hi5-2006Aug13

I have the brca gene and had bilat/prophylactic in May 2006...because of family history. Found out about the gene this year... am scheduled to have an ooph and hyster in Sept. My sis has the gene and had ooph...all three of her daughters have the gene as well. My daughter also has the gene and will have an ooph. Here in Vancouver there is a high risk clinic for those with the gene so do not need to have mast. It is the risk of ovarian ca that is the scariest for me.

Wow!!! it's interesting to hear people's stories. I have had so many times that I forgot things too... Locking car and leaving it running with radio on, leaving for out of town and forgetting my wallet, leaving purse at home etc. etc. I have been taking a course ( keeps my mind off bc) but it takes me forever to get my assignments done. I spend hours on something that should take one.... I am on disability...have been for 15 months now... will stay on for some time longer since having further surgery. I had a bilat with expanders in May 2006, rads, on tamoxifan, effexor, synthroid ( now have hypothyroid) and have noticed my bp is usually extremely high.... I have the brca gene so am having an ooph and hyster in Sept. and then will have further surgery on my reconstruction when the approval has gone through. My job is teaching an extremely high risk group of high school girls and it is a new position..just don't know when I will be able to deal with that....
Glad I found a group that discusses 'brain dysfunction'...
( hi5 from chat)

cass: I tested postive for the brca gene and will be having an ooph and hyster in September. ( I was dx'ed with bc in May 2006 and had bilateral mast.) My daughter was also tested and has the gene as well. The clinician at the hereditary clinic said that if the mother does NOT have the gene she cannot pass it down to her children and if she has the gene there is a 50-50 chance of children getting it.

Sherl: so sorry to hear of your nephew's passing. I am sending prayers and hugs to you and your family for your strength.

hi5 ( chat)

Yes Sherry... how true that is...by praying and hoping for others it takes ourselves out of our own grief and sadness for awhile.
S

Please pray for Beckie...she is in labour with her triplets. 22 weeks...doctors are trying to delay labour. If she delivers now they will not make it.

Interesting thread...I have often thought of selling on E-Bay... for those of you who have sold what types of things have you sold? what items are most popular on e-bay? I look forward to hearing all sales stories. ( Hi5 from chat)

I've heard that flaxseed oil is not good for you. because of the contraversy on flax I gave away my new bag of ground flax seeds. It's so confusing... what should we stay away from if we are ER/PR+ and on tamoxifan?

After I had my bilat mast I had to have rads...my reconstructed breasts are much smaller than my original ones...apparently because they have to go with whatever size fits the radiated side. I am not happy with the size and was hoping to be a little larger..oh well

Iam the third of 4 sis to have bc... we are not aware of any prior family history. The first sis to get bc died at 32, the next was dx'ed at 45...she would not have genetic testing done at that time but, when I was dx'ed last year she had the genetic testing done. She tested brca+... her three daughters 9 in their 20's) all tested positive for the gene as well. I tested positive and so did my daughter.
Appaently if the parent has the gene the kids have a 50-50 chance of having it...we are sure batting 100% with our daughters. I am scheduled for a oomph and hyster in Sept. and my daughter will have the oomph.
I am glad I had the bilat. last May