Dnicoletto

Hey there! I posted fourth from the top on this thread and thought that I should check back in. I did a "reclast" infusion instead (to get it covered) the oncologist expects the outcome to be the same as it would be with Zometa. I will do it every six months instead to get the effect we are hoping for. Unlike Carolupa's oncologist, mine was pretty darn excited about the study from early June and was happy that I was ready to sign up.

I have definitely noticed that my joints are achier than they were before from just the Arimidex.  It has been two weeks and I am hoping that they will calm down soon.

Can't really address the clinical trials or anything like that.  I am trusting the oncologist on this one, he hasn't let me down in two years. He was very clear about religiously having the six month cleanings and paying good attention to dental hygiene. I have some siginificant osteoporosis, so I would be taking something for it one way or the other.

~Dorie 

Ten minutes ago (according to the AP):

"Hillary Rodham Clinton told colleagues Tuesday she would consider joining Barack Obama as his running mate, and advisers said she was withholding a formal departure from the race partly to use her remaining leverage to press for a spot on the ticket.

On a conference call with other New York lawmakers, Clinton, a New York senator, said she was willing to become Obama's vice presidential nominee if it would help Democrats win the White House, according to a participant who spoke on condition of anonymity because this person was not authorized to speak for Clinton."

http://news.yahoo.com/s/ap/20080603/ap_on_el_pr/clinton

Best wishes Joan! Your post was about the best thing I have read in a while. I have been struggling with SE's at 15 months into Arimidex. (This Illinois winter ain't helping - I miss my Philadelphia!) I am taking this thing one day at a time and resisting the urge to toss the bottle at least once a week. I know for damn sure it is too soon to quit. But I also know, that I will truly know when it is time.

Hope you don't leave the boards. I have always enjoyed reading your stuff all the way back to my beginnings here. I will continue to watch for your progress as you get your life back to yourself.

All the best,

~Dorie

Since you brought it up, I too take one 300 mg. Neurontin at bedtime, but I am on my last bottle. I think that the onc thought the flashes would be gone by now.  I am in year two of Arimidex. Will these hot flashes ever go away?

~Dorie

Damn, I just love you girls! Thank you for all your thoughtful, heartfelt and sometimes hilarious responses. It is almost two years since I was diagnosed and you guys have pulled me thru the rough spots so often. (Jane I understand you not volunteering for anything if you just finished chemo. Girl, you take a break!)

My PS looked a little disappointed yesterday that I didn't want to see it all the way through, but left the door wide open if I ever chose to come back and have the nipple done. I gotta tell you that some of these responses have really given me a lot to think about and some incentive to call him up and make the appt.

Dotti, I was thinking about mirrors in the bathroom I am redoing. Maybe I need to rethink that.

As always, you girls didn't let me down! Thanks. You are all amazing.

~Dorie

Long ago and far away, I used to wear bikinis. My BC weight gain has pretty much eliminated that possiblity, so I had a moment of silence and then took the half cup paddings out of the bras and I tuck them into my bra whenever I need to even things out.

~Dorie

Adding my thanks to all of you and Dr. Weiss as well.

I wrote to the "Oprah Winfrey Show" and requested that they have Dr. Weiss on as a guest. I would love to see her interviewed. Maybe if you think of it when you are at Oprah.com??

~Dorie

I was seriously shocked by Sabrina getting kicked off! I sort of figured that she probably grew up with dancing lessons her whole life, but ballroom is different right? Still, was she disliked by people? And isn't her poor dance partner SO in love with her?

Sure was surprising!

~Dorie

Exchange surgery is tomorrow morning - augmentation on one side, exchange the expander on the other (PLUS taking the damn port out!) Anyway, what should I plan on wearing home? Loose fit or tight fit?

~Dorie

I had a lump plus DCIS. First surgery, got the lump but no clean margins on the DCIS, sentinel node biopsy at that time too. Sentinels were positive, rest were clear. That lymph node stuff is a pain, as D1 said.

Second time, we went for the whole tamale and did the mastectomy in order to get those clear margins.  Was ER+PR+her2/neu+. Glad that we did the mastectomy. I never have to worry about that DCIS again!

Consider getting thru these treatments and finding out precisely what you have going on, then worry about your course of treatment. There is a ton of info on here for you when you have to start to worry about that stuff. It is stressful enough getting thru the path reports and possibly two surgeries.

We are here for you.............it is all doable.

For what it's worth.....

~Dorie