jsims2

Well here is the story.  I had my tissue expanders put in in November 07 and then things were going okay, until my right expander decided to start exploring the chest region and we had to have surgery to scrape the scar tissue around both of the expanders and replace the right expander in May.  Well low and behold, the left expander which was doing just fine before the surgery in May decided to get infected and not just a little infected we are talking entire chest area flaming red and expander trying to find a way out of my body.  Well we then removed the expander on the left side in July so now I am half of a reconstruction project.  My doc wants to keep the left one out for 3 to 6 months and to tell you the truth I just really want to give up on all of this reconstruction stuff.  I have to wear my fake boob on the left side which means I am wearing a bra again which sucks and I still do not match.  I am getting so I hate to look at my self in the mirror, but then again I am glad I am here to look at myself.  Just wanted to vent to people who would understand so thanks for listening.  I hope no one has to go through all of this stuff I have went through.

Hugs,

Janet

Well I had my face waxed on Wednesday, man did that hurt.  I just hope I do not have to keep this up.

Denise,

I have BRCA1 gene positive for bilateral Breast Cancer.  I had 1 tumor in the right breast and 3 tumors in the left and on node out of 21 positive.  Working on a year now of being cancer free.  I just felt that since I was triple negative that it was the best choose for me to have my ovaries removed.  I have a 5 year old and 2 year old daughters and I plan on being here for a long long time...

Denise,

Had complete hysterectomy with ovaries removed and I will be 40 in March.  Actually had done same time expanders were put in.  Typing from my new "bed" recliner because of pressure pain.

Wow Jani I would of loved to see the look on their faces.  I never even thought about the metal detectors.  Hey everyone else in the entire world seems like they have seen my chest so I would just let them see.   All I have now is a chest wall any way with some bumps on them.  Thanks for the info.  My DH and I are planning a trip for my 40th birthday in March and I just did not want to have any surprizes.  I imagine at the rate my PS is filling me I will be at least a DDD by then, with him wanting to get 1000cc's total in me before the exchange.  I would just really like to sleep in the bed again instead of in the recliner....

Janet

Hi ladies,

Glad I am not alone.  I had a complete hysterectomy on 11/16/07 and they also put in my tissue expanders at the same time and I get filled every 2 weeks and the left side is just fine, but the right expander moved up a little and since it has moved I have pain shooting down my arm and my PS told me that this is normal and they only way I can seem to get any sleep is to sleep upright in the recliner.  I am up to 625cc in right and 550cc in the left.  The reason I have more in the right side is that they left more tissue on the left side initially.  We are shooting for 1000cc then reconstruct with an 800cc inplant.

Thanks everyone.  I go back Monday to the rad doctor and this Friday to the Chemo doctor for a final check-up with him.  Monday is the rehearsal and then I would start on Tuesday if I make that decision.  I really am still tore up on this whole issue because my husband who has been SUPER supportive through the entire process does not want me to do the radiation and I just am all tore up inside.  Thanks again!!!  I am still on the bubble....

I had my bilateral on 5/1/07 and started chemo on 6/1/07.  I just wanted to get the party started as they say.  They just want to make sure you are healed before you start the process.

I was Grade 3 and like you said with only 1 node this should not be an issue.  I just DO NOT want to do this....

I also have a 5 year old daughter and a 2 year old daughter and I just told her that the doctor is going to give mommy some medicine that will make me loose my hair and when they are all done my hair will come back.  At first I was worried about what she would think, but now it is just an every day thing and she just keeps guessing what color it will be when it comes back.  As far as the masectomy I still have not let either one of my daughters see me since the surgery.  I personally do not want to tramatize them with the scares.  The 5 year old just knew that I was REALLY tired sometimes and she knew that Mommy needed some quiet time.  You will be amazed of how well your 5 year old will take it.  I also let mine help me pick out hats and they played with the wigs too.  Lots of hugs and just take care of yourself.