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Member Since: July 12, 2006
Last Login: October 20, 2007
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Recent Posts by mcalot

Posted in: Tests, Treatments & Side Effects + Breast Prostheses and Reconstruction Alternatives, Created: Sep 22, 2007 12:20 am

Itching

I have been gone for a while and have not checked the site. Your replies have made me laugh so hard! I can relate to them all. I had no idea that so many of us had the same problem!

I did bring this up to my oncologist at my last check up and he is having me get a skin scraping by a dermatologist as the itching is only in an area that is red(but not from scratching) and is just below the mastectomy from the cancer side. The other mastectomy is not red and does not itch. He is a very cautious doc and checks out all my concerns. I will let you all know what they find.

Laurie

Posted in: Tests, Treatments & Side Effects + Breast Prostheses and Reconstruction Alternatives, Created: Aug 27, 2007 08:45 pm

Itching

I have not seen this in the forum so I thought that I would ask if anyone else is having this problem. I am 2 years out from my bilateral mastectomies and my chest (where the scars are) is getting more itchy and sensitive. It is particularily sensitive after 10+ hours in my bra. I do not have any kind of a rash or skin irritation. Almost feels as if nerves are coming back in the area. Anyone else having this happen? (I have had a CT and MR scan recently so I know that nothing bad is brewing in the chest wall.)
Posted in: Tests, Treatments & Side Effects + Breast Prostheses and Reconstruction Alternatives, Created: Aug 27, 2007 08:39 pm

Help! What to wear?

Also needed a strapless bra to wear with an evening gown for a formal occassion. I went to Nordstroms in tears with dress in hand. The woman who does the prosthesis fitting spent a while with me and found a beautiful strapless bra that worked and they put the pockets in it for me for free. I have worn the bra many times in the summer and it has solved so many problems with summer shirts and dresses. As it is getting a little less supportive-I have used it so much- I started putting my lighter foam forms in it and it is much cooler in the hot weather.
Posted in: Tests, Treatments & Side Effects + Breast Prostheses and Reconstruction Alternatives, Created: Aug 27, 2007 08:32 pm

Another bathing suit/swimming dilemma

I know that you have had lots of replies on this topic, but I thought that I would add another few items. I do a lot of long distance travel on my motorcycle and have had to stuff the amoena forms in with clothes many times. When on the road for weeks I wear my "good" non swim forms and pack cheap foam ones as they can just be squished in the saddle bags. Many days it is too hot to wear any forms and all four are in the bags. I seem to have real problems with overheating with them on and frequently do not wear anything. When I only had a single mastectomy (rather than the double) I wore my silicon swim form in both my suit and bra, then I only had to bring one. Since I was a double D it was darn tough to go without a form. I have down sized to B's so the forms are much smaller.

The forms seem pretty durable and have survived for two years without ever "living" in their boxes.
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Aug 12, 2007 08:51 pm

Diep Locations

SamEyeYam,
Thanks for the information. I will check that out. My insurance is fairly good-Uniform Medical (WA state retirement system) just does not recognize that the DIEP is different from a Tram or implants- pays the same for all three. Good luck with your surgery!
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Aug 11, 2007 08:59 pm

Diep Locations

I am not familar with the PS at Virginia Mason. Who is it?
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Aug 2, 2007 08:14 pm

Diep Locations

Thank you for all your responses. I have been to all the sites before and found them so useful. I did see Dr. Isik and very much liked him and he has a good success rate. My insurance would only pay him 1/3 of what other insurances pay so I cannot blame him for not accepting mine. I will just need to pay the rest of the amount. I would love to hear from any of you who used him and how you like the results. There is also a new PS at Seattle Cancer Care Alliance at the UW that is now doing the Diep. Anyone use him (he takes my insurance, but he is soooo new)?
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Aug 1, 2007 10:03 pm

Diep Locations

I keep reading that many of you are having your Diep reconstructions in NOLA. Which of the two clinics are you all going to? Also, who has had their Diep in Seattle and how did it work out? I have seen the Seattle surgeon that does lots of them, is very nice and has a great record, but he does not take my insurance for his fees (the hospital and all the rest will be covered). I am beginning to check out other locations to see if I can get the out of pocket amount down, but still have quality and experience. Sorry for all the questions here, but I am driving myself nuts with all of this and my insurance company will not tell me who is a provider for Diep- they just give me a massive list of "approved plastic surgeons" and tell me to call them.
Posted in: Connecting With Others Who Have a Similar Diagnosis + ILC (Invasive Lobular Carcinoma), Created: Jul 30, 2007 03:40 pm

Support for Bi-Lat

Marsha,
Hope that your discussions are going well. I was stage III 8 months after a clear mammogram. Needless to say, I was not very trusting of their ability to find another ILC in the other breast. My oncologist and surgeon assured me that they would monitor me with yearly MRI's and find anything new at a much earlier stage. I wanted to do both at once, but I was not 100% sure so they suggested that I do one, get through chemo and rads and then do the 2nd if I still felt that way. After treatment I found that I did not like having just one breast and worried about having to go through treatment again if anything happened. My oncologist and surgeon said both reasons were fine with them and scheduled the surgery (insurance paid). I have not regreted it at all as I was so asymetrical. I sleep a whole lot better not having the breast and not worrying about it anymore.
Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Jul 30, 2007 02:59 pm

Is losing weight while on HT at all possible?????

I have been on Arimidex for one and a half years and gained 15 pounds. I have finally stopped the gain and have lost 6 pounds with a drop of an inch in my waist. Don't give up! I was so discouraged, but just kept at it. I am walking 30-35 miles a week (training for the 3 Day), doing some weights, eating more protein and vegetable and minimizing simple carbohydrates. I still eat cookies and chocolate, but in moderation. At first I felt that this was hopeless, but I am finally seeing some change. Don't give up, I think that we just are never going to be able to easily get rid of the middle, but with time, it should get better. I have set a goal to be down the 15 before I do reconsstruction (I am going for bilateral DIEPs).
Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Jul 22, 2007 09:53 pm

Arimedex

Dear Grandma3,
I want to echo what Tender said to you- get the symptoms of the cough and weight checked out. Your oncologist needs to be more sensitive about all of this as it is very life changing- we are in our 60's, but these sympotms are well beyond age related. I am 60 and also on Arimidex and have the same side effects. Gained 15 pound, trigger finder, carpal tunnel, and stiff most of the time. I have upped my walking as I am training for the 3 Day walk (30+ miles a week). All the walking, and changing to a low fat-higher protein and veggie diet, and doing strength training has reversed the weight gain and I have lost 5-7 of the pounds. I did have carpal tunnel surgery and have to get shots for the trigger finger once in a while. My other symptoms did totally reverse for a few months (I did not stop the Arimidex or switch to a different drug), but are now right back to where they were before. I also feel, as some of the other women stated, that the aromatase inhibitors are really helping us stay alive and the pain is the price that we pay. I wish that we did not have to paid it, but it is our best chance. Best of luck to you, you are not alone and it is not the age!!!

Laurie
Posted in: Tests, Treatments & Side Effects + Breast Prostheses and Reconstruction Alternatives, Created: May 30, 2007 09:58 pm

airline security and silicone, uh, body parts?

Had a very funny experience going through a check point while riding my motorcycle back from Cabo in Baja California. The young armed guard asked me to open my saddle bag then step back. I had decided not to wear my prosthetics that day as it was very hot and had placed them neatly, nipples up, under a fleece. He pulled the fleece off and just about fainted. He stepped back and told me to close my bag and that I could go. He walked over to the other soldiers and talked with them- they all just stared at me as I put on my helmet. My husband and friends continued to have every inch of their bikes searched. When we all gathered up a few miles after the check point we all had a good laugh!

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