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Member Since: August 17, 2006
Last Login: November 16, 2008
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Recent Posts by elf146

Posted in: Connecting With Others Who Have a Similar Diagnosis + Triple Negative, Created: Nov 16, 2008 06:32 pm

What does a complete repsonse to chemo mean for our survival?

I also had a complete response to Chemo.  I had Chemo first.  1-AC that put me in the hospital with heart issues.  I have AFIB.  Was in the hospital 3 nights.  Oncologist changed my treatment to CMF x 5.  To taxol due to heart issues.  Then had a breast MRI and no abnormal cells found.  Had a wide excesion lumpectomy ( 2 places had lit up on the original PET scan) with sentinel node biopsy.  No cancer cells in any of the tissue taken. Than had 33 radiation treatments as insurance.  Diagnosed Aug. 2006, finished treatment April 2007.  I have scans every 6 months, and so far so good.  I also was triple negative and am considering a BRCA testing.

Posted in: Connecting With Others Who Have a Similar Diagnosis + Triple Negative, Created: Oct 12, 2007 09:24 pm

Triple Negs-Need your help!

I had chemo first, 1 treatment of AC which put me in the hospital with heart issues, then 5 treatments of CMF.  This was last fall.  After done with chemo, had an MRI and showed no abnormal cell.  Had a wide excision lumpectomy and node biopsy.  None of the tissue taken had any cancer cells in them.  Originally tumor was 2.5 cm.  The chemo first really worked for me.  After 2 to 3 treatments, could not feel lump any more.  I finished treatment with radiation in March and April this year and now can just keep my fingers crossed.  I do know the chemo worked, but will never know what stage I was due to chemo first.  My turmor was grade 3.

Best of luck to everyone.  I feel great now and go back for a PET scan in two weeks.  Hugs and prayers.  Eva

Posted in: Connecting With Others Who Have a Similar Diagnosis + Triple Negative, Created: Jul 25, 2007 03:21 pm

Poll regarding how us Triple Negs found our tumor

I found mine last July. I was walking across my back yard and felt an itch, so reached under my blouse to scratch it and felt the lump. Like everyone else, I am surprised I didn't find it before as it was quite large and I could see it in the mirror after that. Mine was about 1:30 high up in my right breast. I was due for yearly in Aug.
Posted in: Connecting With Others Who Have a Similar Diagnosis + Triple Negative, Created: Jul 25, 2007 02:38 am

Follow up scans for early stage

I feel the same way, however, my Onco has me on a schedule that I like. I to am triple negative, grade 3. I will have a CT scan and a bone scan every April and a PET scan every Oct. Also my radiologist is having me do a mamo every 6 months in July and Jan. This gives me some comfort that they are being pro active.
I really hope and pray they find something us triple negatives can do or take besides just wait and see.
My father's siblings (8 total) 6 had some type of cancer and most of them had it twice. It did come back someplace out. only two with breast cancer. My dad had lung cancer the 3 years later a brain tumor that took his life.
Sure I'm scared, but try to just live one day at a time. I just recently have been able to make myself plan for vacationa and a future with possible retirement.
The whole cancer thing and being triple negative had been very hard mentaly to deal with.
I read these boards every day and they sure are good for me. I finished my treatments in April. Had chemo, CMF x 6, surgery then rads. Feeling fine right now and pray I can stay that way.
Posted in: Connecting With Others Who Have a Similar Diagnosis + Triple Negative, Created: Jul 2, 2007 05:28 am

Resistant tumor

Lauri; I know how you feel. Deep down I am not the same either. Always a little thought in the back of my mind that it will come back.
I had chemo first and it did shrink my tumor to nothing. Had breast MRI and nothing showed, then had wide excision lumpectemy and sentinel node biopsy and no cells left. Than had radiation (33) for insurance, so feel I have done all I can. The rest is up to someone higher than me. I still worry about it.
Everyone keep up the spirits, you are a great bunch of very brave ladies. Eva
Posted in: Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Nov 28, 2006 01:13 am

CMF Question

Bayore; Glad your first treatment is out of the way. I think it is the worst because we are scared and don't know what to expect. I have always had a small problem with constipation, so nausea meds really mess my system up. I use Senekot S and sometimes take 2 in am and 2 in pm for a day. Really works, but causes me some stomach pain, but at least get the relief.
The crying is normal. I have spells where I cry for no logical reason. Guess it is all the drugs in my body, but don't like it. Don't like to be out of control, but it always passes after a couple days.
Remember, Pop Cycles count as liquid to and sometimes really taste good.
Hang in there, you can do it.
Hugs and prayers to all.
Eva
Posted in: Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Nov 26, 2006 11:34 am

CMF Question

Hi all, I'm back! Had a few rough days after this my 4th one. Was lethargic and cried easily. Don't know what was with that. I cried and slept for 2 days. I'm off the nausea drugs now and feel much better. Still tired, but tired I can live with. Will be so happy when all 6 are over with. This was number 4 so 2 to go.
Hope you all had a good Thanksgiving. We had a quiet one, but that is what I needed.
Hugs and prayers to all. Take care and hang in there.
Eva
Posted in: Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Nov 22, 2006 03:54 am

CMF Question

Hi all;
Just checking in. Had #4 of 6 yesterday and was pretty much wiped out yesterday evening. Today still tired and go back for hydration and nausea meds. I have been very lucky and kick back to pretty much norman in a few days.
Just wanted to wishyou all a Happy Thanksgiving.
Hugs and Prayers; Eva
Posted in: Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Nov 2, 2006 01:53 am

CMF Question

Thanks to all for the good wishes for my Chemo Tuesday, two days ago. It went very well. Other than a being tired and sleeping a lot, I feel good at this point. I am now half way thru with CMF. This was my third out of six. I will certainly be glad when it is done, but so far it is very doable for me.
I'm not sure what me next step will be. My oncologist decided to do Chemo first due to my cancer being very agressive. The lump was large and visible to me in the mirror. Now, I can not find it, so know the chemo is working. Oncologist said we would take on step at a time. After the 6 chemo, she will have a scan done and see what to do next. I did loose my hair as my first Chemo was A/C which landed me in the hospital, so was changed to CMF. CMF is thus far so easier on my body.
Hugs and prayers to all on this board and thanks for being there. Very nice to have a place to go to vent or receive understanding. I am going to try to work a half day today, my boss is being very good about flex time, I am so lucky to have great co-workers, family and friends. Also This has brought my husband an I closer togeter again. You know after 40 years you start to take each other for granted, and now we have more appreciation for each other. He has been so good to me and understanding.
Thanks for listening.
Posted in: Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Oct 28, 2006 12:39 pm

CMF Question

Hi ladies;
Tue. I go for my 3rd treatment of CMF. Wish me luck. Hope is goes as well as my last one did. This weekend I have not felt real great, so have rested a lot. Guess that is what I need.
Hugs and prayers for everyone. I know I have a long way to go and having Chemo for the holidays is not a great way to spend holidays. My next one after Tue. is the Tue. before Thanksgiving. Guess Thanksgiving dinner will not be quite the same this year. Oh well, we do what we gotta do.
Hugs and prayers for all.

Eva
Posted in: Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Oct 20, 2006 03:32 am

CMF Question

Hi All
Glad to find this thread. Have been on the other Chemo board and you are right, most are on A/C so hard to relate.
I am having Chemo before surgery to try to shrink the tumor and it is working.
I first started with A/C and after the first treatment I ended up in the hospital for 3 days. I have AFIB and the A/C made it kick in very bad with heart rate over 170.
My oncologist then changed me to CMF and have had one treatment and so much better. No big issues for me. Compared to A/C, I am doing fine. I was scheduled for 4 A/C, but have to do 6 CMF and she counted the first A/C as number one so now only 4 to go. Next one on Halloween. I will finish #6 the first week of Jan., than don't know what is next. Dr. said they would do a scan and take one step at a time.
I can tell my lump has shrunk by at least 1/2 already. It is amazing.
So glad to find you all as like I said, I felt lost on the other board with everyone on A/C. So far with CMF my blood counts are fine.
Thanks to all for all the posts, I have read every one of them and you all are great.
Hugs and best of luck to each and everyone of you.
Eva
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Oct 17, 2006 02:56 am

Starting chemo in Sept. 06

Zuni, that was beautiful. I was talking with my husband last night about how this has actually brought us closer together again and makes us appreciate each other. The small things are so much sweeter now, like a kiss a hug, a kind word or a smile. This has really brought my awareness of the small things to a new level again and makes me appreciate each day.
Ladies, I can tell you that the chemo really works. I know it is hard to go thru, but mine is working. I am the one doing things backward. I had a very fast growing type of b/c and am triple neg. For the few weeks between biopsy and starting treatment, the lump really grew. I could tell and feel it getting larger. It would ache. I have had one A/C treatment and one Cytoxin plus CMF treatment and I can tell by the feel that it stopped growing about a week after the first treatment and it is now about half the size it was. I am hoping it will shrink enought for a lumpectomy, and it looks like to me it might. My family Dr. said fast growing means fast dying and I believe. If mine is any indication, I believe in the chemo. It works!! It will wipe out any cells that might be floating in your body.
My second treatment with Cytoxin and CMF went very well. No bad side effects as I had with A/C when I ended up in the hospital with heart problem. I am so glad there are options for the drugs. I do have to have 6 treatments instead of 4, but I feel I can do it and will have my last treatment first week in Jan. if all goes well.
You ladies are all so great and strong. My husband said he don't know how we do it, he thinks he would be such a baby and not sure he could do it, but I said you find the strength to do whatever you have to do. There are really no choices.
Good luck to all of you as you near the end of your treatments, you have all been a real source of strength for me, especailly the ones of you with small children to care for also.
Hugs, Eva
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Oct 12, 2006 02:59 am

Starting chemo in Sept. 06

GOod Morning Ladies; Have waited a few days to post. Had my second chemo session Tue. The oncologist changed the Adriamycine in the A/C to a different type of chemo drugs called CMF. Anyone else ever have CMF? It has made the difference of night and day so far. No nausea so far, but being sure to take the meds. I feel completely different than I did with the Adriamycine. I don't think I will end up in the hospital this time for three days, thank God. I just hope the drug works as well. The CMF is really 3 drugs in 3 different bags to infuse. I can actually tell now that the lump is actually shrinking. I am so happy. Maybe I will be able to get by with a lumpectomy after all. So many things to be thankful for. So thankful that there are drugs and Doctors that can cure now. 30 to 40 years ago, they did not have a chance. The only draw back to doing the CMF is that I now have to do 6 rounds instead of 4. Oh well, if all goes as well as this time, I will be happy. Just tired, but can deal with that.
I am glad it seems like you are all copeing well. I know we all have our bad days, but with all the support on this board, and from family and friends, I am sure we will be fine.
Karen, so glad the baby is doing well, what a blessing. I have five grandchildren and they are each so special.
I had my hair buzzed off last Sat. and I also use the lint roller. Works for me.
The Biotene works well for me. Use it after each meal. Also use salt water once in a while.
I want to say thanks to everyone on here for sharing. You are all the most brave, caring people I have ever met. Later
Eva
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Oct 9, 2006 02:48 am

Starting chemo in Sept. 06

Helen, sorry you had to join our group, but welcome. The people here are great. So much support and love. Glad your first two treatments went well. Hope the rest do also.
Good morning all. Hope everyone had a good weekend.
Later, Eva
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Oct 8, 2006 02:48 am

Starting chemo in Sept. 06

Good morning all Sept. sisters. I have a a good week and am having a good weekend. I feel fine except my eyes get tired very easy and want to stay closed.
I wore my wig all last week and everyone said they liked it. Some customers didn't even notice. People say it looks like my own hair. Don't know if they are just being nice or what.
I had my hair cut short, about 1/2 to 1 inch last weekend by my hairdresser. She also put my wig on and styled it a little bit. My hair really started coming out about Wed. I too got tired of it being everywhere even if it was short, so yesterday we were at a friends house. He wears his hair buzzed off looking bald, so he buzzed mine for me with the clippers. Looks funny now with no hair, but at least will not find if all over the place. I don't like to look at it, so am keeping my head covered with at least a scarf for now.
Tuesday I go for second round. Not looking forward to it, but glad for the good week and weekend. Since I had a problem with my heart, AFIB, last time, the oncologist changed one of the drugs, so don't know how I will react this time. With the new drug, I now have to do 6 sessions instead of 4 so will not finish till first part of Jan.
Sounds like everyone is doing pretty good. I just sometimes get down as it seems like such a long journey. I guess this time next year we will all look back and think it was all worth it. Not wishing my life away, but hope the next few months go quickly.
Hang in there everyone and hugs to all.
Eva
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Oct 1, 2006 09:02 am

Starting chemo in Sept. 06

I'm glad I stopped by also. Hugs to all of you that are having a hard time right now. I will keep you all in my prayers. I know cancer seems like a life time sentence, but this time next year, the worst should be over with.
I am feeling much better than last weekend, when I ended up 3 days in hospital. I am very thankful for any good days I have. I worked 3 days last week and hope to work all 5 this week, then a 3 day holiday weekend, then Chemo on Tue. the 10th.
Yesterday I went and had my hair cut VERY!! short and wore a wig home. The wig is hot so I hope I can stand it at work. I work where the public can see me, so hope I can stand the wig. If not, oh well, I will go to scarves. I don't look as bad as I thought I would with really short hair.
Good luck to all those that have chemo this week, hope it gets better as time goes on. My next one will be number two. I get every 3 weeks.
Hugs and prayers to each and everyone of you Sept. sisters. What a great group.
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Sep 29, 2006 02:42 am

Starting chemo in Sept. 06

Good Morning All;
Haven't been here if several days. My first treatment was on Tue. week and half ago. Wed, Thur and Fri were off and on. Never really felt good. Lived on ice chips a couple days. Sat. another condition I have called AFIB (an electrical problem with the heart which I have normally every 2 to 4 weeks, but am able to funtion) kicked in a 8am and really kicked me. It was the worse episode I ever had. At 2pm I decided to go to the ER thinking they would give me a couple shots and send me home. Also had started running a temp of little over 101. I was wrong. They admitted me Sat. night and did not let me go till Tue. afternoon. At least by then I felt much improved. My heart converted late Sat. night, then I started to mend. Am still a little tired, but feel real good now.
I go see my oncologist next week and hope she figures out how to not have a repeat.
You are all so great on here. Have read all the posts that I missed and boy have we had lots of new members. Would be nice to know how many of us there are. Maybe this weekend I will try to count.
I am going tomorrow and have my hair cut off and start wearing my wig and scarves. I prefer to control when my hair goes and not wait until it starte falling out in clumps.
Best of luck to all the September sisters, you are the best. My thoughts and prayers go out to all of you.
Lots of hugs;
Eva
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Sep 21, 2006 02:16 am

Starting chemo in Sept. 06

Good monring ladies. Went back to Chemo center yesterday for shot of neulasta and bottle of hydration and they also gave a small bag of naseua meds. So far i just have some waves of naseau, but not all the way (if you know what i mean) I hate to throw up and will take any meds possible to not. I have some sugar free mints that I suck on and that seems to help and eat small meals more often to keep something new going into my stomach.
It really has not been as bad as I had made it to be in my mind. Still not looking forward to the next three.
Reye99, so far not side effects from the shot of neulasta. I guess I will get one with hydration the day after each chemo treatment.
Boy was I surprised how many people get chemo. They have 12 chairs where I go, and they are usually all full. I never knew their were so many victims of cancer. Some are far worse off than me and get several different bags of chemo drugs. Makes me appreciat my 2.
Hugs to all, and for those just starting, remember, you can do it. The chemo is the drug that will make you cancer free so it is worth it. Hugs to all and thanks to all for the support.
Later, Eva
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Sep 20, 2006 03:48 am

Starting chemo in Sept. 06

Thanks everyone for the good thoughts and prayers. I made it thru my first treatment of A/C. Only real problem was they draw blood first thru the port to check the counts and the nurst could not get it to draw thru my port. Must have worked 30 to 40 minutes and finally got it. I was thinking, I don't want to have a new port put in, thus one better work.
During last part of treatment, my nose, eyes and front of head were feeling tingly. Felt very fuzzy. Nurse said that can be one of the side effects of Cytoxin (sp). By the time I got home, felt really out of it. Laid on the couch all evening, then went to bed. Woke up with night sweats several times in night and also waves of naseau, but did not get sick. Slept pretty good.
This am so far do not feel any worse than last night. I go back at 9:00 for shot of Neulasta and bag of hydration.
As others have said, it wasn't nearly as bad as my mind had made it out to be. I keep finding mispelled words, so guess the fingers are not working with the mind.
Thanks to all the great ladies on this board, I knew I was not alone and not the only one needing to go this journey.
Thanks again to all for the support.
Eva

So far this am, not feeling any worse thank last night.
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Sep 19, 2006 02:54 am

Starting chemo in Sept. 06

Good Morning; Please keep me in your thoughts and prayers today as I have my first Chemo today at noon. A/C. I am really nervous, but slept pretty good last night. Will catch you all up later when I am finished. Hugs to all.
Eva

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