for this child. I wonder how best to show our support without making anything worse.

I have had horrible heartburn, indigestion, reflux for a long time before chemo and then it was horrible during chemo and still awful afterwards. My doctor and I tried I think every acid reducing prescription med we could and I also did all the OTC meds, too. I remember carafate, protonix, aciphex, pepcid, zantac, prilosec, tums....

My doctor also scared me and wanted me to go to a gastro doctor which was the last thing I w ted(to start on more tests and procedures...) Well, this is what I did and it worked like a real miracle for me. I don't know if it would work for anyone else and I can't advise.

I stopped all my acid reducers(my pharmacist was relieved as he had told me they are not good for long term use) and I took a good probiotic every day, bought digestive enzymes and used them with meals and at bed and I bought HeartburnMD which has orange oil and other ingredients. I took that regularly for a month, esp at bedtime. That's about how long it took for all of my symptoms to go away.  After years of suffering. I did go back to my doctor and he was thrilled to write resolved across my chart.

My upkeep: take a probiotic daily, digestive enzymes when I have a heavy meal and heartburnmd if I actually start to feel anything begin which is rare.

When I spoke to my pharmacist, he said acid blockers kill off healthy bacteria in our system and also make our own digestive enzymes work less effectively. The heartburnmd helps heal

I tell everyone about my experience because it really was so amazing. My husband didn't believe it and held out for a long time. Finally he tried it and he now doesn't use any acid reducers either. He can't believe it since he's been using them for over 20 years. I haven't bought any for about a year now!

http://www.heartburnmdhealth.com/

http://www.vitacost.com/powerofprobiotics.html?isrc=I3-Probiotics-and-Enzymes

Either he accepts the insurance or he doesn't. That's unprofessional to accept it but whine about it! 

The nurses saw me more frequently than my onc once chemo started. I would see him once every few weeks until towards the end of treatments, when my numbers were screwy when I saw him practically once a week. He was always rushed and dealing with my SEs/blood test results and so we never had a moment for more personal talk.

 I don't think you should sit through a lecture about medicare but I bet that's the last you'll hear about it. He should now start to concentrate on YOUR needs when he sees you. I would imagine he wouldn't even remember who has what insurance the next time you see him. If he does say anything else, I certainly would just say, I'd rather not talk about that as it's upsetting to me/adds to my stress.

Best wishes