Member Since: July 31, 2006
Last Login: November 15, 2008
Location: rochester, ny
Occupation: ballet teacher
| Diagnosis: | Dx 7/31/2006, ILC, 6cm+, Stage IIIa, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
| Diagnosed: | July 31, 2006 |
| Type: | Invasive or Infiltrating Lobular Carcinoma |
| Recurrent? | No recurrence |
| Metastatic? | No |
| Stage: | Stage IIIa |
| Lymph Nodes Removed: | 3 |
| Positive Lymph Nodes: | 0 |
| Tumor Size: | 6cm or larger |
| Tumor Grade: | Grade 2 or medium grade |
| Hormone Receptor Status: | Tumor has both estrogen and progesterone receptors |
| HER2/neu Status: | Tumor does not have an excess of HER2/neu receptors or genes |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + ILC (Invasive Lobular Carcinoma), Created: Nov 1, 2008 02:00 pm
Not sure what to dolee-ann... thks so much. i have an appt on tuesday. i have recently read some internet articles about lobular bc going to the colon more often than was previously thought because it is so difficult to detect from the pattern that it goes. (single file and flat) i have zero pain but def blood after wiping and also around the stools themsevles. any advice is appreciated1 marianne Dx 7/31/2006, ILC, 6cm+, Stage IIIa, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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Connecting With Others Who Have a Similar Diagnosis + ILC (Invasive Lobular Carcinoma), Created: Oct 31, 2008 03:54 pm
Not sure what to dohi ladies, does anyone have mets from ilc to the gastrointestinal or colon mets? i have blood on my "wipe" bright red, blood around the stool and frequnecy in movements. i have a appt this tues with the doc (colon) but i am VERY anxious to hear from anyone out there? please reply to my email or here...mreilley99@hotmail.com thanks so much marianne Dx 7/31/2006, ILC, 6cm+, Stage IIIa, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 31, 2008 03:51 pm
I'm Worried!hi ladies, i am worried also! i am a ILC almost 2 yr surv. stage 2B...lymphovascualr invasion but neg nodes (3). my question for anyone out there having mets to colon from ILC and /or IDC? i have blood in my stool, feeling of not emptying completely, bright red blood on the "wipe". i am seeing my colon doc this coming tues but i want to know if anyone of you have had mets from gastrointestinal /colon,etc etc. thank you so much . please if you could reply here or my email that would be great. mreilley99@hotmail.com marianne Dx 7/31/2006, ILC, 6cm+, Stage IIIa, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Sep 20, 2008 09:03 pm
September Reconstruction Ladieshi gurlie girls! i am feeling really good!!! i had a fill over a week ago..60cc's and the weekend was tough but since this past monday i feel terrific! marianne Dx 7/31/2006, ILC, 6cm+, Stage IIIa, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Sep 12, 2008 12:39 pm
Latiss Dorsi withOUT back incision?i am a professional ballet teacher -former dancer. my doc did not recommend any type of lat dorsi or tummy flaps because you will def loose range of motion and muscle tissue. i amm thin, goes with the job, and not willing to have any muscle taken from me. i just had the tissue expaders placed last week and a fill yesterday. he said my muscles (pects) were way above the average person having gone thru chemo and rads..so glad i am doing it this way! good luck to you. marianne Dx 7/31/2006, ILC, 6cm+, Stage IIIa, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Sep 12, 2008 12:34 pm
September Reconstruction Ladieshello all, hoping you are all surviving IKE and surgary. finally after 6 days i am feeling human and yesterday to my surprise i got 50ccs! only one week out of surg and i already am getting the fillers! he did drain 20ccs from my "good" side as the needle was withdrawing he was able to hit a pocket of seromna fluid. i took advil, one muscle relaxer and slept 12 hours...i feel just the pressure but definately no pain! i am on my way to looking 20 again! they are so "upright"..i cant stop touching! amazing how i appreciate them from being concave for the past 2 years!! now i understand how people get addicted to plastic surg! marianne Dx 7/31/2006, ILC, 6cm+, Stage IIIa, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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Connecting With Others Who Have a Similar Diagnosis + ILC (Invasive Lobular Carcinoma), Created: Sep 10, 2008 03:57 pm
How many of you actually had a palpable lump?i had thickening of the breast tissue which "they" said was normal for age. ok..so then i wake up one day and there was clearly a lump at 2:00. it felt like a sebacous cyst. a year later it was finally correctly dx and here i am today 2 yrs out of bi lat mast-chemo-rads..and one week ago i began the processof recon with surg for tissue expanders! i feel very fortunate that i survived it all! marianne Dx 7/31/2006, ILC, 6cm+, Stage IIIa, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Sep 10, 2008 03:25 pm
September Reconstruction Ladiesi hear you !!!! i am in so much pain until today ..but i just took another vicodan. they feel incredibly awful. i cant believe i wanted to do this! i look black and blue and yellow ...i feel so much worse on the inside that it looks on the outside. marianne Dx 7/31/2006, ILC, 6cm+, Stage IIIa, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Sep 10, 2008 03:21 pm
September Reconstruction Ladiesit has been one week since the expanders were placed....today was the first day that i could take advil (4) of them and it kept the pain at bay. i go tomorrow for my first post op check up. he didnt put drains in on me and my right side is so filled with fluid i cant believe it..did anyone have any fluid drained in the office...this is seranoma fluid not expander fluid! he started with just 50cc's in the expanders. i am so glad it wasnt more. i am very thin and kind of hollowed out on the cancerous side..i can feel the expanders kind of moving when i bend forward and even when i get up off the floor. ( i am a dancer-ballet) teaching was horrendous yesterday between the pain from the expanders and my incredibly ridiculous hot flashes. i look as if i just walked out of the shower without rinsing off. yup..i take effexor but it doesnt really help me unless i am sleeping or inmobile...my occupation prevents me from that last one! any advice ????? marianne Dx 7/31/2006, ILC, 6cm+, Stage IIIa, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Sep 4, 2008 03:53 pm
September Reconstruction Ladieshi all....surgery for placement of expanders was yesterday. i am in alot of discomfort today. i was able to double up on my vicodan and flexeril along with the marcaine pain pump...but i am surprised at how sore i am.. everything went well and it looks good under this girdle they call a bra! hope all is well...any advice for me???? anyone!! i welcome whatever you can tell me from those who have had delayed recon with tissue expanders.blessings, marianne Dx 7/31/2006, ILC, 6cm+, Stage IIIa, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Aug 15, 2008 07:37 pm
September Reconstruction Ladiesthanks for the insight on the recovery time. if anyone else has had tissue expanders please let me know how you faired. i had a bi lat mast 2 years ago so this is a delayed recon. i am wondering also if i will experience the same kind of pain that i had for the bi mast as far as the swelling, pain , drain tubes, mobility of my arms...etc etc. i am a college ballet teacher and i am hoping to be back at it ..no jumps .. that i know! but i do need to be able to move around and teach...how do your arms fair??? my ps says i will feel great after just one week.... marianne Dx 7/31/2006, ILC, 6cm+, Stage IIIa, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Aug 14, 2008 04:43 pm
September Reconstruction Ladieshello ladies..i am schedule fro expanders on 9/03. i am wondering how long EXACTLY is the recovery time from just that surg. my plastic said 48 hours of no driving and then only 1 week before i would be able to do stuff..is that true for those of u that have had expanders after bi lat mast ...i am doing delayed recon ..all finished 18months out of chemo/rads/bi lat. thanks so much for your help! marianne Dx 7/31/2006, ILC, 6cm+, Stage IIIa, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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Recovery, Renewal, & Hope + Prayers and Spiritual Inspiration, Created: Aug 14, 2008 04:37 pm
Please Pray For Ctgwe are here for you mo!!! ctg was the best and i never even met her ...i can only imagine what an amazing sister ctg is now and forever! thinking of you and ctg..and your mum too. mreilley99@hotmail.com marianne Dx 7/31/2006, ILC, 6cm+, Stage IIIa, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Jul 3, 2008 07:40 am
Bottle 'o Tamoxifenhi all....i have been on tamox for a year and 1 month...my last period was during chemo...i wasnt in meno pause but possibly perimenopause. my question is ..have any of you had any spotting or break thru bleeding while on tamox? i was having symptoms of a period ..low back ache, cramps, then minor spotting. i am curious as to what it could be? any thoughts? marianne Dx 7/31/2006, ILC, 6cm+, Stage IIIa, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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Connecting With Others Who Have a Similar Diagnosis + ILC (Invasive Lobular Carcinoma), Created: Jun 23, 2008 07:47 am
Age at diagnosisnash, i was 48 at dx..no history in family, not overweight,never smoked, non drinker..highly er/pr pos her2 neg. marianne Dx 7/31/2006, ILC, 6cm+, Stage IIIa, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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Connecting With Others Who Have a Similar Diagnosis + ILC (Invasive Lobular Carcinoma), Created: Jun 10, 2008 07:29 pm
ILC and IDC DXditto to the above comment...i had ilc and idc....so far so good,....18 months out! marianne Dx 7/31/2006, ILC, 6cm+, Stage IIIa, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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Connecting With Others Who Have a Similar Diagnosis + Second or Third Breast Cancer, Created: Jun 10, 2008 07:58 am
BC to liveryes gracie i am ned .my onco wants to do another cat scan in the near future but i have zero symptoms. which is great adn elads me to believe that they r just hemo cyst...if it were liver cancer we would feel much sicker ,naseus,losing weight etc. so even though i am not the doc i think u r good! keep me posted! marianne Dx 7/31/2006, ILC, 6cm+, Stage IIIa, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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Connecting With Others Who Have a Similar Diagnosis + Second or Third Breast Cancer, Created: Jun 8, 2008 08:00 pm
BC to liverwhen will you get your results gracie? another ?- have you recently lost weight or have been nauseuos? marianne Dx 7/31/2006, ILC, 6cm+, Stage IIIa, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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Connecting With Others Who Have a Similar Diagnosis + Second or Third Breast Cancer, Created: Jun 6, 2008 10:16 pm
BC to livergracie, did you have lesions prior to finding these 3 new spots? marianne Dx 7/31/2006, ILC, 6cm+, Stage IIIa, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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Connecting With Others Who Have a Similar Diagnosis + Second or Third Breast Cancer, Created: Jun 6, 2008 10:15 pm
BC to livergracie, did you have lesions prior to finding these 3 new spots? marianne Dx 7/31/2006, ILC, 6cm+, Stage IIIa, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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