fd411

Hello Ladies,

Ferne here. 

I'm hangin'. Had some progression being off of chemo for 7 weeks while doing the wbr which wiped me out. I started a new chemo (Ixempra) yesterday, so I'm patiently waiting to get back in the groove. I'm still working full time, although some days I don't know how. I just keep praying for the strength to make it through all this. 

Joanne and Erin,

I'm so sorry that this time has come for you both. 

Hugs and prayers,

Ferne 

Luckywife,

When I took it to counteract chemo side effects it wasn't too bad. Just made me hyper for a little bit and I couldn.t sleep for a night. 

But taking it for my brain mets was a horror story. Even after I was done and still had swelling, my rad onc said she wasn't going to keep me on it. I completely weaned off the decadron Jan 31 or so. I still have the moon face, the hump in the back of my neck, and the bloated stomach. My legs still hurt, too. I also gained weight. But my appetite has returned to normal, and I'm not as snappy or short tempered as I was on the decadron. I'm glad to be off of that stuff in that capacity. I had no idea it would make me feel that way in the brain mets doses.

Ferne 

Hi Watson,

I haven't had chemo since early January, so the pain is pretty constant now, even with pain meds. It's an annoying sharp pain. If I lay on the side where the pain is, it initensifies and if I lay on the other side, the pain lessens. I just started this Fentanyl patch yesterday and have been taking Tylenol with codeine and Oxycodone, but that oxycodone makes me kinda ill.

I agree Watson. I think the only exact science is mathematics, and you know how we are with those and statistics. They don't work on us! 

Ferne 

Hi Watson,

I progressed alot and fairly quickly on Xeloda. I was on it for about 2 months,  but it just didn't work for me. My lung mets related pain that was in my back was up by my shoulder blades. If you lay or apply pressure on the side where the pains are does it get worse? Hopefully this is not the case with you and Xeloda is working.

Hugs,

Ferne 

Deb,

I'm so sorry you scan showed areas of concern. Hopefully the nodes will have benign results. 

You're in my prayers,

Ferne 

Luckywife,

You are in my prayers.

Ferne

Hello Everyone.

I found this post in the "not diagnosed but worried forum" and mentioned to Jadipops that I would move it here for her.

This is the post: 

"in need of support

just found out i have breast cancer so worried confused"

Thank you all so much. 

Oz,

 Chemo might work for your mets. The treatment in itself had few side effects. It did a good job for me, but I'm triple neg. It knocked it down relatively quickly and is/was all over my entire right (bc) breast, started going to the left side, went under my arm on the bc side and up to my collar bone on the bc side. Ironically I received rads to all of these places on the right side. My rads after lumpectomy plugged up my lymphatic channels in the breast. I find it interesting that rads can also treat skin mets.

I hope you can get successful treatment soon; you've been battling this for a long time.

hugs,

Ferne 

I would push for a brain mri as well.