snowyday

MME, please don't try and control the situation, I dumped my boyfriend when I found out and I'm still in treatment and still won't see him, he came over one night at 3:00 a.m. and I had my sister drive him to a friends close by.  I just don't want a hero in my life this fight is so hard and to have someone so into it at first can be a hero trip for the guy, but once the puking and hair loss and steroid face happen, man you have to be with someone you really trust and believe that's not what she's thinking of now.  Let her think things through on her time.  Send her a card and some flowers. (NOT PINK) and when and if she's ready she'll contact you. 

I have to go back and read the study protocol's I didn't realize they were weekly infusions, or just by-passed that part.  I had read the Finnish study about the timeling for getting herceptin and I really am wondering why I have to take it for a year and face the risk of a heart conditon, it's already making me fell really sick and my sis said I've completly changed since my second last treatment (it would have been my third treatment).  I'm also starting herceptin a year after my chemo was finished and I read in one study where they said taking it sequenchly (sp) compared to concurrently doesn't work as well so I want to find out more about it.  I just can't help wonder if the drug company is just making big bucks of off Herceptin and thats why in North America they are saying a year, it's the drug company recommendation the Dr.s are going by.  I guess after being misdiagnosed twice now I just don't trust anyone in the cancer heath service (industry) any more.  It causes me alot of worry and I'm very tired feeling that way as well. 

Get the Cat Scan you never know, I don't know if your on herceptin or not but it can cause heart problems and you've already had heart surgury.  I really get tired of tests and scans but I'm doing it because I'd rather know if there are changes, as quickly as possible.  Good luck and try relax a bit, I understand how frustrating it really can be.  Big Hugs,   Geeze again I had to change my big hugs always write Bug Hugs. 

I was terrified of the heart problems as well and sort of still worry.  Herceptin isn't that bad, Did you have chemo and rads previously and if you did what was it.  There is another thread in this section regarding heart problems try search for that in the search box at the top and read my posts because I was a total basketcase before I started, but so far so good.  Make sure you request a Muga Scan for a baseline of your Heart before you start and they give them every three months in between.  It took a long time to convince me I should take it but I am. You too can do it.  Big Hugs

Meltdowns, boy they can get the wheels moving can't they. Good for you Heatherblocklear, I alway feel better after one, I get them when I feel such a lack of control about everything, the cancer, the Drs that don't listen, the unkown.  I'm proud of you and really hope your results come quick and that they are nothing to serious.  Big hugs, Pearl

LIke most above I too will continue my Vitamin D, I somehow forgot to take for a few weeks and boy did I notice a difference in my mood, maybe I'm just weird, but I find that when I take my D vitamins I feel better mentally.  Why do "they" redo these studies you would think that the money they spend to discredit Vitamins and Nutrition, could be used for a better purpose, like say clinical trials for DCA.  Just dreaming ladies.

I was informed that I have to have a Bi Mam on the 14th. of December but I am terrified of them ruining my port in the right breast, the rads were on the left breast.  Has anyone had a mammogram with a port in. My port is low enough that it will stretch the tubes (sp) and I'm afraid they will rip off the port.  I'm I just being a scardy cat, or do they have a way to do this so it won't pull on the port.  Thanks Pearl

moonchild is so right, I forgot to mention the MUGA's they are so very important.  Good luck.

The onc should explain what side effects to look for, the most important, swelling of ankles and fingers, edema, shortness of breath, fatique, like if you climb stairs your used to and all of sudden your not climbing them the same or you find you have to stop to catch your breath, Then let the Cancer centre know right away.  Your going to be fine, it's much better than chemo.  Hugs.

Alaska Deb is always so vibrant, I'm happy she's doing beter, but I'm still praying hard for Deb and all of us.