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T_ponytail

Member Since: October 2, 2006
Last Login: December 2, 2008
Birthday: June 6, 1953
Location: CA United States
Occupation: disabled

Biography

I have so-so days, then rotton ones.  I love my artwork and I also scrapbook when when my days are good.  Also have fibromyalgia, RSD, OA and just too many things to list, yes i hate all this, and would love to go back in time.

Use to lead a very active life. Actually been on this board since 2004 when diag.

Had 1st masct 11-04, 2nd 11-05, and 11-06 they found the mets in my hip which onc said "are sleeping" that is BS to me...I hate novembers, hoping this year I will just flip the calander over an extra one.

married, one grown son 25, live in middle of CA..love my family and friends.

only brag about my art work, LOL

had to quit work on a long time job 6 yrs ago due to my fibro, rsd etc.

This one avitar is changing as Im learning how to try to fix long hair, as after being bald 2 diff years in a row, and during winter, NO more, but not too long.  so we have pony tail now. LOL much cooler in this summer heat.

Diagnosis

Recent Posts by Ter

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: 11 hours ago

Questions, Ramble and a pic.

OUR LITTLE PILGRIMHi everyone,

Yes, it's been very long since i have actually written, I have just had TONS of personal ugly issues, my own health, which is why Im also here, and that is rads for pain, who has had rads for pain here?  I am so scarred of this it makes me sick to my stomach, though the pain has gotten so bad, and my energy level is zilch, as I can't eat, and yes I have dropped so much weight and inchesm its not even funny, when i started here, i was a nornal size from 10-12, i always hid any excess weight away due to thats just how my body was, but now Im actually tired of buying smaller clothes, as im down to size 4 and Im keeping going down, and the other day I purchased online my last pair of jeans, as tops, im just letting them hang.

I had to be in court last week, and had a new pair of 4's black cord jeans on w/a velor top on, well the top as i had laid my clothes out the night before and as i was getting dressed, sitting and hanging on to my walker as i keep falling more and nore,  as a couple days ago i was walking up ramp to front door and the screen door opened and my balance fu'pad on me and down I went and hit my head on the stucco wall in outiside entry way, and my walker fell on top of my "good foot", it hurt so bad, and it was the straw that broke the camels back as it really hurt and my neighbors saw and I laid there after whalling a AHHHHHHHH crash then just bawled my eyes out, and didnt have the energy to try to get up...when i could the pain was oh oh!  Thank G*d i knew it wasnt broke just bruised badley, and most of all my pride had just taken its tole....

I dont know what to expect w/rads to the leg/hip, and so very scarred, what should i expect?

The other thing is, is Frank apparently has been having bad headaches, and the dr, did an MRI of his head, and the report came back with that he has a cyst on his brain!!!! and most of you know that for 4 years they told me, yes the same dr who told me year after year that i had a "fatty tissue" within my marble size lump, and back then as we dont or didnt know quite as much as we do 4-5 or more years later.....Im telling him to get a 2nd opinion, and im researching in the web, and yes very scarrred for him.

During my absence i have and still trying to learn to take my BC and mets as number 1, as I had put it on the back burner dudring the past year Id say, and all the other issues as the top of list.

Im very tired, sleepy, which i know besides my meds, and also depression, also with the meds they changed the pain ones, as I was on the generic of dilliaudid, and the drug store didnt have enough as i take quite a lot, so they used another brand of it, and WOW same mg etc, but these things are helping so much better on the pain, yet it makes me higher than the others, which now I know i cannot drive while taking.  The others IF I took only one, of only 4mg at times i was ok to drive, with the new brand NOPE, and i need to take 8-12 mg every 4 hours to keep me out of any pain.

 OK I got most my "rambling" done, but ok i got more, IF I can get a picture in herem I got a new pic of my mom, as we had Thanksgiving a week prior to TG when my sis was in from Wash State and made the whole dinner, and we had "us's" here, plus some good friends, but we also had got mom here, oy she was so cute as someone had dressed her up as a pilgrim and i had to show you a few of the pic's of her and one with my sis....she looked like a little 83 year old amish lady, but you cant see as she also put on big buckles on moms shoes....had to show her offm, as most of you know and have seen her in pic's or in person.

oh poo, i have tried and tried to get that cute little pilgrim out here and dah, im too dence to figure it out, if anyone has that special touch, please email me, and offer advice please!

  1. thanks so much for letting me "ramble" and ask and let you know whats up in my corner of CA.
  2. hugs
  3. Ter
Be the change you wish to see in the world - Ghandi -
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: 12 hours ago

Two Great Reasons to Celebrate...

Robin,

WOW, that is GREAT NEWS, Id be celebrating also, sounds like good karna for a long time.

hugs

Ter

Be the change you wish to see in the world - Ghandi -
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 9, 2008 09:54 pm

AlaskaDeb needs our prayers

Hope this finds you Deb, at least  feeling a tad better.

My  thoughts and prayers are with you.

hugs

Ter

Be the change you wish to see in the world - Ghandi -
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 9, 2008 09:51 pm

Happy Birthday Fitztwins!

Hey Birthday girl!

Hope your birthday brings you TONS of happiness, love and gobs of good health!

and have a glass, as i remember your a scotch person ey?

love ya,

Happy Birthday,

Ter

Be the change you wish to see in the world - Ghandi -
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 3, 2008 02:54 am

AlaskaDeb needs our prayers

Deb, I wrote a post to you, though I put it in like the above stated to go to "such a link", thats where I wrote mine, just didnt want you to think I hadnt been thinking of you.

More hugs and many thoughts for you

Ter

Be the change you wish to see in the world - Ghandi -
Posted in: Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Nov 3, 2008 02:51 am

Mexaltrexate

Dear Alaska Deb and John,

I know we havent been real close, though your always on my mind, as I love your pic, and I have a bad thing of never laughing too much, but your pic at least makes me smile.

My thoughts and prayers are you with and John, and I pray the pain stops, a;nd yes this disease sucks..

Many gentle hugs

Ter

Be the change you wish to see in the world - Ghandi -
Posted in: Connecting With Others Who Have a Similar Diagnosis + Palliative Therapy/Hospice Care, Created: Oct 31, 2008 12:28 am

Joni's celebration of life

Oh I feel so bad about Joni, and all you Ta Tas' who knew Joni so well.  I only knew her from her post's.  And yea she had an ora about her.

Joni, may you rest in peace , til we meet someday.

Ter

Be the change you wish to see in the world - Ghandi -
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 31, 2008 12:10 am

Yesterday was a hard day..

Oh Janis,

Im so glad you got to meet such a sweet angel, as it's good to hear stories from others, as sometimes it makes ya feel so much better.

Yea, your a bit to ornery not to see your boys grow up and graduate and marry, and then you can be a grandma!  That there is a good vision to think about...Blake told me the other day he is never getting married nor ever having kids...oy vey!  Then he said, you know mom, Im getting a bity too old and getting set in my own ways than to think of getting married... oh oh, there goes my dreams...but having him here again through all my yucky stuff has been good for me, as he makes me laugh alot, you know the "belly laughs" which I know are good for me.

Wish you could be here w/your boys as Blake loves kids, and could teach them all sorts of things, ha ha...they would be pro's at wheelies and stuff like that, and no handers when they fly thru the air when left California.

I know you can do this lady, as Ive watched you for years now and you have surpassed so many things through this crappy disease. 

Keep going strong sweetie.

lots of hugs

Ter

Be the change you wish to see in the world - Ghandi -
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 30, 2008 11:54 pm

Having a gathering....

Sounds SO good to me, though Im going through a VERY expensive legal thing now, as I was going and needing to get away for a few weeks , yea up again to my sis's in Wash state, but its too cold for me now, plus my "stuff" here going on, all travel is going to have to wait.....

A few of us a couple years ago met up in Wash State, it was awsome, and the country up their is G*ds country...I might have to wait til spring to do anything of fun or financial, though you guys have fun, and think of me where ever you go.

hugs

Ter

Be the change you wish to see in the world - Ghandi -
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Oct 19, 2008 04:44 am

Dental Work

hi,

Ive been procrastinating dental work, as for so many years I was on methadone for the pain for my fibromyalgia and RSD and other bone pain, and after so many years, as I had the greatest smile, and they "the teeth on top" had to go due to the meds..plus I became allergic to the meds, and went on dilliaudid..anyway I had to have it done and wear a denture on top, but the bottom ones need adn i had a partial on bottom but i lost it, it was for back teeth, and now one of the kind of back ones had a horrible infection thru my whole body and under my arm, which my onc put me on antibiotics, which helped alot of diff things infected in me..NOW I am needing to go in and have them extract that one tooth as it all didint come out just broke and that needs to me yanked out, OUCH, then i want a partial for the bottom ones so i can chew, which may make me gain a bit of weight, as i dropped so much in such a short time, from a 12 to a 8, wo i had to buy all new clothes, and now those size 8 are hanging on me,  and I eat only small meals anyway, and lots of kind of good food, but Im so scarred of the dentist, and im hoping he will be able to pull that one tooth out himself besides send me to an oral surgeon, as the prices are outrageous, and then set me up for lower partial, which will make me feel better....I know it hurts with out being knocked out, but my nerves i dont think can handle it....so as of what i have read above gives me lots to think about that i hadnt even realized....

just tired of appts, and pain, but i know it needs to be done...but i eat basically soft things or like chicken, and tons of potato salad, as im on a kick with it, as i nevr use to like it at all, NOW i have to have it, and would rather have it besides icecream!, yes i know im wierd..

thanks for all your info .

hugs

Ter

Be the change you wish to see in the world - Ghandi -
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Oct 19, 2008 04:43 am

Dental Work

hi,

Ive been procrastinating dental work, as for so many years I was on methadone for the pain for my fibromyalgia and RSD and other bone pain, and after so many years, as I had the greatest smile, and they "the teeth on top" had to go due to the meds..plus I became allergic to the meds, and went on dilliaudid..anyway I had to have it done and wear a denture on top, but the bottom ones need adn i had a partial on bottom but i lost it, it was for back teeth, and now one of the kind of back ones had a horrible infection thru my whole body and under my arm, which my onc put me on antibiotics, which helped alot of diff things infected in me..NOW I am needing to go in and have them extract that one tooth as it all didint come out just broke and that needs to me yanked out, OUCH, then i want a partial for the bottom ones so i can chew, which may make me gain a bit of weight, as i dropped so much in such a short time, from a 12 to a 8, wo i had to buy all new clothes, and now those size 8 are hanging on me,  and I eat only small meals anyway, and lots of kind of good food, but Im so scarred of the dentist, and im hoping he will be able to pull that one tooth out himself besides send me to an oral surgeon, as the prices are outrageous, and then set me up for lower partial, which will make me feel better....I know it hurts with out being knocked out, but my nerves i dont think can handle it....so as of what i have read above gives me lots to think about that i hadnt even realized....

just tired of appts, and pain, but i know it needs to be done...but i eat basically soft things or like chicken, and tons of potato salad, as im on a kick with it, as i nevr use to like it at all, NOW i have to have it, and would rather have it besides icecream!, yes i know im wierd..

thanks for all your info .

hugs

Ter

Be the change you wish to see in the world - Ghandi -
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 19, 2008 04:05 am

Living Proof Movie

yep i just finished it, and it was good.

I learned alot, but got a bit confused as he said he "invented" or whatever to HER2, well I thought her2 was a type of cancer NOT a treatment, can someone explain to me please?

thanks and hugs

Ter

Be the change you wish to see in the world - Ghandi -
Posted in: Connecting With Others Who Have a Similar Diagnosis + Palliative Therapy/Hospice Care, Created: Oct 19, 2008 04:00 am

Ter. .

Oh I forgot, hello to all these new gals I see here, welcome, as this one site and the mets and recourrance are the best gals around.

and yes I will try to eat more, as I try, Im stuck on potato salad, which I have always hated, ugh, but always tried just a bite of anyones, but a few weeks ago, wow I purchased some at the deli and WOW, my mouth loved it..just had a bowl ful instead of like icecream..I know I am wierd, but i want to fit into my size 8s very bad, but they hang so low and baggy, and i dont want skin tite, but at least not to pull up every second...never had this problem, plus i guess i have been very fortunate never having to be on a diet either to loose, but now trying to gain..and cooking is very hard, my son helps alot but he's also a man who will cook some but cleaning is the pitts, and i try each day to do one thing of cleaning, no not the whole house but just a bit at a time, and today was bed changing and a bit of laundry, and I am tyring to keep it like that, as doing too much and pushing myself is the pitts, and then im down for days..

please dont forget me in your prayers in this "issue" I cant go into...yes its legal and thats all i can say.

love and hugs

Ter

Be the change you wish to see in the world - Ghandi -
Posted in: Connecting With Others Who Have a Similar Diagnosis + Palliative Therapy/Hospice Care, Created: Oct 19, 2008 03:53 am

Ter. .

hi all you guys,

no I am not on here too much, as I am having tons of personal issues, that do not help ANY of my diseases, including my BC...a couple wks ago had an apt to see my onc, and he cancelled out due to he was sick, and i need to reschedule, but w/all this other issues there are appts that keep getting in the way, really ticks me off that Im trying so hard to put myself kind of in first place, yet that isnt happening, and the stress is going to kill me before the cancer will...

Ive been trying to force feed myself, as i told you all the pounds and inches i have lost and those new clothes i had bought, well, lets just say they dont fit at all, and there so cute.  I want to wear them so bad...I went on friday to see mom, and on fridays there they have "social party", and when I heard music blaring, I thought for a minute and wondered where mom could be, as its a big place, but hearing the music, I knew exactly where she would be..I walked in w/walker and the music (2 guys, one singing and one on keyboards), plalying tons of good music, had all the people, even w/alzheimers claping their hands, and the workers getting patiets in their w.chairs dancing in the chairs..and there was mom, she had gotten up and went to this hispanic man who doesnt speak english but she stood up and tapped him on shoulder and the 2 of them, him with no legs and only one arm and mom by his side bopping like crazy, well i couldnt refuse as i tried to get in the dining area where this was taking place and man it just made you want to dance, and i did my best and got tons of applause, and someone got me a chair to sit on, and WOW what a day I had there for that hour or so....Ruby the lady who just turned 100 was at our table, and i just love her, as she was singing all the tunes by memory..from Fats Dominio to Elvis, and so I got up w/walker and grabbed her little hands and her and i were dancing having so much fun...I hadnt had that much fun in years....too bad their time had to end, but everyone had a good time, I dont think anyone had as much fun as i did.....yes it was a Kodak moment.

I need to ask of you guys, I need prayers so so bad, Id love to tell you all what has happened, but it is not very pretty, and very stressful on me and on my son.  We have all doors redone, bolted etc and if you call and i dont answer, please leave a message as i will get back to you, as i have to screen all my calls, and it seems like im a prisoner of my own home.

As of my BC and mets, after I find out when these other obligations get taken care of I am going to see him, as I have to start driving now, which means I cant take my pain meds if I drive, and still have to be so careful....

I know your all wondering whats going on, well the only thing i can say is my flu bug is almost over, had it for 2 weeks, the cough etc, now just a runny nose, thank G*d, at Musinex that you see on TV works, pretty expensive for OTC but it works, and Id suggest the liquid, as I bought the pills due to price, but they work too.

I hope all this finds you all in good spirits, and your health doing nothing or getting better.

love and hugs

Ter

Be the change you wish to see in the world - Ghandi -
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 19, 2008 12:21 am

Living Proof Movie

Im in the middle or start of it right now laying in bed, just waitng for time to pass for 10pm so i can take my pain meds.

Thanks for letting us know, as Ive seen the commercials on it all this past week.

Ter

Be the change you wish to see in the world - Ghandi -
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 2, 2008 03:07 am

Welcome Jacque

Welcome Jaque,

you found a great place here in the recor and mets section, the gals here are great!

hugs

Ter

Be the change you wish to see in the world - Ghandi -
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 1, 2008 02:19 am

Breast Cancer Awareness Month

hi,

yes this is my actual 5th year since "real" diag, we wont even go there!

What Id like to see in all the BC awareness crapola is more statistics on men getting BC NOT just women.  I read an article in the doctors office a week or two ago and it stated that there will be 1,990 men being diag with BC in 2008.

I have this thing that IF I should get one caller calling to sell me something, I automatically ask them how long their schpelll will be, if they say 2-5 min, i say ok, but i cant afford anything, yet they tell me about their product ONLY IF they say at first they will listen to ME tell them my own schpell afterwards.  And ALL of them listen to me about BC.  I start with "do you have a wife, mother, sister, lover, girlfriends etc, and they say yea, well i tell them a bit about BC, and boy oh boy do they listen, I dont go into details too much, but I do mention IF they have a problem and their doctors dont comply or do something besides a mammo or ultrasound, tell them to get 2nd 3rd etc opinions, I get tons of thank yous from them, and the men i talk too, actually listen to me, and thank me, and I tell them that MEN get BC also.  That really gets their attention...and they tell me they are going to pass my info on to their sisters etc....I dont buy their product, but by the time Im done,I think they forgot why they called me  LOL

as of "pink"  I wear my bracelets and a  cute pin my cousin made me, but kind of wierd that last winter I did buy a few pastel pink and lavender soft light tops.

hugs

Ter

Be the change you wish to see in the world - Ghandi -
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 1, 2008 02:04 am

How much would you pay?

Oh Janis,

You have such a cute little face, oh, I know you remember last time, and you were adorable , yes even bald...so many of us think we need to cover our noggins, and some really want to due to work or what ever, but there are other ways IF you want to cover your little head, especially with your neck of the woods and fall time here and winter coming with the snow you get, so you have all the reasons to wear a cute hat, as they keep the warmth in as i know you love making snow angels...I have a pic of you in my scrapbook when yours was just growing out, and your so cute with it like that...it was around Xmas time, as the decorations around you...take a look at your photos of last time, your a cutie pie lady.

lots of hugs

Ter

Be the change you wish to see in the world - Ghandi -
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Sep 27, 2008 02:13 am

I am tired...

Janis,

with just your "home" duties and things you do there is enough to gag me, plus all your extra art activities that most likely keep you sane and home chores, and your boys and DH, wheeew!  Plus working on top of that, girl Im so glad your boss is very understanding, and your really fortunate for that, but this damn BC.  Just slow your little hiney down still, as "things" just dont need to be done that fast...my moms ole saying is "your home needs to be clean enough to be healthy and dirty enough to be happy"....yea mom is doing well, just had her pacemaker redone, but she p;ushes herself around w/her feet in the w.chair all day, and her legs and feet really get a work out, and dr said you MUST at least 2 X a day put your feet up....as like mom w/blood clots, i have the same...but overall, she is doing very well, she is such a cutie, soon those new batteries or pacemaker , shell be like the energizer bunny at age 83,,sure wish all of you could meet her, as a  couple gals from here that dont come on site much were here visisiting me, and we went down to the rest home and they got to meet mom....yes everyone fell in love with each other and mom just loved them...she even gets cards from a few, which makes her day, thanks you guys.

keep going J,  but go slower, as nothing is that important!

hugs

Ter

Be the change you wish to see in the world - Ghandi -
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Sep 27, 2008 02:01 am

Our "Central Address Book"

hi timtam,

your awsome, i remmeber LONG ago like years, we started this and can remember "things" that blew it up, but your so good at doing things like this it will work.

I started and did mine with a few here on the site along with my sister who has their phone numbers and emails etc, and she knows how to contact them immediately, and yes there were times she called them, and yes I love being even closer to so many sisters here.

Plus what i did as i have made a "just in case something happens to me" directory, names addresses and phone numbers of who to contact and this sites address and how to join etc.

A couple years ago i was going out of state to see my sis and 2 gals from here live about 3-4 hr drive, and there were 2 gals who didnt know each other except seeing the others posts, well, they got together they were like one hr away from each other and one drove to meet the other and then took the long drive to meet me..oh it was a glorious day up in Wash State, as my own sister went out and got goodies for food and made up a platter of food and breads etc, was a beautiful day outside, and it was one of the best days of my life meeting these 2 BC sisters, and yes when the day was done as they had to get back home, there were alot of tears and we couldnt quit hugging each other.   A day I will never forget....oh well until a couple other gals from here after we lost one special BC  sis we lost one morning and i got a call from someone i didnt know well but she was already driving a few hr drive to come to see me, as she knew Janelle and i were very close, and that too was a great day, just by contacting people, you do become close, this has happened a few other times, just days i will never forget,

so gals, get your infio in this, you never know when you might need a friend at home, or visa  versa.

timtam, your great!

hugs

Ter

Be the change you wish to see in the world - Ghandi -

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