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CaliforniaKate

Member Since: September 13, 2006
Last Login: October 17, 2008
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Recent Posts by CaliforniaKate

Posted in: Day to Day Matters + Research, News, and Study Results, Created: Sep 1, 2008 04:40 pm

Rexin-G trial

A friends husband has pancreatic cancer, and he is just beginning a trial for a drug Rexin-G. This may be a hope for the future for all metastic cancers. Here's a link that I thought was really fascinating, along with a video. http://www.epeiusbiotech.com/rexin_g.asp       Kate
Posted in: Tests, Treatments & Side Effects + Radiation Therapy - Before, During and After, Created: Jun 5, 2008 06:15 pm

Raw peeling skin what to put on?

I peeled really bad with rads too. It was 5 years ago, and I don't remember what they gave me, but ask your rad doctor or nurse for a prescription. I'm suprised they haven't suggested it themselves. The last 10 days of spot radiation were the worst for me. Be sure to insist they give you something. It will be over soon.  Good luck.

Posted in: Not Diagnosed but Concerned + Waiting for Test Results, Created: Jun 5, 2008 06:06 pm

has this happened to anyone

This happened to a friend of mine. They did a biopsy and it turned out to be an embedded stitch.  Best wishes.    Kate

Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Mar 12, 2008 02:36 am

neurontin for hotflashes?

One thing my pharmacist told me was not to take calcium suppliments withing a couple hours of taking neurontin, as it would keep the calcium from binding.     Kate

Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Mar 1, 2008 04:58 pm

neurontin for hotflashes?

I have a friend who takes neurontin for hot flashes and is really happy with it. She doesn't notice any side effects. I developed a burning mouth pain before Christmas, and finally had it diagnosed as nerve damage, and was put on a small dose of Neurontin a week ago for that. After 2 months of constant pain, and climbing the walls, I now am almost pain free. What a relief. I can't tell you any long term effects yet, but I do notice that it makes me a little sleepy, and very CALM. Things that would drive me nuts before, now don't. I'm taking 300 mg. twice a day. I'm really curious about other side effects people are having.      Kate

Posted in: Day to Day Matters + Family Issues for Those Who Have Breast Cancer, Created: Feb 18, 2008 09:31 pm

Mother passed away, looking for coping help.

Jamie, the local hospital in my area has a Grief Support Group. You might start by contacting some hospitals in your area, and ask if they offer one. Also, call the oncologist she had. They may know of a group. My heart goes out to you and your sister.     Kate

Posted in: Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Feb 16, 2008 11:20 pm

any thoughts on milky discharge and lump?

You can always get a second opinion if your surgeon doesn't want to follow through with your lump. Hopefully it is nothing, but it's always better to check these things out.   Kate

Posted in: Tests, Treatments & Side Effects + Radiation Therapy - Before, During and After, Created: Feb 8, 2008 10:12 pm

ITCHINESS - 4 MONTHS AFTER

I had quite a bit of iching for quite a while after rads. I was told it was normal and would eventually go away. It did. But definitely ask when ever you feel something different, just to be on the safe side.

Posted in: Tests, Treatments & Side Effects + Surgery - Before, During, and After, Created: Jan 20, 2008 08:43 pm

Feeling pressured to have lumpectomy instead of mastectomy

Hi, it's been 4 1/2 years since I had a lumpectomy with a stage 1 tumor, about the size of yours. Also rads for 7 weeks. My drive was only 20 minutes away, so wasn't bad at all. I did burn, but it healed. I'm a D cup, so it didn't make a lot of difference in my breast. One question I would ask if I were you, is that if you have an A cup, is the breast you are saving going to need reconstruction. Also, since you will have to have rads, what kind of reconstuction, if neccesary, will you need. I'm happy so far with the choice I made, but my oncologist gave me a really important piece of advice. He said to really think out my decisions, know my facts, and then don't look back. (sometimes hard to do).  Don't let anyone pressure you. Take a little time if you need it, to be sure of your decision.  Wishing you all the best.   Kate

Posted in: Tests, Treatments & Side Effects + Surgery - Before, During, and After, Created: Jan 5, 2008 01:13 am

scared!

I had a wire guided lumpectomy first, and then two weeks later had an axillary node removal, all neg.  I did have a drain for that. The drain was actually what I feared the most. The thought of it had me freaked out. Turned out it was uncomfortable (probably because of the node removal), and a little inconvenent, but not bad at all. I have a 40 pound dog who sleeps with us, and I was afraid he would be a problem, but he seemed to sense there was something wrong, and it worked out fine. The day of the surgeries I was suprisingly calm. The hardest part was waiting for the results and for treatment to start. You've got great support here. You'll be in my thoughts on Friday. Hang in there, you'll be home before you know it.  Kate

Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Dec 19, 2007 03:29 pm

Results on CYP2D6 Test

What I find disturbing is that Terry and I both had our tests from DNA direct, both contacted councilers, and both got different responses. Terry was told her *4 was reduced. I was told mine was null. Everywhere I have checked online also says *4 is null. Can someone please post a site that says it is reduced?  I was *4/*41. A null and a reduced. Here is my reply from a counciler at DNA direct.

                                    It Reads:

Thank you for your inquiry to DNA Direct. DNA Direct and most thought leaders and the literature define a poor metabolizer as someone who has two genes that don't produce an active 2D6 enzyme at all. This is not the case for you. One of your genes, *4, does not produce any enzyme, but your other gene, *41, does produce some 2D6 enzyme, although at a reduced level when compared to a typical 2D6 gene. This fits the definition of an intermediate metabolizer best.

Posted in: Tests, Treatments & Side Effects + Surgery - Before, During, and After, Created: Dec 19, 2007 02:56 pm

Modified Radical and arm pain...ouch!

Vickie, I had a lumpectomy 4 1/2 years ago and I had 15 nodes removed, all neg. The node removal was by far the worse of my surgeries. I was told to exercise my arm so it wouldn't stiffen up on me. They told me to face a wall, and then to slowly walk my fingers up and down the wall. I only did it for short amounts of time, but did it often. I started rads 4 weeks after the surgery, and had to have a full range of motion for that.    Kate

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Dec 18, 2007 09:23 pm

Very advanced B.C.: Diane's final gift.

Brimmer, what a fantastic love you and Diane held for each other. I'm so sorry for your loss.     Kate

Posted in: Connecting With Others Who Have a Similar Diagnosis + Triple Negative, Created: Dec 17, 2007 11:21 pm

Mom wants to give up chemo...

Have you thought about finding a local support group for your mom to go to. Go with her the first time or two, until she feels comfortable on her own. It might do her a lot of good.     Kate

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Dec 15, 2007 10:00 pm

Bimmer, I told Oprah

I think Montel Williams would be a great one to email too.

Posted in: Tests, Treatments & Side Effects + Just Diagnosed, Created: Dec 15, 2007 03:45 am

My rollercoster ride

Merry Christmas. Can't think of a nicer gift you could have received.   Kate

Posted in: Not Diagnosed but Concerned + Waiting for Test Results, Created: Dec 15, 2007 03:36 am

I am loosing it....

jeanette, you are going thru one of the roughest times right now. The not knowing all the facts is awful. We've all been through it, you're not alone. And you've come to the right place to voice your fears. We all understand just what you are going through. I was diagnosed with stage 1 BC 4 1/2 years ago. It sounds like you are getting really good medical care. When all the results are in, you will feel so much better.  Just keep posting.    Kate

Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Dec 12, 2007 09:26 pm

Make-up hints

saluki, I also saw the HSN eyebrow show and am really tempted to buy them. Could you please post and let us know if they are really as good as they looked on TV. She also had a great looking eye liner that looked so easy to use.     Kate

Posted in: Site News and Announcements + Comments, Suggestions, Feature Requests, Created: Dec 12, 2007 09:21 pm

Privacy, Privacy, Privacy!

I was really suprised, last month, when I was googling informtion on my D2D6 results, and came across two posts that sounded like just what I was looking for. But when I clicked onto them, they brought me to my posts at this site. I never realized that anything I would post privately to members here, would turn up on google. A little unsettling?     Kate

Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Dec 11, 2007 03:05 pm

Make-up hints

I was channel surfing a few months back, and saw Lauren Hutton with her makeup line on HSN. My old makeup just wasn't working for me anymore. So I tried some. I'm really impressed with it.    Kate

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