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Kayla_001

Member Since: April 30, 2007
Last Login: November 18, 2008
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Biography

Diagnosis

Diagnosis: Dx 4/24/2007, IDC, 1cm, Stage Ib, Grade 2, 0/1 nodes, ER+/PR+, HER2+
Diagnosed: April 24, 2007
Type: Invasive or Infiltrating Ductal Carcinoma
Recurrent? No recurrence
Metastatic?
Stage: Stage Ib
Lymph Nodes Removed: 1
Positive Lymph Nodes: 0
Tumor Size: 1cm-1.9cm
Tumor Grade: Grade 2 or medium grade
Hormone Receptor Status: Tumor has both estrogen and progesterone receptors
HER2/neu Status: Tumor has an excess of HER2/neu receptors or genes

Recent Posts by SusieSwan

Posted in: Connecting With Others Who Have a Similar Diagnosis + HER2/neu Positive Breast Cancer, Created: Nov 18, 2008 01:09 pm

Slightly Her+ and Oncotype

I only did 4 A/C and then Herceptin alone for one year (which I just finished last Friday).  Also doing Tamoxifen.


Dx 4/24/2007, IDC, 1cm, Stage Ib, Grade 2, 0/1 nodes, ER+/PR+, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 10, 2008 01:23 pm

Curious

I'm a Stage 1 and not offended at the question!  I guess I'm over here because I have made some friends before they were metsters and I just want to keep supporting them.  Through them, I've come to love so many people on this forum and even though I don't post, I always check in.  Heck, I feel I know so many of you and you haven't a clue about me.

Oh, and I am a complete control freak and planner so I guess reading all the inspiring stories gives me some confidence I can handle a mets diagnosis should I ever have to face this potential reality.  Unfortuntately one of my early stage friends was just diagnosed with mets and from what I've learned here, I feel I was so prepared to help.


Dx 4/24/2007, IDC, 1cm, Stage Ib, Grade 2, 0/1 nodes, ER+/PR+, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + HER2/neu Positive Breast Cancer, Created: Oct 10, 2008 01:12 pm

hormone therapy for HER2

I'm pre-meno like Beth so Tamox is my only option.  I've been in chemo pause though and I'll have my levels checked the end of the year.  May switch to AI but Tamox is so easy for me to tolerate.


Dx 4/24/2007, IDC, 1cm, Stage Ib, Grade 2, 0/1 nodes, ER+/PR+, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + HER2/neu Positive Breast Cancer, Created: Oct 10, 2008 01:10 pm

Loading dose with no benedryl or steroids?

I take my treatments at a large cancer care center and my onc wanted benedryl, tylenol and dex before every treatment.  Because I drive 2 hours, I talked him out of the benedryl so I can drive myself home and not have to worry about falling asleep but I still get the dex & tylenol.  The nurses said he's about the only onc that follows this prototcol, the rest do this for loading dose and first treatment only and then nothing.

susan


Dx 4/24/2007, IDC, 1cm, Stage Ib, Grade 2, 0/1 nodes, ER+/PR+, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + HER2/neu Positive Breast Cancer, Created: Oct 10, 2008 01:00 pm

Just a poll...

Lumpectomy here....It all happened so fast, I really didn't have time to think about it.  I went from first baseline mammo to lumpectomy within one week.  In retrospect, I probably would have done a mast just because of my anxiety but so far, so good.


Dx 4/24/2007, IDC, 1cm, Stage Ib, Grade 2, 0/1 nodes, ER+/PR+, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Aug 8, 2008 08:02 am

I'm in the hospital

Ugh, Deb!  I hate that word "inconclusive".....Hopefully the review of the slides will get you something conclusive so you can take care of what's going on and move on.  I'm thinking about you and keeping you and your family in my thoughts and prayers.  I'm hoping you are feeling better soon and can get back home.  I also have daughters and know how scared they must be as well.

Hugs,

susan


Dx 4/24/2007, IDC, 1cm, Stage Ib, Grade 2, 0/1 nodes, ER+/PR+, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Jun 26, 2008 09:03 pm

Holy malfunctioning portacaths, batman!

I'm also having trouble with port issues.....but I've decided it really is all in the technique...the two male nurses really give it a forceful poke and they blast saline through to the blood return.  The female nurses seem to want to baby it and it won't work.

 Also, is anyone else's practice on Heparin restriction?  I'm at a large cancer care center and they are only giving Heparin to pediactrics so they say this is causing more port issues than they have seen in the past. 

 Deb, I've also had the enzyme to break up the clots.  I'm just convinced I need some muscle behind the poking & pushing and we're good!  Wow, that almost sounded bad :-)

Susan


Dx 4/24/2007, IDC, 1cm, Stage Ib, Grade 2, 0/1 nodes, ER+/PR+, HER2+
Posted in: Not Diagnosed but Concerned + Waiting for Test Results, Created: May 9, 2008 01:28 pm

Hoping for Good Karma

Kathy,

Vent away!  I understand completely about being nervous about the biopsy, especially when you've never had one.  It will be okay.  It will be a long weekend but try to just put it out of your mind and not dwell on the results..what will be will be.

I'm not sure how old you are but I was 41 at diagnosis last year.  I still consider that young!  The internet can be your friend and foe....younger women are not usually diagnosed until later stages as they don't undergo routine screening due to being a  young age.  There are many young & younger bc sisters on this board that are thriving and have kicked cancer's butt.  Try to focus on all the success stories. 


Being in limbo is a very difficult, stressful time....we've all been there.  IF you are diagnosed, we'll be here for you to hold your hand and help in any way. 

Hugs,

Susan


Dx 4/24/2007, IDC, 1cm, Stage Ib, Grade 2, 0/1 nodes, ER+/PR+, HER2+
Posted in: Support & Community Connections + High Risk of Recurrence or Second Breast Cancer, Created: May 6, 2008 01:19 pm

6 month followup today and Im scared

Hi Jule,

I completely understand...I'm having my first mammo next month and am scared out of my wits.  I guess it brings back all those feelings of what started it all.   I was thinking of starting a post on "pins & needles" because that's what I feel like I live on these days.  Like you, I'm petrified of these first two years and every new ache, pain, symptom immediately sends me into a tailspin.  I hope year two goes much faster than this first one.  I think I'll be able to exhale a bit after year two.

Hugs,

Susan


Dx 4/24/2007, IDC, 1cm, Stage Ib, Grade 2, 0/1 nodes, ER+/PR+, HER2+
Posted in: Not Diagnosed but Concerned + Waiting for Test Results, Created: May 5, 2008 01:18 pm

questions about stereotactic biopsy

Hi Kathy,

I had both the sterotactic and a u/s guided core biopsy.  I also had some anti-anxiety meds as the table freaked me out.  The stereotactic was no problem, I felt more discomfort with the core biopsy but it was only during the procedure, which was over pretty quickly.  You'll do fine. 


Dx 4/24/2007, IDC, 1cm, Stage Ib, Grade 2, 0/1 nodes, ER+/PR+, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + HER2/neu Positive Breast Cancer, Created: May 2, 2008 08:29 pm

Triple positive but NODE-NEG! stage I

Hi bluejay,

Another triple + here...I was also Stage I...you're right HER2 is aggressive and I was 41 so both my oncs said chemo.  AT that time, they said dense dose A/C 4x, followed by Herceptin alone.  They said no taxol...too toxic.  I also did radiation and then tamoxifen.  It's been a year already!  I just didn't want to look back and say, gee, I should have done the chemo should I recur.  At least I know I did what I needed to do.  I'm still in herceptin and not having any issues.

Best of luck with your decisions.

Hugs,

Susan


Dx 4/24/2007, IDC, 1cm, Stage Ib, Grade 2, 0/1 nodes, ER+/PR+, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: May 2, 2008 08:25 pm

AlaskaDeb

Hi Deb,

Nice to hear from you!  I think of you every day :-)  You were one of the first ones to welcome me when I was diagnosed and you've always made me laugh.

OMG, a bear, there's no way I could sleep at night...I'd be so freaked out that it could get in the house...especially since they are hungry and I always have a lot of tasty food around, ha,ha...

Glad your tx is working and hey, I'd handle the skin stuff compared to feeling like )**^#.

Hugs,

Susan


Dx 4/24/2007, IDC, 1cm, Stage Ib, Grade 2, 0/1 nodes, ER+/PR+, HER2+
Posted in: Not Diagnosed but Concerned + Waiting for Test Results, Created: May 2, 2008 01:10 pm

spiculated lump

This Post was deleted by SusieSwan.
Posted in: Not Diagnosed but Concerned + Waiting for Test Results, Created: May 2, 2008 01:10 pm

spiculated lump

Hi Kwoodson,

Spiculated terminology is a bit concerning....it means the lump has the star shape that a malignant tumor usually has.  But, it's not 100% and that's why they do a biopsy before anything else to make a definite diagnosis.  You don't want to have lymph nodes removed (which they would do at time of lumpectomy) if you have a benign lump.  I've had both steriotactic and u/s guided biopsies and you will do just fine.

In my experience, after my confirmation of bc, I had the sentinel lymph node removed (the one that is most likely to contain cancer) and this saves you from a full lymph node disection.  I went on to have my treatments (still in treatment) and it's been a year already.

This is the most difficult time...the waiting, the biopsy, the waiting again.  On the bright side, 9mm is tiny, tiny and that is a very good thing should you end up being diagnosed.

If you have any questions, let us know...there's a wealth of support & knowledge on these boards.

Hugs,

susan


Dx 4/24/2007, IDC, 1cm, Stage Ib, Grade 2, 0/1 nodes, ER+/PR+, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + HER2/neu Positive Breast Cancer, Created: Apr 30, 2008 09:03 pm

Triple postive??

I'm triple positive as well...and highly positive on all three markers.  As one sister said, we're such over achievers!

Did lumpectomy, re-excision, 4 DD A/C, 36 radiation tx, in the midst of Herception and also on Tamoxifen.

Kicking the beast hard.

Hugs,

Susan


Dx 4/24/2007, IDC, 1cm, Stage Ib, Grade 2, 0/1 nodes, ER+/PR+, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + HER2/neu Positive Breast Cancer, Created: Apr 30, 2008 08:54 pm

Is Herceptin for me?

I was diagnosed last year, 41 yrs, triple +, Stage I.

Ended up with 4 A/C, followed by Herceptin every three weeks and Tamoxifen.  2nd onc also advised Taxol but first Onc said would be too toxic but said, absolutely Herceptin.

Susan


Dx 4/24/2007, ILC, 1cm, Stage Ib, Grade 2, 0/1 nodes, ER+/PR+, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Apr 30, 2008 08:37 pm

Silent Dread

Oh Sally...I understand completely as I'm so attached to my dogs and with all the anxiety you're going through,  you have to deal with issues with your trusted friend. 

Hugs,

Susan

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Apr 30, 2008 08:33 pm

Now Hospice

Angela,

I'm so sorry you and your family are going through this...It breaks my heart constantly with all the struggles we all face.

God Bless you and I'm thinking of you.

Hugs,

Susan

Posted in: Connecting With Others Who Have a Similar Diagnosis + HER2/neu Positive Breast Cancer, Created: Apr 2, 2008 02:00 pm

her2 amount/number

I think the # they are referring to as 3+ is a different type of stain to test for HER2.  I had 5.7 ratio which they told me was a pretty high number.  There's a FISH and IHC stain if I remember correctly...one gives the ratio of HER2.

Susan

Posted in: Tests, Treatments & Side Effects + Radiation Therapy - Before, During and After, Created: Sep 10, 2007 05:52 pm

anyone starting radiation in September

Play,

I'm 90% ER and 90% PR positive...my material grandmother also died at the age of 31 with cervical cancer (this was back in the early 1960's so who knows if she was even diagnosed correctly).  I understand tamoxifen only blocks the estrogen from attaching to tumors and I've heard A.I's are better..but must be post menopause to take an A.I.  so, I think it's the best decision for me.  My med onc wants Lupon for supression, my rad onc said I should do the ooph (removal of ovaries only) but my gut is saying take it all.  so, I'm going back to see my gyn and see what he says.  Majority rules!

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