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Member Since: October 22, 2006
Last Login: November 26, 2008
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Recent Posts by melmedic06

Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Nov 25, 2008 08:36 pm

I Quit!

i am lucky enough to be on a one month "arimidex vacation"- i started in january of 05 after being dx'd october of 04 with ILC- 0.9 cms- 0/3 nodes- lumpectomy and 6 weeks of radiation- quite honestly it was awful from the beginning on the arimidex- my side effects were from head to toe- chronic headaches (neurology consult was negative) stiff neck- sore shoulders and elbows- twisted up arthritic hands- stomach problems- sudden onset of gall bladder problems- weight gain- NO sex drive- sore knees and cramps in my legs and aching- aching feet not to mention a complete loss of enjoyment for anything in my life mixed in with deep depression and insomnia-i was aware these were all potential side effects but never expected to experience all of them- i asked  my oncologist last year if i could take a break and he said no- being a nurse and having to take care of patients that go against what their doctors say i respected his opinion and struggled through- this year he said yes :-)  and from the 3rd day i started to feel like my old self again- i can actually sleep all night- i have not had a single hot flash- i am actually smiling and laughing again- i wake up looking forward to my day not dreading it and i attribute it all to the arimidex- i will however go back on it at the end of my "vacation" and take it until 2010 because i would never forgive myself if my cancer were to return and i had not done everything i was supposed to do- so i wish you well with your decision and your journey- keep the faith ladies-
Posted in: Tests, Treatments & Side Effects + Alternative, Complementary & Holistic Treatment, Created: Sep 24, 2008 08:46 pm

Trip to Tijuana Mexico change my outlook forever

florida lady- i'm sorry you find it "sad" that i wanted to share my story about my friend- it was not comparing cancers- that would diminish the fight we have all taken on to survive- i simply wanted to show one person's side of the story on treatment in mexico- i believe any and all information as well as opinions on these boards are very individual and should be taken as such-
Posted in: Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Sep 24, 2008 08:27 pm

Nearly a year and panic time again

hi mark and welcome to the boards- you are indeed an honorary sister- yes each milestone is a test of nerves- it is exciting to reach a year but then you have to worry about lab results etc- i know we are supposed to say every day is a blessing but the closer you get the the doctors appointments the less blessed you feel :-)   i was dx'd with DCIS in august of 05- they found it during a steriotactic biopsy and i went in for a lumpectomy the following week and the tissue the surgeon removed and sent to surgery was totally benign- no DCIS anywhere so it is very sneaky and we must be very vigilant in our follow ups - (the DCIS was my 2nd dx- 1st was ILC in the other breast in october of 04)- so welcome to our group and post often-
Posted in: Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Sep 22, 2008 09:23 pm

Requesting a new me!

life pretty much sucks sometimes doesn't it- and not having much support from your family obviously increases your sadness and frustration- i'm sorry you are going through so much- i to have suffered many losses and setbacks in the last 5 years- in october of 03 my youngest sister passed away- she had been abusing drugs and alcohol for years but as a family we continued to try to help her - espeically my father who did everything he could to save her life but the damage was too great and she died at only 41 years of age- my dad was devastated- you are not supposed to lose a child- especially your youngest and he was already dealing with taking care of my mom who was well into the last stages of alzheimers- he caught a cold which turned into pneumonia and he died december 27th 2003- it was unbelievable- a sister and a father gone in less than 3 months- i took time off to help care for my mom and on my first day back to work someone ran a red light and totaled my car- i was out of work for 6 more weeks (thankfully the guy that hit me had to pay my lost wages)- then we had to put our 11 year old lab to sleep then in october of 04 i was dx'd with breast cancer- ok i said to God- this is pretty much all i can take then my mom passed away in may of 05- this has to be the end of my loss and sorrow i thought- i have buried my sister- my father and my mother and battled breast cancer but no- i was not done as in august of 05 i was dx'd again with breast cancer (other breast) and went thru all the treatment again- i cannot seem to recuperate physically or emotionally- my health problems are a long laundry list just like yours and my sadness is deep dark and unrelenting- so i can honestly say i know exactly how you feel- i wish i had some words of wisdom but all i can say is take it one day or one hour or one minute at a time- whatever you need to get by- walk through the fear but learn to depend on yourself- there is really no one else is there? keep the faith ladies
Posted in: Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Sep 20, 2008 09:21 pm

Lumpectomy, Tamoxifen, and No Radiation - Have you done this?

my original dx was in october 04- ILC 0.9cms in the left breast- i had a lumpectomy- radiation and started on arimidex (post menopausal)- in august of 05 they found a very small cluster of DCIS in my right breast during a needle guided core biopsy followed by another lumpectomy but the tissue removed was totally benign- no DCIS anywhere and the surgeon took a good chunk of my breast since DCIS is so sneaky- the radiologist- surgeon and oncologist all receommended another 6 weeks of radiation to the right breast so i went for it- i had no trouble the first time with radiation and the second time was just as easy- it did lower my chance of a reoccurence so i was happy to comply- my suggestion- a second opinion and do not make a decision until you feel totally comfortable and feel you have learned all you need to learn- it is a very personal choice and knowledge is power (IMHO) keep the faith ladies-

Posted in: Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Sep 20, 2008 09:11 pm

Friends? What friends??

yes telling your family-friends and acquantainces can bring out some very strange reactions- i believe alot of women do not want to even hear the words "breast cancer" (even if it is someone else's cancer) because that way they would have to acknowledge that it DOES happen and it could happen to them so by walking away from any conversation involving cancer they are (foolishly) convincing themselves it cannot happen to them- i also believe even in this day and age people still feel they can "catch" cancer from another person- sounds crazy but that is how alot of people act- i was very lucky to have 2 friends- both RN's as am i and a sister that loves me very much take care of me through both of my surgeries- the medical knowledge helped alot and even in the most discouraging moments nurses are quick to make little jokes and it does not seem offensive or inappropriate- so sometimes laughter got me out of some dark times- my sister provided food- rides- new pj's after surgery- books- magazines- movies and never got tired of holding me while i cried my eyes out- she was wonderful as were my friends and believe it or not my ex -husband was incredibly supportive and always there for me- so try not to worry about the one's that have walked away -they are probably more afraid than you are because you have already faced your biggest fear-you are strong and they are not and that makes some people uncomfortable- find your strength from other sources- prayer- yoga- walking- learning all you can about cancer and come to the boards often - we are always here- keep the faith ladies-
Posted in: Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Sep 20, 2008 08:55 pm

"Cancerhead"

hi ace- you know that band AC/DC? that is how i look at my life now BC(before cancer?AC(after cancer)- when i see photos of myself before my dx i notice such a difference in my true smile as opposed to my fake smile since i became a cancer patient- and yes it does take over your life- and yes your thoughts race and one minute you are celebrating some good lab results the next minute you are planning your own funeral right down to the flowers and what people will say about you- i wish i had suggestions that would work to talk your mind down when the chattering is unstoppable and all thoughts are bad but not too many things have worked for me- i agree with the poster that mentioned feeling disconnected from her body- that happens to me on my darkest and most depressing days and it is scary- post traumatic stress is the perfect description for all cancer patients/survivors- it is like living through a war except no one -except other breast cancer patients understands how much we are suffering- it is such a vicious circle- i may be different in my approach but i let my mind go as far into the fear as it wants to then i allow it to walk through the fear- it's never as bad on the other side as i imagine it to be- i have been dx'd twice and never thought i could hear "it's cancer" again and survive- but i did so maybe i am coping better than i think i am - you will discover your own "bravery"- it is out there and it is here on these boards as well- good luck with all your tests- keep the faith ladies
Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Sep 16, 2008 11:03 pm

Anyone else hate the new Arimidex packaging as much as I do?

i like the suggestion of peeling off the blister pack - i will try that in the morning- i did finally discover a way to get my pill out- i use my letter opener to peel the "day" away then use a small phillips head screwdriver to push out the pill- the package was intact at the end of 30 days as opposed to the totally destroyed package i had first time around- CRAZY- i refilled my Rx today and it was again the package- i asked when we would go back to the good old fashioned bottle but the pharmacist "was not sure" - keep the faith ladies

Posted in: Tests, Treatments & Side Effects + Surgery - Before, During, and After, Created: Sep 16, 2008 10:52 pm

One week post lumpectomy still dragging and uncomfortable....

hi angela- i have had 2 lumpectomies- both breasts (lucky me) and the recovery period is individual and very personal and you must take time to heal- my first was in october of 04 when i had the SNB- i think that slows down the healing process and contributes to the exhaustion and the length of time one needs to take to rest and eat well and process everything we have just been  through- i was lucky enough to have friends who are RN's (as i am) and a sister who loves me and they cared for me in such a special way that i recuperated slowly but both physically and spiritually - i felt very blessed- my second was not as involved and i took only 5 days off before i went back to school- i remember sitting there feeling fairly normal then just having a moment where i realised i had pushed myself beyond normal and felt like crap- i stuck it out but it set me back in my recovery process and i would not do it again - please take as much time as you need- don't try to do everything yourself and remember each day you will feel a differnt twinge and a different pain and a different sensation- it is all a part of the healing and YES we need to stand up for ourselves and say we ARE cancer patients and we need not only the insurance companies but our friends and families and our jobs to understand this is surgery and as patients we have a right to be away from work- to rest -to recover and to regroup and get ready to face the world post-cancer treatment- keep the faith ladies- stay strong-

Posted in: Tests, Treatments & Side Effects + Alternative, Complementary & Holistic Treatment, Created: Sep 14, 2008 09:57 pm

Trip to Tijuana Mexico change my outlook forever

each and everyone of us is different and i respect that- conventional for some- alternative for others or a combination of the two - it is all up to you- my friend had pancreatic cancer and had gone through all the standard treatments with no change in his condition so he chose to go to mexico for treatment - when he first arrived he was so full of hope and they had so many choices for him to make that he felt he actually had power against his disease again- something he had not felt in years- he did basically everything they offered and returned home with a clear mind and a hopeful heart- he was dead in 2 weeks- sadly all he did was feel guilty for spending so much money and wished he had spent his last days surrounded by his loved ones- just one story that did not have a good outcome but i'm sure there are some that do- FYI- suzanne somers is a big supporter of iscador as well as bioidentical hormones and she has remained cancer free for many years- keep the faith ladies-

Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Sep 10, 2008 08:56 pm

Arimidex - huge price increase

i pay 25$ a month for my Rx and that price is good for all 12 months (i have united health care) but a year and a half ago when i left my job and went on COBRA i paid 225$ a month for a 30 day supply - that hurt the pocketbook so i am incredibly grateful to be back at that same job and back on my great insurance- i hear astra zenica may try to include arimidex in the 4$ classification that alot of the ABX's and anti-hypertensive drugs are in- wouldn't that be wonderful? my secret to getting the pill out of the nuclear secure packaging- i use my letter opener to pop open the "day" tab then use a small phillips head screwdriver to pop the pill out- pretty silly!!

ILC  october 04  0.9cms  lumpectomy (negative nodes)  radiation  arimidex (left breast)

DCIS  august 05  found on mammotome- lumpectomy with benign tissue- no DCIS-radiation -continue on arimidex (right breast) 

Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Sep 7, 2008 09:42 pm

arimidex and belly fat

i have joined the belly fat club as well- i have been on arimidex since january of 05 and read that "weight gain" was a potential side effect and felt lucky for the first few months that despite all the other awful things happening to my body i was not gaining weight- WELL- that did not last long!! i have always had a nice flat tummy even after 3 children but no matter how strict i am with my diet or how much yoga - pilates and walking i do there it is- looking pregnant is a good description especially after a bad day at work and treating oneself to lemon iced poundcake from starbucks-very frustrating - belly fat girls unite- let's hope there is an end to our special roll and our cancer-

ILC  october 04  0.9cms  lumpectomy- negative nodes- radiation - arimidex (left breast)

DCIS  august 05  found on mammotome- lumpectomy (surgical pathology negative)-radiation - continue on arimidex  (right breast) 

Posted in: Connecting With Others Who Have a Similar Diagnosis + Second or Third Breast Cancer, Created: Sep 3, 2008 09:15 pm

Don't want to do tx again

monee- yes you can make it through treatment again-- take some time now to meditate or pray or exercise or have an extra glass of wine or to break a very expensive plate (or two) anything to set your mind free and let the strength in - you must convince yourself that no matter how bad it was the first time and how possibly bad it may be this time it can save your life- i was less than one year out when i had my 2nd dx- other breast and a different type of cancer- i was one month into paramedic school and not about to give up- i had my surgery over labor day weekend-took a week to recuperate then went back to school AND back to radiation and i survived and i have been cancer free ever since (and with God's blessing will stay that way) so pull up those boot straps- get back on that horse and prove to yourself- no one else- that you are a powerful woman and this beast is not going to get you down- OK???? keep the faith ladies

Posted in: Connecting With Others Who Have a Similar Diagnosis + ILC (Invasive Lobular Carcinoma), Created: Aug 24, 2008 09:37 pm

Does chemo help??

i did not do chemotherapy- my tumor was 0.9 cms with negative nodes and i was already post-menopausal (i was 54 at the time) - alot of clincians agree that chemotherapy does not always benefit ILC patients- especially ones with small tumors and since i knew i would be going thru radiation and taking arimidex i decided against the chemo- i have no regrets but this is an incredibly personal choice so read all you can- talk to as many people as you can and come to your own decision- everyone is different- i am a nurse and worked full-time during radiation but i was beat- treatment takes alot out of you and i imagine with chemo working could prove very difficult- i hope all goes well with you- keep us updated and keep the faith ladies-

 ILC - 10/04 (left breast)  0.9 cms  lumpectomy  radiation  arimidex

DCIS 08/05 (right breast) found on mammotome- surgical tissue benign- lumpectomy- radiation and continue on with the arimidex until 2010

Posted in: Connecting With Others Who Have a Similar Diagnosis + ILC (Invasive Lobular Carcinoma), Created: Aug 24, 2008 09:27 pm

What are symptoms of ilc?

i had 2 palpable- good sized benign cysts removed from my left breast (over a 4 year period) that i found myself and that were both painful- with my ILC cyst i had a feeling of an electrical shock thru my nipple area up into the axillary area for almost 6 months with nausea every day around 4pm- i did not feel a lump but my gyn did- it was very clear on the mammo and ultra sound and oh so present on the mammotome even though it was only 0.9 cms- thankfully negative nodes- good luck on your journey- keep us posted and keep the faith ladies

 ILC- october 04 (left breast) 0.9 cms  lumpectomy radiation arimidex

DCIS- august 05 (right breast) found on mammotome- surgical tissue benign- lumpectomy- radiation and continue on with the arimidex

Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Aug 24, 2008 09:13 pm

Sex anyone?

i was on estratest for 8 years (post hysterectomy) but when i was dx'd i was told no more estratest- i was upset about the cancer of course but SO disappointed to lose my "feel normal pill" - after the lumpectomy and radiation i started arimidex and that was the end of my sex drive- i have none- zero- zip and i find it quite sad- i am only 57 and thought these would be the best sex years of my life but i have no desire at all- i am alone now which is good- no husband or boyfriend to try to explain things to- maybe in 2 years when i am done with the arimidex i will return to my pre-cancer normal desires- one can only hope- keep the faith ladies-

 ILC-- october 04-- 0.9 cms-(left breast)  lumpectomy  radiation  arimidex

DCIS- august 05 (right breast) found on mammotome- surgical tissue benign- lumpectomy-radiation- continue on arimidex

Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Aug 24, 2008 10:04 am

Arimidex

good morning lindamem and thank you very much for your response- after reading my post again i realise i need to make some changes- all of what i described is not the person i am deep inside- i am a loving-caring and compassionate woman and i want to feel that way again- i so respect your decision to take back your power and fight this dreaded disease in alternative ways- i'm not sure why i keep taking that little white pill everyday when i know how much it has changed me but i do know right now at this moment my oncologist and i will be discussing other medications and possibly getting off the arimidex early (it has been 3 1/2 years) - thank you again for taking the time to respond to my post- i received a big wake up call this morning and i needed it!!

Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Aug 23, 2008 09:14 pm

Arimidex

i too started to suffer from very bad bouts of depression after being on arimidex for almost a year- what fire describes is exactly how i feel- i wake up angry every morning but i have little or nothing to be angry about- i should be happy God is letting me put both feet on the ground for another day but i'm just p_____ off!! all the little things in life that must be done seems like torture to me- - i have no joy at all in my day- i am bored and frustrated by everything- i force myself to go to work and put on the big fake smile but it's all a facade- i don't want to be there- i don't want to be home- i don't want to be anywhere- some days are better than others but basically i just exist- that's all i can hope for- i too cut myself- it is one of the few things in my life i can control-i know how unhealthy it is- i know it's not normal- but it gives me power over my body- at least momentarily and i feel cancer has taken all of my power away-
Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Aug 13, 2008 09:41 pm

Slight numbness in toes and feet

i have been on arimidex since february of 05- i also have numbness and tingling in both feet- both arms and hands and knotted up joints in all of my fingers- i attribute it all to the medication since i was perfectly normal before starting it- my oncologist keeps saying it is "old age" (i am 56) but plan on proving to him when i am done taking it and my hands and feet look and feel normal again that he was indeed wrong- and i am not old- i find 800 mg of motrin helps alot twice a day- keep the faith ladies-

ILC  october 04  0.9 cms  0/3 nodes- lumpectomy- radiation- arimidex (left breast)

DCIS august 05 found only on mammotome- surgical pathology benign- (right breast)

Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Aug 13, 2008 09:34 pm

Done with Arimidex

aggie- i am SO happy for you to reach your goal and to be able to stop taking the arimidex- may you be blessed with a return to "normal" health and remain cancer free forever and ever- and thank you for mentioning the neck popping- i have been going through that for the last year and of course thought i was the only one- our gospel was also Jesus walking on water and asking Peter to trust him- (i am Catholic) it is one of my favorite readings and always reminds me God is there for us we must remember to put our hand out and let him take us through this journey- keep the faith ladies-

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