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Last Login: November 25, 2008
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 25, 2008 09:02 am
Bad X-ray, MRI of the HumerusThank you all for the great support and information. The oncological orthopedist and the oncologist seem to be a little stumped by the tests thus far. I am going to have another X-ray in the end of December, I think to see any change. The lesion is not "expressing" itself clearly, yet the pain is suspicious. They talk then about a PET scan and bloodwork to be done in December also. They keep saying that they are pleased that the bone scan is negative. They also say that a solitary site is unusual. I hope they are right. I am thinking positive thoughts, and once again I do thank you all. I will keep you posted. |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 14, 2008 02:37 pm
Bad X-ray, MRI of the HumerusI have had pain in my right upper arm for about 3 months. Self-referred to an orthopedist, and was suspect of torn rotator cuff. MRI showed a lesion in the humerus (subsequent bone scan negative) The second plain x-ray showed a difference than the 1st X-ray, in that they "see something" on the plain film now. I was seen by a different orthopedist yesterday who specializes in oncology cases, and he was optimistic that because the bone scan is negative, that it is rare for someone like me ( 8 years out of Stage 3A) to develop a solitary bone metastasis. He will confer with the onc, and most likely order a CT scan. My question is: Is there anyone who has had a solitary lesion found and had a negative bone scan? Also should certain blood works be ordered? I am not so much scared, as tired of the pain which is definetely worse at night. Thanks in advance for any information. |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 14, 2008 06:19 am
Positive MRI-Negative Bone ScanEight years ago today I was diagnosed with Stage 3 BC-The quality of my life has been very good since treatment. I have a lot of arthritic pain in my neck which I was used to. I take Femara daily after 5 years of Arimidex. Recently my upper arm has had a boring like pain. I referred myself to an orthopedist who ordered an MRI of the shoulder. The oncologist and the Primary were concerned with the reults (a lesion in the humerus), and I had a bone scan the next day. The orhopedist poo-pooed me if you will, and told me to be happy that the bone scan is clear, and that perhaps the lesion is an incidental finding. Maybe it is bursitis, and to go to his PT department. Before I knew what was happening he injected my shoulder with cortisone. Interestingly enough it seems my neck has been better but the arm is very worrisome. That evening after he looks at the MRI (at my insistence) he told me to follow up with my oncologist. (Can you sense I didn't like this guy?" ) The pain is not inspired by any certain movement and is indeed worse at night. I am waiting for the oncologist to return to look at the MRI film. My question is does anyone know of the reliability of one test over the other? I was glad the bone scan was clear, but I also have been around the block if you know what I mean, and if there is something happening I would like to know. Thanks in advance for your experiences. |
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Connecting With Others Who Have a Similar Diagnosis + Stage III Cancer, Created: Sep 20, 2008 07:44 am
MRI-AnxietyLooking for some support as I am anticipating my first MRI since diagnosis in 2000. I really feel crazy with fear and it surprises me. I am told by an orthepedist that I most likely have a rotator cuff tear. I went to the Dr. because of a great deal of pain in my upper right arm and hand. I had a radical mastectomy on the left side, 8 rounds of chemo followed by 5 years of Arimidex and a projected 5 years of Femara. I must say I hate the Femara, and have a lot of side effects, but I am truly feeling paralyzed with fear over this MRI. I was doing fine until the words. "with your history, this is the most prudent test." The crazy thing is that everything he is ordering is correct for his suspicion, but it is that BC history that is so frightening. I am 52 and soon to be 8 years out. For the most part, aside from arthritis I like to forget about my bc history. I hate the MRI anyway, and I am dreading the hour of isolation and fear inside that tube! I am usually a positive person, so this anxiety is startling to me.Thank you all for listening. I need this forum as those who love me poo-poo my worries with"you have come so far". One person told me to sing a Christmas carol while being magnetized, and that just isn't cutting it for me! |
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Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Sep 10, 2008 11:12 am
Anyone have minimal AI side effects?This Post was deleted by roseanne. |
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Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Sep 10, 2008 11:11 am
Anyone have minimal AI side effects?I had a great deal of success on Arimidex. Hot flashes, but I took it for 5 years after chemo. I am now on Femara for 5 years and I am experiencing joint pain. The exciting statistics of the AI's keeps me going. I was stage 3 and had a radical mastectomy in 2001. I am happy to be here, pains and all! |
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Connecting With Others Who Have a Similar Diagnosis + Stage III Cancer, Created: Aug 23, 2008 07:57 am
5 yearsAs you can see there are many of us out there! I am a stage 3 -7 year survivor. I too was wrapped up with the 5 year thing, but now I am heading towards 10. It will all get better for you. This is a good place to share your thoughts and feelings. One day at a time, one month at a time and so forth. We have all been where you are, and it will be OK. |
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Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Jun 21, 2008 08:09 am
testosterone for AI side effects anyone?I don't want to put a wrench in all of this but there are some of us who are survivors who are thin. I am 7 years out of stage 3 and the only time I gained weight was during chemo, which I believe was a result of the forced menopause. 5 years of Arimidex, and now Femara. My greatest concern is my bone health, and as I understand this all the lack of estrogen is the problem there. The treatments also hurt the bones ability to absorb estrogen. My onc explained that the formulation of Arimidex vs Femara is different, and that is why one is before the other. (I had very little se from Arimidex, but Femara is intense for me). I have resigned myself to the belief that we are all being treated with what they have available, yet the oncologists know that the side effects cause issues of their own. Femara used to be the first line treatment for metastatic disease, and now it is being used to prevent recurrence. I am sure that soon biophosphonates will be added to a survivors protocol also. Whether we are fat or thin, we often have to accept what is happening with our treatment. Statistically I am willing to suffer the SE of Femara. Just a little lightness to the discussion, if you are heavier as oppossed to too slim the general public probably thinks you are fine! I get a lot of those ominous "how are you's?"-Love yourself as you are, and everyone do your weight bearing exercises! |
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Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Jun 21, 2008 07:44 am
anyone starting femara?After 5 years of Arimidex, I went on Femara and then stopped it for 9 months due to joint pain, hot flashes and headache. The onc put me back on it this month for four more years. My understanding is the statistical reduction in recurrence is dramatic. I tolerated the Arimidex well, but this stuff does bother me, but I am dedicated to get through it. I was stage 3 and put into menopause by treatment. I trust the Dr. and if I can stick with it I will. I am hoping like all of the treatment, I will get used to it. If anything I think we are all helping the cause. I must admit that I am grateful to be here 7 years out! Hang in there. |
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Tests, Treatments & Side Effects + Breast Prostheses and Reconstruction Alternatives, Created: Jun 12, 2008 06:56 am
Can I go topless?In this very hot weather we have been having in NY, I am reminded of how much I hate the prosthesis in the summer. Sometimes (forgive me) I wish I had a bilateral mastectomy as I am small and thin, yet do have that small breast on the right side. I whip the bra off as soon as I get home from work, and my grown sons, and now my grandson just accept how I look. I wear those tanks with a liner, and keep a foam boob nearby in case a neighbor pops in. I think I am brave sleeping topless but would feel like I would make everyone else uncomfortable with just one breast. I would stand and applaud any woman who bares it all! |
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Support & Community Connections + High Risk of Recurrence or Second Breast Cancer, Created: Jun 9, 2008 06:50 am
managing anxiety abt recurranceI am a stage 3, survivor, just starting my 7th year. I have found some solace in thinking that BC is a chronic illness, and that you have years of no evidence of disease (NED). Always be proactive with your health care. This is the place to be with your anxiety. A,-We understand as we all have been there, and B,-we recognize that your anxiety is real. You are not alone. I believe all survivors have a ton of anxiety-try not to let it drive your life though. One day at a time. When you are feeling physically well, celebrate it, and forgive yourself if you are anxious. I think what you are feeling is common to the illness, and trust me it will get better. |
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Support & Community Connections + High Risk of Recurrence or Second Breast Cancer, Created: Jun 7, 2008 07:49 am
High Risk/Arimedex treatmentArimidex has been shown to reduce the risk of recurrence significantly. I think it will soon replace tamoxifen completely. I also think that quality of life is important also. I was on Arimidex for 5 years, (Stage 3-Mastectomy and chemo) and then put on Femara. I was on Femara for 18 months and had a lot of side effects and stopped it. I will be reinstating the Femara this weekend as the oncologist has shown me statistics that make me think the side effects are worth enduring. Both Arimidex and Femara are aromatase inhibitors and for post menopausal women that are er positive the reduction of recurrence seems significant. Survivors have many decisions to make, and it is ultimately your decision. Good luck |
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Support & Community Connections + High Risk of Recurrence or Second Breast Cancer, Created: Jun 6, 2008 06:43 am
Femara-AgainI was wondering if anyone else has discontinued Femara and then gone back on it. I am seven years out of stage 3. I did 5 years of Arimidex and then was put on Femara. I had a lot of side effects and then discontinued it. The onc wrote me a new prescription yesterday and says that the benefits are significant. I trust him and always think he is correct, I guess I am not thrilled with going back on it. I hated the hot flashes and the joint pain. I guess I just needed to complain. Has anyone else discontinued Femara and then gone back on it? Thanks for any input. |
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Connecting With Others Who Have a Similar Diagnosis + Stage III Cancer, Created: Apr 20, 2008 07:02 am
10 year survival?Stage 3 and coming up to 7 years,,,so I hope so!
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Connecting With Others Who Have a Similar Diagnosis + Stage III Cancer, Created: Apr 11, 2008 03:42 pm
WeightI think my weight gain during chemo was due to the "chemopause". Lots of women gain some weight during menopause, so I assumed that was why I went up in weight. I am a 6 year survivor, and am a little thin but I always have been around 95lbs. When in treatment everyone thought I looked great because I gained 18 lbs! Don't worry about weight-concentrate on healthy attitude etc. The best advice I got was at least 15 minutes of fresh air everyday!
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Connecting With Others Who Have a Similar Diagnosis + Stage III Cancer, Created: Apr 5, 2008 07:37 am
Lynph Node Pain?Hi everyone it has been a while since I visited. I am approaching 7 years out and have had deep aching pain in mastectomy side armpit, and right groin. I feel no lumps, just tenderness upon palpitation, but the pain is strong and after probing gets a little more intense. Warm moist heat is soothing, and I would say the groin is the worst, and both areas are most painful at night. I stopped Femara 1 year ago, after 5 years of Arimidex, I found the Femara to give joint pain. I guess my question is with no large swelling should I be worried? I have had no lymphedema in the affected arm. Thanks for any input. |
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Connecting With Others Who Have a Similar Diagnosis + Stage III Cancer, Created: Nov 24, 2007 07:16 am
Stage 3 and port removalThe surgeon said 1 year, and the onc said listen to the surgeon. I had really bad veins to begin with, and as everyone has said-hated the port. I did keep it for a year after chemo-but I had been hospitalized at the end of the treatment and it was then that I really understood how important the port could be! I agree with the others, that you have the opportunity to question and/or have the port removed. One thing is for sure when it comes out it is another reason to celebrate! Good luck. |
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Connecting With Others Who Have a Similar Diagnosis + Stage III Cancer, Created: Nov 21, 2007 10:03 am
Bone Scan-ScaredHi everyone, Just a quick note. I am a 6 year survivor and have had a lot of rib, back and arm pain. I went for my annual with the surgeon (a wonderful man who insists on seeing me evry year)-He noted a weight loss in 12 months(18 lbs) and was able to hit the spot in exam on the ribs. He is ordering a bone scan for Monday. I had a bone scan in 2005-and it showed severe arthritis. I am afraid of metastasis and I am wondering if the bone scan is specific for this. Can it decipher between arthritis and malignancy-Did anyone have rib pain before? Yes it's true I am scared. Thanks in advance. |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 15, 2007 08:37 am
High Platelets<table><tbody><tr><td>roseanne
User since: 8 Jun 2006 10 Comments </td><td>roseanne Hi all-Just a quick question. I am a 6 year survivor and have had a lot of leg pain(have had DVT before) Doppler was clear and blood work was good-Just high platelets. The primary Dr. will send report to oncologist. Is this a worry in an expression of metastatic disease? Anyone else told that they have thrombocytosis? Thanks in advance for you help I am a stage 3 survivor-rib and leg pain. The stage 3 girls encouraged me to post here. Thank you in advance for any information. [Edit] </td></tr></tbody></table> |
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Connecting With Others Who Have a Similar Diagnosis + Stage III Cancer, Created: Nov 3, 2007 09:30 am
High plateletsHi all-Just a quick question. I am a 6 year survivor and have had a lot of leg pain(have had DVT before) Doppler was clear and blood work was good-Just high platelets. The primary Dr. will send report to oncologist. Is this a worry in an expression of metastatic disease? Anyone else told that they have thrombocytosis? Thanks in advance for you help |
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