Member Since: June 13, 2006
Last Login: March 31, 2008
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Posted in:
Day to Day Matters + Family Issues for Those Who Have Breast Cancer, Created: Dec 8, 2007 11:10 am
Am I losing my best friend?Oh yes I certainly experienced this!My best friend also happened to be my first cousin.We had been together all of our lives,we shared everything,finished each others sentences.When I was dx she was on vacation but came home early.She said I will be there every step of the way,will go to every chemo,surgery,etc.She said I will come clean house for you each week.Well when I had my bilateral,my Mom stayed at the hospital with me,didn't hear from her.I went to most chemo and Herceptin treatments alone unless my Mom went.She not only didn't clean she didn't even visit,not once.She never called me.It hurt but I got over it.I have changed since dx and I don't let people use me the way I used to.So now I am done with treatment and life goes on.She calls me out of the blue about a month ago saying that she and her 2 boys are homeless and she has no money,no car,nothing.Stupid me,I went and got her.I let her stay at my house for 4 days.I bought their food,drove her everywhere,I even bought her cigarettes.All she wanted to do was stay on my laptop while the kids did whatever.I wasn't feeling the 5th day,started thinking about how she abandoned me and I told her she had to go.She went to the homeless shelter,she is still there.She is on Social Security,no reason for her to be homeless.On Thanksgiving,she went to her brothers house.She told his wife"I have no use for Lisa,she is the reason I am in the homeless shelter" LOL.Nobody,not even her brother or her Mom would let her stay with them.She took those boys to the laundry mat and slept in the bathroom before I went and got her.I washed my hands of the whole deal.I don't need anymore crap in my life,I have enough.I lost touch with just about everybody when I was sick.I had much rather have my friends here because you all understand. Hugs Lisa |
Posted in:
Support & Community Connections + Chat Room Friends, Created: Dec 8, 2007 10:35 am
Sounding off about health insuranceI guess I have been pretty lucky when it comes to insurance.Hubby has United Healthcare through his job and for coverage for both of us and our 2 kids we pay $240.00 monthly.They never denied anything I needed during treatment.I do have co-pays of $30 per visit but my oncologist writes that off,bless his heart.When I got approved for SSDI they gave me Medicaid and I have workers comp for my pain meds,still have a year before my Medicare kicks in.I posted this site on another thread but it is wonderful.Go to www.internetdrugcoupons.com and check it out,it is the bomb!!! Hugs, Lisa |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Dec 8, 2007 10:09 am
Lisa40 - Prayers NeededFrom one Lisa to another,you and your family are in my thoughts and prayers.Words just aren't enough but be assured all of your sisters here love you very much. Hugs, Lisa |
Posted in:
Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Dec 8, 2007 03:54 am
I found a great resource!!!I stumbled upon this site a few minutes ago and wanted to share it with my sisters here at BCO.I hope it helps,I know it sure will save me some money.More money for Christmas shopping lol.
http://www.internetdrugcoupons.com/ Hugs, Lisa |
Posted in:
Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Dec 6, 2007 05:42 am
Period back after 16 months!!!Crap!!!I so did not ever wanna see it again.My onc had started me on Femara and I had been on it for 6 months.I had worse side effects on the Femara than on the Tamoxifen so now I will be switching back to Tamoxifen.I took it for about 5 months before and had horrendous hot flashes.I stopped having them about 2 months ago I wonder if they will come back again?Anybody else started their period on an AI and have to return to Tamoxifen? Hugs, Lisa |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + HER2/neu Positive Breast Cancer, Created: Nov 30, 2007 06:20 am
er/pr +/Her2+Hi all I was diagnosed June 2006.I am ER/PR+ and HER2+++.I had 2 cm IDC with 6/19+ nodes.I had bilateral mastectomy in July 2006,4 DD AC and 4 DD Taxotere then 7 months of Herceptin which had to be stopped due to heart damage.I am currently on Femara.I was terrified when first diagnosed with HER2 but we have sooo many weapons to help us fight off the beast.I didn't have radiation,was told nothing to radiate,hope they were correct. Lisa |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + IDC (Invasive Ductal Carcinoma), Created: Nov 24, 2007 07:27 pm
er pr positive, HER2 PositiveI was dx triple positive 6/06. I had 2cm stage 2 grade 2 stage 2(lol)IDC. I did 4 dose dense AC and 4 dose dense Taxotere. I did 7 months of Herceptin and had to stop due to heart damage. I wanted to hit the beast with all I could,I even had a bilateral and wanted rads but they said no need. Lisa |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + IDC (Invasive Ductal Carcinoma), Created: Nov 24, 2007 07:20 pm
anyone with tumor below the nipple area?My 2 cm tumor was at the very bottom of my breast. I had a bilateral by choice and have silicone implants.I don't have a fold under the breast on the cancer side. Lisa |
Posted in:
Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Nov 24, 2007 07:14 pm
Sore Feet - HelpWhew! I am glad to see that I am not the only one whose feet hurt. I was really starting to question my sanity lol. It's pretty weird when you have to take a pain pill because your feet and toes hurt. I also have the hip pain and knee pain. I seem to hurt in all my joints and I have neuropathy in left arm/hand. If I ever bend down, I cannot get back up without help.I am 35 years old and feel 85. I take Femara and am scared not to because my cancer was very aggressive.I do need to lose the 40 lbs I gained during treatment and am hoping that will help.I certainly sympathize with all of you and hope we can find something that helps soon. Hugs. Lisa |
Posted in:
Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Nov 24, 2007 07:04 pm
Tennessee ThreadHey Tennessee Girls, I would love to meet some of my wonderful sisters here so please let me know when you figure something out.I live in Dayton(near Chattanooga). hugs, Lisa |
Posted in:
Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Sep 14, 2007 07:06 pm
Has anyone been in contact with Lisa Elder?Well,first I want to apologize for not checking in sooner,I am sorry that you all worried.I am doing ok physically but emotionally I am in a rough spot right now.My Mom hit my 16 year old daughter and called her some bad names and then she pulled a gun on my brother and me.My daughter was only walking down the hallway,she did nothing to deserve it,none of us did.My own mother looked in my face and said that she hopes the breast cancer kills me and that she hopes she is around to watch.I have been abused physically and mentally by her all my life but I won't let my children be.We had lived with her for 4 years because she and my brother are disabled and can't make it alone.I took my children and left right then with only the clothes on our backs,after I swore out a warrant for assault on her.She won't let me even get the kids clothes or beds and the police said I have to pay $127.00 to get a possessory? warrant to get our belongings.By the grace of God my Social Security was approved so I used the backpay to rent a house.I am almost sure she has alzheimers but I refuse to let my children suffer as I did growing up.God has been good to us.Sure,we had a week in a motel and a few nights sleeping on the floor but I am slowly buying everything back again.She even kept my heart medicine and Coreg is expensive so I had to skip a month of it.So,as you can imagine I had no internet access and all the numbers I have from my friends are still there in my room.I missed you all very much and am very happy to be home. Love, Lisa |
Posted in:
Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jul 1, 2007 06:38 pm
anyone had bone pain weeks AFTER chemo?I finished chemo in Nov 2006 and I hurt worse now than I did during chemo.I had 4 DD AC and 4 Taxotere.The Taxotere just about killed me.From the first infusion until now,I have not seen a pain free day.I do have Neuropathy in both legs and my left arm and hand.My back and neck hurts alot as do all my joints.I am in pain management to try to help the pain.I take extremely high doses of Ovycontin and Percocet but it only takes the edge off.My teeth are crumbling and just falling out.My nose still bleeds sometimes.Had I known that I would live every day in this pain,I would have said No to chemo.I am in congestive heart failure,the crap just destroyed my whole body.
Hugs, Lisa |
Posted in:
Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Jun 30, 2007 08:46 pm
Decision to makeKim,
More and more oncologists sre moving away from the adryamiacin.I had 4 DD AC and 4 DD Taxotere followed y 6 months of Herceptin.Are you HER2+? Both AC and Herceptin are very toxic to the heart.I had to stop Herceptin 6 months early because I am now in Congestive Heart Failure at 34 years old.Weigh your options and do what you feel you need to.In my case,I wish I had skipped the AC.Good luck. Hugs, Lisa |
Posted in:
Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Jun 28, 2007 02:52 am
fingernailsMy nails were yellow and black during and after Taxotere.6 of them fell off.Now 7 months later,my regular color is back.I used prenatal vitamins,just a generic store brand,and my nails as well as my hair grew like weeds.Good luck.
Lisa |
Posted in:
Tests, Treatments & Side Effects + Just Diagnosed, Created: Jun 28, 2007 02:44 am
Got Results from BiopsyJean,
I am so very sorry that you have to deal with BC.But you sure have come to the best place ever.We will be happy to help in any way we can and it helps so much to have someone to talk to who has been there.It is not an easy thing to go through treatment but,just as I did,you will dig deep down and find the strength you never knew you had.Someone is always here if you need to ask any ???s.Take care.Cry when you need to,you deserve that.Alot of times I feel 100% better after a good long cry. Hugs, Lisa |
Posted in:
Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Jun 28, 2007 02:16 am
TIME TO CIRCLE THE WAGONS GIRLSGood morning to all my beautiful sisters and my handsome brother.I am in desperate need of sleep.After the Onc nurse called Friday morning and told me about the CHF and my ejection fraction being 28% I have not slept for more than 30-45 minutes at a time,if any.My blasted hands and feet are aching soo bad from the Femara.And oh my the Neuropathy is horrible.I swear if I had known the long time SEs from chemo,I would have refused it.My teeth are actually crumbling and coming out.I was a bald freak now I reckon I'll be a toothless hag.I will catch up later when I ain't feeling like a big old turd.BBL,love you all.
Hugs, Lisa |
Posted in:
Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Jun 27, 2007 08:56 pm
TIME TO CIRCLE THE WAGONS GIRLSI want to thank all of you for caring about me and keeping me in your prayers.I haven't been on much lately but can't help but notice the childish antics that are taking place.
Now,people have a right to their beliefs but I'll tell ya,I would hate to meet my maker after not even wanting others to mention his name. Far as the "gay" business goes,I am tired of hearing about it.There is no reason to insert that topic in every thread.Personally,I don't give a flying fig what is done in others private lives but stop putting it in our face at every opportunity.We are here to discuss Breast Cancer and related items not to attack someone for having a religous symbol in their avatar.I do believe there is a thread to discuss Rosie.I have some dear friends that are lesbian and this is in no way meant to hurt or offend them.My gripe is with certain someones "hopping threads" to get them deleted or cause discord.At least we are safe in the Circle,at least for now.I must say I will defend my belief in God til the end and I don't apologize for that.Love all you girls. Lisa |
Posted in:
Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Jun 27, 2007 06:06 am
TIME TO CIRCLE THE WAGONS GIRLSWell girls looks like I am in deep doodoo.I had to see my oncologist yesterday morning.He said that I am in cogestive heart failure so no more Herceptin.I said so IF my heart improves in a few months then I can finish my year out.He said no more Herceptin ever,even if I have a recurrance.I asked if I can take Tykerb,also a big NO because there is a big dangeer of cardiac toxicity with it also.I am terrified!!!Her2 is bad enough when on meds for it.And I am pretty upset because my maternal grandmother had BC(guess that's where I got mine).She lived through the BC and guess what she died of?Yep,congestive heart failure!!!No wonder I never regained any energy after chemo.I am having some SOB and I weigh 204 pounds from darn fluid!!!Please keep me in your prayers,I am sooo scared.I know I haven't been on much lately but between that and fighting Social Security,I ain't got the sense God gave a monkey.I love you all and think of you often and always pray for my sisters,oh and brother now.Hi Peter welcome,glad to have you here.Take care and I will be back later.
Love, Lisa |
Posted in:
Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Jun 25, 2007 01:08 am
taxotere neuropathy?I got Neuropathy right away when I started Taxotere.My legs were affected pretty bad and I had to walk with a cane for a few months.I take 600 mg of Lyrica daily and lots of Percocet and my legs are somewhat better but my left arm and hand is killing me.It hurts so bad it wakes me at night and when DH tries to hold my hand it feels like 1000 needles sticking in it.I am having nerve conduction studies done July 9.If I had known about this crap and the AC damaging my heart,I would have ran from chemo.It effects everyone different though and from all the research I have done Taxotere is a very powerful drug with great results.Good luck.
Lisa |
Posted in:
Recovery, Renewal, & Hope + Moving Beyond Cancer: Time to Circle the Wagons, Created: Jun 24, 2007 01:00 am
TIME TO CIRCLE THE WAGONS GIRLSHi Sisters!I have been MIA for a little while and I sure have missed you all.I am having a real crisis and I need everyones prayers.My Onc has taken my lifeline away,my Herceptin.My heart has gotten alot worse.My EF is now 28!!I am terrified.And on top of that my left arm and hand won't work and it hurts like the dickens.This is the 3rd night in a row that sleep just won't come.I have a knot on the top of the wrist that I just found.I am so scared about having a heartattack.I've had a non-stop headache since last week,most likely stress I suppose.I love you all and I hope my scatter brain will hold up so I can go back and see how you have all been.I promise I will try to post more regularly.Does anybody have any info on how long it will take for my EG to improve?Dang,it was 52 in Feb,I don't know what happened.I got 6 months of weekly tx in but I really want my Herceptin back.It feels good to be home with you all once more.
Hugs, Lisa |
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