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Member Since: March 25, 2004
Last Login: November 18, 2008
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Recent Posts by susan_CNY

Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Nov 17, 2008 07:42 pm

Effexor- please I need feedback

if you trust your onco, why not try it? your doctors work for you and if you don't like the affect you can stop. I took effexor for a few years, worked great, when I felt I didn't need it anymore I was luckily able to just stop. That was almost 2 years ago and I felt I needed help again a few months back and now take citalopram which is again very helpful, good luck to you, sometimes we all need a little help, hugs

Posted in: Recovery, Renewal, & Hope + Growing our Friendships After Treatment, Created: Nov 12, 2008 06:21 pm

Baby Boomers?

invention of pantyhose was a great thing, girdles and garters were torture Smile
Posted in: Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Nov 12, 2008 11:31 am

Vitamin D deficiency risk rising in northern hemisphere

my internist agrees with you and this info, my level was tested at 11 she prescribed a 1.5 mg softgel once a week for 8 weeks ( I think equals 50,000 units) and will test the level again next week, I have lost over 50 lbs in a year, I think losing the fat may have depleted my vit d and I have avoided the sun for years now, I really think I am feeling better..My sis passed from multiple sclerosis which is now being linked to low vit d also, as is Crohns disease which is in my family , when my sis was 1st dx her neurologist remarked that Central New York is one of the cloudiest parts of the US and MS is more common for this reason, that was 33 years ago! this seems to have been along time coming unfortunately

Posted in: Recovery, Renewal, & Hope + Growing our Friendships After Treatment, Created: Nov 10, 2008 08:25 pm

Baby Boomers?

I met the Wonder Giant he passed out little loaves of bread.

Posted in: Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Nov 7, 2008 06:40 am

Migraines and Breast Cancer

my migraines started the summer after giving birth to my youngest son ( dx with cervical cancer at that time) I was 32 . At 45 I went through natural menopause which seemed to exacerbate my migraines, asked for HRT which I took for 2 weeks for hotflashes but had even more migraines so that was stopped. Tried the meds you take when attack starts but didn't help. At 50 I developed shingles out of the blue and migraines were unbearable. I was given nifedipine (a calcium channel blocker used for high blood pressure although my pressure is always low) this has cut my migraines down to maybe 10 in a year I am so happy to say. I was dx with stage 2 cc 6 months later and stage 1 bc the following year. This doesn't seem logical that migraines indicate a less than average chance of bc in my case.

Posted in: Tests, Treatments & Side Effects + Surgery - Before, During, and After, Created: Nov 6, 2008 12:01 pm

Post Mastectomy/Lumpectomy Pain Syndrome

I had that type of pain, I found some relief by rubbing  my shoulder or arm, sounds strange I know! I am 4 years out from partial mast and still have twinges on occasion, my doc said is nerve endings trying to reconnect, hope you feel better soon

Posted in: Tests, Treatments & Side Effects + Radiation Therapy - Before, During and After, Created: Oct 28, 2008 09:35 pm

OUTCH!!

I had a partial mast, had that zinger kind of pain and was told was my nerves trying to reconnect  from the surgery. I still have a zap on occasion after 4 years. Hope she feels better soon, time does help. 

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 26, 2008 02:12 pm

Vitamine D too Low , so what?

My level tested at 11. I do not have mets but have survived cervical, colon and breast cancers. I am now on an 8 week regimen of 1.25 mg of Vit D which equals 50,000 units.  This is week #5 and I actually think I am gaining energy, balance and maybe even a few pounds. Hope you all have the same results.

Posted in: Connecting With Others Who Have a Similar Diagnosis + IDC (Invasive Ductal Carcinoma), Created: Oct 21, 2008 02:38 pm

Shingles

I was told that once you have had shingles you cannot be vaccinated.  I suggest to anyone who has not had this painful disease to get the shot, shingles are horrible, the pain can last for months.

Posted in: Support & Community Connections + Chat Room Friends, Created: Oct 16, 2008 12:03 am

Tracy1964

God Bless

Posted in: Support & Community Connections + Chat Room Friends, Created: Oct 16, 2008 12:01 am

Tracy1964

Tracys husband Phil posted today in recurrance and metastatic disease part of forum that this sweet lady and wow Mom and wife has passed, I am sure many here would like to leave him a message there, he is an amazing man and Tracy1964 was a truly wonderful lady, this disease has no mercy, God bless Tracy, Phil and their family

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 15, 2008 11:14 pm

Tracy1964

Phil, I am so sorry to hear of your Tracy's passing, I have such good memories of you two both online in the chatroom while you were out of town working, I always thought how lucky your children are to have you both as parents, prayers for your family from susan_NY

Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Sep 26, 2008 11:05 am

Vitamin D is really a hormone?

thanks! was a good explanation

Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Sep 25, 2008 11:24 pm

Vitamin D is really a hormone?

my family doc (internal medicine) ordered some routine bloodwork Monday, typical cholesteral check, been 6 years , blah, blah, but also ordered a Vitamin D level to be tested, had a call from office today that my level was low (11) and where do I want Rx called in to-  what is this for, anyone know? its too late to call Doc back, all I find on google is has something to do with bc, colon and on and on ( I have had cervical, colon and breast cancers already) any one have any info, like what is normal level if 11 is low, and why does everything I google say Vit D is actually a hormone?

Posted in: Tests, Treatments & Side Effects + Breast Prostheses and Reconstruction Alternatives, Created: Sep 11, 2008 09:09 pm

Reconstruction after Lumpectomy???

Hi Sandy, I wear a prosthesis to fill out my bras since lumpectomy, alone my affected breast looks OK but definately not a pair at all ( my surgery was to the smaller side already) . I have read that after rads is more difficult for PS due to skin, but not absolutely impossible. I was 52 when dx with bc and still don't regret having a partial mast 5 years later, yes dealing with the prosthesis can be annoying, but I am a big baby and want NO more surgery. If you feel strongly about this you should try talking to a Plastic Surgeon. Good luck with whatever you decide.

Posted in: Support & Community Connections + Chat Room Friends, Created: Sep 6, 2008 07:39 am

chatters from 05 and earlier ... how are you all?

hello all, has anyone ever heard from Shulamis since she moved to Florida? we chatted every morning for so long, I think of her often, the breakfast club was such fun

Posted in: Day to Day Matters + Family Issues for Those Who Have Breast Cancer, Created: Aug 24, 2008 09:17 am

Child immunizations

I  would consult my onco, depending on your age you might want to get immunized for shingles, good luck to you.

Posted in: Tests, Treatments & Side Effects + Surgery - Before, During, and After, Created: Aug 5, 2008 10:44 am

port removal

you are in charge of your body, insist on being sedated, it worked for me, best wishes for you

Posted in: Tests, Treatments & Side Effects + Radiation Therapy - Before, During and After, Created: Jul 31, 2008 10:29 pm

Radiation without permanent markings

I finished rads almost 5 years ago, refused tatoos and did fine with the magic markers, I figured I have enough reminders thankyou, don't need any Surprisedmore , and if I want a tatoo it will say I love Dad
Posted in: Day to Day Matters + Family Issues for Those Who Have Breast Cancer, Created: Jul 26, 2008 11:13 am

Husband's Reaction

I think I would call my mother-in-law and ask her to accompany me to chemo. May give her a differant aspect.

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