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Posted in:
Tests, Treatments & Side Effects + Just Diagnosed, Created: Nov 23, 2008 01:21 pm
Just found out and far to stressedTry contacting the hospital finical (sp) dept. They can fast track you for state aid. When you need a scan contact the the x-ray dept and ask for a cash price. You will have to pay on that day....check, credit card or cash but it is about 40% they will reduce the bill. |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 23, 2008 12:29 pm
How Many Stage 4 Girls are getting SS disability..SSDI |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 23, 2008 11:24 am
How Many Stage 4 Girls are getting SS disability..Hi Ladies I will get my first SSI check in January, does my unemployment insurance stop? Thanks denise |
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Not Diagnosed but Concerned + Waiting for Test Results, Created: Nov 23, 2008 11:00 am
Need opinions... should I get MRI before or after holidays?I would get it done before the first of the year. You have probable meet your deductible for the year already and in January your will have to start on the new one. Good luck and hope it is b9. denise |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 21, 2008 05:39 pm
Life Insurance QuestionWatson. I just remembered I contacted my insurance company directly too get the ball rolling. Bonnielv. I don't know what state you are in, but in California it is a community property even if your name is not on the house it might still tie up assets. denise |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 20, 2008 07:31 pm
Life Insurance QuestionWatson, No my onocologist was more than happy to sign the form. If need be maybe your adjuster could talk with your doc and explain that it is a judgement call. Even the docs don't know how long we have. Also let the doc know if would give you piece of mind if you didn't have to look at the pile of medical bills! denise |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 20, 2008 04:51 pm
Life Insurance QuestionI took the accelerated death benfite. I received 50% on my life insurance. No you do not have to pay it back if you live longer than 12 months. It was a 3-4 pages application and 1 page for the doctor to fill out. As far as the insurance company is concerned the doc is making a judgement call. It did take about 5 weeks to get the check. reguarding the credit card insurance, what they don't tell you is you cannot use your card if you activate the disabality or you are laid off. that is in the fine print. denise |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 10, 2008 11:38 am
Chest PainNot to scare you, but I would get a scan done. I had chest pain for two months. First I thought I had pulled a muscle as I had just had a scan done which showed nothing. I waited to see if it would get better but it just got worse with pain in my upper back and going all the way around in front of my chest. Did get a xray but it didn't show nothing. After another month of this pain my pcp suggested I see my onoclolgist. I was able to get in the same day. Also had found a bb size lump on my mast scar. Needless to say went in for surgery that day and had a scan. Mets to pelvis, spine, liver, and chest wall. This all happen in two months first a clean scan and then progression of mets. Please get it check! I will be saying a prayer that all is negative!! Denise |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 8, 2008 08:43 pm
Brain Mets - Me Too #2CalGal I don't have any advice to give just wanted to say I'm sorry about the new. |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 8, 2008 03:16 pm
Me, tooLisa Sorry to hear the sad news. Saying a good vibs to your. Denise |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 7, 2008 09:40 pm
Many Questions Hair, ScansHi everyone, I was diagnosed with mets in June of 08: pelvis,chest,spine. I have one more round of chemo left which is carboplatin, taxotere and zometa after this last treatment I will be having chemo every 4 weeks. I have gone bald for the second time. Does anyone know if the hair will grow back on the 4 week cycle? The first time I went through chemo I didn't brother to get a wig, but if I have to continue the type of chemo I am rethinking I might need to get one. The second question is regarding scans. My onco wants to order another ct/pet, but the insurance has denied it saying to get just a ct scan and bone scan and if indicated the will approve the ct/pet. My question is has anyone call the insurance co to speak to the medical review doctors? How accurate is just a ct and bone scan? Do they cover all of the arms and legs? I am really tempted to call the insurance co my self and argueing with them because my brother just passed 10 days ago from kidney ca which had spread to his lungs, brain and stomach, it was also in his hands which they didn't find out until he had done 12 weeks on wbr. It was really hard to watch him go as I know that I will be following the same path some day as a cancer patient. Thank you all for being here a letting me ramble on. denise |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 17, 2008 07:51 pm
Liver Biopsy YesterdayKelly Glad that is over for you! Have a great spa time with your hubby. Denise |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 10, 2008 06:34 pm
Liver Biopsy - What To ExpectHi Kelly I had a liver biopsy 2 years ago, when I was going to donate a lobe to my brother. It wasn't really that painful. More like the wind being knocked out of you. They did have to do it twice, but like I said it was't painful. The hardest part was lying on the side where your liver is for 4-5 hrs. They do not want you to move around as that might start the liver to bleed. they will take your blood before the biopsy and at least one more time, but I think it was twice. The following day the nurse will call and see how you are feeling. No exercise or house cleaning for the first 24 hrs. Hope this helps and let us know how your test comes out. Big hugs denise |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Sep 27, 2008 11:44 am
Is a reoccurance a stage 4?Hi Pat Sorry to hear about the mass. That is the very same symptoms I was having. I will keep my fingers crossed the rads will work. denise |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Sep 20, 2008 01:31 am
Hair loss, carboplatin taxotere zometaHi Ladies Just had my 3rd treatment and brought it up with the dr again about the hair growing back. Her reply was that it would of been mange looking. I would really wait and see how thin it really becomes. I go every 3 weeks, So some time has passed. This last Saturday was the day we renewed our vows. So much better than the original (and that was fun) but by this time you know who you are really married too, who your family is and your friends accept you. I will try and post pictures when I get them. Had the scan done yesterday and it show some improvement with the chemo, I'll take it. denise |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Sep 11, 2008 05:36 pm
Hair loss, carboplatin taxotere zometaHi Ladies I have had three rounds of carboplatin, taxotere, and zometa every 3 weeks. The oncologist said I would lose my hair on this treatment. After the first treatment my hair started to thin and I went ahead and shaved it off. But it has not fallen out... I have velcro head. I have decided to not shave it anymore. Has any one had this happen? Second question.. I was her2+, er+, and pr+ last time around, now this time I am triple neg. How is that possible? On a postive note I am renewing my wedding vows this Sat. My DH and I have been married 16 years! Thanks for all your help. Denise |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Aug 17, 2008 01:44 pm
How Many Stage 4 Girls are getting SS disability..Hi Luann I will try and keep this short. In May of 2006 I was diagonised with er+/pr+/her2+. Went through mast, ac, tax, and herceptin for 1 year along with radation. By march 2008 my ct/pet was completely neg. In May I started having really bad chest, rib pain that would move side to side. I was thinking maybe a hernia. Xray was neg. In June I was still having the pain and noticed a bb size lump on my scar line. I was really lucky and able to get in too see my surgon that day. She did a biobsy and it came back postive. The oncologist started me back on herceptin. Within a week I had another bump in armpit. In between this time I had another ct/pet which showed mastatsis to clavicle ribs, kidney, liver spine and pelvis. The brain and lungs are clear at this point. The path has shown I am know triple neg. ( I have yet to see this report though). The oncologist said she has never seen this and will be contacting Stanford. (she has been doing thhis for 20 years) At first she said 2-3 years survial, but now has changed it too less than 1 year. Yes I know these are numbers and everyone is different. Beleive me I do not intend to give up, I will keep on fighting. I really want too prove her wrong and I know it can be done. Denise |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Aug 16, 2008 05:09 pm
How Many Stage 4 Girls are getting SS disability..Hi Ladies, I have applied for ssdi and am waiting for approval. My doc says I have less than 12 mos to live, and have found out I can get 50% of my life insurance before I die. Does any one know how this effects ssdi? Thanks denise |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Jul 7, 2008 08:39 pm
Off to Chemo LandHi CalGal I will try this again, I wrote every thing out and the dang server kicked me off. I was diagonised may 2006 with er pr her postive with her expressing at around 90%. I belevie 17 out of 21 nodes postive. Had bilateral mast chemo rads hercerptin and Arimadex. My last pet/ct scan on 3-31-08 was completely negative. I have been having pressure on my chest which my primary doc did a chest xray for and showed nothing 3 weeks ago. I was thinking maybe a hernia. The when the pressure moved to the other side last week I went back to the primary doc and show her the bb size bump that had showed up along the scar line the side with the cancer. This appeared within a couple of days. She thought I was popping a stitch. but suggested I call my bc surgeon. who was able to get me in within 3 hrs. She took me into surgery that day a did a biopsy all the way to the chest wall. This is last monday. Tuesday it came back postive. went for a pet/ct scan on thursday. Got results back later that day. Postive to clavical. inner ribs. along the spine liver and pelvis bones. Not to mention it showed up in numerous lymph nodes though out these areas. Called the onc this morning and she went and talked to the radiologits who said he had never seen this happen before. I onco doc is starting chemo tomarrow because it appers to be multipling very quickly. I don't think I am being too arlarmed at this point because the reaction of the onco and radiologist think we need to move now. I am going to fight this second round with everything I got, but at the same time I would like all of my ducks in a row. Thank you CalGal I have followed your post and advice since I joined. Denise |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Jul 7, 2008 04:51 pm
Off to Chemo LandHi Again Just talked with the insurance they said I could have three thousand now, not the rest unitl I died. Jezz I want it now. So my question is has anyone else cash in their policy before hand and how too go about it. I live in northern ca. Thank you all for your support! denise |
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