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Member Since: June 9, 2007
Last Login: November 17, 2008
Location: Los Angeles, CA United States
Occupation: Law

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Diagnosis

Recent Posts by lady4law

Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Nov 1, 2008 07:54 pm

unhappy with implants

Pam if you are going to be on blood thinners for a few months, I can understand why you've been told no surgery. I am only on asprin, for thinning, and still I must stop them for 2 weeks prior to each surgery. I wonder if that has been a good for me, on for a month, off for a few weeks, then back on  for another month or two then off again. This has been going on for over a year.

I was told I would have to wait for three months to have my implants replaced, but it turned into almost 6. My implants (silicon) were hard as a rock, form day one. My new ones are not only saline but 50% larger and have been soft and natural feeling from day one. My PS told me to message them daily. (move them around in the pocket) to prevent them from becoming incapsulated. So far, so good. (4 weeks). 

The good thing about the wait was my new PS was able to complete the job, not only replacing the bad implants, but reconstructing my nipples and areolas.

good luck 

Jean - Lumpectomy- 6/27/07, Chemo TC - 7/07, Mast/recon - 9/26/07 Chemo TC - 11/07 - 2 surgeries to correct infections, Exchange 3/5/07. repair surgery 5/2/08, Second exchange surgery wtih nipples Oct 3rd
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Oct 26, 2008 06:52 pm

unhappy with implants

Pam I understand the feeling you are having, I had the same type. Most of the time, due to the pain I was not able to sleep on my sides so had to sleep on my back.  I never have been a back sleeper.  I felt like I had baseballs on my chest...hard lumps. They didn't give at all. When I took a shower, it felt like I had a very tight bra on. ("tight band" as you said.) 

I have had a number of procedures done at the same time, or my surgical number would be higher than it has been this last year. My Cardio worked on the PM, moving it from one side to the other, during my mast. When I had my implants changed out three weeks ago, she was once again in the OR, to move the PM up and out of the way of the implant, in case that might have damaged the previous implant.

Both my elbow (broken) and my shoulder were damage in the first surgery. I was to have had the elbow surgery done at the same time the expanders were exchanged but woke up to discover my PS failed to, and I had to have another surgery a month later. During this last surgery, my Ortho was going to work on my shoulder, so save me from another surgery, but decided against it - the day before. He feared having my arm in a sling, and unmovable for 3 weeks, would not work with the breast, nipples and areola surgery. (Probably correct).

Maybe your heart surgery could be completed at the same time you exchange your implants.  

Jean - Lumpectomy- 6/27/07, Chemo TC - 7/07, Mast/recon - 9/26/07 Chemo TC - 11/07 - 2 surgeries to correct infections, Exchange 3/5/07. repair surgery 5/2/08, Second exchange surgery wtih nipples Oct 3rd
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Oct 26, 2008 06:35 pm

possible implant rupture

I had my exchange in March, and shortly thereafter the right side started to become deformed. I developed a lot of pain in that side and the implant appeared to be separating and a section moving under my right arm. (The same thing happened to the left side with the expanders and it took an 12+inch incision to remove the extra skin stretched by the expander)

I switched PS, after 5 surgeries. My new PS removed the silicone implants and in their place used saline. If one of these ruptures, he said, there will be no question - I will just go flat, no pain, no internal issues. 

Jean - Lumpectomy- 6/27/07, Chemo TC - 7/07, Mast/recon - 9/26/07 Chemo TC - 11/07 - 2 surgeries to correct infections, Exchange 3/5/07. repair surgery 5/2/08, Second exchange surgery wtih nipples Oct 3rd
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Oct 26, 2008 06:19 pm

Is anyone happy with their results?

I am so happy with my results and it's only been 3 weeks since my second implant exchange, with nipples and areolas.

My 1st PS was a nightmare, He not only continue with the fills after the expanders moved under my arm, but never repaired the damage. At the time of my exchange, he used the wrong implants (not to mention they got hard as a rock).

My new implants are bigger, softer, and feel more natural....and my three week old nipples and areolas are perfect. I hope the nipples don't shrink, as they are the same size as my old ones. The areolas, and nipples, were made from the skin my new PS removed from under my arm. The color appears to be slightly darker so I don't think I'll need tattoos. Even the 12+inch incison under my right arm, to remove the extra skin caused by the expander relocating to the wrong area, is almost healed. I think in about 3 months, that scar will be no longer be visable. 

It's been a long year with 8 surgeries and 5 chemos, but I am finally feeling back to normal.  

Jean - Lumpectomy- 6/27/07, Chemo TC - 7/07, Mast/recon - 9/26/07 Chemo TC - 11/07 - 2 surgeries to correct infections, Exchange 3/5/07. repair surgery 5/2/08, Second exchange surgery wtih nipples Oct 3rd
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Oct 25, 2008 08:27 pm

How big is your nipple?

HI M

I am 3 weeks out from getting my new nipples and areolas. I haven't measure them, but they appear to be about 1/4 of an inch. I hope they don't shrink as they are perfect right now. They are not too big, so I will be able to go without a bra, as soon as they heal. I still have some scabbing on the right, but think I should look almost normal by next week. 

Since having had my nipples/areolas done, I feel so much better. This is the first time I have felt "whole" again and happy, in over a year, since my DX. 

Jean - Lumpectomy- 6/27/07, Chemo TC - 7/07, Mast/recon - 9/26/07 Chemo TC - 11/07 - 2 surgeries to correct infections, Exchange 3/5/07. repair surgery 5/2/08, Second exchange surgery wtih nipples Oct 3rd
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Oct 11, 2008 01:22 am

Anyone have to redo nipple?

Hi M

I want to bump you up so I am commenting. I did sent you a PM the other day, I had my second exchange with nipples/areolas last Friday. 

Today, (day 7) - my PS removed the nipple coverings. My nipples look great, and I am so happy to be over this - finally - after a year and 7 surgeries. My new nipples are smaler than I thought they would be, l about 1/4 of an inch. I guess that's better having "headlights'. I do worry a little about them getting smaller, now they are about my pre-BC size.

 They look red and bloody, but my PS said they are just "bruised". I don't seem to have any scabs - yet. He gave me no special instructions other than keep them dry, try not to pull on them,  and covered with Teflon pad. He did not mention putting any cream on them.

My surgical bra is tight, I think I should have a softer bra, time to go shopping. I have an incision on the left side over 12 inches long and right where my bra rubs. My new PS had to remove a lot of skin on that side, to correct what happened when the expanders traveled under my arm and over streached the skin. 

Let's pray our nipples stay the way they are and don't shrink and more. 

Jean - Lumpectomy- 6/27/07, Chemo TC - 7/07, Mast/recon - 9/26/07 Chemo TC - 11/07 - 2 surgeries to correct infections, Exchange 3/5/07. repair surgery 5/2/08
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Oct 9, 2008 12:18 am

unhappy with implants

Hi Jen. I had my original exchange in March, with the exact same implants, size and type, as you. They never softened up. They were hard as a rock and when I went to bed, the left side looked like a baseball! The right side just looked like a mess.

I was to have saline implants, not silicon, but my Cedar's Sinai PS decided to put in what ever he wanted. When I woke up I had 400cc, mentor high profiles. Not only against my wishes and without signed release, but also against medical protocol. I have a Pacemaker  which is  incomplatable with silicon as there is no way to check for silent leaks/ruptures with an MRI. He informed me of the silicon, when I when in for my post op check-up.

I walked out of his office - still with stitiches, when he tried to force me to sign a release. (AFTER the fact). The HARD silicon was replaced last Friday with larger, 600cc, saline implants.What I was to have had, 6 MONTHS ago. I am still in some pain but my new boobies are SOFT. Hurray. I am now looking forward to having the foam over my new nipples and areolas removed. I think he will remove the coverings on Friday.

 The most exciting thing has happened. When my PS opened my surgical bra on Monday to check my surgery...my husband let out a gasp and said WOW. Honey, you look great! You have life-like breasts again. My 400cc baseballs, looked stupid. The new ones fill in my chest area and look and feel more real.

 I forgot to ask the PS if the right side had ruptured. We all thought it looked that way but becasue of the PM there was no way they could check (no MRI).

I hope you're okay now. I haven't read all the postings, as I was just looking for after effects from the nipple part and saw your posting

Jean - Lumpectomy- 6/27/07, Chemo TC - 7/07, Mast/recon - 9/26/07 Chemo TC - 11/07 - 2 surgeries to correct infections, Exchange 3/5/07. repair surgery 5/2/08
Posted in: Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Aug 19, 2008 12:15 am

Worst Thing Someone Said To You?

I have been fighting BC for the last 14 months and will be having my 7th surgery in about 2 weeks. This has been more than Hell for me. Every thing that can go wrong, has. Today, I heard the worst possible things from my adult son. I had just spray painted our front screen door when he came in and started screaming at me. (Not because I was doing some work that I should not have done but because I smelled up the house with the paint!)

FIrst, he told me GOD, if there is one, gave me an inferor body or caused my cancer! (I was horrified, he had lost his belief in God). Then, he proceeded to call me a falure because I have not returned to work. Finally - so what - I not young like him so who cares if  I should die. Not a good day. I think I need a good long cry, and then throw my son out.

Jean - Lumpectomy- 6/27/07, Chemo TC - 7/07, Mast/recon - 9/26/07 Chemo TC - 11/07 - 2 surgeries to correct infections, Exchange 3/5/07. repair surgery 5/2/08
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Jun 15, 2008 01:56 am

The Respectfully Republican Conversation

As far as the war goes, Obama's children are not fightening in Iraq, wherras McCain's youngest is presently on duty in Iraq and another son is believed to be on his way, soon.

Which one should the American public believe is more concerned with ending the war and stop the deaths of innocent Americans?

Jean - Lumpectomy- 6/27/07, Chemo TC - 7/07, Mast/recon - 9/26/07 Chemo TC - 11/07 - 2 surgeries to correct infections, Exchange 3/5/07. repair surgery 5/2/08
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Jun 9, 2008 06:11 pm

The Respectfully Republican Conversation

Rocktobermom

Sorry I cut and pasted your name...did not realize it link you. I will change it right now. There was no name on your post and I wanted to address your RR  comment.

My family was very involved with politics and the Rep party through out their lives. Some where, there is a photo of me, as an infant, sitting on IKE's lap. My mom was a delegate to the 1964 convention that nomiated Goldwater. (That's where RR gave the speech for Sen Goldwater). 

Jean - Lumpectomy- 6/27/07, Chemo TC - 7/07, Mast/recon - 9/26/07 Chemo TC - 11/07 - 2 surgeries to correct infections, Exchange 3/5/07. repair surgery 5/2/08
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Jun 8, 2008 07:20 pm

Longevity of saline implants?

It seems that we all continue to discuss silicone rather than saline, which was the original question.

My silicone implants are less than three months old. My new PS was planning to exchange them for sailine in about a week, as my previous PS decided to put in what he wanted to, once I was asleep. (nice guy)

Surprise, it looks like my right implant may have ruptured. The left looks nice and round, somewhat like a baseball, however the right side has developed lumps and is spreading out. It is now about an inch and a half lower than the left side, about an inch higher, very lumpy, slightly under my right arm and has flatten considerably.

I wish, even more now, that my original PS had done his job as planned, and used the saline. I would know, for sure, if it had ruptured.

Wish me luck. If my PS discovers it has ruptured I wonder if I'll come out of the OR minus my right foob. 

Jean - Lumpectomy- 6/27/07, Chemo TC - 7/07, Mast/recon - 9/26/07 Chemo TC - 11/07 - 2 surgeries to correct infections, Exchange 3/5/07. repair surgery 5/2/08
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Jun 8, 2008 06:41 pm

The Respectfully Republican Conversation

Hi everyone. I have been a Rep pretty much all of my life. I think the first time I voted was for Ronald Reagan for Gov...I must respecfully disagree with "Rocktobermom" - Ronald Reagan was a Republican Governor. (Not Dem, he changed his party long before running for Gov)

I would be happy with Mitt Romney, Condi Rice, Fred Thompson or the new man on the block - the "young" governor of Lousianna, Bobby Jinal.

Jean - Lumpectomy- 6/27/07, Chemo TC - 7/07, Mast/recon - 9/26/07 Chemo TC - 11/07 - 2 surgeries to correct infections, Exchange 3/5/07. repair surgery 5/2/08
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: May 26, 2008 07:33 pm

Unbelievable Nipple Cost!!!

Did you all have the nipples done in an OR or the Doctor's office? SOme PS can do the proceedure in their office's and thereby saving a lot money.

Jean - Lumpectomy- 6/27/07, Chemo TC - 7/07, Mast/recon - 9/26/07 Chemo TC - 11/07 - 2 surgeries to correct infections, Exchange 3/5/07. repair surgery 5/2/08
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: May 18, 2008 10:26 pm

Unbelievable Nipple Cost!!!

Tmac - It is unbelieveable the price difference from one part of the country to another. Like Noni, my costs are way over 250K and I no where near done. I will have to have my silicone implants, only weeks old, remove and replaced next month. My new PS will see if he can do the nipples, at that time, so I will not have to under go another surgery. With each of my surgeries, the hospital has charged around 40K just for the OR and my after care. All I can say is, thank God I have insurance, if not I woudl have had to remain in the messed up shape I am presently in.

Jean - Lumpectomy- 6/27/07, Chemo TC - 7/07, Mast/recon - 9/26/07 Chemo TC - 11/07 - 2 surgeries to correct infections, Exchange 3/5/07. repair surgery 5/2/08
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: May 17, 2008 10:13 pm

Unbelievable Nipple Cost!!!

Urbie: Don't feel too bad. I have no idea what my nipples will cost, as I changed PS.

The hospital bill for the exchange was over $40,000!. My PS changed about the same but I am not sure what his figure covered, as it was not itemized. It may have included the price of the fills and 2 surgeries her performed during that time to remove and clean out infections.  However that billing did not include his part of the mastdectomy - placement of the expanders.

I believe my new PS is even more expensive, as no one can enter his private office "building" without being buzzed in. The joy of having medical procedures in Beverly Hills.  

Jean - Lumpectomy- 6/27/07, Chemo TC - 7/07, Mast/recon - 9/26/07 Chemo TC - 11/07 - 2 surgeries to correct infections, Exchange 3/5/07. repair surgery 5/2/08
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: May 16, 2008 01:09 pm

Longevity of saline implants?

Thank you Marian for you wisdom.

What really hurt me was being accused of scarying people. I had no intention of that but was only attempting to answer the first question relative to saline implants. My prior PS, who used silicone against my will and without consent, claimed silicone was much better because it "could" last for 20 years or more, whereas the saline would HAVE to be replaced within 10 years. (That his story and he's sticking to it. In fact has put that in writing so I imagine will also state that under oath).

Silicone can, and has, caused many problems. It has been found as far away from the original site as the liver. Most will never have an issue regarding their implants, but after fighting BC, I would think one would want to know if something is not right. The ONLY way to check is by the use of an MRI.

If there is any reason a woman cannot have an MRI, she needs to be supplied with this information PRIOR to surgery. If reading my comment can prevent another woman from having to be put through the Hell I have, I will have done some good. (That nasty comment hurt me so much that I am seriously thinking of never posting another thing to this site.)

There have been many - MANY - lawsuits and awards given relative to silicone implants. If someone wants to read up on those cases, I would recommend spending a day (yes a day) in a law library reviewing both state and federal case law, and re-reading the paperwork required to be signed prior to implant surgery.

Contract law was where I excelled in law school. The word "Recommend" has far reaching legal meaning. Just think back to when you purchased a car. It was "recommended" you have your oil changed every 3,000 miles. If you fail to do this, your garantee was canceled.

Jean - Lumpectomy- 6/27/07, Chemo TC - 7/07, Mast/recon - 9/26/07 Chemo TC - 11/07 - 2 surgeries to correct infections, Exchange 3/5/07. repair surgery 5/2/08
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: May 15, 2008 06:37 pm

Longevity of saline implants?

Jade

I was not trying to scare anyone but attemping to answer the original question. I included a bit of information for anyone that may have a pacemaker. There is absolutely NO WAY a person with a PM can have an MRI, so our only choice is saline or being cut open from time to time to check for the silent leaks. Sorry if you think that is "scarying" some one, however it is the TRUTH and "IF" there are any PM patients they need to know that prior to implantation.

It is nice to hear from so many that their saline implants have not shrunk. and have lasted so long. I was not too concerned about shrinking as much as waking up one morning flat.  I have been told by 2 PS, my Onc, a breast surgeon and my PCP,  (all Beverly Hills physicans) that "most" saline implants last 7-10 years. As PMs must be replaced just about as often, I am hoping I can have them all replaced at the same time. I've had 6 surgeries in less than a year and need 2-3 more before this nightmare is over. The thought of an ER surgery for a flat breast is not something I am looking forward to.

I hope all of you, without many issues, realize how very blessed you are. I have been in terrible pain since this nightmare started. I had hope, like so many of you, that the pain would be over with the exchange...not so.  

Ruby - yes an employer can tell you what you can and cannot wear on the job. There are companies that require you wear a skirt/dress that is not above your knees,  or not allow pants. They may require you not to weaqr jewerly, especially earrings. Many machine operators are n ot allow to wear wedding rings, as they can get caught in the machine and trhe operator can and have lost fingers.

Jean - Lumpectomy- 6/27/07, Chemo TC - 7/07, Mast/recon - 9/26/07 Chemo TC - 11/07 - 2 surgeries to correct infections, Exchange 3/5/07
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: May 10, 2008 02:01 am

Longevity of saline implants?

Ruby

I am an attorney and believe me if you ever develope an issue with regards to your implants and have not been following the "recommended" procedures to the letter (MRI - every 2 years) you will have no recourse. Read Sherry's comments. You didn't mention the almost 30% chance of requiring surgery within the first three years...re-read the book! 

I have been fighting BC and believe me, even if I could keep silicone, I would not. It's just not worth the chance of developing another life threating illness. Saline has no side effect if it leaks - other than going flat. However as it will eventually leak, I think it will be better to replace them at a time that best suits me. I don't want to go flat on a well needed vacation, or in the middle of a Court case. It also could take weeks or even months, to get in to see the PS and get on their OR schedule. That doesn't even address any health issues that may come up and prevent surgery.  

Jean - Lumpectomy- 6/27/07, Chemo TC - 7/07, Mast/recon - 9/26/07 Chemo TC - 11/07 - 2 surgeries to correct infections, Exchange 3/5/07
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: May 9, 2008 02:48 am

Longevity of saline implants?

Ruby I must respectfully disagree. The US Gov is doing a 10-year follow up on all silicone implants since placed back on the market. There is a document that must be signed prior to the implant surgery. Some may perfer not to have the MRI's complete as "recommended". However after everything I have gone thru with BC, I sure don't want to die from a silicone "silent leak".

On of the major "pluses" for silicone is not requiring a replacement once a decade as do the saline. (Even without a major leak they slowing shrink) I am not sure that would be enough of a reason for me to maintain the silicone implants, even if were NOT against all medical authorities, to have them implanted along side a pacemaker. 

Jean - Lumpectomy- 6/27/07, Chemo TC - 7/07, Mast/recon - 9/26/07 Chemo TC - 11/07 - 2 surgeries to correct infections, Exchange 3/5/07
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: May 7, 2008 04:50 pm

Longevity of saline implants?

Jade

Saline is not like silicone...they do need to be replaced. One good thing, in my opinion, is that when they spring a leak - you know immediately  - you go flat. Whereas with a silicone, it may be leaking for years before you know.

I am having my silicone implants (only weeks old) replaced next month with saline. Without the bi-yearly MRIs required for follow ups, there will be no way to know if I have a "Silent" leak. Silicone is NOT to be used on patients with pacemakers. My former PS decided to put in what ever he wanted regardless of medical issues, dangers and protocal.

Jean - Lumpectomy- 6/27/07, Chemo TC - 7/07, Mast/recon - 9/26/07 Chemo TC - 11/07 - 2 surgeries to correct infections, Exchange 3/5/07

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