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Last Login: September 25, 2008
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| Diagnosis: | Dx 5/8/2007, DCIS, 3cm, Grade 3, 0/1 nodes, ER-/PR-, HER2+ |
| Diagnosed: | May 8, 2007 |
| Type: | Ductal Carcinoma In Situ |
| Recurrent? | |
| Metastatic? | |
| Stage: | |
| Lymph Nodes Removed: | 1 |
| Positive Lymph Nodes: | 0 |
| Tumor Size: | 3cm-3.9cm |
| Tumor Grade: | Grade 3 or high grade |
| Hormone Receptor Status: | Tumor does not have estrogen or progesterone receptors |
| HER2/neu Status: | Tumor has an excess of HER2/neu receptors or genes |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Sep 25, 2008 05:00 pm
Recurrence after Mastectomy for DCISGod Bless You, Angie. You'll be in my prayers tomorrow and just know we're all hoping for the best for you. Dx 5/8/2007, DCIS, 3cm, Grade 3, 0/1 nodes, ER-/PR-, HER2+ |
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Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Sep 14, 2008 09:26 pm
DCIS Diagnosis -- Has this happened to you?Hi Sybil, Bless your heart, I'm sorry you're here but you've come to the right place for answers. I was diagnosed w/dcis, grade 3 in May of 07. I had lumpectomy, sentinel lobe biopsy (negative, thank God), rads, another biopsy/lumpectomy on the other breast in May of 08-just ADH-followed by sonogram-breast mri, follow up oncologist visits and other tests coming up in November. Retrospectively, I PERSONALLY would have had them removed. It's a decision only you can make but this roller-coaster is driving me nuts. This website will also clarify your diagnosis. I think it's in the forum index. If you can't find it, not to worry. Just ask your questions and someone here will know the answer and above all, whether it's an answer from here or from God, remember you're not alone. Best wishes, Marcella Dx 5/8/2007, DCIS, 3cm, Grade 3, 0/1 nodes, ER-/PR-, HER2+ |
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Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Jul 24, 2008 01:29 pm
Surgeons don't agreeHi ladies.....Here's a retrospective (mine anyway) on the whole thing. Dignosed May of '07...Multifocal DCIS, grade 3, HER2 overexpressed. Had lumpectomy, sentinal lobe biopsy (neg), rads. ADH in the other breast 2 months ago. Another biopsy, neg (thank you, God) with another MRI scheduled in 4 months. So now, every time I shower, I'm pushing on my boobs wondering if theres a lump or not. (I swear I feel one but who knows). Decided not to take the recommended Tamox. because of side effects. I now HATE all insurance companies. At least I had some coverage. Mastectomy was discussed because of grade but I figured rads would make me the least uncomfortable. After all the crap, I'm thinking bilat mast should have been my surgery of choice. Reconstruction? I don't know. I didn't get that far into the discussion in the first place but given the option now, I think I would whack them both, get over it and get on with my life. God bless you all....every decision is a personal one and ONLY YOU can decide what is best. God's got the outcome figured already anyway. I love you ALL.
Dx 5/8/2007, DCIS, 3cm, Grade 3, 0/1 nodes, ER-/PR-, HER2+ |
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Tests, Treatments & Side Effects + Radiation Therapy - Before, During and After, Created: May 26, 2008 06:05 pm
top ten things I learned with radsHappy Memorial Day JJ, I finished rads last October 30th. I had treatments first thing in the am then went to work. I too missed being able to go to work late. Geez....does this mean I would rather have rad treatments than go to work? No real fatigue until now. Having some issues with the other breast and should get results on that this Wednesday. I don't know if the fatigue is due to rad or hot weather (Texas). I've decided not to take Tamoxifen since I'm er- even though it was prescribed a month ago. I'll let my Onco know about that little diddie Wed. I totally agree with #10. God bless you. Dx 5/8/2007, DCIS, 3cm, Grade 3, 0/1 nodes, ER-/PR-, HER2+ |
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Not Diagnosed but Concerned + Waiting for Test Results, Created: May 21, 2008 10:32 pm
Yea!!!Onco rept. said he felt a lump in my left breast. I had a lumpectomy w/radiation on my right breast as a result of DCIS last May. Had an excisional biopsy of a "suspicious" area in the left last month which came back benign but with ADH. The Dr. found the lump at a routine check about a month after the last surgery and decided to do ANOTHER mammo w/MRI to "make sure what was going on". The mammo and MRI were scheduled on the same day. Just for good measure, the radiologist did a sono also and I can only assume the report I got today includes the results of that. Thank you for taking the time to answer. Dx 5/8/2007, DCIS, 3cm, Grade 3, 0/1 nodes, ER-/PR-, HER2+ |
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Not Diagnosed but Concerned + Waiting for Test Results, Created: May 21, 2008 10:13 pm
Yea!!!Diagnostic mammo and MRI last Thursday. Got results from mammo in the mail today....all OK. Thank you, God. Onco appt. next Wed. so shouldn't I assume everything on the MRI is OK too? Has anyone had the rug pulled out from under them after a good mammo and gotten a bad MRI report? I'm afraid to get too excited. Dx 5/8/2007, DCIS, 3cm, Grade 3, 0/1 nodes, ER-/PR-, HER2+ |
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Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: May 19, 2008 01:14 pm
MRIHi Teaches, So, I felt a little like I was in a milking machine, not unlike a stereotactic biopsy, and my tech had absolutely NO personality and told me nothing except that she was going to start injecting the contrast material. I was HOT but a little fan seemed to be circulating air but my main complaint was that it would have been nice for someone to tell me to get my head comfortable. I had my MRI last Thursday and still have a stiff neck. No results yet and I'm not sure how long it takes. I did have alot of comparison films so I'm not going to rush anybody. Knowing what I now know, I'd ask for a mild sedative or a tech with a brain. Let us know what happens. Dx 5/8/2007, DCIS, 3cm, Grade 3, 0/1 nodes, ER-/PR-, HER2+ |
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Not Diagnosed but Concerned + Waiting for Test Results, Created: May 16, 2008 03:27 pm
Here I Go Again?Hey Msvirgo...Just part of a song that helps me get through rough spots "He never promised that the cross would not get heavy and the hill would not be hard to climb. He never offered a victory without fighting but He said help would always come in time. Just remember when you're going through the valley of decision and the advesary says "give in" Just hold on, our Lord will show up and He will take you through the fire again". God bless you baby. Let us know what happens. Marcella Dx 5/8/2007, DCIS, 3cm, Grade 3, 0/1 nodes, ER-/PR-, HER2+ |
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Not Diagnosed but Concerned + Waiting for Test Results, Created: May 16, 2008 02:05 pm
Waiting AGAIN!!!Thanks FMGs. My onco is only in on Tues and Wed but I do think a call to his office might at least make me feel better, whether I get anything definite or not! I need a good, long nap. Dx 5/8/2007, DCIS, 3cm, Grade 3, 0/1 nodes, ER-/PR-, HER2+ |
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Not Diagnosed but Concerned + Waiting for Test Results, Created: May 16, 2008 01:14 pm
Waiting AGAIN!!!Had an excisional biopsy done in March w/B9 results. Just ADH, microcalcifications. Anyway, onco (from prev. DCIS in other breast) decided he felt a lump and wanted diagnostic mammo and MRI done. Yesterday, several mammo views later got a sonogram. Radiologist said Onco. had felt a lump but sono. determination was unclear,it could be scar tissue. MRI would clarify that. NATURALLY after the MRI yesterday the tech said results would take 2 to 3 days. My next onco appt isn't until the 28th! If there is a problem, do you think the onco will call me sooner? Also, since B9 rept. earlier shouldn't everything be negative? Geez, everyone here is going through something and I really don't mean to complain but all this boob stuff has been going on for a year now. I know now what people mean about having a mastectomy and getting off "the rollercoaster". God Bless you all. Dx 5/8/2007, DCIS, 3cm, Grade 3, 0/1 nodes, ER-/PR-, HER2+ |
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Not Diagnosed but Concerned + High Risk Women, Created: May 16, 2008 09:18 am
Diagnostic mammo and MRIHello ladies and thanks. I did get the mammo yesterday, sono yesterday and MRI yesterday. I could run around work topless and wouldn't care anymore. The only feedback from radiologist was that what the onco. felt could be scar tissue from lumpectomy but MRI would further define everything. I didn't see him after so I guess I'll wait for onco. appt. on the 28th. Damn......wait, wait, wait. Anyway, thank you for your time and information. Dx 5/8/2007, DCIS, 3cm, Grade 3, 0/1 nodes, ER-/PR-, HER2+ |
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Not Diagnosed but Concerned + High Risk Women, Created: May 14, 2008 01:10 pm
Diagnostic mammo and MRICan anyone PLEASE tell me if I will know the results of a diagnostic mammo and MRI on the day I have the exams? Thanks for your time. Dx 5/8/2007, DCIS, 3cm, Grade 3, 0/1 nodes, ER-/PR-, HER2+ |
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Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: May 8, 2008 12:58 pm
Time for me to fess upWhat a pleasure to see that I'm not alone in my decision NOT to take Tamox. The prescription is on my bedside table and I wonder daily if I'm making the right decision but I think Scorpio's post says it all! I've got appts next week for diagnostic mammo (1st ever) and breast MRI. If those puppies come back OK I'll stay with my present decision. Preacher said last night, if you trust God for something as big as salvation, can you not trust Him to take care of your everyday worries? Hang on to me now please, God! It's in your hands. Again, God bless you all. Dx 5/8/2007, DCIS, 3cm, Grade 3, 0/1 nodes, ER-/PR-, HER2+ |
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Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: May 1, 2008 01:30 pm
Tamoxifen questionThanks to you too, Leaf. I hear from people saying that they've had ADH, no Tamox, and 10 years later doing fine. I've heard about folks taking Tamox and having recurrence. I'm sure I've been more confused at some point in my life but I can't remember when. S/Es don't interest me either but then again, neither does BC. Crap! I need a really good/big piece of fudge with pecans. Dx 5/8/2007, DCIS, 3cm, Grade 3, 0/1 nodes, ER-/PR-, HER2+ |
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Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Apr 30, 2008 03:50 pm
Tamoxifen questionThanks again NM. I learn something every day. (I love your dog). I guess all you can do is try to determine what will cause the lesser problems. I really appreciate your patience and information. God Bless You! Dx 5/8/2007, DCIS, 3cm, Grade 3, 0/1 nodes, ER-/PR-, HER2+ |
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Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Apr 30, 2008 12:40 pm
Tamoxifen questionThanks NativeMainer. Isn't Tamoxifen only helpful with ER+? I too wish my doc would explain things. Thanks Dx 5/8/2007, DCIS, 3cm, Grade 3, 0/1 nodes, ER-/PR-, HER2+ |
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Not Diagnosed but Concerned + High Risk Women, Created: Apr 29, 2008 07:30 pm
ADH AND ALH adviceKim, Good luck tomorrow. You know, this just doesn't seem to end. Know that I'll be sending good thoughts your way and please do let me know what's said. God Bless. Dx 5/8/2007, DCIS, 3cm, Grade 3, 0/1 nodes, ER-/PR-, HER2+ |
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Not Diagnosed but Concerned + High Risk Women, Created: Apr 29, 2008 05:39 pm
ADH AND ALH adviceJust the thread I've been looking for!!! God bless you all!!! I'm waiting on MRI scheduling after excisional biopsy for ADH which came back B9. DCIS in other breast last summer. Lumpectomy with less than 1mm margins but no room for more. 30 rad treatments. Oncologist wants to put me on Tamoxifen but after reading aboaut the s/e I'm not sure. I thought Tamo was for er+ which I'm not. Kreativek, you totally ROCK! I am feeling the same way although the decision hasn't been made. Any thoughts about the Tamo? Dx 5/8/2007, DCIS, 3cm, Grade 3, 0/1 nodes, ER-/PR-, HER2+ |
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Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Apr 28, 2008 01:37 pm
Tamoxifen questionAfter DCIS grade 3 last year I had a mammo on the other breast and due to "changes" had an excisional biopsy last month - b9 w/atypical ductal hyperplasia, blah, blah, blah. Anyway, the oncologist wants an MRI now and wants me to take Tamoxifen. My question is, after researching this, it seems it's only effective if you're ER+ which I'm not. The potential side effects concern me. Does anyone know if the risks are necessary in my case? I'm soooo tired of this and I'm very aware that I'm not anywhere close to what some of you wonderful women are facing. Sorry if I sound whiney!!! Dx 5/8/2007, DCIS, 3cm, Grade 3, 0/1 nodes, ER-/PR-, HER2+ |
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Not Diagnosed but Concerned + Waiting for Test Results, Created: Apr 9, 2008 02:54 pm
Newbie here, waiting on biopsy resultsHi Iaksma and welcome! Sorry you're here but it's a great place for help and support. I had a similar situation to yours and was diagnosed w/DCIS last May. DCIS is a very early stage of cancer and if you've gotta have it - it seems to be the kind to have. My stereotactic biopsy was followed by a lumpectomy and 6 weeks of radiation. The "evil twin" I call it is now a little smaller but hardly noticable. Keep in mind that God is in control and just ask for strength to be able to handle whatever is coming. There's a song "Through the Fire" that I mentally sang over and over while tests were going on. I believe that a "cancer" diagnosis is much different than a "death sentence". God Bless You and check back here often for answers from some wonderful ladies. Dx 5/8/2007, DCIS, 3cm, Grade 3, 0/1 nodes, ER-/PR-, HER2+ |
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